Medications

[Guest guest]

Thank you, Tali,

Got a giggle out of me about, sorry to be graphic, really not a problem, we

have been or are going threw so much, the simplicity is appreciated.

Haven't heard of Buspar, wonder if it is new. Appreciate your posting as I am

interested in looking up all med's being used, now and past.

My prayers, are your prayers,

Thank you again. Tricia

[Guest guest]

,

I agree completely........!!

I do not want my daughter on med's.

My daughter is 24, she has never had fillings. And her symptoms have been

since birth, with leads me to believe heavy metals could have come from me,

and/or environment at the time.

Have hair analysis, waiting on recommendation from osteopathic, although I

plan to follow Amy, and Andy's protocol. I am a late learner, but will catch

up. PC is new to me.

When you say, Chemet, what exactly does that stand for? A type of DMSA?

Still learning.

Educating myself on drugs being used, present and past, for my benefit and

others.....

Tricia

[Guest guest]

My daughter is on a very low dose of Buspar, 2.5 mg 2X

daily (recently titrated down to 2/5 mg 1X).

Initially, I noted that her stims lessened and a

couple years ago, within one month of increasing her

dosage, she was finally potty trained for BM. There

was no other change with regards to our potty

procedures. It's been my impression that the Buspar

is helpful with regard to sensory issues (which I

think accounted for her difficulty in pottying -- not

getting the signal in time to get to the toilet, she

would be in the midst of going in her pants before

realizing she had to head for the toilet -- sorry to

be so graphic).

Tali

--- Ssundnce@... wrote:

> grouplist members,

> Could any of you email me with any medications your

> children-adults are

> taking?

> If any......and what symptoms they are for?

> I would appreciate very, very much.

> I am working as we all are to have our kids, adults

> drug free but would

> appreciate hearing from others what med's, and how

> they have helped, or not

> helped.

> My daughter in on Effexor, I am not pleased with the

> results, but have nill

> knowledge on other med's, if they have to be used at

> all.

> I have little to no confidence in the prescribers of

> these med's.

>

> Thank you for you time, Tricia

>

__________________________________________________

[Guest guest]

I have been on MORE MEDICATIONS than I can remeber. NOW the only

medication that I need is Chemet. This is mercury poisoning simply

put. A lot of " treatments " can be used, but I feel that cure is much

better than " treatments " . For more information on Chemet go to

message 9513 in autism treatment

grouplist members,

Could any of you email me with any medications your children-adults

are

taking?

If any......and what symptoms they are for?

I would appreciate very, very much.

I am working as we all are to have our kids, adults drug free but

would

appreciate hearing from others what med's, and how they have helped,

or not

helped.

My daughter in on Effexor, I am not pleased with the results, but

have nill

knowledge on other med's, if they have to be used at all.

I have little to no confidence in the prescribers of these med's.

Thank you for you time, Tricia

--- End forwarded message ---

[Guest guest]

Buspar (or Buspirone) is an anti-anxiety med, not

generally prescribed for children. It is used in

adolescents and adults. We started on it as part of a

study by Dr. Diane Chugani. It is still not widely

used in treatment of anxiety in kids with autism

although it is a very safe drug. Has been on the

market for years.

Tali

--- Ssundnce@... wrote:

> Thank you, Tali,

> Got a giggle out of me about, sorry to be graphic,

> really not a problem, we

> have been or are going threw so much, the simplicity

> is appreciated.

> Haven't heard of Buspar, wonder if it is new.

> Appreciate your posting as I am

> interested in looking up all med's being used, now

> and past.

> My prayers, are your prayers,

> Thank you again. Tricia

>

__________________________________________________

[Guest guest]

Chemet is the brand name for DMSA

Re: [ ] Fwd: medications

>

>,

>I agree completely........!!

>I do not want my daughter on med's.

>My daughter is 24, she has never had fillings. And her symptoms have been

>since birth, with leads me to believe heavy metals could have come from me,

>and/or environment at the time.

>Have hair analysis, waiting on recommendation from osteopathic, although I

>plan to follow Amy, and Andy's protocol. I am a late learner, but will

catch

>up. PC is new to me.

>When you say, Chemet, what exactly does that stand for? A type of DMSA?

>Still learning.

>Educating myself on drugs being used, present and past, for my benefit and

>others.....

>Tricia

>

>

[Guest guest]

Dear ,

<<Firstly, This is something that I have resisted for a long time but I find myself considering some sort of medication to help control the aggressive behaviour exhibits. Sometimes it is copeable and lately it has been horrible. I am truly not in favour of medication but Some days I feel like our family cannot take much more fighting and I know this negative atmosphere is not good for either. >>

Have you noticed that this happens at certain times -- when he's tired, pressured,excited, etc. Be aware of his sensory issues; maybe he is being overstimulated and needs to be removed from the situation? Is he currently in OT for the SI issues?

<<Also I have recently put on PROEFA and I prey for the results I have read about on this listserve. >>

How is that going? Will take the ProEFA? How long has he been on it? Be sure to get your physician to fill out the questionnaire Dr. Katz posted this week.

<<Secondly, Our pediatrician from Sick Children's Hospital in Toronto Ontario, Canada does not diagnose Apraxia. She says it is an OT diagnosis.>>

In Canada, it is usually an SLP, developmental pediatrician or pediatric neurologist that will dx apraxia of speech. An OT would dx global apraxia. Of course, the professional also has to be one that is aware of and able to assess for apraxia of speech. Some professionals will not diagnose until the child is at least 4 to 4 1/2 years of age. I have heard from a few families whose children have been diagnosed through the Early Intervention program.

