Hi I'm NEW

[Guest guest]

Nick

Just got back from Yale we were able to get in today. Dr. Shapiro was

of no help whatsoever. He said it is just a virus & she gets it from

all the other kids in daycare and her symptoms do not point to

!!! She will grow out of it. I said she is the only one every 28

days with a fever it CAN'T be a virus. I couldn't believe it. He

also told me to send her to daycare with a fever and see if they call

me. How is this guy a specialist at Yale. I think its time for this

old fart to retire. What a waste of my day from work. I am

definitely going to call Dr Feder and hopefully my pediatrician will

send her files to him.

Has anyone else had this happen?

Beth Ann

[Guest guest]

Nick

Just got back from Yale we were able to get in today. Dr. Shapiro was

of no help whatsoever. He said it is just a virus & she gets it from

all the other kids in daycare and her symptoms do not point to

!!! She will grow out of it. I said she is the only one every 28

days with a fever it CAN'T be a virus. I couldn't believe it. He

also told me to send her to daycare with a fever and see if they call

me. How is this guy a specialist at Yale. I think its time for this

old fart to retire. What a waste of my day from work. I am

definitely going to call Dr Feder and hopefully my pediatrician will

send her files to him.

Has anyone else had this happen?

Beth Ann

[Guest guest]

Sooo Annoying!!!!

This just makes me so angry.

Next. Move on. Kick him to the curb.

My suggestion? When you get a diagnosis send him a letter explaining to him how

he incorrectly dismissed you, send him some information on , and tell him

you hope that other children do not have to suffer because of his lack of

knopwledge on the topic. Tell him that you hope he takes the time to read up on

the disorder, as it would only be of help to future people who seek out his

help. I would also copy in the head of his department and the head of the

hospital.

This is what I did with one doctor. They need to be called out. I never got a

response, but I got the last word.

[Guest guest]

We're in CT, too. We saw Dr. Feder, and I also have to recommend him.

He really knows what he's seeing when it comes to , you will get

an answer.

When a fever repeats predictably, nobody else gets sick before or

after, and there are absolutely no symptoms of sickness other than

swollen neck glands, lethargy, and fever...you KNOW it's not viral.

Doctors don't want to jump at 'unusual' diagnosis, but if you hear

hoofbeats you can only assume 'horse' unless you look up and SEE THE

STRIPES. Horses don't have stripes. Hello, zebra.

Once you know it's , you will be able to end the fevers with

medication. Also, the fevers are not contagious at all, so as long as

she's comfortable I take her wherever we need to go anyway. If

someone gives me an odd look, I explain that she has a fever disorder

and nobody can catch it.

Good luck, keep us posted. I had also been brushed off by a lot of

medical doctors saying 'it's viral' and Dr. Feder was so validating.

You will get an answer!

[Guest guest]

We're in CT, too. We saw Dr. Feder, and I also have to recommend him.

He really knows what he's seeing when it comes to , you will get

an answer.

When a fever repeats predictably, nobody else gets sick before or

after, and there are absolutely no symptoms of sickness other than

swollen neck glands, lethargy, and fever...you KNOW it's not viral.

Doctors don't want to jump at 'unusual' diagnosis, but if you hear

hoofbeats you can only assume 'horse' unless you look up and SEE THE

STRIPES. Horses don't have stripes. Hello, zebra.

Once you know it's , you will be able to end the fevers with

medication. Also, the fevers are not contagious at all, so as long as

she's comfortable I take her wherever we need to go anyway. If

someone gives me an odd look, I explain that she has a fever disorder

and nobody can catch it.

Good luck, keep us posted. I had also been brushed off by a lot of

medical doctors saying 'it's viral' and Dr. Feder was so validating.

You will get an answer!

[Guest guest]

We're in CT, too. We saw Dr. Feder, and I also have to recommend him.

He really knows what he's seeing when it comes to , you will get

an answer.

When a fever repeats predictably, nobody else gets sick before or

after, and there are absolutely no symptoms of sickness other than

swollen neck glands, lethargy, and fever...you KNOW it's not viral.

