Re: CMT & Carpel Tunnel-To

September 5, 2002

:

I am going to a neuro-surgeon next week. My neurologist thinks

that I have carpel tunnel in my hands. It also appears that CMT may

be affecting my hands and arms now also. This will supposedly be

determined by the Dr. at the appointment. There is also a hand

hospital in Philadelphia that has a Dr. practising there that has

much knowledge about CMT. That is where I will be going for a second

opinion. My 11 years old son had nerve conduction studies done the

other day, and the only thing it showed was a decrease in the

sensitivity of the fingers on his hands. He will be going with me to

the Hand Hospital. I'll write more after my visit to see what the

Dr. says. Sharon

- In @y..., " johnsroom101 " <secureit@l...> wrote:

> My legs were always affected by the CMT, but over the past 2 or

> so years my arms and hands have been also affected. In May of

> this year with the help of my doctor I applied for SSDI. I am

> currently being sent to a neurologist though the disability board.

> After seeing my own MDA doctor he is now saying that on top

> of my CMT I have CLINICAL signs of carpel tunnel. Is there a

> sure fire test for this? And can they tell the difference.Plus I'm

> also wondering how the disabiliy board will look at this! The

> doctor told me that a surgical decompression MAY help, it is also

> possible that along with my CMT neuropathy that it will not help

> or be limited.

>

> As far as my hands shaking he stated that is part of the CMT and

> and he will not institute any medical treatment.I really don't want

> to have an operation that will not benefit me only beause it may

> be a way for the disability board to easily say I am not disabled.

> I can only use my hands for short periods before I can no longer

> hold things. Plus the pain and cramping in my hands and fingers

> add to the problem. There is also atrophy in both hands which is

> a marked condition of CMT. Does anyone else have these

> problems or can anyone give me advice?.....THANKS

>

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