Partial Disability

[Guest guest]

Hi Juli, I am , a new member - today is my first day,

hope I am doing it right. I got partial for about a year. Then

I had to go on full disabilty. Hope this helps. I am very new at

a computer only a few days. Hope you get this.

You are not alone with !

Recent Neurocast Statistics show 50% of us have CMT Type 1; 20-40% of us have

CMT Type 2;

10-15% of us have CMT Type X; And 20% of us show NO family history. For more

information on

these and other statistics, visit http://www.neurocast.com and click on

'previous sessions'.

Look for the title " Diagnosing Peripheral Neuropathies " .

is Charcot Marie Tooth Universal Services - for you, your loved ones,

the medical and scientific community, and anyone who wants to learn

how CMT/HMSN affects each of us through experiential sharing.

[Guest guest]

I am wondering if anyone knows if a person can get a partial disability for FM. I so need to be working part-time but can't give up my health benefits for obvious reasons. I am really struggling with trying to put in 40 hours a week. Hubby doesn't seem to understand how hard it is on me and I know my co-workers don't have a lot of sympothy for fibro sufferers. Any suggestions (finding new husband not an option at this point, still like him a lot).

Deb Halvorson

Re: Vit. D and our health

Actually, I believe in the "snowballing" theory. Where we get deficient in one thing, which effects our immune system. Then, as that begins to react in our body, it causes something else to take place. All the while the miniscule bacteria begin to take hold, the kind with no cell walls, such as mycoplasma. Also, I believe our hypothalamus gland is involved that controls our hormones. From what I have read, D can be more of a hormone working in the body than a vitamin. If the hypothalamus gland is not functioning properly, maybe damaged in some way from what ever else is going on, there goes the adrenals and pituitary also. This all controls our mitchondria- -it just goes on and on. I fully believe we can be healed if they could only find out which it is that is malfunctioning and begin there. I honestly think that some of the researchers are on the right track. they just need to get all of the ducks

in a row! My thoughts on these mystery problems:).My daughter was in a double blind study here in MI. I don't think it is completed yet, but she got the real treatment. She was told by the doctor that was doing this study that she was a "shallow" breather, therefore not getting the oxygen needed to supply the muscle and tissues involved. Therefore the pain and stiffness in the muscle. This very thing, I think, could cause the other things mentioned to go haywire. I am a shallow breather, also.Elaine

[Guest guest]

Good question. I was told by a disability attorney last week that

you either CAN work or you CAN'T - there is no in between. Here in

FL, you have to reduce your income to under $500/mo. to show you

can't survive without disability benefits. A friend in PA told me

she had to be totally unemployed for 6 months to " prove " she was

disabled. Very frustrating, because you can't live on air.

>

> I am wondering if anyone knows if a person can get a partial

disability for FM.  I so need to be working part-time but can't give

up my health benefits for obvious reasons.  I am really struggling

with trying to put in 40 hours a week.  Hubby doesn't seem to

understand how hard it is on me and I know my co-workers don't have a

lot of sympothy for fibro sufferers.  Any suggestions (finding new

husband not an option at this point, still like him a lot).

>  

> Deb Halvorson

>

>

>

> Re: Vit. D and our health

>

>

> Actually, I believe in the " snowballing " theory. Where we get

> deficient in one thing, which effects our immune system. Then, as

that

> begins to react in our body, it causes something else to take

place.

> All the while the miniscule bacteria begin to take hold, the kind

with

> no cell walls, such as mycoplasma. Also, I believe our hypothalamus

> gland is involved that controls our hormones. From what I have

read, D

> can be more of a hormone working in the body than a vitamin. If the

> hypothalamus gland is not functioning properly, maybe damaged in

some

> way from what ever else is going on, there goes the adrenals and

> pituitary also. This all controls our mitchondria- -it just goes on

and

> on. I fully believe we can be healed if they could only find out

which

> it is that is malfunctioning and begin there. I honestly think that

> some of the researchers are on the right track. they just need to

get

> all of the ducks in a row! My thoughts on these mystery problems:).

>

> My daughter was in a double blind study here in MI. I don't think

it

> is completed yet, but she got the real treatment. She was told by

the

> doctor that was doing this study that she was a " shallow " breather,

> therefore not getting the oxygen needed to supply the muscle and

> tissues involved. Therefore the pain and stiffness in the muscle.

> This very thing, I think, could cause the other things mentioned to

go

> haywire. I am a shallow breather, also.

>

> Elaine

>

[Guest guest]

I've been told you either can or cannot work in the eyes of ssa.

Now, if your husband makes $1200 or less, you can get ssi.