Doctors don't want to jump at 'unusual' diagnosis, but if you hear

hoofbeats you can only assume 'horse' unless you look up and SEE THE

STRIPES. Horses don't have stripes. Hello, zebra.

Once you know it's , you will be able to end the fevers with

medication. Also, the fevers are not contagious at all, so as long as

she's comfortable I take her wherever we need to go anyway. If

someone gives me an odd look, I explain that she has a fever disorder

and nobody can catch it.

Good luck, keep us posted. I had also been brushed off by a lot of

medical doctors saying 'it's viral' and Dr. Feder was so validating.

You will get an answer!

[Guest guest]

Yes, it's happened to us.  Just not from a specialist, but rather our

pediatrician.  We've changed since and I gave them print outs on and told

them to get educated.  Feder won't do that.

 Regards,

Nick Handrinos

[Guest guest]

Yes, it's happened to us.  Just not from a specialist, but rather our

pediatrician.  We've changed since and I gave them print outs on and told

them to get educated.  Feder won't do that.

 Regards,

Nick Handrinos

[Guest guest]

Yes, it's happened to us.  Just not from a specialist, but rather our

pediatrician.  We've changed since and I gave them print outs on and told

them to get educated.  Feder won't do that.

 Regards,

Nick Handrinos

[Guest guest]

Thanks .

That is so funny I was going to call his boss but sending a letter definitely

will be from effective and ccing his boss and the head of the hospital is a

definite. I can't wait to discuss iwth my peditrician & immuologist on Mon.

Turns out he knows my pediatrician. I should have put him in his place in front

of the the attending and med student and took him downa few notches that pompas

ass. I will get medication for her before her next fever on Feb 20. She had a

b-day party to go to on Feb 21st and I don't want her to miss it. I am just

trying to figure out if cimeditine or predisone is the best for her based on

everything I have been reading.

I am so greatful for this group as well and so glad I kept doing my own research

and found it.

Beth Ann

[Guest guest]

Thanks .

That is so funny I was going to call his boss but sending a letter definitely

will be from effective and ccing his boss and the head of the hospital is a

definite. I can't wait to discuss iwth my peditrician & immuologist on Mon.

Turns out he knows my pediatrician. I should have put him in his place in front

of the the attending and med student and took him downa few notches that pompas

ass. I will get medication for her before her next fever on Feb 20. She had a

b-day party to go to on Feb 21st and I don't want her to miss it. I am just

trying to figure out if cimeditine or predisone is the best for her based on

everything I have been reading.

I am so greatful for this group as well and so glad I kept doing my own research

and found it.

Beth Ann

[Guest guest]

Yea, these doctors sometimes need to be put in their place. I wish everyone

wrote letters and cc'd the " powers that be " because maybe that would keep them

on their toes. It is so frustrating as a parents to encounter these arrogant

doctors!!

[Guest guest]

JoAnn you can do it. I am to a compulsive eater and a closet eater.

WW is a great program. I am unable to go to meetings. So right now I am just counting calories.

Share some tips you might get.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

Hello Mike

I am sure others will also respond

While I don't know your specific circumstances consider this

Problems with Methylation

Chronic infection

Post Traumatic Stress Disorder possibly stemming from early neglect or

abuse

Also

Where do you live?

I know a good Doc in the sacramento area

Steve

On Nov 4, 2010, at 11:09 AM, mikem wrote:

> hi new to the group. have unbelievable fatigue, spend most of my

> time in bed. seems i have multiple things going on but can't figure

> out the whole puzzle. this is some of them:

>

> 1) take high dose of antipsychotic meds.

>

> 2) part of how antipsychotic meds affect is lack of oxygen to the

> brain while i'm sleeping. also, i did a sleep study. i don't go into

> a deep sleep, don't go into REM, don't wake up refreshed at all.

