help!!

[Guest guest]

If you experience 4 days with no weight loss than you are to have an apple day. You are to eat no more than 6 large organic apples starting at lunch the 4th day you experience no weight loss and continue to lunch the following day. It's in the protocal. Re-read the protocal. It explains why the scale will not register weight loss for a few days but your body is still burning the stored fat.

From: stacysue12 <stacysue12@...>Subject: help!! Date: Monday, September 22, 2008, 4:19 PM

ITS BEEN TWO WHOLE DAYS SINCE I HAVE LOST ANY WEIGHT I AM SO FRUSTRATED IS THERE ANY SUGGESTIONS TO HELP WITH THIS. I READ THE PROTOCOL FOR IT BUT ANY THING KNOWS THAT WILL WORK WOULD BE GREAT-

[Guest guest]

Here are a few things that might help:

Are you following Simeon's protocol exactly? If you are adding any foods, you might be slowing down your weight loss.

Are you drinking enough water? When i don't drink enough, I often don't lose any weight that day. (my biggest sticking point - I just don't like water. this has been my toughest challenge!)

Are you in ketosis? If you are, you shouldn't worry because you are still burning fat.

Are you eating fruit? How much, which kinds, how often and when? You should probably only eat fruit with a meal, not in between (as a snack or something). Sometimes, if you are following the protocol exactly, you can leave out the fruit and it helps.

Also, have you been at this weight for a long time before? It could be a set point and it will just take a little longer if it is.

And, are you a woman ( in your menstrual cycle)? It is common at this time to plateau...

A few things you can try:

MCT Oil - this helps get you and keep you in ketosis(burnig fat!)

Ultra Lean Protein Shakes( you need to get this from a naturopath, if you don't have one, email me back and I'll give you a website you can get it from)

Lipotropic B-12 shots - these help you get your liver working better

Colon hydrotherapy- helpful to clean out the end of your system so that your liver can keep processing optimally

Then if you are still in a plateau for four days, you can do an apple day as outlined in the Simeons protocol.

Good Luck!

From: stacysue12 <stacysue12@...>Subject: help!! Date: Monday, September 22, 2008, 9:19 AM

ITS BEEN TWO WHOLE DAYS SINCE I HAVE LOST ANY WEIGHT I AM SO FRUSTRATED IS THERE ANY SUGGESTIONS TO HELP WITH THIS. I READ THE PROTOCOL FOR IT BUT ANY THING KNOWS THAT WILL WORK WOULD BE GREAT-

[Guest guest]

Hi ,

Please send the linkfor the Ultra Lean Protein Shakes. Thanks,

From: got_nd@...Date: Tue, 23 Sep 2008 11:31:32 -0700Subject: Re: help!!

Here are a few things that might help:

Are you following Simeon's protocol exactly? If you are adding any foods, you might be slowing down your weight loss.

Are you drinking enough water? When i don't drink enough, I often don't lose any weight that day. (my biggest sticking point - I just don't like water. this has been my toughest challenge!)

Are you in ketosis? If you are, you shouldn't worry because you are still burning fat.

Are you eating fruit? How much, which kinds, how often and when? You should probably only eat fruit with a meal, not in between (as a snack or something). Sometimes, if you are following the protocol exactly, you can leave out the fruit and it helps.

Also, have you been at this weight for a long time before? It could be a set point and it will just take a little longer if it is.

And, are you a woman ( in your menstrual cycle)? It is common at this time to plateau...

A few things you can try:

MCT Oil - this helps get you and keep you in ketosis(burnig fat!)

Ultra Lean Protein Shakes( you need to get this from a naturopath, if you don't have one, email me back and I'll give you a website you can get it from)

Lipotropic B-12 shots - these help you get your liver working better

Colon hydrotherapy- helpful to clean out the end of your system so that your liver can keep processing optimally

Then if you are still in a plateau for four days, you can do an apple day as outlined in the Simeons protocol.

Good Luck!

From: stacysue12 <stacysue12 >Subject: help!! Date: Monday, September 22, 2008, 9:19 AM

ITS BEEN TWO WHOLE DAYS SINCE I HAVE LOST ANY WEIGHT I AM SO FRUSTRATED IS THERE ANY SUGGESTIONS TO HELP WITH THIS. I READ THE PROTOCOL FOR IT BUT ANY THING KNOWS THAT WILL WORK WOULD BE GREAT- See how Windows connects the people, information, and fun that are part of your life. See Now

[Guest guest]

Hi.....

This is the site for the noodles....................www.konjacfoods.com. If you receive the protein shake recipe could you send it to me..............bill fLooking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators.

[Guest guest]

Hi,

I am hoping some one can send me the protein shake recipe and the name of the noodles?Also is any one else doing the HCg and still cooking every day for family etc???

I am nervous about cooking food for others and not eating it.

If any one has any advice please share.

Best Sandi

Sandi J Harmon

44 783 377 3947 (UK)

[Guest guest]

I am still cooking for my family, and it is tough. I try and eat

before their dinner gets done so im not so hungry. It is hard not to taste the

food I cook for them to check the seasonings…I also have been trying to

do dishes I can put in the oven then leave the room so I don’t smell or

see it…J Ruth

From:

[mailto: ] On Behalf Of Sandi Harmon

Sent: 2008-09-24 6:37 AM

Subject: RE: help!!

Hi,

I am hoping some one can send me the protein shake recipe

and the name of the noodles?

