Nerve Biopsy on my son - to

[Guest guest]

In a message dated 8/26/2002 7:20:24 PM Pacific Daylight Time,

little_bandit99@... writes:

> yes i can understand keeping them from painfull tests

> when possible but there is MS

Hi , I thought MS was dxed by an MRI?

How did the rest of your family get the Diagnosis of MS? Is their MS mild?

[Guest guest]

In a message dated 8/26/2002 7:20:24 PM Pacific Daylight Time,

little_bandit99@... writes:

> then if i have the test and it turns out

> nothing can be done and that we know no more then than

> we do now it would all have been for nothing and i

> would regret it. i just dont know.

>

> renee

>

I can understand that.

I worry that the biopsy will make my kids worse. But I know they have CMT.

[Guest guest]

yes i can understand keeping them from painfull tests

when possible but there is MS in my family and they

would like to rule that out. and any other possible

disorders. this is what makes the decision so hard for

me. if it turned out later down the road not to be CMT

but another treatable disorder i would then blame

myself but then if i have the test and it turns out

nothing can be done and that we know no more then than

we do now it would all have been for nothing and i

would regret it. i just dont know.

renee

- what about asking the Drs. to do an MRI on your

son - it is not painful, just noisy, and MS signs appear

on the brain, and your son wouldn't need the biopsy

perhaps. Someone on this list once mentioned that a

child can be moderately sedated for an MRI (just to

quell the noise) - my last MRI, I took earplugs. Good

luck with your decision. ~ Gretchen