>

> 3) very low testosterone. cannot build muscle

>

> 4) vitamin/mineral deficiencies

>

> if anyone can help with this puzzle, you would be helping solve a

> lifetime of questions

>

> thanks, Mike

>

>

>

Experience is something you don't get until just after you need it.

[Guest guest]

Many of us have tried a ton of supplements or programs to find what

works for us because we all have different issues on top of or that

contribute to our Chronic Fatigue/Fibromyalgia. There still aren't a

lot of answers but there is some help.

For me, I use melatonin at night to sleep (I do not have sleep apnea, my

non CFS/FMS husband does, uses a CPAP and uses melatonin also but really

gets more sleep with Ambien, a prescription med that does have addictive

properties and hangover issues but is a great temp fix), prefer Natrol 3

mg tabs that also has Calcium and B-6. My Fibro doctor (Dr.

Dantini, who lives in Florida and does phone consults) recommended 5-10

mg per night when I did his program in 2003. He also did a load of viral

tests (gave up a host of blood that was shipped to a lab that did

excellent work, I tested high in six viruses, did Valtrex, now generic,

for a year to reduce the load) and food allergy testing (I have huge

food allergy issues all my life). Six months on this program (Valtrex,

food allergy rotation diet, melatonin for sleep) and the seventh month

was like I woke up and I got more done than in two years prior. I also

use Valtrex when I feel like I am getting sick to jump start my system

and I often do not get what is going around or it is mild.

For sleep I am on a maintenance dose of melatonin of 3 mg (did 9 mg for

6 months, then 6 mg for another six months, now 3 mg nightly). I also

use Source Naturals Ultra-Cal Night and it helps me maintain a deeper

sleep (I dream, in color, remember the dreams, sleep better and longer).

I make sure I get enough sleep time at night. I used to lie in bed for

10-12 hours and was not rested (no sleep apnea but if you have, get

tested and get a CPAP type machine). Being female, I had menopausal

issues and finally went on Hormone Replacement Therapy (estrodial and

progesterone) which stopped the nightly hourly wakening and night sweats

that prevented me from getting proper rest.

Many of us do have vitamin/mineral deficiencies (leaky gut syndrome

which I have not addressed properly but many have). I read in

Prescription for Nutritional Healing by Balch (and found it to be true

for myself) that those of us with CFS/FMS have a need for higher

supplementation of vitamin/minerals. Many friends and family have

benefitted from a naturopathic type of healing. I do get regular

chiropractic and massage therapy as it helps my body to function better.

I do keep a balanced diet as free from additives and preservatives as

possible (no processed foods if at all possible) and do higher salt

(Real Salt) than most as my body craves it. I drink Smart Water as it

helps add magnesium, calcium and potassium to my diet, that I also take

individually. My favorite brands of supplements include Twin Labs,

Natrol and Source Naturals. I do order online because I can get things

cheaper and faster (I check between two places, vitamin shoppe and

discount-vitamins-herbs-net and buy the cheapest) and they come quite

quickly.

I have my doctors permission to nap, and I do take 1-3 naps per day in

between and around my schedule as needed. I now can work 3-5 hours a

day and have been working more this year and am in the process of

cutting back as I am not getting stuff done at home; I can either work

or do stuff at home but not as much at both. The story of the 12 spoons

(how much energy you have each day) is so apt and I have to limit my

energies (I am type A and type B, have a huge tendency to overdo as I

am/was superwoman). I learned to say, " you get back to me on that, " or

NO to a lot of stuff asked of me. If I don't do it, someone else will,

or it wasn't that important. I had to learn to make ME a priority so I

could take care of the rest of the family. *_I also learned that if I

can't make up my mind (yes or no) the answer is always NO._*

Hang in there, there are answers out there, there are doctors who do

know their stuff (not many), there are support groups who know things to

help you.

in La Selva Beach CA (near Santa Cruz), 58 years young (my it's

going too fast)

sick since childhood

On 11/4/2010 12:14 PM, S B wrote:

> Hello Mike

>

> I am sure others will also respond

>

> While I don't know your specific circumstances consider this

>

> Problems with Methylation

>

> Chronic infection

>

> Post Traumatic Stress Disorder possibly stemming from early neglect or

> abuse

>

> Also

> Where do you live?

