Ribbons and information needed/Sharon

[Guest guest]

Sharon,

Yes, our for CMT Awareness Ribbon campaign started last July and

continued through the year. This July we are trying something a bit

different, wearing the ribbons on July 26, which also coincides with the

Americans With Disabilities Act.

If you'd like a ribbon, please email me privately (address above) after

July 10. Ribbons are sent 'snail mail' so when you email me, please

enclose your address. There is also a file on Ribbon Awareness in our

'files' section that will fill you in on more.

I have burning feet too, evenings, and when I can put those gel/freezer

packs on them, feels great. And oddly my feet seem to relax with the

cold!

For your son - maybe a pediatric neurologist, or going to an MDA clinic

for a checkup. You can find an MDA clinic near you through their site,

at http://www.mdausa.org Dystrophy and atropy are different, but the

MDA does help children and adults with their CMT needs. Also Shriner's

helps CMT children with CMT.

I will look forward to your email/ribbon request.

~Gretchen