Guest guest Posted July 4, 2000 Report Share Posted July 4, 2000 Jana- so gladto see you back. Was starting to get worried. Wish I could help with your pain. Could it be gall bladder? Praying for you. ne >From: janalise <serene@...> >Reply-egroups >egroups >Subject: hello and help >Date: Tue, 04 Jul 2000 18:52:24 -0600 > >I tried to get an e-mail to you all from a friends computer - guess it >didn't >get sent... my PC is on the fritz... already lost soooo much... anyway, >Jack it >was so sweet of you to call. I know you tried a few other times, too - I >was >home in bed and alone and didn't get up for the phone. > >During this unwelcome period of cyber silence, I realized life will go on >after >I leave here... it was a humbling thought. buried a woman my age >yesterday. She was feeling better than me recently... scary times. > >The doc in Chicago says the leg has to go. So does the neurologist... > >ANYWAY I HAVE AN URGENT PROBLEM... and please don't tell me to go to the ER >- >cuz the worst doc in all of Iowa is on call tonight. > >I have a pain. > >It started about 10 days ago. I had it for a morning and part of an >afternoon... It was in my left ribs/side, hurt worse to breathe... had a >chest >Xray and it showed my heart is enlarged. It settled down and then a few >days >later I had chest pain over my sternum to the right a bit. I sweated, >barfed >and felt a bit better. Now the pain is back and it is so severe I can't >move... >I have taken all the pain meds I dare take... and visualized till I am >blue... >Also, I twitch and jerk frequently . Please someone help me... Also, I have >a >rash on my leg - the bad one - could it be more infection??? It itches >something terrible and I am about to go insane with pain and itchies... > >I have adjusted to life in the chair, and will tell you more later. I have >to >go chew some morphine... > >I MISSED YOU ALL & AM HAPPY HAPPY TO BE HERE!!!janalise ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2000 Report Share Posted July 5, 2000 In a message dated 7/4/00 7:44:49 PM Central Daylight Time, serene@... writes: << It started about 10 days ago. I had it for a morning and part of an afternoon... It was in my left ribs/side, hurt worse to breathe... had a chest Xray and it showed my heart is enlarged >> Janalise, OMG!!!! I'm so sorry to hear that! Do you have diabetes? Maybe the water retention has enlarged your heart? Don't get paranoid-I'm no doctor! I really hope you are feeling better soon! Maybe the rash is from moving around a lot ?(Rubbing against your clothes?) I'm sending many hugs and prayers!!!! xoxo ^,,^ >:< **** @lison " Copywight 1994 Elmer Fudd. All wights wesewved. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 You are going to LOVE VEGAS!!! I went there for the 1st time in July, after having gotten myself into some pretty darn good shape, and had the time of my life. You will not believe what a wild and fun place it is. Where are you staying? The workout facilities at our hotel, The Venetian, were phenomenal. I had the best workouts everyday. My husband is there right now and I just talked to him. He's already planning for us to go back. You will be in shock when you see what it's like. FUN, FUN, FUN!! And it's not " cheap and slutty " like you always see in movies. As for workout....you don't have a treadmill at home? How about doing an intense step aerobic video? What about running outside? Whatever you do, remember, it has to be intense. That's where you get your results from. Good Luck and Have Fun! littlebit_102000 <no_reply > wrote: Hi ladies, just thought I would check in and see how things are goig around here. I don't get a chance to post much anymore, but I do try to read them everyday. Congrats to all who are doing so well, that is great! Need a little advice here now. I am headed to Vegas on December 8, my first time there! I know there is no 'miracle " that is going to make me drop the last 20 pounds by then, but I also don't have many options for workouts either. Currently I am commuting 1 hour each way to go to work, my gym is in the town where I work, but I only get an hour for lunch, and it takes me 20 minutes to get to that side of town. Weights aren't too much of a problem as my boyfriend has a set at home that I can use. Any suggestions for an early morning cardio that I can do that won't wake him OR the neighbors up? I would really like to look good for this trip, well and for the rest of my life, but need a " jumpstart " in 4 weeks. ANy good ideas? Thanks in advance, hope everybody has a WONDERFULL WEEK-END!! Beej Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Beej - I like the Tae Bo 2004 dvd's and The Firm dvd's for at-home cardio if the weather isn't good and I have no access to machines (like when I was at my sisters' last week). If the weather is good, I recommend adding a HIIT walk/jog/run (depending on the shape you are in) and if you can get some hills in there, all the better. Kathy _____ From: littlebit_102000 [mailto:no_reply ] Sent: Saturday, 13 November, 2004 4:15 PM Subject: Hello and Help Hi ladies, just thought I would check in and see how things are goig around here. I don't get a chance to post much anymore, but I do try to read them everyday. Congrats to all who are doing so well, that is great! Need a little advice here now. I am headed to Vegas on December 8, my first time there! I know there is no 'miracle " that is going to make me drop the last 20 pounds by then, but I also don't have many options for workouts either. Currently I am commuting 1 hour each way to go to work, my gym is in the town where I work, but I only get an hour for lunch, and it takes me 20 minutes to get to that side of town. Weights aren't too much of a problem as my boyfriend has a set at home that I can use. Any suggestions for an early morning cardio that I can do that won't wake him OR the neighbors up? I would really like to look good for this trip, well and for the rest of my life, but need a " jumpstart " in 4 weeks. ANy good ideas? Thanks in advance, hope everybody has a WONDERFULL WEEK-END!! Beej Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2004 Report Share Posted November 14, 2004 Beej, Can you get out of the house for a quick walk/run in the morning? That would be the best thing. Otherwise, if you're looking more toward home video workouts, I've tried the firm step videos & they work great! I think they're all an hour long, which is too long for me....but I've seen some really great results from doing them! Hope this helps, Janel > > Hi ladies, just thought I would check in and see how things are goig > around here. I don't get a chance to post much anymore, but I do try > to read them everyday. Congrats to all who are doing so well, that > is great! > Need a little advice here now. I am headed to Vegas on December 8, > my first time there! I know there is no 'miracle " that is going to > make me drop the last 20 pounds by then, but I also don't have many > options for workouts either. Currently I am commuting 1 hour each > way to go to work, my gym is in the town where I work, but I only get > an hour for lunch, and it takes me 20 minutes to get to that side of > town. Weights aren't too much of a problem as my boyfriend has a set > at home that I can use. Any suggestions for an early morning cardio > that I can