> I know a good Doc in the sacramento area

>

> Steve

>

>

>

> On Nov 4, 2010, at 11:09 AM, mikem wrote:

>

>

>> hi new to the group. have unbelievable fatigue, spend most of my

>> time in bed. seems i have multiple things going on but can't figure

>> out the whole puzzle. this is some of them:

>>

>> 1) take high dose of antipsychotic meds.

>>

>> 2) part of how antipsychotic meds affect is lack of oxygen to the

>> brain while i'm sleeping. also, i did a sleep study. i don't go into

>> a deep sleep, don't go into REM, don't wake up refreshed at all.

>>

>> 3) very low testosterone. cannot build muscle

>>

>> 4) vitamin/mineral deficiencies

>>

>> if anyone can help with this puzzle, you would be helping solve a

>> lifetime of questions

>>

>> thanks, Mike

>>

>>

>>

>>

> Experience is something you don't get until just after you need it.

>

[Guest guest]

hi schmidt. i am wondering what dr. dantini thinks of XMRV and whether he would

consider antiretrovirals for patients if they test positive.

thanks

sue

________________________________

From: Schmidt <schmidtmba@...>

Sent: Thu, November 4, 2010 10:13:02 PM

Subject: Re: hi i'm new

 

Many of us have tried a ton of supplements or programs to find what

works for us because we all have different issues on top of or that

contribute to our Chronic Fatigue/Fibromyalgia. There still aren't a

lot of answers but there is some help.

For me, I use melatonin at night to sleep (I do not have sleep apnea, my

non CFS/FMS husband does, uses a CPAP and uses melatonin also but really

gets more sleep with Ambien, a prescription med that does have addictive

properties and hangover issues but is a great temp fix), prefer Natrol 3

mg tabs that also has Calcium and B-6. My Fibro doctor (Dr.

Dantini, who lives in Florida and does phone consults) recommended 5-10

mg per night when I did his program in 2003. He also did a load of viral

tests (gave up a host of blood that was shipped to a lab that did

excellent work, I tested high in six viruses, did Valtrex, now generic,

for a year to reduce the load) and food allergy testing (I have huge

food allergy issues all my life). Six months on this program (Valtrex,

food allergy rotation diet, melatonin for sleep) and the seventh month

was like I woke up and I got more done than in two years prior. I also

use Valtrex when I feel like I am getting sick to jump start my system

and I often do not get what is going around or it is mild.

For sleep I am on a maintenance dose of melatonin of 3 mg (did 9 mg for

6 months, then 6 mg for another six months, now 3 mg nightly). I also

use Source Naturals Ultra-Cal Night and it helps me maintain a deeper

sleep (I dream, in color, remember the dreams, sleep better and longer).

I make sure I get enough sleep time at night. I used to lie in bed for

10-12 hours and was not rested (no sleep apnea but if you have, get

tested and get a CPAP type machine). Being female, I had menopausal

issues and finally went on Hormone Replacement Therapy (estrodial and

progesterone) which stopped the nightly hourly wakening and night sweats

that prevented me from getting proper rest.

Many of us do have vitamin/mineral deficiencies (leaky gut syndrome

which I have not addressed properly but many have). I read in

Prescription for Nutritional Healing by Balch (and found it to be true

for myself) that those of us with CFS/FMS have a need for higher

supplementation of vitamin/minerals. Many friends and family have

benefitted from a naturopathic type of healing. I do get regular

chiropractic and massage therapy as it helps my body to function better.

I do keep a balanced diet as free from additives and preservatives as

possible (no processed foods if at all possible) and do higher salt

(Real Salt) than most as my body craves it. I drink Smart Water as it

helps add magnesium, calcium and potassium to my diet, that I also take

individually. My favorite brands of supplements include Twin Labs,

Natrol and Source Naturals. I do order online because I can get things

cheaper and faster (I check between two places, vitamin shoppe and

discount-vitamins-herbs-net and buy the cheapest) and they come quite

quickly.

