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balance and darkness

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I was thinking about what Joan (I think) said about being in her house

in the dark and being so familiar with things, that she can be OK with

the balance issue. Then, Liz, after reading your post about jumping on

your horse with your eyes closed, I was thinking that maybe in familiar

situations, even in darkness, maybe we are OK because of familiarity.

I'm like that in my house, too - familiar, however, there is no telling

where my dogs have put a toy, ball or bone, even though I try to keep

their toys picked up - I don't want to fall over a ball or bone or

something, so the nightlights in the halls help me.

One job I had 6 years ago and worked at least 4 nights a week. Stairs to

my office I could do in the dark fine at a regular-fast pace up and down.

There must be a 'sense of the familiar' that takes over, maybe? Or perhaps

the 'sense of the familiar' IS trust, like you said Liz?

~ Gretchen

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  • 8 years later...

Hey all,

I too have balance issues in the dark. I remember my parents have these cute

little lights around there house in the hall way at about 1 foot off the floor.

I loved these lights because they lit up enough of the floor, that you could see

if there was anything you would trip over in your way. I now " wall surf " in the

hall way, because I don't know if someone has left a chair pulled out. In my

bedroom, my husband and I have a cedar chest that belonged to his mom. I have to

go wide around it because I fall into it if I do not. I memorize the layout of a

room, and if it gets changed, I am in trouble because I run into stuff. Does

anyone else have this problem?

Nina in Stockton, CA CMT Type 2A and Mitochondrial disease

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Why not get those cute little light yourself. They are called night

lights and you can buy them at any hardware store and fancier ones

online. They have sensors and don't go on until the hallways and rooms

get dark. I'll bet they've saved many a trip and/or fall.

Good luck.

CMT2a

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Hi Nina,

It's only when I travel and in hotel rooms I get disoriented. So I always pack a

night like and plug it in first thing when I get unpacked. Really helps. It goes

on automatically when the room gets to a certain darkness.

Growing up, my family always had nightlights. One in the kitchen, one in the

upstairs bath. This just wasn't for me and my CMT, this was just what the

parents did. Was also great when we were coming home late at night, the backdoor

opened into the kitchen where we could adjust our sight, and also get upstairs

with some light. I guess this was just common sense.

Kind of like the old Motel 6 advertisement " we'll leave a light on for you " ! lol

Gretchen

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Nina, I'd bet that almost all CMTers have balance issues to one degree or

another. A friend loaned me a hiking, or trekking pole that provides just that

tiny extra bit of assistance when moving around.

I was surprised as to the difference it made after I first tried it.

Dick

Denver

Type 1A

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We have night lights all over my house just because of my night-sight issues. I

even had lights specifically wired on my stairs to the upper level just because

of that! Our bedroom as nightlights next to my side, on the wall leading to the

bathroom, in the bathroom... You are SO not alone in this!

Mark, 48, NJ CMT1A

>

> Hey all,

>

> I too have balance issues in the dark. I remember my parents have these cute

little lights around there house in the hall way at about 1 foot off the floor.

I loved these lights because they lit up enough of the floor, that you could see

if there was anything you would trip over in your way. I now " wall surf " in the

hall way, because I don't know if someone has left a chair pulled out. In my

bedroom, my husband and I have a cedar chest that belonged to his mom. I have to

go wide around it because I fall into it if I do not. I memorize the layout of a

room, and if it gets changed, I am in trouble because I run into stuff. Does

anyone else have this problem?

>

> Nina in Stockton, CA CMT Type 2A and Mitochondrial disease

>

>

>

>

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