Also is any one else doing the HCg and still cooking every day for family

etc???

I am nervous about cooking food for others and not eating

it.

If any one has any advice please share.

Best Sandi

Sandi J Harmon

44 783 377 3947

(UK)

[Guest guest]

,

Would you explain why you think eating fruit at anytime other than

with a regular meal is not good?

I have my apples in between the two main meals mostly to stave off

hunger until the next meal. But I also know I am carb intolerant and

likely my blood sugar spikes when I eat my apples on an empty stomach.

I actually feel a sense of euphoria followed by hunger pangs when I

eat my apples in between meals.

Anyway, just wondering what your thoughts are since it seems you have

crossed this bridge before. Thanks!

-

>

> From: stacysue12 <stacysue12@...>

> Subject: help!!

>

> Date: Monday, September 22, 2008, 9:19 AM

>

>

>

>

>

>

> ITS BEEN TWO WHOLE DAYS SINCE I HAVE LOST ANY WEIGHT I AM SO

FRUSTRATED IS THERE

> ANY SUGGESTIONS TO HELP WITH THIS. I READ THE PROTOCOL FOR IT BUT

ANY THING

> KNOWS THAT WILL WORK WOULD BE GREAT-

>

[Guest guest]

,

Have you read "Pounds and Inches" by Dr. Simeons in the file section? That would be a great start. Everything you need to start is in here.

Mixing instructions information is also in the files section on this site to the left on the home page. Everything depends on what size vial you ordered or plan to use.

Judith

From: ashenobrien <ashenobrien@...> Sent: Monday, November 17, 2008 9:03:48 PMSubject: help!!

I need some info on beginning the hcg protocol, can anyone help me with dosing instructions etc?Thanks,

[Guest guest]

Thanks Judith. I was just reading pounds and inches. Have you been doing the

diet long? How are your results? Is it is great as everyone claims? I am kinda

scared about it all. Any advice would be great. Thanks

in Phoenix

> From: ohneclue <ohneclue@...>

> Subject: Re: help!!

>

> Date: Monday, November 17, 2008, 8:30 PM

> ,

>

> Have you read " Pounds and Inches " by Dr. Simeons

> in the file section?  That would be a great start. 

> Everything you need to start is in here.

>

> Mixing instructions information is also in the files

> section on this site to the left on the home page. 

> Everything depends on what size vial you ordered or plan to

> use.

>

> Judith

>

>

>

>

> ________________________________

> From: ashenobrien <ashenobrien@...>

>

> Sent: Monday, November 17, 2008 9:03:48 PM

> Subject: help!!

>

>

> I need some info on beginning the hcg protocol, can anyone

> help me with dosing

> instructions etc?

> Thanks,

>

[Guest guest]

,

The plan is great but you have to stick to it as it is written to do the best. The more you try new and different things in the treatment phase, the less successful you can be. By that I mean, if you cheat, you might still lose .4 lbs when you could have lost 1.0 or maybe more if you had not cheated.

The time to learn how your body works with new things is in post treatment and maintenance when you add fats and more protein first and then start adding more carbs and starches in maintenance.

I have done 2 rounds of treatment and lost 40 pounds total but I'm 68 and diabetic so I don't lose as easily as I once did.

I will start my next round after the Holidays. I'm in post treatment until Turkey Day and maintenance until the New Year. Then, back on the horse in January for another 23 day plan. I don't do well with the 40 day plan and seem to stall out on weight loss at day 26.

Judith

From: ashley schwimmer <ashenobrien@...> Sent: Tuesday, November 18, 2008 12:05:00 AMSubject: Re: help!!

Thanks Judith. I was just reading pounds and inches. Have you been doing the diet long? How are your results? Is it is great as everyone claims? I am kinda scared about it all. Any advice would be great. Thanks in Phoenix> From: ohneclue <ohneclue (DOT) com>> Subject: Re: help!!> > Date: Monday, November 17, 2008, 8:30 PM> ,> > Have you read "Pounds and Inches" by Dr. Simeons> in the file section? That would be a

great start. > Everything you need to start is in here.> > Mixing instructions information is also in the files> section on this site to the left on the home page. > Everything depends on what size vial you ordered or plan to> use.> > Judith> > > > > ____________ _________ _________ __> From: ashenobrien <ashenobrien>> > Sent: Monday, November 17, 2008 9:03:48 PM> Subject: help!!> > > I need some info on beginning the hcg protocol, can anyone> help me with dosing > instructions etc?>

Thanks,>

[Guest guest]

Thanks for getting back to me Judith. I picked up the Hcg last night. It is

called Pregnyl and is 5000 IU. There are 2 ampules in the box, one says Pregnyl

and the other says Solvent serum fizyolojik. I do not understand the 2nd vial. I

was told by my friend that i do not need to use this ampule and to just use the

Pregnyl with the 30ml's of Bacterostatic water. Does this sound right to you? I

do not know who to turn to for beginners advice like this. Any thoughts or

suggestions you may have would be wonderful. I plan on starting the day after

Thanksgiving.

>

> > From: ohneclue <ohneclue (DOT) com>

> > Subject: Re: help!!

> >

> > Date: Monday, November 17, 2008, 8:30 PM

> > ,

> >

> > Have you read " Pounds and Inches " by Dr.

> Simeons

> > in the file section?  That would be a great start. 

> > Everything you need to start is in here.

