Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 Kerry, That is the best thing about this site.... I do not feel alone... and that helps me more than anyone can imagine. Your son sounds sweet and just like my mitch.... ROse > > <snip>thank you Ender for your honesty. i have a clearer picture of > who > you are and that in the long run helps me help mitchell... yes you > are right, I do not want his Dx to become an excuse for him nor do I > want to label him as special needs, however, the stigmata attached > to any " mental defect " is huge and people look at me and say oh you > poor thing... then i get angry... I am not looking for a pity party > nor anyone's sympathy, I am trying to explain why Mitch is the way > he is... I usually give up and now I do not say anything at all > unless they bring it up. I feel like he needs to find his own way > with guideance from us... I do not want to dictate what or how he > should be doing things... I just want to see him do, and be happy. > If that means he plays video games for 8 hours straight and goes to > bed... so be it. (just an example of this past week, he is not > always like that, goes in spurts with the games, puzzles, chess, > japanese culture, ancient egypt and on & on..) however, his > interests are so eclectic and unusual for someone his age... it is > hard for him to find others like him. Oh, gee this is so > frustrating trying to explain it all. I know he gets lonley and > wants friends, but he also is happy to play lego's for hours on end > and has a hard time stopping to eat. Home is the safe zone... we > try to make it a place where there is no judgement and he can be > himself without recrimination...I am hoping that by doing this he > can expand on his interests and find something that suits him for > his choice of work... (leaning towards botnay, herbology, and > landscaping) > > Ok I just looked back at what I wrote... blathering... sorry... I > just have had no one to talk to about this who understands what he > is going through, what we are going through. Thank you for > listening... i am going to sign off for now. > > > > Rose > > Please blather on! My son is 13 and read this excerpt of your post > when I asked him too, he recognized himself there, sounds like two > peas in a pod:) He said *hey, that's me!* > > It has been too hot to go out for us, but we find things throughout > the day to occupy us. Went through a bunch of music files and > looked up some music info, Charlie then went on google earth and > looked up his home and went for a virtual *drive* to his > grandparents house and tracked my husband out to his job. After > touring the planet a bit, he moved back to music and created falling > sand scenes to match the themes of the songs he was listening to. > He played a few games he likes and then a repetitive word game for a > long time. Now he is back to his room for lego's, I might not see > him til dinner. > > When he is free flowing like this, there are no meltdowns, barely > any stress. Seems like recharge time after the demands of public > school and all. Interuptions are not welcome, but like me, if he > has to go somewhere he might put up a struggle but enjoy what we go > to do. > > I tend to leave him to do *his thing* because I am aware of how > important that is to me as well. As a married adult with three kids > I struggle constantly to try to find a balance between what needs to > be done and my perseverations, etc... The last five years have been > very difficult for me personally, with medical problems and outside > stressors. > > Kerry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 Kerry, That is the best thing about this site.... I do not feel alone... and that helps me more than anyone can imagine. Your son sounds sweet and just like my mitch.... ROse > > <snip>thank you Ender for your honesty. i have a clearer picture of > who > you are and that in the long run helps me help mitchell... yes you > are right, I do not want his Dx to become an excuse for him nor do I > want to label him as special needs, however, the stigmata attached > to any " mental defect " is huge and people look at me and say oh you > poor thing... then i get angry... I am not looking for a pity party > nor anyone's sympathy, I am trying to explain why Mitch is the way > he is... I usually give up and now I do not say anything at all > unless they bring it up. I feel like he needs to find his own way > with guideance from us... I do not want to dictate what or how he > should be doing things... I just want to see him do, and be happy. > If that means he plays video games for 8 hours straight and goes to > bed... so be it. (just an example of this past week, he is not > always like that, goes in spurts with the games, puzzles, chess, > japanese culture, ancient egypt and on & on..) however, his > interests are so eclectic and unusual for someone his age... it is > hard for him to find others like him. Oh, gee this is so > frustrating trying to explain it all. I know he gets lonley and > wants friends, but he also is happy to play lego's for hours on end > and has a hard time stopping to eat. Home is the safe zone... we > try to make it a place where there is no judgement and he can be > himself without recrimination...I am hoping that by doing this he > can expand on his interests and find something that suits him for > his choice of work... (leaning towards botnay, herbology, and > landscaping) > > Ok I just looked back at what I wrote... blathering... sorry... I > just have had no one to talk to about this who understands what he > is going through, what we are going through. Thank you for > listening... i am going to sign off for now. > > > > Rose > > Please blather on! My son is 13 and read this excerpt of your post > when I asked him too, he recognized himself there, sounds like two > peas in a pod:) He said *hey, that's me!