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Re: pain and Fran's ribs

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I don't have a lot of pain, but I do have occasional twitching and it

drives me crazy. I seem to have internal and external twitching - at least

that's the way I try to explain it. The external twitching is normal

twitching - the internal and the most maddening just feels like a ... well,

I can't even describe it, but it is awful and causes me to lose sleep.

While we're on the subject, have any of you experiences any strange

sensations around the rib-cage? For years, at least 13 years, my ribs (at

time - more frequently recently) feel kind of like they're trying to push

out and I have to apply pressure to get comfortable. That is what really

causes me more loss of sleep - it's awful. The neurologist has asked me to

get a chest x-ray - haven't been able to do that yet - but I go back to her

today and I'm hoping that she can figure something out.

Thanks,

Fran

>Challenges Met Together here at ! Charcot Marie Tooth Universal

>Services - for you, your loved ones, the medical community, and anyone

>who wants to learn how CMT/HMSN affects each of us through experiential

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Fran, by twitching do you mean tremoring or tremors? Now if is is that,

drives me crazy too. Just glad I have a med for it. And ribs? A car

accident crushed about 6 ribs 12 years ago - it seemed like forever. I

really feel for you. I DO encourage you to get a chest X-ray so your doc

can help. Also wondering about your sleep position, when my ribs were

broken, the only sleep I got was laying on one side, fetal like.

~G

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When I'm trying to sleep, it doesn't matter what position I'm in - I have

to apply pressure to the ribcage to get comfortable and then it's really

one passably comfortable... not 100 comfortable.

Thanks for your comments - I will get that chest x-ray. I'm just happy to

find a doctor that's willing to help me!

Fran

>Challenges Met Together here at ! Charcot Marie Tooth Universal

>Services - for you, your loved ones, the medical community, and anyone

>who wants to learn how CMT/HMSN affects each of us through experiential

>sharing.

>

>

>

>

>

>

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Forgot to say - it's probably tremoring (new to this list and the CMT

verbiage!).

Fran

>Challenges Met Together here at ! Charcot Marie Tooth Universal

>Services - for you, your loved ones, the medical community, and anyone

>who wants to learn how CMT/HMSN affects each of us through experiential

>sharing.

>

>

>

>

>

>

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