Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Welcome to , BlaineJayJane and thanks for introducing yourself. You reminded me of something I forgot - about how I wore out the heels on my shoes, unevenly, and needed new school shoes mid-year. It is a shame you didn't get to try inshoe orthotics earlier. I tried Neurontin myself and found it helpful in many ways, but stopped it for my older med. that helps me better. For the fatigue, do you take naps, or get extra sleep? About PE: in the 1960's, I was excused from PE because of CMT, so am sure your daughter could get the same. (then I had PT at home) Also, have you thought of going to MDA - I think they will treat kids for less, or free, not sure, http://www.mdausa.org in the search box put in your zip code to find the nearest one. You are definitely NOT alone here in your CMT struggles! Again, welcome to the group! ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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