Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Welcome to you and thank you for introducing yourself. I just recently clarified the MD/CMT issue in a earlier post this week, but since you just joined, I will repeat: CMT is a disease of atropy. In atropy, muscles start out normal and healthy. The disease progression brings on atropy. MD is a disease of dystropy, meaning the muscles were never normal or healthy to begin with. So yes, CMT is completely different from MD. And yet, the good people at the MD Association include CMT as one of the many neuromuscular diseases that they research and try to treat. Many persons with CMT seek and receive help from MDA clinics. I am so sorry you are having insurance difficulties. Does your State have a 'major risk insurance pool' where people can be insured? If you are in California, as I am, we have that; although there is now a 18 month waiting list. I hope will help educate you on CMT disease so that you may have the right information. Take a look at our 'bookmarks' section for CMT information. You didn't say which type you have or when you were diagnosed, so I am not sure how else I can help at this point. You did say you were disabled, so if you receive disability, you should also be receiving Medicare for your health insurance. Again, welcome to the group. ~Gretchen/Moderator Why are we so positive? Because at we know that 'positive' means: People (with CMT) Outsmarting Stress in Togetherness (and) in Victory Experientially. is Charcot Marie Tooth Universal Services - for you, your loved ones, the medical and scientific community, and anyone who wants to learn how CMT/HMSN affects each of us through experiential sharing. Quote Link to comment Share on other sites More sharing options...
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