Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Welcome to again, JD, and please accept my condolences for the loss of your daughter. I appreciate your introduction. Yes, CMT symptoms can differ even in the same family. This weekend is the MDA Telethon and they raise funds ALSO for CMT. For you and anyone else you might donate, you can restrict your donation 'for CMT research - even on certain parts of research - that way you know it will help CMT disease. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Gretchen, Thanks for the welcome & info on earmarking funds for CMT. I am working the phones in stown, PA on Monday from 3:30 on, for the MDA telethon. I am new to this e-group stuff so please bear with me. Again, we are forming a support group for CMT for Western PA in stown, PA on Sept 21 at 1:00. Ann Lee Beyer, Chairman and President of the Charcot-Marie-Tooth Association will be he featured speaker. If anyone has an interest in attending please contact me at 814-539- 2341 or at 814-288-1954 or by email at JDGriffith@... Also any ideas as to how to market support groups or reach CMT folks would be greatly appreciated. Thanks JD Quote Link to comment Share on other sites More sharing options...
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