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Hi my name is Lori and I have CMT. My whole family on my fathers

side has CMT to some degree or another. My father has asked me to

research what meds CMTer have taken that work and do not work and

what things that you do that helps or makes it worse. We are in the

process of teaching a foot doc about the disease so that someone in

this area knows something about our disease. Of course he is

researching on the web the medical part but thinks that since

treatments are so varied that he wants ideas from us. Of course

eveyone is different but a list of things to try when or if

something fails to help could be helpful.

I am 41yrs old and retired LP nurse. I use hand braces and AFOs

sometimes and a cane and 4 wheeled walk with a seat when I am to

shaky. I have problems with my legs, feet, arms , hands, and

balance. I also have back pain from scoliosis and a back injury. My

thinking is slow and causes me alot of fustration. I have found that

using a desk top calander on the coffee table is helpful. I write

everything down on it to keep myself on track.

(((((HUGS1)))))Lori

P.S. I have started the long process of reading all the posts on

this site.