Hope this helps,

Rhonda son Cherrymom to Maddie, age 4, oral-motor sequencing issues, suspected apraxicRichmond Hill, Ontario CANADA

Visit ECHO - Canada's Apraxia Support Group website at http://apraxiaontario.homestead.com/

[Guest guest]

Hi -

Our son used to exhibited terrible anger and mood

changes and strong defiance! I would break down in

tears everytime I was in the doctors office. I took him

to see a developmental psychologist for behavior

modification therapy and he refused to cooperate and hid

under the desk for the first 3 appointments! I also

took him to see a pediatric psychiatrist to evaluate him

for meds.

We briefly tried zoloft, and two others I can't remember

but decided against it because he did appear to be

so " medicated " . The psychiatrist reccommended fish

oil/fatty acid supplements to us and that is when our

lives changed!

Once we started supplementing him, his mood and behavior

changed dramatically. It was day and night. He was

positive and easy going. We have him on ProEFA now and

we do sometimes see stubborness, but not as dramatic as

before. We also had really good results with DHA

Neuromins for Kids which is an algae based DHA, his mood

was steady on this.

We also try to watch his diet a bit (only whole grain

breads, nuts, proteins) and give him a good multi-

vitamin which seems to make him happier. Brain Child

Nutrionals makes a good multi-vitamin but it does have a

strong odor and an unpleasant taste that makes masking

it in drinks difficult. I stopped using it because I

simply got tired of begging him to drink his juice. I

am now searching for a good multi that doesn't have an

unpleasant odor and taste that I can slip in his milk!

Anyone have a suggestion?

Just thought I'd give you our case history. Hey, for

some kids medication works wonders. So if it's

something you have to do, don't feel that you've failed

in anyway as a parent. You are just doing what's right

for everyone involved!

Good luck!

Amy mom to 4.8 apraxic and 1.7 Northern

Illinois

[Guest guest]

Hi Jim,

Thanks for this advice. No I'm on Accupril, Atenolol, Celexa, Lescol,

Clonazepam, Premarin and an aspirin a day. Do you know anything about

these drugs? The reason the doctor put me on Atenolol, was because

my blood pressure shot up to 180 over 120. Yesterday it was 114 over

68. No wonder I feel so tired.

Thanks - Patsy

Do you want to know more about CMT? Do you want to know what

CAN be done? Do you want a better understanding of nerves and

muscles? Do you want to know about CMT Rehabilitation Management?

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http://www.stradeservizi.it/cmt.htm You won't be disappointed! And

your doctor needs a copy too!

is Charcot Marie Tooth Universal Services - for you, your loved ones,

the medical and scientific community, and anyone who wants to learn

how CMT/HMSN affects each of us through experiential sharing.

[Guest guest]

,

For my spinal stenosis I have stuck with Western Medicine and the

results have been great.

My CMT pain ever since diagnosis is foot pain - burning foot pain. The

medication that helps that is Elavil. It also works so well on my

tremors, I feel I am getting a 2 for 1 special!

A couple of years ago I was having spark/electrical shock type pain in

my arms at rest. I took Neurontin for that it worked well. Matter of

fact, even after I stopped taking Neurontin, those sparks/electrical

pain has not come back.

With both meds the lowest dose works/worked fine.

~ G

[Guest guest]

Sue,

You may find this information helpful

http://www.charcot-marie-tooth.org/PDF/NeuroMeds.pdf

also check our Files for updates on Botox, Statins, etc. There a re many

medications that we don't know about still. If I can help you with a certain

medication (research-look up) let me know...

and here's the Toxic Drug List compiled by the Neuromuscular Disease

Center, Washington University, St Louis, Mo.

Medications that may aggravate or exacerbate CMT (listed by use)

Alcoholism

(excessive alcohol may worsen neuropathy symptoms)

Anabuse

Disulfiram

AIDS

Nucleosides

Antibiotics

Chloramphenicol

Penicilin (Large IV doses)

Metronidazole

Anti-Arrhythmic

Procainamide

Propafenone

Anti-Depressants

Zimeldine

Lithium

Zoloft (Setraline)

Anti-Epileptic (Seizures)

Phenytoin

Dilantin

Cardiac Conditions

Amiodarone (Cordarone)

Perhexiline (Pexid)

Chemotherapy Agents

Adriamycin

Bertezomib (Velcade)

Chloramphenicol

Cisplatinum (all Platinum analogs)

Doxorubicin

Etoposide (VP-16)

Ifosfamide Nitrous

Oxide (N2O)

Interferon-a

Chemotherapy Agents (Contd.)

Misomidazole adjunct to radiation therapy(Metronidazole)

Suramin

Taxol (Paclitaxel, docetaxel)

Thalidomide

Vincristine (all Vinca alkaloids)

Dental Anesthetic(N20)

Chronic repeated inhalation

Dietry Supplements (Vitamins and herbal remedies)

Mega doses of Vitamins A, D, & B6

Valerian Root

Gout

Colchicine

Hepatitis C

Interferon-a

Hypertension

Hydralazine (Apresoline)

Infections (Vaginal)

Metronidazole (Flagyl)

Glutethimide (Doriden)

Insomnia

Glutethimide (Doriden)

Leprosy (Hansens Disease)

Dapsone

Lipid Lowering Agent

Statins (Lovastatin, Prevastatin, Simvastatin)

Pain

Dilantin

Physiatric Disorders

Lithium

Misomidazole

Zoloft

Radiation Therapy

Misonidazole

Respiratory Disorders

Almitrine

Rhematoid Arthritis

Gold (Aurothioglucose)

Penicillamine

Leflumonide (Arava)

Sedatives

Glutethimide

Seizures

Dilantin (Phenytoin)

Sickle Cell Anemina

Sodium Cynate

Tuberculosis

Ethambutol

Urinary Tract Infections

Nitrofurantoin (Furadantin, Macrodatin, Macrobid)