do that won't wake him OR the neighbors up? I would > really like to look good for this trip, well and for the rest of my > life, but need a " jumpstart " in 4 weeks. ANy good ideas? > Thanks in advance, hope everybody has a WONDERFULL WEEK-END!! > > Beej Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 If you are looking for an inside video, the following are Interval Training and work well with BFL concepts: Cathe Friedrich www.cathe.com IMAX and IMAX2 Reebok Gin 's Intense Moves www.reebok.com Most of the Taebos work pretty well also for 20MAS just adjust your pace accordingly. Colleen > > > > > Hi ladies, just thought I would check in and see how things are > goig > > around here. I don't get a chance to post much anymore, but I do > try > > to read them everyday. Congrats to all who are doing so well, that > > is great! > > Need a little advice here now. I am headed to Vegas on December 8, > > my first time there! I know there is no 'miracle " that is going to > > make me drop the last 20 pounds by then, but I also don't have many > > options for workouts either. Currently I am commuting 1 hour each > > way to go to work, my gym is in the town where I work, but I only > get > > an hour for lunch, and it takes me 20 minutes to get to that side > of > > town. Weights aren't too much of a problem as my boyfriend has a > set > > at home that I can use. Any suggestions for an early morning > cardio > > that I can do that won't wake him OR the neighbors up? I would > > really like to look good for this trip, well and for the rest of my > > life, but need a " jumpstart " in 4 weeks. ANy good ideas? > > Thanks in advance, hope everybody has a WONDERFULL WEEK-END!! > > > > Beej Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Hello, Here is my recipe. Works for me. Kombucha Recipe: You will need: 1 glass wide mouth glass jar with cap (Subway deli gives them away free - just ask them to put your name on one for you and hold it or else they will throw it away) 1 cup of white sugar 6 black teabags 3 quarts of water 1 stainless steel pot 1 SCOBY plus starter tea 1 plastic bag Place cup of sugar in pot. Add 2 cups of water. Bring to boil, let boil until sugar is dissolved. Remove from heat, and add teabags. Let steep for 5 minutes. While tea is steeping, measure 2.5 quarts or 10 cups of water into glass jar. When the tea has steeped, remove teabags and add hot tea to cold water in jar. The cold water will absorb the heat, so that it will not injure the SCOBY, which starts to die above 100 degrees F. Add the SCOBY and starter tea. Cover the jar with a plastic bag to protect the metal in the cap from rusting into the tea. (Contact with metal damages the brew). Cap the jar. Let ferment away from the microwave oven for at least 8 days, longer if you have candida or diabetes. It will take about 14 days for the brew to turn to vinegar. The first brew will take longer, the subsequent ones will be faster. It is thought that moving the SCOBY and the starter tea causes it to go into shock. Be sure to uncap the jar each day to give it air. Keep out of sunlight as the UV rays can kill the beneficial bacteria in the brew. From time to time, you may wish to dunk the SCOBY to ensure that it does not get mold; which is green, black, and/or fuzzy and often grows in circles. If you wish to make 1 gallon of kombucha, increase the amount of sugar to 1 and one third cup of sugar, 8 teabags, and the water added to 3.5 quarts. You will need another glass jar for the rest of the KT and another SCOBY. hello and help > Hello all I am just learning how to make Kombucha. Can someone tell me of > a > sight that has solid instructions. I am reading so many different things > I > am confused. I am even having problems finding a sun tea jar. Any > instructions would be appreciated. > > Gisele and Einstein > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 In our area we can only find sun tea jars during the summer. But you can brew it in any jar--I use empty gallon pickle jars. Here are some websites http://www.happyherbalist.com/brewing_kombucha.htm kombucha tea/ http://w3.trib.com/~kombu/FAQ/homeFAQ.html http://www.bluemarble.de/Norbert/kombucha/Recipe/recipe.htm HTH CherylC ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.11.6/111 - Release Date: 9/23/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 This is so helpful. It seems amazingly complex to learn this information. Once again thanks Gisele and Einstein -- Re: hello and help Hello, Here is my recipe. Works for me. Kombucha Recipe: You will need: 1 glass wide mouth glass jar with cap (Subway deli gives them away free - just ask them to put your name on one for you and hold it or else they will throw it away) 1 cup of white sugar 6 black teabags 3 quarts of water 1 stainless steel pot 1 SCOBY plus starter tea 1 plastic bag Place cup of sugar in pot. Add 2 cups of water. Bring to boil, let boil until sugar is dissolved. Remove from heat, and add teabags. Let steep for 5 minutes. While tea is steeping, measure 2.5 quarts or 10 cups of water into glass jar. When the tea has steeped, remove teabags and add hot tea to cold water in jar. The cold water will absorb the heat, so that it will not injure the SCOBY, which starts to die above 100 degrees F. Add the SCOBY and starter tea. Cover the jar with a plastic bag to protect the metal in the cap from rusting into the tea. (Contact with metal damages the brew). Cap the jar. Let ferment away from the microwave oven for at least 8 days, longer if you have candida or diabetes. It will take about 14 days for the brew to turn to vinegar. The first brew will take longer, the subsequent ones will be faster. It is thought that moving the SCOBY and the starter tea causes it to go into shock. Be sure to uncap the jar each day to give it air. Keep out of sunlight as the UV rays can kill the beneficial bacteria in the brew. From time to time, you may wish to dunk the SCOBY to ensure that it does not get mold; which is green, black, and/or fuzzy and often grows in circles. If you wish to make 1 gallon of kombucha, increase the amount of sugar to 1 and one third cup of sugar, 8 teabags, and the water added to 3.5 quarts. You will need another glass jar for the rest of the KT and another SCOBY. hello and help > Hello all I am just learning how to make Kombucha. Can someone tell me of > a > sight that has solid instructions. I am reading so many different things > I > am confused. I am even having problems finding a sun tea jar. Any > instructions would be appreciated. > > Gisele and Einstein > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 I couldn't find info on the trial # Kim gave and maybe can't until finished and findings are in and published maybe someone else can be more successful. Trials are in different types stages and categories of development with HCV meds on the market in different settings or new tx's drugs in stages of development each trial with it's own set of criteria - risk factors - blind or with placebos. I admire the brave people who take part in trials that pave the way for medical development and research. At this point in time all of us are paving the way for the people with HCV that follow us. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2007 Report Share Posted April 10, 2007 The following people are listed on the International Kombucha page as sharing scobys. * Australia Australien* * n Gray* PO Box 1264 Springs 0835 Northern Territory Australia e-mail: marion@... Webpage www.kombuchacultures.com Registered 24.01.2006 Fat Plump Kombucha Cultures with plenty of starter liquid. Mailing: In Australia $15.00 posted. * ** Australia Australien* * Bill Herbert* POB 1422 2480 Lismore NSW Australia e-mail: kuijb@... Kombucha Babies. * ** Australia Australien* * bet * 6010 Perth West Australia Australia e-mail: elisabetmiller@... Kombucha Babies. Mailing not yet. * ** Australia Australien* * Jane Cairns* 6176 West Australia Australia e-mail: janecairns@... Kombucha Babies for free. No Mailing. * ** Australia Australien* * Mrs Vashti Wood* 5000, Adelaide South Australia Australia e-mail: vashtiwood@... Kombucha Babies in starter tea. Also Mailing. Babies are sent for the cost of postage and/or freight. * ** Australia Australien* *Trevor Pyman* PO Box 140, Angaston 5353 Australia e-mail: ozpy@... Webpage www.kombuchaustralia.com Hope that helps! On 4/10/07, Joan Kilgannon <joan.k@...> wrote: > > Hello I'm Joan. I have just joined the group. I live near Mackay NQ > Australia. > I've been doing a lot of reading (Internet) on KT. My problem is > because I live in the middle of nowhere, I don't know anybody who uses > KT. I have ordered a bottle of KT from a health food store, threads of > culture are floating in it. My question is can I start brewing using > this? Is there a way I can begin my own scoby? If so how? > Or do I need to find a scoby from another source. Thanks in advance Joan > -- Live and Love Well, Sandy http://www.dragondiscounts.com http://www.cafepress.com/alternativelove http://www.cafepress.com/mystreas http://www.cafepress.com/twinkymind Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2007 Report Share Posted April 10, 2007 Hi There is a Kombucha exchange Go there: http://www.kombu.de/suche2.htm#australia You can also order the Kombucha culture from some people on this very forum. I got mine from Anahata Balance http://store.anahatabalance.com/komustki.html and have been extremely pleased by the results Once you brew your very first KT it usually produces another SCOBY which all by it own self can brew more KT.. Every brew produces another SCOBY, a baby, EVERY TIME.. You will soon have more SCOBYs than you'll know what do with... Good Luck Frantz Joan Kilgannon <joan.k@...> wrote: Hello I'm Joan. I have just joined the group. I live near Mackay NQ Australia. I've been doing a lot of reading (Internet) on KT. My problem is because I live in the middle of nowhere, I don't know anybody who uses KT. I have ordered a bottle of KT from a health food store, threads of culture are floating in it. My question is can I start brewing using this? Is there a way I can begin my own scoby? If so how? Or do I need to find a scoby from another source. Thanks in advance Joan --------------------------------- Food fight? Enjoy some healthy debate in the Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2007 Report Share Posted April 10, 2007 HI, Joan. Welcome! I've never done it, but I understand that you can brew from your bottle of kombucha, as long as it is raw and alive. It's been discussed on list before, and as well as I remember you can put it in a brewing container (if the one it came in is not suitable), cover it with a tightly-woven cloth, and let it sit at room temperature for 7 or more days. Some people also add some distilled white vinegar. If your starter kombucha contains live cultures a scoby will start to form. You can then use this scoby to brew by the recipes in the files section. Good luck! Bruce ****** “If you are irritated by every rub, how will you be polished?” Jalal ad-Din Rumi Hello and help culture are floating in it. My question is can I start brewing using this? Is there a way I can begin my own scoby? If so how? Or do I need to find a scoby from another source. Thanks in advance Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Hi Rose Is it that your son have little if any social life that you are concerned about? Or is it that the other kids harassing him? Or something else? If it's the first, relax... that's a normal state for an Aspie, dealing with people is at its best taxing for Aspies even very high functioning ones. It's likely that a day at school is as much human contact as he can tolorate... Have you ever been to Mardi Gras in New Orleans (before the flood)... It's a mad house even for NT's for an aspie it's hell, I grew up in NewOrleans so I know... For an aspie a day at school is as taxing as being on Canal Street on Mardi Gras day... he needs to decompress. So don't force him into social settings he does want... If he's being harassed he'll need the decompression time even more... listen to him, be supportive but encourage him to find a way to deal with his tormenters on his own. Getting or giving a bloody nose can frequently be the foundation of a friendship the trick is to not let a pushing match turning to a brawl. It sounds hoaky but make it an " Affair of Honor " so it can be supervised and controlled so no one gets hurt. who gets his nose blooded doesn't matter standing up to the bully exchanging a couple of punch (I forgot to mention put boxing gloves on both kids) and not running away in tears... will get him some respect from his peers and hopefully the bully... based the couple of controlled fights I had as a kid the respect I got afterwards was more than worth the bloody noses. That was back in the mid '60s, I don't know if that will play today there are a lot more mindless thugs around now. I was a short chubby nerdling, a poster boy for the techno-deweebs that grew up to make the world what it is today... I'm not sure if that is something to be proud of or not... If it's something different that you are worried about something else give us some background on what it is... Ender At 09:58 AM 7/17/2007, you wrote: >Hi everyone, My name is Rose and I am the parent of a 14 yr old with >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too >many doctors to count we hope we have a correct diagnoisis. Here is >one of our many issues with our boy. My biggest concern is trying to >help him deal and find a way to handle the social aspects of life >while also maintaning his wonderful personality and intelligence. the >reason I joined this group is because of the information pages and >what they contained. I love the fact that this group is based on the >fact that what my son has is not a disorder but rather an asset. I >need help on how to guide him to utilize this asset and make it work >for him in the real world. Any and all ideas are welcome and we are >more than willing to try to help him find his way. My fondest wish is >that my boy will be able to do what he loves and work in the real >world, at something he truly loves doing. thanks to all in advance >for any and all input. > >Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Hi Rose Is it that your son have little if any social life that you are concerned about? Or is it that the other kids harassing him? Or something else? If it's the first, relax... that's a normal state for an Aspie, dealing with people is at its best taxing for Aspies even very high functioning ones. It's likely that a day at school is as much human contact as