Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 I had this symptom a few years ago but haven't had it since. May I ask how old you are? Maybe it is a phase that one type of CMT passes thru and it ends as the nerves are damaged further? Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 no but have problem keeping legs still - get jumpy legs when i sit in recliner - what's that about? rochelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 Yes, it feel soooo weird. Sometimes it feels like my leg is going to give out when this happens. Of course, it happens when I'm standing talking to a client or in an important meeting and cannot react. Sharon O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 46, The buzzing comes & goes. Sometimes I will get it for weeks at a time & it will disappear for a few weeks & then return. I'm the one who posted some time ago who had a severe neurotoxic reaction to macrobid, a drug on the CMT list. After that reaction I got " global neuropathy " for 4 months & then the burning changed to a very light global surface numbness which I feel is a result of nerve damage. During the burning from the global neuropathy I also got a lot of electrical-like shocks up & down my legs which literally felt like someone plugged me into a light socket & then the " buzzing " set it. It was a pretty awful experience. All the doctors at first told me macrobid couldn't cause such a neurotoxic reaction & it wasn't till this one neuro started looking at my history which includes peroneal neuropathy from dye exposure as a printing press operator & scoliosis did he figure things out. CMT lists macrobid as being neurotoxic & what's interesting is macrobid is a drug derived from dyes. It's a antibacterial......in fact the very first antibacterial drugs were pure dyes. I would caution everyone with CMT to be cautious with dyes or dye derived drugs which include antibacterials & sulfa drugs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 Gaylen: Yes, I get a short-out sensation at night, I find that putting a lap blanket over the lower part of my legs helps me to go on to sleep. I think the added weight as well as the warmth seems to help. Quote Link to comment Share on other sites More sharing options...
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