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,

I am a registered nurse also with CMT and currently work with federally

injured employees. In 1999 I had both hands operated on and have more than

a nodding acquaintance with bracing. Talk to your pediatrician or

neurologist about a referral to a board certified orthopedic hand specialist

and get your son in to see him/her for further evaluation.

It is not uncommon for children to normally sleep with their hands/arms

drawn up and to curl them right back up in their sleep when you try to

straighten them out. Something to consider: Is he complaining of his hands

hurting, tingly

feeling, etc. when he wakes up? If not, it may not be posing a problem

right now, just something you are more aware of since there is a diagnosis

of CMT. Good Luck,

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