he can tolorate... Have you ever been to Mardi Gras in New Orleans (before the flood)... It's a mad house even for NT's for an aspie it's hell, I grew up in NewOrleans so I know... For an aspie a day at school is as taxing as being on Canal Street on Mardi Gras day... he needs to decompress. So don't force him into social settings he does want... If he's being harassed he'll need the decompression time even more... listen to him, be supportive but encourage him to find a way to deal with his tormenters on his own. Getting or giving a bloody nose can frequently be the foundation of a friendship the trick is to not let a pushing match turning to a brawl. It sounds hoaky but make it an " Affair of Honor " so it can be supervised and controlled so no one gets hurt. who gets his nose blooded doesn't matter standing up to the bully exchanging a couple of punch (I forgot to mention put boxing gloves on both kids) and not running away in tears... will get him some respect from his peers and hopefully the bully... based the couple of controlled fights I had as a kid the respect I got afterwards was more than worth the bloody noses. That was back in the mid '60s, I don't know if that will play today there are a lot more mindless thugs around now. I was a short chubby nerdling, a poster boy for the techno-deweebs that grew up to make the world what it is today... I'm not sure if that is something to be proud of or not... If it's something different that you are worried about something else give us some background on what it is... Ender At 09:58 AM 7/17/2007, you wrote: >Hi everyone, My name is Rose and I am the parent of a 14 yr old with >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too >many doctors to count we hope we have a correct diagnoisis. Here is >one of our many issues with our boy. My biggest concern is trying to >help him deal and find a way to handle the social aspects of life >while also maintaning his wonderful personality and intelligence. the >reason I joined this group is because of the information pages and >what they contained. I love the fact that this group is based on the >fact that what my son has is not a disorder but rather an asset. I >need help on how to guide him to utilize this asset and make it work >for him in the real world. Any and all ideas are welcome and we are >more than willing to try to help him find his way. My fondest wish is >that my boy will be able to do what he loves and work in the real >world, at something he truly loves doing. thanks to all in advance >for any and all input. > >Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Hi Ender, It is a bit of missed social activies due to his lack of interest and inablility to handle large groups and is apathy and unwillingness to take on regular responsibilities of daily life, coupled with a huge sense of what is right and wrong in his eyes and being completely unable to comprimise. (There is are not any issues with bullies as of yet) He is better than he was we enrolled him in a special school called Hammitt (http://www.thebabyfold.org/progserv/hammittschool.html)and he has grown in leaps and bounds in the social area, but he craves friendship and has none in our town. I guess I just worry he needs so much but we are unable to fill those needs and it is very frustrating. i know I am blathering but it is so nice to talk to someone who knows what I am talking about. Currently he is on 3 medications and they seem to be working pretty well for him. concerta for the ADHD, Risperdal for the BIPolar and Neurontin for the skin sensitivity and the BiPolar. I have researched and researched the diagnosises, the medications, the doctors, the counselors and have learned a ton of information and some of the symptoms and signs are there just as with any " disorder " and some are not...it is a guessing game as to what will work with him and what will not. Beilieve me I know he is frustrated and feels like no one understands him, and to be honest most of the time we do not. There is s world and our world, I DO NOT want to change my funny, charming,intelligent, wonderful son, I do however, want to at least help him gain the skills that our society deems neccesary for him to exist in the world. .My main issues to cut to the chase are hygiene- (hairwashing is a 1 or 2 times every 2 weeks- a major battle, I believe it is due to hypersensitive skin...face washing, and brushing of teeth all are a major battles) and Changing of clothes on a daily basis. Ya know if I could get this part of it handled, I believe I could help him in other areas. Thanks for listening to me rant...lol. ROse > > >Hi everyone, My name is Rose and I am the parent of a 14 yr old with > >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too > >many doctors to count we hope we have a correct diagnoisis. Here is > >one of our many issues with our boy. My biggest concern is trying to > >help him deal and find a way to handle the social aspects of life > >while also maintaning his wonderful personality and intelligence. the > >reason I joined this group is because of the information pages and > >what they contained. I love the fact that this group is based on the > >fact that what my son has is not a disorder but rather an asset. I > >need help on how to guide him to utilize this asset and make it work > >for him in the real world. Any and all ideas are welcome and we are > >more than willing to try to help him find his way. My fondest wish is > >that my boy will be able to do what he loves and work in the real > >world, at something he truly loves doing. thanks to all in advance > >for any and all input. > > > >Rose > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Hi Ender, It is a bit of missed social activies due to his lack of interest and inablility to handle large groups and is apathy and unwillingness to take on regular responsibilities of daily life, coupled with a huge sense of what is right and wrong in his eyes and being completely unable to comprimise. (There is are not any issues with bullies as of yet) He is better than he was we enrolled him in a special school called Hammitt (http://www.thebabyfold.org/progserv/hammittschool.html)and he has grown in leaps and bounds in the social area, but he craves friendship and has none in our town. I guess I just worry he needs so much but we are unable to fill those needs and it is very frustrating. i know I am blathering but it is so nice to talk to someone who knows what I am talking about. Currently he is on 3 medications and they seem to be working pretty well for him. concerta for the ADHD, Risperdal for the BIPolar and Neurontin for the skin sensitivity and the BiPolar. I have researched and researched the diagnosises, the medications, the doctors, the counselors and have learned a ton of information and some of the symptoms and signs are there just as with any " disorder " and some are not...it is a guessing game as to what will work with him and what will not. Beilieve me I know he is frustrated and feels like no one understands him, and to be honest most of the time we do not. There is s world and our world, I DO NOT want to change my funny, charming,intelligent, wonderful son, I do however, want to at least help him gain the skills that our society deems neccesary for him to exist in the world. .My main issues to