Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Hi, in the morning I need 2 or 3 hours to feel able to work, I have not found out why this is so, though I have been trying for a long time. Maybe this is because I suffer from sleep apnea, as many CMT- patients do, and sleeping is not efficient. Sleep apnea is a disease where one stops breathing while sleeping many times in one hour. E.g. I stop breathing ca. 15 times per hour for ca. 38 seconds in the average. But the machine, that should ease the symptoms does not work on me. It is called a triggered biBAP and works like a vacuum cleaner the other way round, blowing air into the lungs while inspiration and stopping to do so while expiration all that controlled by a sensor in the machine. When a pause occurs it blows whithout inspiration impulse. Helas, my lungs don't open then and the air runs out on both sides of my nose, where the mask is fixed. Has anybody else met such difficulties and can help me to manage them? Is there anybody, who has sleep apnea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 , I have sleep apnea and have been using a bipap for approximately 2 years. I believe there is a good chance I would not be around to respond to this if I had not started using the machine. I did have some problems finding a proper fitting mask but my biggest problem was mentally adjusting to the need for breathing assistance. Everyone is different but the mask I have had the best luck with is called the " Ultra Mirage " by ResMed. You might see if you can get one of these to see if it would work better for you. Sleep apnea is a very serious condition and you need to keep trying until you find something that works for you. Good Luck. Quote Link to comment Share on other sites More sharing options...
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