> >

> > Mixing instructions information is also in the files

> > section on this site to the left on the home page. 

> > Everything depends on what size vial you ordered or

> plan to

> > use.

> >

> > Judith

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: ashenobrien <ashenobrien>

> >

> > Sent: Monday, November 17, 2008 9:03:48 PM

> > Subject: help!!

> >

> >

> > I need some info on beginning the hcg protocol, can

> anyone

> > help me with dosing

> > instructions etc?

> > Thanks,

> >

[Guest guest]

,

You can use the vial of Solvent as well -- you just have to include it's quantity with the rest of the liquid you add to dissolve the powder. I personally just use distilled water to dilute my powder with the solvent as part of the total liquid.

So if you wanted to include that Solvent (you've already paid for it), and you want to have 125 IU in each syringe, you would add the total liquid (solvent and bac/distilled water) for a total of 30 mL and each syringe would be filled to the "75" on the scale of 0-100 on the syringe for .75 mL/cc.

Why not start your injections a day or two before Thanksgiving and use Turkey Day as one of your 3 load days? Sounds like a plan to me. What a great additional use of Turkey Day in addition to giving thanks for the bounty (even in hard times) in this country!!!

Judith

From: ashley schwimmer <ashenobrien@...> Sent: Tuesday, November 18, 2008 2:55:05 PMSubject: Re: help!!

Thanks for getting back to me Judith. I picked up the Hcg last night. It is called Pregnyl and is 5000 IU. There are 2 ampules in the box, one says Pregnyl and the other says Solvent serum fizyolojik. I do not understand the 2nd vial. I was told by my friend that i do not need to use this ampule and to just use the Pregnyl with the 30ml's of Bacterostatic water. Does this sound right to you? I do not know who to turn to for beginners advice like this. Any thoughts or suggestions you may have would be wonderful. I plan on starting the day after Thanksgiving. > > > From: ohneclue <ohneclue (DOT) com>> > Subject: Re: help!!> > > > Date: Monday, November 17, 2008, 8:30 PM> > ,> > > > Have you read "Pounds and Inches" by Dr.> Simeons> > in the file section? That would be a great start. > > Everything you need to start is in here.> > > > Mixing instructions information is also in the files> > section on this site to the left on the home page. > > Everything depends on what

size vial you ordered or> plan to> > use.> > > > Judith> > > > > > > > > > ____________ _________ _________ __> > From: ashenobrien <ashenobrien>> > > > Sent: Monday, November 17, 2008 9:03:48 PM> > Subject: help!!> > > > > > I need some info on beginning the hcg protocol, can> anyone> > help me with dosing > > instructions etc?> > Thanks,> >

[Guest guest]

Howdy!I just wanted to start by commending the reply that explains how the HCG Protocol does NOT cause loose skin after the rapid weight reduction. That is truly one of the most exciting and important aspects of this regimen. I would think that even folks determined to do gastric bypass and lap band surgeries would be interested in using hCG in conjunction for that feature alone!Be careful what you read on the internet! If you would like to find all the information you need to mix and prepare for the Protocol, find it here:HOW TO MIX Sublingual RecipeInjection Mixing Instructions For supplies with COMPLETE kits (everything except the hCG) at the best prices:HCGKit.comAnd coaching:HCGCoaching.comMore information than you can find anywhere else about hCG questions:HCGDietAnswers.com Hope that helps!

Blessed, healthy, prosperous & FREE be, B'Shem Yeshua, with love & shalom from

Shalom Shick, BSChE, Health Minister, Student ND http://HCGCoach.comPlease consider purchasing your HCG from

http://www.drugdelivery.ca/s33559-s-HCG-PREGNYL-97129-s.aspx USE Coupon Code 97129 to receive $1.00 off your order!

Click on their Live Chat, email or call after your order is placed and let them know HCGCoach.com referred you, and get a FREE UPGRADE to PRIORITY HANDLING ($7.95 Value)The information provided in this message is for educational purposes only. It is not intended to diagnose or treat any health condition and is not a substitute for treatment by a healthcare provider. > > > > > From: ohneclue ohneclue (DOT) com>> > > Subject: Re: help!!> > > > > > Date: Monday, November 17, 2008, 8:30 PM> > > ,> > > > > > Have you read "Pounds and Inches" by Dr.> > Simeons> > > in the file section? That would be a great start. > > > Everything you need to start is in here.> > > > > > Mixing instructions information is also in the files> > > section on this site to the left on the home page. > > > Everything depends on what size vial you ordered or> > plan to> > > use.> > > > > > Judith> > > > > > > > > > > > > > > ____________ _________ _________ __> > > From: ashenobrien <ashenobrien>> > > > > > Sent: Monday, November 17, 2008 9:03:48 PM> > > Subject: help!!> > > > > > > > > I need some info on beginning the hcg protocol, can> > anyone> > > help me with dosing > > > instructions etc?> > > Thanks,> > > >

[Guest guest]

It sounds like you hit it right on the head. I actually haven't checked this

email for such a long time, I'm sorry I forgot why. But I'll ask my naturopath.

For hunger in between meals, I used UltraLean protein drink made by BioGenesis.

It helped to balance out my blood sugars throughout the day and I didn't have

the spike/crash thing like you explained with the apples. And I remember him

saying that when you are hungry the best thing to eat is protein - not carbs,

even though those get to your bloodstream faster.

> From: rjc234@... <rjc234@...>

> Subject: Re: help!!