cut to the chase are hygiene- (hairwashing is a 1 or 2 times every 2 weeks- a major battle, I believe it is due to hypersensitive skin...face washing, and brushing of teeth all are a major battles) and Changing of clothes on a daily basis. Ya know if I could get this part of it handled, I believe I could help him in other areas. Thanks for listening to me rant...lol. ROse > > >Hi everyone, My name is Rose and I am the parent of a 14 yr old with > >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too > >many doctors to count we hope we have a correct diagnoisis. Here is > >one of our many issues with our boy. My biggest concern is trying to > >help him deal and find a way to handle the social aspects of life > >while also maintaning his wonderful personality and intelligence. the > >reason I joined this group is because of the information pages and > >what they contained. I love the fact that this group is based on the > >fact that what my son has is not a disorder but rather an asset. I > >need help on how to guide him to utilize this asset and make it work > >for him in the real world. Any and all ideas are welcome and we are > >more than willing to try to help him find his way. My fondest wish is > >that my boy will be able to do what he loves and work in the real > >world, at something he truly loves doing. thanks to all in advance > >for any and all input. > > > >Rose > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 " Hi everyone, My name is Rose and I am the parent of a 14 yr old with Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too many doctors to count we hope we have a correct diagnoisis. Here is one of our many issues with our boy. My biggest concern is trying to help him deal and find a way to handle the social aspects of life while also maintaning his wonderful personality and intelligence. the reason I joined this group is because of the information pages and what they contained. " Hi Rose. I am Tom, the creator of all these groups and the website you looked at. I think Ender did a good job of answering your question. I do have a few things to add though... 1) Make sure you watch his meds for the remainder of his adolescence. As his body changes, so will his mind, and as his mind changes, the effect the meds have on him will change. An AS kid whom I advocated for was quite a behavior problem until his meds were reduced. Now he is easy to get along with. If other kids see that he is on an even keel, he will find it easier to get along with them. 2) Recognize that he will never fully socially integrate, and part of this has less to do with a lack of social skills than it does with his body. Aspies may have sensitivities to taste, touch, smell, sound, and sight. These distractions can cause confusion in social situations where attention ought to be directed at the speaker. As you have seen with and Claude, simply going to the store can be a pain, and eye contact, something which is necessary for social contact, is also difficult. " I love the fact that this group is based on the fact that what my son has is not a disorder but rather an asset. " Those of us who post here function on different levels, but I would like to point out to you that here, in a " virtual " menu, we are quite chatty and sociable, don't you think? In real life, it is doubtful that we would be able to speak in a group like this, yet these conversations betray our intelligences. " I need help on how to guide him to utilize this asset and make it work for him in the real world. " Honestly, you need to scrap most efforts to try to get him to integrate socially, and provide him with all the learning materials he craves in his areas of interests. IF As is a disorder where social skills are lacking, God has made up for it by giving us strong perseverative skills in limited areas. These perseverative skills are a primary asset and ought to be developed wherever possible. " Any and all ideas are welcome and we are more than willing to try to help him find his way. " Go to www.midnightinchicago.com and find the " Media " link. Click on " Podcasts " and listen to the autism ones. They are very informative. More are on the way. In the meantime, please keep asking questions. You might also try joining the FAM Family Forum which is for parents of Aspies. As a rule, non-Aspies are not allowed here so we can have a sense of privacy, but as long as you get along with us, and be sociable you can stay. " My fondest wish is that my boy will be able to do what he loves and work in the real world, at something he truly loves doing. thanks to all in advance for any and all input. " Asperger Syndrome is on the autistic spectrum, and Asperger Syndrome actually presents itself as a spectrum of conditions, but many people with As can be quite successful if given the proper tools to develop their good qualities. Try to play to his strengths and don't waste too much time developing his weaknesses, especially in the areas of socializing. By the way, I am not a doctor, so everything I just said you ought to run past a professional. Tom Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 " ...coupled with a huge sense of what is right and wrong in his eyes and being completely unable to comprimise. " Right and wrong has to do with following rules as much as it has to do with morals and ethics. If the speed limit is 55 MPH and someone goes 57 to make sure they are going at least 55, your som is not really going to buy into that. It also has to do with holding other people accountable for doing what they say they are going to do. Let's say your son is now an adult Aspies and is placed in a job where he must work cooperatively with three other people to get a goal attained. The three others in the group work a little, socialize a littkle, work a little, socialize a little. But your son, being the Aspie he is, feels like he is not getting paid to chit chat, and if he is assigned a task, he wants to do the best job possible, and he sees an additional opportunity here. Since his boss is constantly checking on their progress, if his boss sees him with his nose to the grindstone, he will get good comments when the evaluation is over, and his fellow co-workers will not. So he works and works and works, and though it irks him that he is doing all the work, and his co-workers are just goofing off, (and are starting to make comments like " Don't work so hard. You'll make the rest of us look bad " , he keeps working anyway. They begin to rib him about being a brown noser. Your sign finds it hard to concentrate. They tell him to stop working because what " they " have produced is good enough. Yet he persists. Soon, the time allotted for this assignment comes to an end and the four of you report to the boss on what you have come up with. After the boss is done complimenting you all on the great job you have done, he takes your son aside. Your son is happy, knowing he is going to be complimented, and secretly hoping for a promotion. ....And the boss tells him that he is very disappointed with the failure to get along with his co-workers. He says that his training manual tells him that a happy worker is a productive worker and that since your son has made his co-workers unhappy, he has obviously prevented the finished project from being as good as it should have been. Your son