Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 >I assume you mean 1 gram of protein > per lb of body weight??? Jane Jane, I wondered that also --- seems like a LOT of protein. Wanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Sue, Welcome. You can only gain by following the program. It is not a diet it is eating correcly. I have been following it now for over 2 years and it has served me well. I went to a funeral three weeks ago and all they had to eat after were rolls and lunchmeat and cheeses. I had 3 rolls with meat and I was miserable for hours. It is these times that make me stick to it. Before I never gave it a thought, I just thought that is how it is, and after being off of most of the avoids and you try it again, is just a reminder to keep it up. Some of my friends think I am absolutely crazy, however I have much more energy and am never sick. I use to get sinus infections all the time and have not had one for two years. I lost weight and have not regained it and lost more inches than weight. Keep it up and listen to your body. I believe that traditional doctors want you to keep coming back for more medication because they treat the symptom and not the root cause. They give you one medication that has a counter effect and causes something else and of course there is another medicine for that symptom and the merry go round never stops. Once you feel good and no longer have to go to the doctor you are a believer. Good Luck. Newbie I've just recently heard of the Type O diet. My husband is on the heart transplant list and a friend gave us Dr. D'Adamo's Blood Type 0 book. I have to be honest I read it and figured " Hey, I've done just fine all these years - why do I need to change anything now " . I put the book on the shelf but strangly it keep eating at me. I found your group and have only read about 20 messages and thought again " Hey, maybe there's something to this " . So the book is currently on the counter in my kitchen. I figured I might as well give this a whirl seeing as I need to lose about 10 pounds and we all want to feel better, right?! I see you can have Manna bread and I am a bread baker but geez, this bread is pretty involved to make. I love my bread for breakfast and I love my normal cereal too. What kinds of cereals and breads do you folks eat? And I really have to give up milk? I've never had green tea but I'll be adding that to my grocery list. Cheese will be a problem but I'll deal with it. Did you all feel overwhelmed thinking you had to change your way of eating? The 2nd part of my problem is convincing my husband to try the diet seeing as he has the most to gain. Now that I've totally bored you all I'll sit back and lurk and try to learn. Any tips would really be appreciated. We're glad to be aboard!! TIA Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 " " " Some of my friends think I am absolutely crazy " " " That is so sad - it shows where we are on the evolutionary ladder. These are no doubt are the dark ages. Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 , I'm male, 47, a long time cyclist, and have doing the blood type diet (BTD) for a little over a year now. Last summer was my first cycling season on the diet. I try to ride the 2 club training races every week when I can and catch an occasional weekend ride too. If I miss one of those organized rides I might do a ride by myself or even get on the bike trainer if time is limited during the week. Once warmed up my heart rate will stay above 160-165 bpm for the rest of a hour to hour and a half training race. My maximum heart rate last year seemed to be in the 184 bpm range. And yes, I keep up, frequently lead, and occasionally drop the 20 something year old riders! The first change I noticed as a result of the BTD was my knees. Any knee discomfort that I might have occasionally gotten from cycling in the past went away completely. I also noticed my energy level was much better. I felt like I didn't need a sports drink to keep going during the most intense rides, although I still always drank a sports drink to keep hydrated. In the past I drank the sports drinks because I needed the sugar to keep going. I think it took several more months and continued improvement in my diet to get over my borderline hypoglycemia. Now I don't crave sweets or feel like I have to snack all the time. I also have to say that the diet has improved my mental outlook too. I wish you good luck with the diet and with this years cycling season. Write me if you have any questions. Regards, Don > I´ve been lurking in the shadows for a while, so I think I better present myself. I´m male, 55 years, going on 18, and I´ve led a crazy life, as they say. I have all the classic type O complaints: stiff joints, muscle pains, Carpal Tunnel Syndrome( anyone out there been cured of this, by the way?) depression, probably caused by hypoglycemia, probably caused by sugar/carbohydrate addiction. Also, I seem to have some other symtoms that diabetics get, tho´ the doc´s say I´m not diabetic. > The plus side is that I´ve been good at getting lots of exercise, 2 or 3 hrs on my bicycle, 2 or 3 times a week. The problem is, I binge on carbohydrates after a long ride, usually the wrong sort, and quickly end up feeling less than good. Good advice from anyone out there with experience of endurance sports would be appreciated. If I could even keep up with those half my age, ( Forrester !! ) it would be terrific. Anyway, I´m going to keep trying to zero in on the BTD.Thats enough ear bending for one mail. Thanks for the good company. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 Hi , and welcome to the group. I don't have experience with endurance sports... I'm not even as active as I should be. But I think you'll find most of us here agree that more protein (or protein throughout your day) will help your energy levels, as opposed to the carbohydrates. The protein usually gives a more level output of energy where carbohydrates gives a quick high, then a low when the sugars are used up. I think this is why I used to think I was borderline diabetic for years even though any tests came back negative. I don't have that problem anymore because I make sure I eat protein at every meal. It sustains me throughout the day. Joint pain I think can be a symptom of eating the wrong foods... such as wheat and dairy. I know mine don't ache and feel swollen like they used to. Hope this helps, I´ve been lurking in the shadows for a while, so I think I better present myself. I´m male, 55 years, going on 18, and I´ve led a crazy life, as they say. I have all the classic type O complaints: stiff joints, muscle pains, Carpal Tunnel Syndrome( anyone out there been cured of this, by the way?) depression, probably caused by hypoglycemia, probably caused by sugar/carbohydrate addiction. Also, I seem to have some other symtoms that diabetics get, tho´ the doc´s say I´m not diabetic. The plus side is that I´ve been good at getting lots of exercise, 2 or 3 hrs on my bicycle, 2 or 3 times a week. The problem is, I binge on carbohydrates after a long ride, usually the wrong sort, and quickly end up feeling less than good. Good advice from anyone out there with experience of endurance sports would be appreciated. If I could even keep up with those half my age, ( Forrester !! ) it would be terrific. Anyway, I´m going to keep trying to zero in on the BTD.Thats enough ear bending for one mail. Thanks for the good company. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 In a message dated 3/29/2003 9:29:57 AM Eastern Standard Time, dacavo@... writes: << stiff joints, muscle pains, Carpal Tunnel Syndrome( anyone out there been cured of this, by the way?) depression, probably caused by hypoglycemia, probably caused by sugar/carbohydrate addiction. Also, I seem to have some other symtoms that diabetics get, tho´ the doc´s say I´m not diabetic. >> Do the diet (don't cheat), in a month you'll never look back and most of your complaints will go away. Max Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 Before going on the BTD my carpal tunnel syndrome was so bad that I'd seen a surgeon and was trying to decide when would be the best time to have the surgery. Not expecting releif for the CTS from the diet, I was surprised that after following the diet 100% for 3 - 4 weeks the CTS was completely gone. That was 5? years ago. It didn't take long to find that wheat was the culprit. Even one cracker will cause a tingling in my hand and a dinner of pizza brings it back full force. It then takes a few days of no wheat for it to completely go away. By the way, spelt has the same effect on me. Hope this help... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 In a message dated 5/16/2003 5:46:07 AM Eastern Daylight Time, drrcc@... writes: << Anyone here married to an " A " ? How do you do meals?? >> Yeah, I divorced her. Later I found out from ER4YT that, among other things, she was poisoning me. Seriously, I think Dr D is an A and his wife is an O. They fix base meals with neutrals then add the O HB or A HB (ie stir fry vegetables then add red meat for O and chicken/tofu for A) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 For recipes, go to the upper center column. Recibase will have lots of recipes. Be sure to check each item against the list. What book are you getting your food lists from? Newbie > Hello there. > > I am new to your group and just wanted to introduce myself. I am a 32 year > old mom of 7 (4 are foster kids). I am also a hypnotherapist and EFT > practitioner. I am fascinated by the ER4YT. I would like to normalize my > blood pressure and loose weight while eating a healthier " O " diet. > > I have a couple of quick questions. Is there a good web site(s) someone could > direct me to for recipes for type O? > > Anyone here married to an " A " ? How do you do meals?? > > Looking forward to being a part of your list! > Dana in Denver > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hi Dana, Welcome, I am new myself and still have to give the group a proper introduction. (Sorry everyone) I am married to an A and it is a bit tricky if you are trying to stay on mostly beneficials. My husband gets home late so I usually make dinner for my son and myself, then make dinner for my husband. We eat a lot of salad, as that is good for both of us. I try to make side dishes that work for us both and grill steak or a burger for me (Thank you Foreman!), and grill marinaded Tofu, or make amaranth and beans for my husband. We do vary this, but this is the easiest by far. I will make