>

> Date: Wednesday, September 24, 2008, 2:42 PM

> ,

>

> Would you explain why you think eating fruit at anytime

> other than

> with a regular meal is not good?

>

> I have my apples in between the two main meals mostly to

> stave off

> hunger until the next meal. But I also know I am carb

> intolerant and

> likely my blood sugar spikes when I eat my apples on an

> empty stomach.

> I actually feel a sense of euphoria followed by hunger

> pangs when I

> eat my apples in between meals.

>

> Anyway, just wondering what your thoughts are since it

> seems you have

> crossed this bridge before. Thanks!

>

> -

>

>

> >

> > From: stacysue12 <stacysue12@...>

> > Subject: help!!

> >

> > Date: Monday, September 22, 2008, 9:19 AM

> >

> >

> >

> >

> >

> >

> > ITS BEEN TWO WHOLE DAYS SINCE I HAVE LOST ANY WEIGHT I

> AM SO

> FRUSTRATED IS THERE

> > ANY SUGGESTIONS TO HELP WITH THIS. I READ THE PROTOCOL

> FOR IT BUT

> ANY THING

> > KNOWS THAT WILL WORK WOULD BE GREAT-

> >

[Guest guest]

I'm not sure if BioGenesis sells directly to the public. I got mine through my

naturopath. But here is their website: www.bio-genesis.com.

Good Luck

> From: stacysue12 <stacysue12@...>Subject:

> help!!@...:

> Monday, September 22, 2008, 9:19 AM

>

>

> ITS BEEN TWO WHOLE DAYS SINCE I HAVE LOST ANY WEIGHT I AM

> SO FRUSTRATED IS THERE ANY SUGGESTIONS TO HELP WITH THIS. I

> READ THE PROTOCOL FOR IT BUT ANY THING KNOWS THAT WILL WORK

> WOULD BE GREAT-

>

>

>

>

>

> _________________________________________________________________

> See how Windows connects the people, information, and fun

> that are part of your life.

> http://clk.atdmt.com/MRT/go/msnnkwxp1020093175mrt/direct/01/

[Guest guest]

Christin,

I think you will get a lot of very helpful emails from folks who have dealt

with plenty of situations with their kids. I have a daughter, aged 13 also,

so I do not have a lot of advice as our kids are so similarly aged. But I

would tell you I have noticed my girl having all sorts of " age appropriate "

teenage comments and behaviors. If yourdaughter has trouble communicating

her wishes, words, thoughts, etc, that may very well lead to difficulties in

behavior. How painfully awful must it be to NEVER be able to be understood.

I think we who don't have communication problems of the level that most

folks with ds have have no clue how unbelievably frustrating it must be. How

about school? How is she doing there? Does she have any friends? Do the

school folks work well with her? Do they understand her? It isn't very fun

to be 13. Who wants to be 13 again? She is probably having hormonal shifts

and all sorts of stuff. I'd try to sort out some calm, nice, time to be with

her and do some activities she wants to do. What does she like?

If it helps to hear this, I received this comment from my cutie pie

yesterday after I insisted she change back into her pink socks (which

matched her outfit) from the black ones she picked upon arriving home from

church: " Those socks are hideous and so are you! "

I have to tell you I was laughing on the inside because it was funny, but of

course I had to tell her those words were not appropriate.

You'll get through this. All parents of teenagers do. Ours did.

Eleanor Green (mom to , 13, ds and , 10, nda)

_____

From: [mailto: ] On Behalf

Of christinblankenship

Sent: Monday, January 26, 2009 10:57 AM

Subject: Help!!

I have a 13 year old daughter named with Down's Syndrome who

has communication issues. I had joined this group a couple of years

back, but my account got messed up, and haven't rejoined until

recently. 's father and I are divorced, and up until the

beginning of last August, she lived with her father and stepmother.

They started having issues with her after she would come home from

visiting me; she was always upset and angry whenever she would go back

to her dad's. So, he talked to me about the option of her coming to

live with me full time and visit him instead of the other way around.

My boyfriend has an amazing ability to understand and communicate with

where it seems even her father and I struggle a little with

communicating with her. So has lived with me for almost six

months now, and she has on occasion, given me trouble when it's time

to get out of bed or get ready for school in the morning. My boyfriend

Bart has been able to occasionally step in where I get frustrated and

help get moving. Bart is now in Iraq (for a year), and I don't

have back up

anymore. has been more and more insistent about not getting up

or even not getting ready for school in the mornings.

I used to pop her bottom when she was younger when she got in trouble.

This doesn't even phase her anymore; she's 13, just about as strong as

me, and I don't even want to initiate physical contact with her that

she sees as threatening because she will lash out at me.

I have started taking her toys and her movies from her (her 2 favorite

things)when she won't get out of bed or get dressed. I have stripped

her room down to her bookshelf and bed. This hardly seems to phase her

either. She gets angry, since I am doing her an injustice, but of

course, she doesn't feel like she does this to me. I have even called

the police because she refuses to go to school. That only got her

attention a little. And I don't want her to be afraid of the police,

so I don't want to have to keep calling them. I'm at my wits end; I

don't know what to do. I keep having to miss work in dealing with her.

And I can't physically make her do anything since she's just as strong

as me. Does anyone have any advice? Or even just some kind words,

saying they understand, how they dealt with similar situations with

their children?

I would appreciate ANYTHING so much!