* > > It has been too hot to go out for us, but we find things throughout > the day to occupy us. Went through a bunch of music files and > looked up some music info, Charlie then went on google earth and > looked up his home and went for a virtual *drive* to his > grandparents house and tracked my husband out to his job. After > touring the planet a bit, he moved back to music and created falling > sand scenes to match the themes of the songs he was listening to. > He played a few games he likes and then a repetitive word game for a > long time. Now he is back to his room for lego's, I might not see > him til dinner. > > When he is free flowing like this, there are no meltdowns, barely > any stress. Seems like recharge time after the demands of public > school and all. Interuptions are not welcome, but like me, if he > has to go somewhere he might put up a struggle but enjoy what we go > to do. > > I tend to leave him to do *his thing* because I am aware of how > important that is to me as well. As a married adult with three kids > I struggle constantly to try to find a balance between what needs to > be done and my perseverations, etc... The last five years have been > very difficult for me personally, with medical problems and outside > stressors. > > Kerry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 When everything here is running correctly (i.e. without trolls) we all seem to get along and be supportive of one another. Tom Administrator " That is the best thing about this site.... I do not feel alone... and that helps me more than anyone can imagine. " Your son sounds sweet and just like my mitch.... Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 When everything here is running correctly (i.e. without trolls) we all seem to get along and be supportive of one another. Tom Administrator " That is the best thing about this site.... I do not feel alone... and that helps me more than anyone can imagine. " Your son sounds sweet and just like my mitch.... Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 I just wanted to add something to my previous statement. If you are already feeling warm about this site, consider that this is how Aspies relate to one another when their lives are unobstructed by conflict. While Aspies and non-Aspies are different enough that a really deep and healthy friendship is unlikely, it is possible and can happen if there was understanding on the non-AS side. Aspies DO try to understand non-AS people, and lots of time we succeed. But we do not see much effort on the non-AS part, and so AS/non-AS friendships tend not to gel as much as we would hope. Tom Administrator " That is the best thing about this site.... I do not feel alone... and that helps me more than anyone can imagine. " Your son sounds sweet and just like my mitch.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 I just wanted to add something to my previous statement. If you are already feeling warm about this site, consider that this is how Aspies relate to one another when their lives are unobstructed by conflict. While Aspies and non-Aspies are different enough that a really deep and healthy friendship is unlikely, it is possible and can happen if there was understanding on the non-AS side. Aspies DO try to understand non-AS people, and lots of time we succeed. But we do not see much effort on the non-AS part, and so AS/non-AS friendships tend not to gel as much as we would hope. Tom Administrator " That is the best thing about this site.... I do not feel alone... and that helps me more than anyone can imagine. " Your son sounds sweet and just like my mitch.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 tom, That is really sad so many " NS " people are missing out on some really great relationships. what a loss for them.... but I do not feel bad- because I found all of you.... a fact I find incredibly amazing. Thanks. Rose > > " That is the best thing about this site.... I do not feel alone... > and that helps me more than anyone can imagine. > > " Your son sounds sweet and just like my mitch.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 tom, That is really sad so many " NS " people are missing out on some really great relationships. what a loss for them.... but I do not feel bad- because I found all of you.... a fact I find incredibly amazing. Thanks. Rose > > " That is the best thing about this site.... I do not feel alone... > and that helps me more than anyone can imagine. > > " Your son sounds sweet and just like my mitch.