>

> I am wondering if anyone knows if a person can get a partial

disability for FM.  I so need to be working part-time but can't give

up my health benefits for obvious reasons.  I am really struggling

with trying to put in 40 hours a week.  Hubby doesn't seem to

understand how hard it is on me and I know my co-workers don't have a

lot of sympothy for fibro sufferers.  Any suggestions (finding new

husband not an option at this point, still like him a lot).

>  

> Deb Halvorson

>

>

>

> Re: Vit. D and our health

>

>

> Actually, I believe in the " snowballing " theory. Where we get

> deficient in one thing, which effects our immune system. Then, as

that

> begins to react in our body, it causes something else to take

place.

> All the while the miniscule bacteria begin to take hold, the kind

with

> no cell walls, such as mycoplasma. Also, I believe our hypothalamus

> gland is involved that controls our hormones. From what I have

read, D

> can be more of a hormone working in the body than a vitamin. If the

> hypothalamus gland is not functioning properly, maybe damaged in

some

> way from what ever else is going on, there goes the adrenals and

> pituitary also. This all controls our mitchondria- -it just goes on

and

> on. I fully believe we can be healed if they could only find out

which

> it is that is malfunctioning and begin there. I honestly think that

> some of the researchers are on the right track. they just need to

get

> all of the ducks in a row! My thoughts on these mystery problems:).

>

> My daughter was in a double blind study here in MI. I don't think

it

> is completed yet, but she got the real treatment. She was told by

the

> doctor that was doing this study that she was a " shallow " breather,

> therefore not getting the oxygen needed to supply the muscle and

> tissues involved. Therefore the pain and stiffness in the muscle.

> This very thing, I think, could cause the other things mentioned to

go

> haywire. I am a shallow breather, also.

>

> Elaine

>

[Guest guest]

When I talked to social security in person here in Jax.,Fl the lady

told me. That my husband must make below $954 a month he makes a little

bit over $1,000.00 so I don't qualify also I am 1 credit shy of SSDI

but 20 from Medicare so go figure.

I stopped working to home schooled our sons 6th-12th grade and if I

kept working I would have enough credits now no one wants to hire me

even PT.even wall mart will not hire me as a greeter. so Best of luck

trying to get SSI. You can get that if your husband makes below a

certain amount and your disability will last no longer than 6 months

too we were told. But this is in Fl.I would call up your Local Social

security office and talk to someone about it too. hugs Heidi

[Guest guest]

Thanks Heidi. My husband and I had a long talk last night. Even though he doesn't really understand my condition (although I've provided him with lots of info) I think we did get somewhere. He tells me because of all my medical bills and the fact he works for himself, I need to keep working for the insurance. I have several conditions, diabetes, fibro and fatty liver disease. I asked him how he would feel if he had cancer and I told him he needed to keep working because he had lots of medical bills, because basically that is what he is telling me. We agreed that I would try to work full-time for 4 more years and then, if I can, I will work part-time. I know I wouldn't be able to get health insurance outside of work because of my diabetes, so its really a vicious circle. My daughter has one more year on my insurance if she continues to live at home, so hoping that will give her enough

time to really get on her feet and to pay off our house. I will be 51 at the end of August. I know he makes too much for me to qualify for Disability.

Deb Halvorson

Re: Partial Disability

When I talked to social security in person here in Jax.,Fl the lady told me. That my husband must make below $954 a month he makes a little bit over $1,000.00 so I don't qualify also I am 1 credit shy of SSDI but 20 from Medicare so go figure. I stopped working to home schooled our sons 6th-12th grade and if I kept working I would have enough credits now no one wants to hire me even PT.even wall mart will not hire me as a greeter. so Best of luck trying to get SSI. You can get that if your husband makes below a certain amount and your disability will last no longer than 6 months too we were told. But this is in Fl.I would call up your Local Social security office and talk to someone about it too. hugs Heidi

[Guest guest]

Hi Elaine,

I'm wondering the same thing. I am a state-employee and I was told I

couldn't work at all. However, I wonder if I could sell some things on

e-bay? Does anyone know anything about that? I even thought about

selling Pampered Chef, Avon, or supplements. It seems like, if you sign

a contract and pay taxes on it, then you're required to report it...or

do you have to report everything? To be honest, I hate talking to my

disability lady. She's very condescending and I'd rather dig it out of

my policy.

Good luck!