Christin

[Guest guest]

Christin,

I understand completely what you are going through with your

daughter not wanting to go to school. I too am struggling with the

same situation. My nephew, Gavin, age 9 who lives with me, has

refused to go to school since before Christmas. Each and every

morning it is the battle of the wills. I have even driven him to

school, but he remains in the parking lot and absolutely refuses to

go in, even with the principal, school psychologist and his aide

encouraging him to enter. It is very trying and emotionally draining,

I understand.

We decided to change his classroom placement, thinking that

perhaps school has become too challenging and stressful for him. How

does your daughter like her classroom? Does she only do this on

school days? Perhaps her refusal to get up in the morning is somehow

related to her thoughts of going to school? How does she interact

with her peers and is the teacher teaching things at her level? Just

some things to consider. Gavin also struggles with communicating his

needs. Whenever he is unable to do so, it always comes out in

behaviors. They tell us the only way they know how!

Have you ever used PECS to help communicate through

pictures? Also perhaps a social story explaining the morning routine

before school would be helpful. I wish I had the answers for you!

Hang in there and perhaps seek out some supports in your community.

Hugs,

Traci, Aunt to Gavin, 9 DS/PDD

>

> I have a 13 year old daughter named with Down's Syndrome who

> has communication issues. I had joined this group a couple of years

> back, but my account got messed up, and haven't rejoined until

> recently. 's father and I are divorced, and up until the

> beginning of last August, she lived with her father and stepmother.

> They started having issues with her after she would come home from

> visiting me; she was always upset and angry whenever she would go

back

> to her dad's. So, he talked to me about the option of her coming to

> live with me full time and visit him instead of the other way

around.

> My boyfriend has an amazing ability to understand and communicate

with

> where it seems even her father and I struggle a little with

> communicating with her. So has lived with me for almost six

> months now, and she has on occasion, given me trouble when it's time

> to get out of bed or get ready for school in the morning. My

boyfriend

> Bart has been able to occasionally step in where I get frustrated

and

> help get moving. Bart is now in Iraq (for a year), and I

don't

> have back up

> anymore. has been more and more insistent about not getting

up

> or even not getting ready for school in the mornings.

> I used to pop her bottom when she was younger when she got in

trouble.

> This doesn't even phase her anymore; she's 13, just about as strong

as

> me, and I don't even want to initiate physical contact with her that

> she sees as threatening because she will lash out at me.

> I have started taking her toys and her movies from her (her 2

favorite

> things)when she won't get out of bed or get dressed. I have stripped

> her room down to her bookshelf and bed. This hardly seems to phase

her

> either. She gets angry, since I am doing her an injustice, but of

> course, she doesn't feel like she does this to me. I have even

called

> the police because she refuses to go to school. That only got her

> attention a little. And I don't want her to be afraid of the police,

> so I don't want to have to keep calling them. I'm at my wits end; I

> don't know what to do. I keep having to miss work in dealing with

her.

> And I can't physically make her do anything since she's just as

strong

> as me. Does anyone have any advice? Or even just some kind words,

> saying they understand, how they dealt with similar situations with

> their children?

>

> I would appreciate ANYTHING so much!

>

> Christin

>

[Guest guest]

Is she like this on weekends and other non-school days as well? If not, I'd

check out what's going on at school that makes her so reluctant to go. If

so, I'd take her to the doctor to see if she has a sleep problem that is

making her tired in the morning.

granny

On Mon, Jan 26, 2009 at 9:56 AM, christinblankenship <

christinblankenship@...> wrote:

> I have a 13 year old daughter named with Down's Syndrome who

> has communication issues. I had joined this group a couple of years

> back, but my account got messed up, and haven't rejoined until

> recently. 's father and I are divorced, and up until the

> beginning of last August, she lived with her father and stepmother.

> They started having issues with her after she would come home from

> visiting me; she was always upset and angry whenever she would go back

> to her dad's. So, he talked to me about the option of her coming to

> live with me full time and visit him instead of the other way around.

> My boyfriend has an amazing ability to understand and communicate with

> where it seems even her father and I struggle a little with

> communicating with her. So has lived with me for almost six

> months now, and she has on occasion, given me trouble when it's time

> to get out of bed or get ready for school in the morning. My boyfriend

> Bart has been able to occasionally step in where I get frustrated and

> help get moving. Bart is now in Iraq (for a year), and I don't

> have back up

> anymore. has been more and more insistent about not getting up

> or even not getting ready for school in the mornings.

> I used to pop her bottom when she was younger when she got in trouble.

> This doesn't even phase her anymore; she's 13, just about as strong as

> me, and I don't even want to initiate physical contact with her that

> she sees as threatening because she will lash out at me.

> I have started taking her toys and her movies from her (her 2 favorite

> things)when she won't get out of bed or get dressed. I have stripped

> her room down to her bookshelf and bed. This hardly seems to phase her

> either. She gets angry, since I am doing her an injustice, but of

> course, she doesn't feel like she does this to me. I have even called

> the police because she refuses to go to school. That only got her

> attention a little. And I don't want her to be afraid of the police,

> so I don't want to have to keep calling them. I'm at my wits end; I

> don't know what to do. I keep having to miss work in dealing with her.

> And I can't physically make her do anything since she's just as strong

> as me. Does anyone have any advice? Or even just some kind words,

> saying they understand, how they dealt with similar situations with

> their children?

>

> I would appreciate ANYTHING so much!