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 , Unfortunatly I do not have internet at home right now.... I have been out of work for 2 years... kinda puts a crimp in the budget if ya know what i mean. However, I have brought him to work and let him look around in here and he likes what he has seen so far.... Ideally I would like to be able to get internet back and let him join some groups... and go from there.... thanks for the input. Rose -- In , " greebohere " <julie.stevenson16@...> wrote: > > Hi Rose > > and welcome to the forum. > > I realise at this moment I am coming in late on this particular > discussion and have not read any of the other responses pertaining to > this (reading in order of posts here). However just wanted to ask > firstly, does your son want more social contact? > > My son is 13 (dx HFA) and in most part he likes social contact, but > only some - he fast realised that 'mainstream' children can be very > cruel - he has also realised some adults are not nice either :-( > > I was wondering if your son did want access to social contact then > perhaps other aspies? You perhaps own a computer what about your son > accessing online groups? > > > > > > > > > Hi everyone, My name is Rose and I am the parent of a 14 yr old > with > > Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too > > many doctors to count we hope we have a correct diagnoisis. Here > is > > one of our many issues with our boy. My biggest concern is trying > to > > help him deal and find a way to handle the social aspects of life > > while also maintaning his wonderful personality and intelligence. > the > > reason I joined this group is because of the information pages and > > what they contained. I love the fact that this group is based on > the > > fact that what my son has is not a disorder but rather an asset. I > > need help on how to guide him to utilize this asset and make it > work > > for him in the real world. Any and all ideas are welcome and we are > > more than willing to try to help him find his way. My fondest wish > is > > that my boy will be able to do what he loves and work in the real > > world, at something he truly loves doing. thanks to all in advance > > for any and all input. > > > > Rose > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Anything with buildings is fine... and yes I agree...stay out of the heat- heat indiesise (misspelled) in the high 90's ---stay cool... he really liked the graphic illusions as well... any art work or photo's are fine... let me know when you post something I will make sure he sees it. my email is rarazama62656@... thanks Rose In , VISIGOTH@... wrote: > > > In a message dated 7/31/2007 10:16:12 A.M. Eastern Daylight Time, > no_reply writes: > > by the way was fascinated by the art work and photos posted > here... (except for the nude- he said " ewww yuck next pic please " > under his breath...LOL) we printed a few for his walls and he was > interested in reading the Aspergian Miracle Web page as well, then > had to find cuniform writing to print so he could study it. Right up > his alley. > > Rose > > > > I believe that one was put up by a member in her own section. I haven't > looked at those in a long time though. > > The picture change now and then. I will put up some of my animal pictures > and pictures from my travels and the place in Alabama. If you are interested, I > could try to find some of those old pics and put up some, if you and your son > like pictures of buildings, like the old barns and churches. The pictures of > my collections are something new, mostly because I was looking for something > to do that didn't involve going out in the high summer heat. > > > > > > ************************************** Get a sneak peek of the all- new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Anything with buildings is fine... and yes I agree...stay out of the heat- heat indiesise (misspelled) in the high 90's ---stay cool... he really liked the graphic illusions as well... any art work or photo's are fine... let me know when you post something I will make sure he sees it. my email is rarazama62656@... thanks Rose In , VISIGOTH@... wrote: > > > In a message dated 7/31/2007 10:16:12 A.M. Eastern Daylight Time, > no_reply writes: > > by the way was fascinated by the art work and photos posted > here... (except for the nude- he said " ewww yuck next pic please " > under his breath...LOL) we printed a few for his walls and he was > interested in reading the Aspergian Miracle Web page as well, then > had to find cuniform writing to print so he could study it. Right up > his alley. > > Rose > > > > I believe that one was put up by a member in her own section. I haven't > looked at those in a long time though. > > The picture change now and then. I will put up some of my animal pictures > and pictures from my travels and the place in Alabama. If you are interested, I > could try to find some of those old pics and put up some, if you and your son > like pictures of buildings, like the old barns and churches. The pictures of > my collections are something new, mostly because I was looking for something > to do that didn't involve going out in the high summer heat. > > > > > > ************************************** Get a sneak peek of the all- new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 In a message dated 8/6/2007 3:38:39 P.M. Eastern Daylight Time, no_reply writes: Anything with buildings is fine... and yes I agree...stay out of the heat- heat indiesise (misspelled) in the high 90's ---stay cool... he really liked the graphic illusions as well... any art work or photo's are fine... let me know when you post something I will make sure he sees it. I've set up a section for building pictures. Just one there now, one of the barn and windmill at the old home place. Over the next few days, more will be posted, mostly from Buena Vista, but also from other places that I have been, like Mobile, AL, and ton, SC. Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 What an absolutely beautiful thing to post, Rose. Thank you. Raven > > tom, > That is really sad so many " NS " people are missing out on some > really great relationships. what a loss for them.... but I do not > feel bad- because I found all of you.... a fact I find incredibly > amazing. Thanks. > Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 What an absolutely beautiful thing to post, Rose. Thank you. Raven > > tom, > That is really sad so many " NS " people are missing out on some > really great relationships. what a loss for them.... but I do not > feel bad- because I found all of you.... a fact I find incredibly > amazing. Thanks. > Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 Thanks. > > > In a message dated 8/6/2007 3:38:39 P.M. Eastern Daylight Time, > no_reply writes: > > Anything with buildings is fine... and yes I agree...stay out of the > heat- heat indiesise (misspelled) in the high 90's ---stay cool... > he really liked the graphic illusions as well... any art work or > photo's are fine... let me know when you post something I will make > sure he sees it. > > > > I've set up a section for building pictures. Just one there now, one of the > barn and windmill at the old home place. Over the next few days, more will be > posted, mostly from Buena Vista, but also from other places that I have been, > like Mobile, AL, and ton, SC. > > > > > > ************************************** Get a sneak peek of the all- new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 Thanks. > > > In a message dated 8/6/2007 3:38:39 P.M. Eastern Daylight Time, > no_reply writes: > > Anything with buildings is fine... and yes I agree...stay out of the > heat- heat indiesise (misspelled) in the high 90's ---stay cool... > he really liked the graphic illusions as well... any art work or > photo's are fine... let me know when you post something I will make > sure he sees it. > > > > I've set up a section for building pictures. Just one there now, one of the > barn and windmill at the old home place. Over the next few days, more will be > posted, mostly from Buena Vista, but also from other places that I have been, > like Mobile, AL, and ton, SC. > > > > > > ************************************** Get a sneak peek of the all- new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 You are welcome... and I meant every single word.... have a wonderful day. Rose > > > > tom, > > That is really sad so many " NS " people are missing out on some > > really great relationships. what a loss for them.... but I do not > > feel bad- because I found all of you.... a fact I find incredibly > > amazing. Thanks. > > Rose > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 You are welcome... and I meant every single word.... have a wonderful day. Rose > > > > tom, > > That is really sad so many " NS " people are missing out on some > > really great relationships. what a loss for them.... but I do not > > feel bad- because I found all of you.... a fact I find incredibly > > amazing. Thanks. > > Rose > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 My name is and I am sorry that I have not introduced myself before now but this computer stuff is all very new to me! I was diagnosed with CFS 5 years ago, after years of being unwell, and have steadily become more unwell since. Last July I discovered Dr P and he has been trying to help me ever since. I have problems with candida, adrenals and thyroid. After seeing Dr P my husband and myself were so excited at the prospect of starting to feel better because we don't have any sort of life at the moment. There has not been any change at all yet and I am currently taking Cortef (which seems to have messed up my emotions big time) and Cytomel for the last couple of weeks. I also took Fluconazole for 4 weeks and a strict diet for 4 months but my candida is much worse. DR P has offered me the best hope for a long time but I didn't realise how complicated it all is and now I feel very low thinking I will never get better. Thanks for all the information you are providing and the opportunity to share my thoughts and feelings with people who (hopefully) understand where I am coming from. Hopefully I will be back soon with something more positive but if anyone feels like giving me a 'pep talk' to be going on with it would be much appreciated right now. Quote Link to comment Share on other sites More sharing options...
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