protests, saying that HE was the one who produced the product. the others only contributed a small percentage of it, Most of the time they were just talking. But the boss says that every time he checked up on the group, your son always had his head burried in his work, and was obviously embarrassed about the fact that he could not fathom the width and breadth of this project. He also says that taking it out on his co- workers and trying to make THEM of all people look bad is in poor form, and that if he continues to do so, he can expect a poor performance review. So you see, two people can live side by side and see things quite differently. And the life your son has lived, does live, and will live, is quite unsuspected by most. NOTHING will change the social aspect of this problem, despite what they are teaching him at school. Again, the best thing you can do is help him to be a whiz at whatever he is best at so people have no choice but to rely on him. The result will be that he will find a job where his boss will say " That man is a royal jerk, and I'd fire him if I could because I just don't like him. But he sure knows his stuff, and I cannot afford to lose him. " " My main issues to cut to the chase are hygiene- (hairwashing is a 1 or 2 times every 2 weeks- a major battle, I believe it is due to hypersensitive skin...face washing, and brushing of teeth all are a major battles) and Changing of clothes on a daily basis. Ya know if I could get this part of it handled, I believe I could help him in other areas. Thanks for listening to me rant...lol. " Find out what it is about these activities that he hates so much. I think you ought to keep trying different shampoos and see what he likes. If you tavel, save the sample bottles they give you in the bathrooms and have him try them. See which ones he likes the most and stick with that brand. Face-washing might have to do with the texture of the washcloth. I like mine to be thick and cottony, not thin. With the tooth brushing, it could be that the toothpaste tastes too strong for him. I use " Tom's of maine " which is naturally flavored, and only slightly. It may also be the feel of the brush on his teeth. Changing his clothes every day should not be an issue. He takes them off before he goes to bed at night right? All he needs to do is put them in the hamper before he goes to bed or first thing in the morning. Tom Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Hello Tom, A heart felt thank you, the information is wonderful, In all my research I have not been able to talk to anyone who is AS and there in lies my frustration, how can I help him if I can not understand what it is he is. That being said i will take your advice and look at the pod casts and see about joining the group for non AS family members, but would still like to stick around and listen and ask for advice from you who understand what Mitch is going through on a daily basis. Yes all of you are very chatty and very inteligent as far as I can see. There are some very thought provoking conversations going on in here. All I can say is well done. I will take you up on your invitation to stay ;0) and please be assured all of you that I am not going to be posting a lot I really need to " see " into what it is Mitch " sees " and you all can help me with my quest, not so much to change him to conform but I like the idea Tom gave to strip away the socialtal notions and be who he was intended to be. What really ticks me off is that everyone we deal with insists that he conform and that just ticks me off... so what he likes to wear long pants and dress shoes... he looks nice and it makes him feel good... who cares what time of year it is... or if it is in fashion... I can go on and on... but won't... thanks for the input if anyone else has anything to share please do.... thank you for helping me. Talk to you soon. Rose > > " Hi everyone, My name is Rose and I am the parent of a 14 yr old with > Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too > many doctors to count we hope we have a correct diagnoisis. Here is > one of our many issues with our boy. My biggest concern is trying to > help him deal and find a way to handle the social aspects of life > while also maintaning his wonderful personality and intelligence. > the reason I joined this group is because of the information pages > and what they contained. " > > Hi Rose. I am Tom, the creator of all these groups and the website > you looked at. I think Ender did a good job of answering your > question. I do have a few things to add though... > > 1) Make sure you watch his meds for the remainder of his > adolescence. As his body changes, so will his mind, and as his mind > changes, the effect the meds have on him will change. An AS kid whom > I advocated for was quite a behavior problem until his meds were > reduced. Now he is easy to get along with. If other kids see that he > is on an even keel, he will find it easier to get along with them. > > 2) Recognize that he will never fully socially integrate, and part > of this has less to do with a lack of social skills than it does > with his body. Aspies may have sensitivities to taste, touch, smell, > sound, and sight. These distractions can cause confusion in social > situations where attention ought to be directed at the speaker. > > As you have seen with and Claude, simply going to the store > can be a pain, and eye contact, something which is necessary for > social contact, is also difficult. > > " I love the fact that this group is based on the fact that what my > son has is not a disorder but rather an asset. " > > Those of us who post here function on different levels, but I would > like to point out to you that here, in a " virtual " menu, we are > quite chatty and sociable, don't you think? > > In real life, it is doubtful that we would be able to speak in a > group like this, yet these conversations betray our intelligences. > > " I need help on how to guide him to utilize this asset and make it > work for him in the real world. " > > Honestly, you need to scrap most efforts to try to get him to > integrate socially, and provide him with all the learning materials > he craves in his areas of interests. IF As is a disorder where > social skills are lacking, God has made up for it by giving us > strong perseverative skills in limited areas. These perseverative > skills are a primary asset and ought to be developed wherever > possible. > > " Any and all ideas are welcome and we are more than willing to try > to help him find his way. " > > Go to www.midnightinchicago.com and find the " Media " link. Click > on " Podcasts " and listen to the autism ones. They are very > informative. More are on the way. > > In the meantime, please keep asking questions. You might also try > joining the FAM Family Forum which is for parents of Aspies. As a > rule, non-Aspies are not allowed here so we can have a sense of > privacy, but as long as you get along with us, and be sociable you > can stay. > > > > " My fondest wish is that my boy will be able to do what he loves and > work in the real world, at something he truly loves doing. thanks > to all in advance for any and all input. " > > Asperger Syndrome is on the autistic spectrum, and Asperger Syndrome > actually presents itself as a spectrum of conditions, but many > people with As can be quite successful if given the proper tools to > develop their good qualities. Try to play to his strengths and don't > waste too much time developing his weaknesses, especially in the > areas of socializing. > > By the way, I am not a doctor, so everything I just said you ought > to run past a professional. > > Tom > Administrator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Tom, Thank you for yet more insight... I think I have a basic idea- you know we (Mitch, his counselor, Mom & Dad) had already decided that his greatest interests are plants of all kinds espcially flowering or herbs... he is fascianted by landscaping and has many plans already drawn out and labled for when we have the funds to re create the back yard. We are trying to let him learn all we can about it and visit greenhouses all the time. I will take the advice about the toothpaste... He has complained about the taste and I bought milder and milder kinds.. nothing seems to work... he will use baking soda.. but complains of the taste as well. I will look online and see what I can find. I wonder about those new micro fiber washcloths... I think I will try them and see... Thnk you for all the input.. it is greatly appreciated. Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Rose... Oh those things... :-[ When I was a kid they were just starting to understand that the developmental problems of kids with autism were not the same as the problems of Downs syndrome kid... A much simpler time when kids were very bright, bright, average, a bit slow, or very slow. There were no learning disabilities, the idea for dyslexia wasn't fully accepted... the world of the Beaver, June Cleaver and Donna ... " try to remember when grass was green and grain was yellow.... " sorry it felt like the right place for a song... anyway all the problems kids have today were around then but they hadn't been named yet. They were problems kids had to find their own way to live with them and those that couldn't cope just rattled around until they were old enough to be let out... I ran afoul of my third grade teacher over an arithmetic drill that she graded in a odd way, 50 problems with a time limit if you got the right answer you got 2points, if you wrote something that could be an answer down you got 1point and that was where the rift started I would work my way through the sheet but never finish it getting 2/3 to 3/4 through when time was called.miss few if any answers... other kids would finish be get half of the answers wrong... I would turn in the most right answers but get the lowest grade because I didn't finish... Not understanding the flaw in her testing she decided that I was retarded... my forks went to bat for me and got complete mental work-up on me... and to the teachers shagreen Retarded one word that was in their description of me I didn't rate an invitation to Mensa but it was close I was reading and understanding nearly two yeas above grade level taken in total it was likely I was the smartest kid in the my abilities with number dwarfed my reading scores... Faced with the work-up say they should consider jumping me a grade or two they went back to the teacher to find out what was going on. After seeing the tests and saw the kid with the most right answers repeatedly getting the lowest grade they suggested that that her system of scoring the test was flawed because the point of an arithmetic drill was to get the correct answer so the most correct answer logically would rate the highest grade... The despised my after that,,, Since I was as short and chubby as I was they felt bumping to a higher grade lead to socialization problem so the school wanted me to dumb down to grade level (the start of " No child left behind " which if you wanted a more accurate name would be called " No child shall ever be permitted to excel " ) in the hope I wouldn't bring another teacher into the spotlight... In a lot of ways 40 years of ago I was sitting in about the same place your son is now... He wants to have peer relationship like he sees the other kids having but he realizes he's not quite like the other kids and because of that it's hard for him to find a place to fit in. Like Dirty Harry says (when he's not saying " make my day " ) " a man has got to know his limitations " As an Aspie its unlikely will be able to fake the social butterfly life style of normal teens and pushing for that illusion of being that just like any other kid is likely to lead him to retreat deeper in to his private world... When I get too stressed that's what I still do. In my current job I sometimes have to work trade shows... Walking up to a complete stranger, shaking his hand and talking to them is a strain at best and after doing it 10 or twelve hours I go back to my hotel room curl up in a fetal position and stim for a couple of hours before I can face the world again. ADHD and Bi-Polar that's a fun mix to deal with... I just claim depression, although it does a minor Bi-Polar component the manic phase never gets me high enough to not be depressed. Be supportive and encourage him to stretch his limits and test his wings but don't push. The hygiene issue... well do you know any other say 12-15 yo boys as I recall avoiding bath, clean clothes and tooth brushing for weeks at a time is something of a sport for them so right now it may not be a function of being an Aspie but a boy being a boy... But your right is can be an Aspie thing too. And I slip into that mode from time to time mostly when I've buried myself in a project or when I'm seriously depressed... sometimes I may appear to be were the same clothes for weeks at a time I'm not... IT's not unusual for my to buy a couple identical pairs of pants and 3 or 4 of the same shirt... when you find something that works for you hold on to it Uncle Al (Albert Einstein) is often cited as the originator of the style I think to go back at least to Isaac Newton or earlier... To get him in the shower and to change his clothes is try talking to him if you can find a compelling reason for him it's likely he will do it on his own. If that fails you could bribbing him to stay showered and in fresh clothes... I don't know if this helps any but I tried... Ender At 12:20 PM 7/17/2007, you wrote: Hi Ender, It is a bit of missed social activies due to his lack of interest and inablility to handle large groups and is apathy and unwillingness to take on regular responsibilities of daily life, coupled with a huge sense of what is right and wrong in his eyes and being completely unable to comprimise. (There is are not any issues with bullies as of yet) He is better than he was we enrolled him in a special school called Hammitt ( http://www.thebabyfold.org/progserv/hammittschool.html)and he has grown in leaps and bounds in the social area, but he craves friendship and has none in our town. I guess I just worry he needs so much but we are unable to fill those needs and it is very frustrating. i know I am blathering but it is so nice to talk to someone who knows what I am talking about. Currently he is on 3 medications and they seem to be working pretty well for him. concerta for the ADHD, Risperdal for the BIPolar and Neurontin for the skin sensitivity and the BiPolar. I have researched and researched the diagnosises, the medications, the doctors, the