Welcome Crystal

[Guest guest]

My daughter had the same rituals when the OCD first became evident at

sometime before the age of 6. She is 13 now, actually just turned 13 a

few days ago. Do to other disorders the OCD was not detected or

diagnosed right away. She also has behavioral therapy & is doing

better.

I just wanted to say welcome.

Nici

[Guest guest]

Welcome Crystal and thank you for introducing yourself. About your job,

perhaps you could ask for 'flex time' to give yourself a chance to rest,

etc. However, the best I have found for fatigue has been learning my

limits, and to understand when I am mentally and physically best and use

that time to my advantage.

About finding a doctor: Perhaps you could find an MDA clinic near you.

MDA helps people with CMT, even though CMT is a disorder of atropy, not

dystropy. Here is the MDA URL http://www.mdausa.org somewhere on that

page is a MDA clinic finder by zip code. MDA doctors know about CMT and

40 neuromuscular diseases.

I am sympathetic to your recent diagnosis. The acceptance will come and

I am sure you will get more feedback from the rest of the group here at

.

~ Gretchen

Do you want to know more about CMT? Do you want to know what CAN be

done? Do you want a better understanding of nerves and muscles? Do you

want to know about CMT Rehabilitation Management?

We recommend this book: http://www.stradeservizi.it/cmt.htm You won't

be disappointed! And your doctor needs a copy too!

is Charcot Marie Tooth Universal Services - for you, your loved

ones,

the medical and scientific community, and anyone who wants to learn

how CMT/HMSN affects each of us through experiential sharing.