I have my doctors permission to nap, and I do take 1-3 naps per day in

between and around my schedule as needed. I now can work 3-5 hours a

day and have been working more this year and am in the process of

cutting back as I am not getting stuff done at home; I can either work

or do stuff at home but not as much at both. The story of the 12 spoons

(how much energy you have each day) is so apt and I have to limit my

energies (I am type A and type B, have a huge tendency to overdo as I

am/was superwoman). I learned to say, " you get back to me on that, " or

NO to a lot of stuff asked of me. If I don't do it, someone else will,

or it wasn't that important. I had to learn to make ME a priority so I

could take care of the rest of the family. *_I also learned that if I

can't make up my mind (yes or no) the answer is always NO._*

Hang in there, there are answers out there, there are doctors who do

know their stuff (not many), there are support groups who know things to

help you.

in La Selva Beach CA (near Santa Cruz), 58 years young (my it's

going too fast)

sick since childhood

On 11/4/2010 12:14 PM, S B wrote:

> Hello Mike

>

> I am sure others will also respond

>

> While I don't know your specific circumstances consider this

>

> Problems with Methylation

>

> Chronic infection

>

> Post Traumatic Stress Disorder possibly stemming from early neglect or

> abuse

>

> Also

> Where do you live?

> I know a good Doc in the sacramento area

>

> Steve

>

>

>

> On Nov 4, 2010, at 11:09 AM, mikem wrote:

>

>

>> hi new to the group. have unbelievable fatigue, spend most of my

>> time in bed. seems i have multiple things going on but can't figure

>> out the whole puzzle. this is some of them:

>>

>> 1) take high dose of antipsychotic meds.

>>

>> 2) part of how antipsychotic meds affect is lack of oxygen to the

>> brain while i'm sleeping. also, i did a sleep study. i don't go into

>> a deep sleep, don't go into REM, don't wake up refreshed at all.

>>

>> 3) very low testosterone. cannot build muscle

>>

>> 4) vitamin/mineral deficiencies

>>

>> if anyone can help with this puzzle, you would be helping solve a

>> lifetime of questions

>>

>> thanks, Mike

>>

>>

>>

>>

> Experience is something you don't get until just after you need it.

>

[Guest guest]

Hi Mike,

Have you had your thyroid tested? And I mean tested/evaluated by a dr. that

knows how to do it, not the it's in the normal range you are ok dr? Thyroid

antibodies need testing also. Hypothyroidism could cause low testosterone and

also both low test and low thyroid could cause your sleep to be poor.

Many on the forum have tested these types of things early on and moved on to

many, many other treatments, supplements. However, I do think the simple tests

need to be done first if they haven't been.

If you can find a dr. that tests/treats for hormone replacement therapy this

might be a good start if not already done.

Also, do you have digestive issues that would warrant a trial of gluten free

diet?

Not sure why the high doses of antipsychotics, but you could check into

www.neuroassist for help with this. They will give you the name of a dr. in

your area that has been trained.

These are the " simple " things that I can think of. If you have already done

those then you will need to move onto methylation issues, lyme, viruses, etc.

Debbie

>

> hi new to the group. have unbelievable fatigue, spend most of my time in bed.

seems i have multiple things going on but can't figure out the whole puzzle.

this is some of them:

>

> 1) take high dose of antipsychotic meds.

>

> 2) part of how antipsychotic meds affect is lack of oxygen to the brain while

i'm sleeping. also, i did a sleep study. i don't go into a deep sleep, don't

go into REM, don't wake up refreshed at all.

>

> 3) very low testosterone. cannot build muscle

>

> 4) vitamin/mineral deficiencies

>

> if anyone can help with this puzzle, you would be helping solve a lifetime of

questions

>

> thanks, Mike

>

[Guest guest]

On 11/5/2010 12:51 AM, Sue wrote:

>

> hi schmidt. i am wondering what dr. dantini thinks of XMRV and whether

> he would

> consider antiretrovirals for patients if they test positive.

