diagnosis/genetic test/caring for oneself

[Guest guest]

Hey ...

First of all welcome to the group. I am 24 and I have never been diagnosed with

CMT, but my mother has been and I am very symptomatic. It's just my opinion,

but I don't feel that I need a formal diagnosis. I know that I have the disease

and that there are no proven treatments. I do follow the suggested guidelines

though on what vitamins may be beneficial and I try to stay away from any toxins

that may make the disease worse. I would suggest just speaking with your son to

make sure that he knows the gravity of the situation and that there are things

that he should be doing to take better care of himself since he probably does

have this special condition. Anyways, I hope the advice helps...we all have to

come to grips with this on our own terms...I know one day it just hit me and I

accepted it. Good luck in the future.

Traylor