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Nerve Biopsy; I have a question also.

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My son is 5 years old. We just took a trip to South

Carolina Wed. The doctor there would like for my son

to have a nerve biopsy done to narrow down what type

CMT he might have. They want to do this in order to

lower the cost on DNA testing which they will pay for

since we don't have the money to do so ourselves, what

should I do? Should I have the biopsy done? I am

worried because of the risks but also because of his

age. If this were any of you what would you do in

this situation? Please, any ideas would be

appreciated. I don't even know where to begin to think

about this. I want to help him in any way i can, but I

don't want him to go through alot more than he has to

deal with already. He's going through so much as you

all know very well from experience. I can only try to

understand it. i dont' pitty him, that's not what he

needs, he needs understanding and support, but he

needs to understand what he is going through and I was

thinking to know the type would be a relief for us

both. Me now and him later in life when he knows what

it all means.

Sorry this is so long, but I need help. Thanks to all

that will respond.

renee

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