>

> Christin

>

>

>

--

Not for ourselves but for the whole world we were born

[Guest guest]

Hi,

First of all, I would make sure that there is not something at school that is

making her not want to go to school. Is it just for this that she is defiant or

are there other times? Rule out any issues that you can take care of at

school. Also, does she have friends at her new school? She may be grieving the

loss of friends from her old life, 6 months isn't that long for her to be in a

new place and having adjustment problems.

Then, I would have her help you find a solution.

I would sit down with her and have her help make a routine of what needs to be

done in the morning and figure out how long it will take and what time she needs

to be getting up and getting certain things done. You can do this in a chart

with words or pictures, which ever works for her. Make sure that SHE feels

that she has major input, direct her gently in the way you need her to go and

praise her when she goes that way. If there are things she wants in there...

work with her.. you want HER to take ownership of this so it has to meet HER

standards.

Next.. stop taking things away and making it negative. IGNORE the negative..

figure out a plan of action (even having to go to school in pj's) that will

happen if she does NOT comply... and set this down for her.. once.. and don't

harp on it.

AND most importantly... POSITIVE POSITIVE POSITIVE... what will be a good reward

for her? 1/2 hour of game boy if she gets up and moving? Choosing a snack?

Watching Hannah Montana with Mom sitting with her? Start out rewarding

immediately and as she is more successful.. keep telling her how proud you are

that she is maturing and becoming independent and then up the stakes AND the

reward.

Hope this helps.. you can email me privately if you want more specific ideas.

OH.. and write a social story about what we DO do in the mornings... read it to

her several times a day.. for a couple of weeks at least.. always before she

goes to bed.. and perhaps when she first wakes up in the morning. Perhaps she

just needs 10 minutes of mommy cuddling or chatting time before she gets up to

face the day.

[Guest guest]

You could also use pictures to support the social story and have the wake up

routine posted by her bed/ in the bath/ wherever she needs to refer to it.

From: [mailto: ] On Behalf

Of and FRANK

Sent: Monday, January 26, 2009 2:41 PM

; christinblankenship

Subject: Re: Help!!

Hi,

First of all, I would make sure that there is not something at school that

is making her not want to go to school. Is it just for this that she is

defiant or are there other times? Rule out any issues that you can take care

of at school. Also, does she have friends at her new school? She may be

grieving the loss of friends from her old life, 6 months isn't that long for

her to be in a new place and having adjustment problems.

Then, I would have her help you find a solution.

I would sit down with her and have her help make a routine of what needs to

be done in the morning and figure out how long it will take and what time

she needs to be getting up and getting certain things done. You can do this

in a chart with words or pictures, which ever works for her. Make sure that

SHE feels that she has major input, direct her gently in the way you need

her to go and praise her when she goes that way. If there are things she

wants in there... work with her.. you want HER to take ownership of this so

it has to meet HER standards.

Next.. stop taking things away and making it negative. IGNORE the negative..

figure out a plan of action (even having to go to school in pj's) that will

happen if she does NOT comply... and set this down for her.. once.. and

don't harp on it.

AND most importantly... POSITIVE POSITIVE POSITIVE... what will be a good

reward for her? 1/2 hour of game boy if she gets up and moving? Choosing a

snack? Watching Hannah Montana with Mom sitting with her? Start out

rewarding immediately and as she is more successful.. keep telling her how

proud you are that she is maturing and becoming independent and then up the

stakes AND the reward.

Hope this helps.. you can email me privately if you want more specific

ideas.

OH.. and write a social story about what we DO do in the mornings... read it

to her several times a day.. for a couple of weeks at least.. always before

she goes to bed.. and perhaps when she first wakes up in the morning.

Perhaps she just needs 10 minutes of mommy cuddling or chatting time before

she gets up to face the day.

[Guest guest]

Christin,

I relate very much to your situation with your daughter.  I struggle with my

daughter Ana (16) almost every day, because she does not like to go to school,

ever since  kindergarten.  Of course the first thing I did was to talk to the

teachers, counselors, etc.  they all have told me that once Ana is at school,

she is happy.  The only time she is willing and happy to go is when she knows

she will go swimming or to any other special activity the school will have.  We

have gone through most of the scenarios  the other members mentioned! my

husband taking her because she missed the bus, then staying inside the car at

the school parking, the teacher coming to get her, etc. etc.

I am also taking the advice given to you here by , Judy, Eleanor,

Granny...   I try to wake her up earlier and do the things at her own pace

(very, very slow) and without me becoming too upset, (I have learned this is

very important, because the more upset I get, the more she becomes stubborn). 

I  try motivate her, I talk to her about what she is going to do at school; 

sometimes I put something in her school bag (picture, a paper ad, etc.) and tell

her to take it to school to show it to her friends; she then becomes motivated,

this is something that sometimes works and sometimes doesn't.  She is not

allowed to take video games or anything like that, so I use things that the

school won't confiscate

Good luck,

Bonnie

--- El lun 26-ene-09, gavinsaunt <gavinsaunt@...> escribió:

De:: gavinsaunt <gavinsaunt@...>

Asunto: Re: Help!!

A:

Fecha: lunes, 26 enero, 2009, 6:15 pm

Christin,

I understand completely what you are going through with your

daughter not wanting to go to school. I too am struggling with the

same situation. My nephew, Gavin, age 9 who lives with me, has

refused to go to school since before Christmas. Each and every

morning it is the battle of the wills. I have even driven him to

school, but he remains in the parking lot and absolutely refuses to

go in, even with the principal, school psychologist and his aide

encouraging him to enter. It is very trying and emotionally draining,

I understand.