> thanks

> sue

>

I know he believes in antivirals so I imagine he would, but that

question can be addressed to his office, he's on the internet/web. Why

don't you ask him or his assistants?

[Guest guest]

Welcome, ! You are smart to have learned from other's experiences. I wish I had done that. We don't have a philosophical exemption in CT but I've used religious ones for years with no problems. Some states, actually the schools, might make it difficult but I'm not sure about NC. Someone else here probably would know.

I don't have experience with travel and vaccines but think the yellow fever one is an issue if you come back from somewhere known to have it, not to go there (kind of strange but I guess they care more about you bringing it back than getting it yourselves). I'm sure Sheri will have good advice for you on that.

Anyway, glad to have you here!

Winnie Hi I'm newVaccinations > Hello Everyone,> My name is and I'm new here. I have been married to Jarod > for seven> years and have three children: Zerachia (6), Ezriana (4) and > Ozias (almost 5> months). We decided not to vaccinate because of the things we > had read and> because my husband's nephew had some serious issues after his 4 month> vaccinations. Our first was born in the hospital and we were > not able to> avoid the Vit K shot, but our 2nd and 3rd were born at home so > they have> never had any injections.> We live in NC and are homeschooling. NC does not have a philosophical> exemption, so I guess we will have to make the religious one > work for us.> If anyone has any tips on this, they would be much appreciated.> My husband has applied for a job with Samaritan's Purse (a Christian> organization) in Liberia. My main concern with this is that the > yellowfever vaccination is required. From what I have read, > there is no getting> out of this. Does anyone have any experience with travel to > countries where> a vaccination is required?> I'm excited to be a part of this group, I have so much to learn!> Thanks,> in NC>

[Guest guest]

Thanks, Winnie.  Would anyone want to share the wording they have used on their religious exemptions?Thanks, in NCOn Sat, Jan 1, 2011 at 1:44 PM, <wharrison@...> wrote:

 

Welcome, ! You are smart to have learned from other's experiences. I wish I had done that. We don't have a philosophical exemption in CT but I've used religious ones for years with no problems. Some states, actually the schools, might make it difficult but I'm not sure about NC. Someone else here probably would know.

 

I don't have experience with travel and vaccines but think the yellow fever one is an issue if you come back from somewhere known to have it, not to go there (kind of strange but I guess they care more about you bringing it back than getting it yourselves). I'm sure Sheri will have good advice for you on that.

 

Anyway, glad to have you here!

 

Winnie Hi I'm newVaccinations

> Hello Everyone,> My name is and I'm new here. I have been married to Jarod > for seven> years and have three children: Zerachia (6), Ezriana (4) and > Ozias (almost 5> months). We decided not to vaccinate because of the things we

> had read and> because my husband's nephew had some serious issues after his 4 month> vaccinations. Our first was born in the hospital and we were > not able to> avoid the Vit K shot, but our 2nd and 3rd were born at home so

> they have> never had any injections.> We live in NC and are homeschooling. NC does not have a philosophical> exemption, so I guess we will have to make the religious one > work for us.

> If anyone has any tips on this, they would be much appreciated.> My husband has applied for a job with Samaritan's Purse (a Christian> organization) in Liberia. My main concern with this is that the

> yellowfever vaccination is required. From what I have read, > there is no getting> out of this. Does anyone have any experience with travel to > countries where> a vaccination is required?

> I'm excited to be a part of this group, I have so much to learn!> Thanks,> in NC>

[Guest guest]

Send me your e-mail and I will send you a copy of my letter.I would ask someone from the organization...or someone who went on a missions trip there.  Sorry, I haven't traveled to anywhere where not vaccinating has posed a problem yet.  Good luck!  

