Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi , Best of luck with your nerve biopsy. I have had absolutely no problems with anything since my sural nerve biopsy in 1987. As others have stated, relax, and all should go well. Blessings, P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 My husband had the nerve biopsy when he was three and has had no problems because of it and my daughter who is now 6 has DNA testing as the doctor said that it was a lot less painfull. She was only 1 when the blood tests were done but we were postive she had it as she showed all the same symptoms as her father, so it was more just a thing to make it definite. Thanks. Kerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 To Kruser: Yes, you did do the right thing for yourself! While no one likes to undergo invasive procedures, sometimes those procedures are necessary. You've been in my thoughts. Blair You are not alone with ! Recent Neurocast Statistics show 50% of us have CMT Type 1; 20-40% of us have CMT Type 2; 10-15% of us have CMT Type X; And 20% of us show NO family history. For more information on these and other statistics, visit http://www.neurocast.com and click on 'previous sessions'. Look for the title " Diagnosing Peripheral Neuropathies " . is Charcot Marie Tooth Universal Services - for you, your loved ones, the medical and scientific community, and anyone who wants to learn how CMT/HMSN affects each of us through experiential sharing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 , I, too had a normal sural nerve biopsy, but my muscle biopsy was abnormal. That lead my neurologists at Mayo Clinic to my diagnosis of Distal Predominant Motorneuronopathy. (A disease of my lower motor neuron; in the same family as Lou Gehrig's disease, but not fatal.) Originally it was thought that I had CMT, because many of the symptoms are almost identical. Don't give up searching for answers. K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 Wow!!! Our 14yr old daughter is having a muscle biopsy in a week. Could you tell me where your nerve biopsy was done. How long of a recovery. They think she has cmt and also a artritis conditon called polyomytois. Thanks for the post. Faye in Fla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Mine was done on the out side of my foot just above the ankle bone. A 2 1/2 inch incision. Took the doctor a while to find the nerve. He was surprised that I didn¹t feel him cut it cause even if you numb things he told me when they make the cut people usually jump. I didn't. I don¹t have feeling on the top of my foot and parts of the bottom of my feet. Mine is still healing. It hurts. The skin is really tight so now that the wound is looking better I'm putting vitamin E on it to help the skin stretch. The procedure didn't hurt for me but afterwards it hurt really bad. I'm still walking funny cause I'm feeling less. I¹ve been soaking my foot in epson salts at night and keeping it elevated cause it still swells up. This is three weeks after the procedure. For me I'm kinda disappointed that I¹ve gone through this and it came back normal. , Denver CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 In a message dated 2/26/2005 8:32:41 P.M. Pacific Standard Time, cbentzin@... writes: " It is no longer necessary to do nerve biopsies for diagnosing CMT Well that is good news. I never let anyone biopsy my nerves. I could never see the reason for it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 WOW, That is great news about skin biopsies for diagnosis of CMT. Especially at this time when it appears a couple of my children (we have 5) may be showing signs of CMT. It certainly would be easier than an EMG/NCV study also. P. Quote Link to comment Share on other sites More sharing options...
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