Invitation to have an entry in the MHRA Database of Health NGOs

[Guest guest]

Well - I am not sure whether it is the article today that has prompted this invitation, but I am certainly delighted and will take this up.

Luv - Sheila

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Dear Sheila

The Medicines and Healthcare products Regulatory Agency (MHRA) is inviting all national patient organisations, and other health-related NGOs, to be entered onto its new Database of Health NGOs. As you may know, the MHRA is the government agency responsible for ensuring that medicines and medical devices (or equipment) work, and are acceptably safe. For further information, see the footnote, below. The MHRA Database of Health NGOs is being set up in early 2008 to allow patient organisations and health NGOs to assist the MHRA in the conduct of its important public work.

We believe that your organisation may benefit from being involved in the work of the MHRA:

Firstly, your organisation may wish to have the opportunity to convey to the MHRA the views of your members (or the people you represent) on relevant issues and themes related to medicines and devices.

Secondly, your organisation can join many of your peer groups in helping protect patients from problems that may arise from medicines/devices (such as from counterfeiting, contamination, or poor manufacture). Sometimes, the continued use of such products can have serious consequences, and the MHRA needs to alert as many appropriate people about them as quickly as possible. By passing on to your members crucial MHRA safety information, or new facts about the effects on patients of medicines/devices, you will be doing a service to yourselves and your members and constituency. Even if you have no facilities for disseminating information, you might want to hear of topical safety problems before your members or constituents contact you about them.

Please rest assured that the MHRA does not intend to swamp you with information or requests. If there is no urgent safety information for your members or constituency, you will not get any. The MHRA will only ask for views about relatively important issues, and will only approach organisations that it believes may have an interest in such issues.

If you would like your organisation to be entered onto the Database, you need only complete a short entry form, below (which asks for overview information about your organisation, plus contact details). Your organisation’s details will remain confidential, and will be used by the MHRA solely for the purposes described in this email.

TO HAVE AN ENTRY IN THE MHRA DATABASE OF HEALTH NGOs, PLEASE CLICK ON THE FOLLOWING LINK: (I have removed this link).

We do hope that your organisation will welcome this opportunity to be involved with the Medicines and Healthcare products Regulatory Agency. The creation of the MHRA Database of Health NGO is being initially administered by PatientView, an independent researcher and publisher. In early 2008, PatientView will send out an email acknowledging receipt of the entry form and entry onto the Database. The MHRA Database of Health NGOs will become activated shortly after that.

If you have any further questions about the Database, please feel free to email Louise Oatham, Administrator [MHRA Health NGO Database], PatientView, on info@....

Kind regards,

Simon Gregor

Director of Communications,

Medicines and Healthcare products Regulatory Agency

10-2 Market Towers

1 Nine Elms Lane

London

SW8 5NQ

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