We decided to change his classroom placement, thinking that

perhaps school has become too challenging and stressful for him. How

does your daughter like her classroom? Does she only do this on

school days? Perhaps her refusal to get up in the morning is somehow

related to her thoughts of going to school? How does she interact

with her peers and is the teacher teaching things at her level? Just

some things to consider. Gavin also struggles with communicating his

needs. Whenever he is unable to do so, it always comes out in

behaviors. They tell us the only way they know how!

Have you ever used PECS to help communicate through

pictures? Also perhaps a social story explaining the morning routine

before school would be helpful. I wish I had the answers for you!

Hang in there and perhaps seek out some supports in your community.

Hugs,

Traci, Aunt to Gavin, 9 DS/PDD

>

> I have a 13 year old daughter named with Down's Syndrome who

> has communication issues. I had joined this group a couple of years

> back, but my account got messed up, and haven't rejoined until

> recently. 's father and I are divorced, and up until the

> beginning of last August, she lived with her father and stepmother.

> They started having issues with her after she would come home from

> visiting me; she was always upset and angry whenever she would go

back

> to her dad's. So, he talked to me about the option of her coming to

> live with me full time and visit him instead of the other way

around.

> My boyfriend has an amazing ability to understand and communicate

with

> where it seems even her father and I struggle a little with

> communicating with her. So has lived with me for almost six

> months now, and she has on occasion, given me trouble when it's time

> to get out of bed or get ready for school in the morning. My

boyfriend

> Bart has been able to occasionally step in where I get frustrated

and

> help get moving. Bart is now in Iraq (for a year), and I

don't

> have back up

> anymore. has been more and more insistent about not getting

up

> or even not getting ready for school in the mornings.

> I used to pop her bottom when she was younger when she got in

trouble.

> This doesn't even phase her anymore; she's 13, just about as strong

as

> me, and I don't even want to initiate physical contact with her that

> she sees as threatening because she will lash out at me.

> I have started taking her toys and her movies from her (her 2

favorite

> things)when she won't get out of bed or get dressed. I have stripped

> her room down to her bookshelf and bed. This hardly seems to phase

her

> either. She gets angry, since I am doing her an injustice, but of

> course, she doesn't feel like she does this to me. I have even

called

> the police because she refuses to go to school. That only got her

> attention a little. And I don't want her to be afraid of the police,

> so I don't want to have to keep calling them. I'm at my wits end; I

> don't know what to do. I keep having to miss work in dealing with

her.

> And I can't physically make her do anything since she's just as

strong

> as me. Does anyone have any advice? Or even just some kind words,

> saying they understand, how they dealt with similar situations with

> their children?

>

> I would appreciate ANYTHING so much!

>

> Christin

>

__________________________________________________

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[Guest guest]

Hi Christin,

Going to tell you my story hopefully this may help you a bit -

Trent at 18 left school and started at what we call a Futures for Young

Adults Program. Previously he attended a Special School which here is for

those with less needs and in some cases very high functioning, compared with

a Special Development School which is for those with more needs and low

functions.

The program he attended was initially a small group of about a dozen or so

clients with low needs/high functioning, actually Trent was probably there

first obvious disabled client, as such he was their pin-up boy so to speak.

Over the years, they increased their number of higher need clients and

several who required 1:1.

This became an environment that Trent was not comfortable with, though one

of his friends from this area was also attending and someone he could relate

to. With the extra lower functioning kids (most having previously been to a

SDS), the group was split into two. One 21 group being the guys Trent had

previously been with and who where now having more intense training for life

ie. driver education, work placement. The other group Osaat (One Step at a

Time) sort of doing the same thing but at a far lower level and for him a

repeat of many years of school. This did not please Trent and he became a

different person, a person who would mimic the other clients disability –

autistic flapping was great or the curled hands of a person with CP. He

would not do anything around the house, wouldn’t make his bed, left clothes

on the floor, bags etc., repeatedly wore dirty clothes and refused to change

when this was pointed out.

He is virtually non-verbal but can be very communicative if he wants - he

started becoming a behavioural problem at program - occasionally trashing

a room, throwing furniture or hitting out at windows and banging on the wall

of the bus, all things he would not do at home. His headphones to his iphone

would come home broken on a regular basis, lots of little annoying things

where happening – he lost his phone on a couple of occasions, we had 3

wallets disappear in one week. Program starts at 9.30 a.m., we had at

least a ½ drive to get him there, most mornings where a screaming match with

me trying to get him to have a shower – he would ‘hide’ in the

toilet/ensuite. We have two toilets in our house, and he would go to one

for a period of time, then change and go to the other and then maybe back to

the one he started in, he could be there for up to an hour. Threats of

staying home, taking things away from him nothing would get him moving of a

morning. He was happier during holiday time though very bored.

Crunch time - he went on an excursion to New Zealand with this program, a

couple of major behavioural clients were also on this trip. He was very sad

and crying to come home (Trent is not a person to cry easily) eventually he

chose not to participate in some of the activities – staff could not see

what the problem was and I was told he was ‘just being others’.

On his return back to program, it was obvious he was not happy and there was

something going on. I withdrew him from that provider, and researched the

other providers.

