numbness and SI problem

[Guest guest]

Well, it's been ages since I've been online and posted to this

group. I see some familiar names from last fall and I need

some advice.

As some of you may remember I came into contact with some

toxic chemicals during a remodeling project almost a year ago

and suffered from a series of falls immediately following. I

ended up doing some damage to my Sacro Iliac area, (2 doctors

and my physical therapist agree it's dislocating and not staying

in place due to ligaments being too stretched out from the repeat

falls; and other doctors say that area can not dislocate and must

be an arthritic condition or something else).

I have been having adjustments done on the Si area at PT 2-3

times a week for the past 3 or 4 months now. I have tried an SI

belt and exercises and nothing is stabilizing that area. I have

tolerable days but also days where the lower back pain in

unbearable.

I also have numbness in my feet, legs, arms and hands and

most of the doctors now agree it's likely to be damage from the

chemicals because the MRIs, bone scans, and xrays show

nothing to be causing the numbness.

First off, has anyone ever had SI problems, and if so, what did

you do???? I am having trouble finding a doctor who specializes

in this area and is familiar with healing techniques. My PTs have

never dealt with anything quite like this before and are at a loss.

I have done research online but what I have found mainly

recommends PT, braces, and exercises, all of which I have tried.

I have seen a little bit on fusing the SI but have not spoken to

anyone personally about this option.

Having CMT on top of an injury like this is unreal because I

can't strengthen the muscles and ligaments to hold it all

together.

Secondly, what can I do for the numbness? I have tired

Neurontin and it did nothing for me. The doctor has put me on

basically every anti-inflam drug there is along with trying

Demerol for the pain but most of these do nothing other than

make me sick to my stomach or drowsy.

I am still trying to work, although the doctor has me down to 4

days no more than 7 hours a day. I sit during the day for the

most part and this is becoming increasingly difficult. Walking

any distance, standing for too long, or sitting for too long

increase the pain in my lower back and make the numbness

worse in my legs and feet.

I am 32 and way too young for this! This has been going on

for a year now and it has been the worst year of my life with CMT.

(Diagnosed at age 5 and have never had these types of

problems) I'm basically at my wit's end here. I don't know where

to turn or what to do. Doctors in my area know very little about

CMT or SI injuries.

I'd love to hear some input and some positive words

regarding this right about now. I am tired of the run around from

doctors and tired of hurting and tired of just not really knowing

anymore what to do to help my body.

Thankfully I have a very loving, supportive and understanding

husband. We just shared our first anniversary, and even though

this past year has taken its' toll on very aspect of my life, my

marriage is going great.

Please post any responses or feel free to email me at

sdgiftos@.... Thanks so much! :-)

[Guest guest]

In a message dated 9/21/2002 7:28:53 PM Pacific Daylight Time,

sdgiftos@... writes:

> First off, has anyone ever had SI problems, and if so, what did

> you do????

I am not much help here, but I have a weak SI. I see a chiropractor and have

been told that lower back and tummy exercises will help me. I am sure you

have already done that.

jenny