Taralee, NJ On Thu, Jan 6, 2011 at 8:53 PM, <richardson18@...> wrote:

 

Thanks, Winnie.  Would anyone want to share the wording they have used on their religious exemptions?Thanks, in NCOn Sat, Jan 1, 2011 at 1:44 PM, <wharrison@...> wrote:

 

Welcome, ! You are smart to have learned from other's experiences. I wish I had done that. We don't have a philosophical exemption in CT but I've used religious ones for years with no problems. Some states, actually the schools, might make it difficult but I'm not sure about NC. Someone else here probably would know.

 

I don't have experience with travel and vaccines but think the yellow fever one is an issue if you come back from somewhere known to have it, not to go there (kind of strange but I guess they care more about you bringing it back than getting it yourselves). I'm sure Sheri will have good advice for you on that.

 

Anyway, glad to have you here!

 

Winnie Hi I'm newVaccinations

> Hello Everyone,> My name is and I'm new here. I have been married to Jarod > for seven> years and have three children: Zerachia (6), Ezriana (4) and > Ozias (almost 5> months). We decided not to vaccinate because of the things we

> had read and> because my husband's nephew had some serious issues after his 4 month> vaccinations. Our first was born in the hospital and we were > not able to> avoid the Vit K shot, but our 2nd and 3rd were born at home so

> they have> never had any injections.> We live in NC and are homeschooling. NC does not have a philosophical> exemption, so I guess we will have to make the religious one > work for us.

> If anyone has any tips on this, they would be much appreciated.> My husband has applied for a job with Samaritan's Purse (a Christian> organization) in Liberia. My main concern with this is that the

> yellowfever vaccination is required. From what I have read, > there is no getting> out of this. Does anyone have any experience with travel to > countries where> a vaccination is required?

> I'm excited to be a part of this group, I have so much to learn!> Thanks,> in NC>

[Guest guest]

Hi Jane,

Welcome to the forum :-)

Have you had T3 tested to see what levels are like? Sheila always advises - God

I've just had them done and I forget - B12, Folate, Ferittin...someone will come

along and help you with the rest. I had total removal last year due to Graves

and despite taking high doses of both T4 and T3, my levels are continuing to

fall, should have latest results tomorrow.

Where are your levels at....did your TSH come back or did it stay suppressed?

Mine

is suppressed and still testing positive for TRab, eyes and legs getting worse

too.

Maybe T3 is what you need, we had a big discussion last week about high T4

converting to reverse T3 rather than FT3 so maybe you have a conversion problem?

Someone else will be along shortly to help you out a bit more :-)

Love Tess

>

> Hi I've just joined and so hope you can help me. I was diagnosed with Graves 7

yrs ago. my highest T4 level was 72, so complete removal of my thyroid

[Guest guest]

Required Blood LabWork:

TSH

Free T4

Free T3

RT3 (Reverse T3)

Ferritin (Iron reserve - very IMPORTANT)

Iron Serum

Anti-TP

TgAb (Thyroid Antibodies)

Adrenal Cortisol levels (swab test-Adrenal Fatigue test)

B-12

Folate

Magnesium

Potassium

Vitamin D3

Copper

Zinc

Aldosterone

[Guest guest]

TSH, free T4, free T3, ferritin, vitamin B12, vitamin D3,

magnesium, folate, copper and zinc )

Luv - Sheila

Have you had T3 tested to see what levels are like? Sheila always advises - God

I've just had them done and I forget - B12, Folate, Ferittin...someone will

come along and help you with the rest..

_._,___

[Guest guest]

hi there, don`t no much about graves and total removal of gland, but think you should be taking some T3 with the T4 which is the only hormone (synthetic) that is in the thyroxine (levo) for short.as you don`t have a gland then you can not be able to make any T3 although it is mad in other parts of body .? you could ask doctor to test again for both hormones. i had a friend who had totalremoval due to cancer, and see was taking 300 mcg of levo and some kelp tablets. and seemed ok on this. we are individuals so you could try tweeking the dose of levo for a start but your symptomssuggest that you need the T3 . hope this helps Angel;