Since last October, he has been attending another program and is really

happy, he is up, showered and had breakfast in plenty of time, I am now

returning home way before I use to be dropping him off - thus giving me a

more ‘normal’ day. He is more communicative and happy to help with many

things, he makes his bed most mornings and keeps his clothes in the dirty

wash basket. He eats breakfast, previously he refused it, does little

things around the house to be helpful. He is a delight to be around again

- these summer holidays are the worst I have ever endured with him – he

wasn’t happy and really just wanted to get back to program.

He still mimics others and has learnt another good disability – pacing up

and down, though must admit I can handle that more than the flapping/jumping

he was doing. We are still working on the curled hands - usually just a

simple reminder of ‘Trent remember who you are” will bring results.

At times, I feel really guilty that it took me a long time to see how

depressed and sad he was , at the time I thought he was happy and had many

friends there. I was reluctant to move him on thinking it would cause more

problems in hindsight by not moving him on straight away actually caused

more problems.

I do hope reading my story may help you - I have shared this as I can see

many similarities in what you were saying and our situation. I believe

is very unhappy and you need to work out what is upsetting her. One

way we communicate with Trent is asking him yes/no questions and getting him

to point to either our hands (left hand yes / right hand no) or I will print

out a Yes with a smiley face and a No with a Sad face for him to point to.

Remember she is a 13yo girl who in many ways does think and wants to be a

13yo, we often don’t let our kids grow up thinking they are way behind their

chronological age, when in fact they are only behind in certain areas or

maybe more relaxed with who they are to sit down and enjoy kids shows such

as the Wiggles. A lot of things our kids do such as playing at play grounds

and watching the Wiggles as adults is not wrong – just because society as a

whole says it is unacceptable – doesn’t really mean it is.

Wish you all the best

Keep smiling

Jan, mother of Trent 24yo w/DS from the LandDownUnder

From: [mailto: ] On Behalf

Of christinblankenship

Sent: Tuesday, 27 January 2009 2:57 AM

Subject: Help!!

I have a 13 year old daughter named with Down's Syndrome who

has communication issues. I had joined this group a couple of years

back, but my account got messed up, and haven't rejoined until

recently. 's father and I are divorced, and up until the

beginning of last August, she lived with her father and stepmother.

They started having issues with her after she would come home from

visiting me; she was always upset and angry whenever she would go back

to her dad's. So, he talked to me about the option of her coming to

live with me full time and visit him instead of the other way around.

My boyfriend has an amazing ability to understand and communicate with

where it seems even her father and I struggle a little with

communicating with her. So has lived with me for almost six

months now, and she has on occasion, given me trouble when it's time

to get out of bed or get ready for school in the morning. My boyfriend

Bart has been able to occasionally step in where I get frustrated and

help get moving. Bart is now in Iraq (for a year), and I don't

have back up

anymore. has been more and more insistent about not getting up

or even not getting ready for school in the mornings.

I used to pop her bottom when she was younger when she got in trouble.

This doesn't even phase her anymore; she's 13, just about as strong as

me, and I don't even want to initiate physical contact with her that

she sees as threatening because she will lash out at me.

I have started taking her toys and her movies from her (her 2 favorite

things)when she won't get out of bed or get dressed. I have stripped

her room down to her bookshelf and bed. This hardly seems to phase her

either. She gets angry, since I am doing her an injustice, but of

course, she doesn't feel like she does this to me. I have even called

the police because she refuses to go to school. That only got her

attention a little. And I don't want her to be afraid of the police,

so I don't want to have to keep calling them. I'm at my wits end; I

don't know what to do. I keep having to miss work in dealing with her.

And I can't physically make her do anything since she's just as strong

as me. Does anyone have any advice? Or even just some kind words,

saying they understand, how they dealt with similar situations with

their children?

I would appreciate ANYTHING so much!

Christin

[Guest guest]

Hi Jen--my son started fevering Feb, 2008--every 2-4 weeks until Oct,

2008-- (Coincidentally, I took a " leave " from work to try to get a handle on

this) the week after I went back to work, he started up again (he only had a 8

week hiatus--but it was nice!!)

[Guest guest]

I do recall others discussing remissions on this board. My son had a remission

for about 6 months and then it started in again. I don't know what the periods

of time of remission was for others. Secondly, Damian had numerous ear

infections and different things between episodes. That all ended after his

November 2008 T/A and we pray we can continue on the path of wellness. Best of

luck.

[Guest guest]

Hi Jen,

 

I can relate.  My daughter is now 7 yrs old and was diagnosed with when

she was three yrs old.  She suffered from episodic fevers and etc, from 1 month

old until June of 2008.  Now she seems to get a lot of upper respiratory

viruses but remains afebrile or runs a low grade temp of 99F to 100F requiring

no Motrin or Tylenol.  Prior to this, her episodes were severe occurring every

14 to 30  days.  I have my fingers cross and I am learning as I go.  If this is

sons first episode since 2008, it my be viral.  It is RSV season.  Good luck.  I

have been there and know how emotionally draining can be.

 

PS:  I also have a 16 yr old son who had symptoms stat ring at 8monts old

and stopped when he was 7 yrs old as well.  He was never dx but I never took him

to a specialist either.  My daughter was way sicker.  After his episodes stopped

he was healthy except for the occasional allergies or colds.  Then when he was

14yrs he had pneumonia twice.  Not sure if there is any correlation.

Casie