Suzanne

[Guest guest]

Hi again, I have changed my email and screen name...I just wanted to

make sure your emails didn't go into cyberspace!! ~Suzanne~

>

> Hi Elaine,

> I'm wondering the same thing. I am a state-employee and I was told

I

> couldn't work at all. However, I wonder if I could sell some things

on

> e-bay? Does anyone know anything about that? I even thought about

> selling Pampered Chef, Avon, or supplements. It seems like, if you

sign

> a contract and pay taxes on it, then you're required to report

it...or

> do you have to report everything? To be honest, I hate talking to

my

> disability lady. She's very condescending and I'd rather dig it out

of

> my policy.

> Good luck!

> Suzanne

>

[Guest guest]

Hi Suzanne,

I really don't know much about disability. Some of the other posters

have been writing about it. What I do know is friends who have

gotten it here in MI. have been watched like a hawk. and, if they

were seen doing anything that looked like they aren't disabled, they

are reported and have lost the disability. Such as, a friend was on

disability for a bad back. He went to a garage sale and bought a

bike for his wife. He got it out of the back of the truck, got on it

and rode it down his driveway. apparently, someone was watching and

reported it. He lost his disability. I am also under the impression

that disability means just that--you cannot work at all. If you sell

products for a company and make a profit. You will get a 1099, which

they also report this to the government. Only the S.S. can really

answer your questions or a lawyer that does disability. I know the

S.S. people don't always treat the disabled with courtisy. I think

most think that those who are on it are taking the government for a

ride and treat them with disdain.

I am sure that there are others that know a lot more than me, but I

wanted to address your email as you had posted it to me.

Hugs, Elaine

- In dominie , " Suzanne " <Suzanne.White.Stapleton@...>

wrote:

>

> Hi again, I have changed my email and screen name...I just wanted

to

> make sure your emails didn't go into cyberspace!! ~Suzanne~

>

>

>

>

> >

> > Hi Elaine,

> > I'm wondering the same thing. I am a state-employee and I was

told

> I

> > couldn't work at all. However, I wonder if I could sell some

things

> on

> > e-bay? Does anyone know anything about that? I even thought about

> > selling Pampered Chef, Avon, or supplements. It seems like, if

you

> sign

> > a contract and pay taxes on it, then you're required to report

> it...or

> > do you have to report everything? To be honest, I hate talking to

> my

> > disability lady. She's very condescending and I'd rather dig it

out

> of

> > my policy.

> > Good luck!

> > Suzanne

> >

>

[Guest guest]

Hi Elaine,

Sorry it took so long to write back. I've been overwhelmed with paying bills and trying to keep up with my house. LOL... I wonder if they'd turn me in for planting flowers or walking my dog down the road and back. Those are the only things I can think of that I've done. Those are actually therapeutic...I bet my doctor would stand up for me on those things. I guess I won't be doing any sort of " work " at all. Sometimes, I think it's unfair to not let me work part-time. I was teaching in middle school. I had the lower scoring students in my classes for enrichment/remediation. I had to be there on time, attend meetings, serve duties, etc. That's a lot different from selling something online. Oh well, I guess I'll just deal with it!!!

Thanks,

Suzanne

On Thu, Jul 10, 2008 at 1:06 PM, Elaine <epra72@...> wrote:

Hi Suzanne, I really don't know much about disability. Some of the other posters have been writing about it. What I do know is friends who have gotten it here in MI. have been watched like a hawk. and, if they

were seen doing anything that looked like they aren't disabled, they are reported and have lost the disability. Such as, a friend was on disability for a bad back. He went to a garage sale and bought a bike for his wife. He got it out of the back of the truck, got on it

and rode it down his driveway. apparently, someone was watching and reported it. He lost his disability. I am also under the impression that disability means just that--you cannot work at all. If you sell products for a company and make a profit. You will get a 1099, which

they also report this to the government. Only the S.S. can really answer your questions or a lawyer that does disability. I know the S.S. people don't always treat the disabled with courtisy. I think most think that those who are on it are taking the government for a

ride and treat them with disdain. I am sure that there are others that know a lot more than me, but I wanted to address your email as you had posted it to me.Hugs, Elaine - In dominie , " Suzanne " <Suzanne.White.Stapleton@...>

wrote:>> Hi again, I have changed my email and screen name...I just wanted to > make sure your emails didn't go into cyberspace!! ~Suzanne~> > > > > >> > Hi Elaine,> > I'm wondering the same thing. I am a state-employee and I was told > I > > couldn't work at all. However, I wonder if I could sell some

things > on > > e-bay? Does anyone know anything about that? I even thought about > > selling Pampered Chef, Avon, or supplements. It seems like, if you > sign > > a contract and pay taxes on it, then you're required to report

> it...or > > do you have to report everything? To be honest, I hate talking to > my > > disability lady. She's very condescending and I'd rather dig it out > of > > my policy.

> > Good luck!> > Suzanne> >>