counselors and have learned a ton of information and some of the symptoms and signs are there just as with any " disorder " and some are not...it is a guessing game as to what will work with him and what will not. Beilieve me I know he is frustrated and feels like no one understands him, and to be honest most of the time we do not. There is s world and our world, I DO NOT want to change my funny, charming,intelligent, wonderful son, I do however, want to at least help him gain the skills that our society deems neccesary for him to exist in the world. .My main issues to cut to the chase are hygiene- (hairwashing is a 1 or 2 times every 2 weeks- a major battle, I believe it is due to hypersensitive skin...face washing, and brushing of teeth all are a major battles) and Changing of clothes on a daily basis. Ya know if I could get this part of it handled, I believe I could help him in other areas. Thanks for listening to me rant...lol. ROse > > >Hi everyone, My name is Rose and I am the parent of a 14 yr old with > >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too > >many doctors to count we hope we have a correct diagnoisis. Here is > >one of our many issues with our boy. My biggest concern is trying to > >help him deal and find a way to handle the social aspects of life > >while also maintaning his wonderful personality and intelligence. the > >reason I joined this group is because of the information pages and > >what they contained. I love the fact that this group is based on the > >fact that what my son has is not a disorder but rather an asset. I > >need help on how to guide him to utilize this asset and make it work > >for him in the real world. Any and all ideas are welcome and we are > >more than willing to try to help him find his way. My fondest wish is > >that my boy will be able to do what he loves and work in the real > >world, at something he truly loves doing. thanks to all in advance > >for any and all input. > > > >Rose > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 " Yes all of you are very chatty and very inteligent as far as I can see. There are some very thought provoking conversations going on in here. All I can say is well done. " Well, as I said earlier, we all have different levels of functionality, but we say and post here is what goes on inside our heads. The problem, as you say, is that most people cannot see inside our heads. I don't know if you have ever seen that old bugs bunny cartoon where this construction worker is tearing down a building, and in the cornerstone is a box. Within the box is a frog, who promptly gets out and dances and sings. The construction worker thinks there is money in this so he brings the frog to a talent agency, but all the frog will do there is " Brrrrrrrrrrrroooooooaaaaaaaaaaaaaakkkkkkkkkkkk! " Not dissuaded, the optimistic construction worker gathers together all the money he has and buys a theatre and sends out fliers. People rush in to see the frog, who is singing and dancing back stage, but when the curtain is lifted... " Brrrrrrrrrrrroooooooaaaaaaaaaaaaaakkkkkkkkkkkk! " He winds up taking the frog to the construction site and puts the frog in the cornerstone for the new building and seals it up. AS people are like that frog, and a select few people are like that construction worker. " I will take you up on your invitation to stay ;0) and please be assured all of you that I am not going to be posting a lot I really need to " see " into what it is Mitch " sees " and you all can help me with my quest, not so much to change him to conform but I like the idea Tom gave to strip away the socialtal notions and be who he was intended to be. " I think the more question you ask the better. If you just sit silently and watch, you may misunderstand some of the things that happen here. For instance, as you can see, we are in the midst of a number of conversations which might appear topical to anyone. But they are in fact reflective of our perseverative interests, which is why for example, you could go back three years and see is talking about pretty much the same things in many cases. Do we ever get tired of the same old things? Some do but many don't. " What really ticks me off is that everyone we deal with insists that he conform and that just ticks me off...' Well, there is no crime in wanting him to conform. The problem is that he can never completely conform. Recently, Scherer at Sick Kids Hospital in Toronto identified the GENES which autistics have. This means that we are built a certain way, and not much will change us in terms of therapy or medication. (No therapy or medication will change your eye color for example.) But medication does help with co-morbidities, and therapy helps to the extent that it can relieve stress and give us coping mechanisms to deal with the real world. The biggest misconception about AS people is that people think we are just social rejects who are not willing to make the changes necessary to fit in. That is untrue. Even when we make the changes, people sense enough differences in us that we just are not accepted. As much as society promotes tolerance, we can accept others, but others cannot accept us, which is why most of us struggle, except those like Bill Gates and Speilberg, who have AS and managed to break free of the reigns and harnesses put on them. This group is founded on the idea that we should all accept ourselves, but not be too complacent either. Most of us here have fashioned out some kind of living for ourselves, or at least have managed to find some online friends, or have become a bit more optimistic about ourselves, which in many cases is more than meds and therapy have done. Tom Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 " Thank you for yet more insight... I think I have a basic idea- you know we (Mitch, his counselor, Mom & Dad) had already decided that his greatest interests are plants of all kinds espcially flowering or herbs... he is fascianted by landscaping and has many plans already drawn out and labled for when we have the funds to re create the back yard. We are trying to let him learn all we can about it and visit greenhouses all the time. " Keep encouraging him. When I was twelve, I was doing the same thing. I cut five lawns, went around the neighborhood and trimmed trees and bushes, and drew up the plans for the backyard, which my father did not change one iota, and I relandscaped it. I had quite a business going and used the money I earned from it to pay for booksm room and board, and partial tuition at college for five years. For me, that was a passing perseverative interest, although I already have thoughts in my mind about how I would like to landscape the next house I purchase. Tom Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 " IT's not unusual for my to buy a couple identical pairs of pants and 3 or 4 of the same shirt... when you find something that works for you hold on to it. " I'm pretty much the same way. I've got a bunch of identical shirts. My dress shoes are all the same style also primarily because they feel great on my feet, but since I wore them every day to work I rotated them so that they would have time to " ait out. " Tom Administrator Quote Link to comment Share on other sites More sharing options...
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