a roast and an A friendly loaf sometimes, then dinner is done for a few days! I found recipes at Dr D's site and at http://er4ytrecipes.tripod.com My pantry is over stuffed as I keep things that only one of us can eat as well as the double duty items. This could be easier if we weren't trying so hard to keep my husband on beneficials. He has a lot of weight to lose, so we are trying to keep him on that side of things. I am learning about cooking for him, pretty strange stuff, but he is so not picky so I am lucky there! As seem to lose weight at a much slower pace than Os, so if your husband is looking for that benefit, I hope he doesn't get discouraged easily. Of course I was living on Avoids and he was already a vegetarian so I went through the most drastic change in diet, and that might be why it is working out that way for us. I hope this helps! Good luck! Alisha In San Diego >I have a couple of quick questions. Is there a good web site(s) someone could >direct me to for recipes for type O? > >Anyone here married to an " A " ? How do you do meals?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2003 Report Share Posted June 12, 2003 Welcome izarahstar. I had my original surgery at the Hospital for Sick Childrens in Toronto, but in 1973 by Dr. Gillespie. As for looking for an acknowledgable specialist, chech out www.srs.org as one place. I now live in BC and I'm on the 3-year wait list for VanSpine in Vancouver where Dr. Dvorack practises. If you check the archives, you'll come across other suggestions/resources, though most are in the States, but they will give you the background that what you are experiencing is not in your head. When my doctor tried to say the same thing to me, I asked him "why there were so many others that I've been in contact with on the internet experiencing the same thing?". He was more willing to find an answer then. Don't lose hope and get fiesty! Llweyn in BC -----Original Message-----From: izarahstar [mailto:izarahstar@...]Sent: June 12, 2003 4:25 PM Subject: newbiehi there everyone,i am new to this site but certainly not new to the pain and dicomfort of suffering from flatback syndrome. i had my harrinton rod put in in 1979 at the Hospital for Sick Kids in Toronto, Canada.i have seen several "top" surgeons in toronto and not one of them knows much about Flatback. Is there anyone on this list who lives in the Toronto or surrounding area who might be able to recommend drs or hospitals that know what flatback is all about? i am told its all in my head and then given a prescription for Tylenol 3. any help/info would be most helpful.thanks!Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 , Try starting with eggs or meat for breakfast. If that is all you want stop there. As you are able to eat more increase your meat serving to at least 6 ounces and maybe have an egg too. But if you start out slow, I think you will find breakfast will be the jumpstart you need for the whole day. Some people have rice in the morning with their meat, but I don't tolerate the grains well, so I refrain from that. No fruit at all for breakfast. Maybe for a snack between breakfast and lunch. Give it at least 3 weeks. Hosoda <monkeegirl@...> wrote: Hello everyone, I am new to this group, as well as the way of eating. I have enjoyed all of your info, and have many questions. First, do you follow the reccommended diet menus in the books, or have most of you found other menus that seem to work for you? I have actually thrown up trying to eat the breakfast of fruit and Ezeikel bread with the seltzer water juice combo. I think it was too much for me in the morning---I usually never eat breakfast for this reason. I have been basically eating this way, off and on for a few months---Somersizing. My main problem with Somersizing was the food combining .. Do any of you feel the combining is an issue with ERFYT, as I was excited to be able to eat a few grains, fruits ect. with my protein. I am not sure how to start--I haven't eaten a complete day as reccommended in the book. I don't think I have ever eaten that much food! thanks in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Are you over or under weight newbie Hello everyone, I am new to this group, as well as the way of eating. I have enjoyed all of your info, and have many questions. First, do you follow the reccommended diet menus in the books, or have most of you found other menus that seem to work for you? I have actually thrown up trying to eat the breakfast of fruit and Ezeikel bread with the seltzer water juice combo. I think it was too much for me in the morning---I usually never eat breakfast for this reason. I have been basically eating this way, off and on for a few months---Somersizing. My main problem with Somersizing was the food combining . Do any of you feel the combining is an issue with ERFYT, as I was excited to be able to eat a few grains, fruits ect. with my protein. I am not sure how to start--I haven't eaten a complete day as reccommended in the book. I don't think I have ever eaten that much food! thanks in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Carla Kay, Welcome to the feisty group! I am fused from T5-S-1 and am doing fine. I am not sure if anyone hear has given birth after revision surgery, but we have certainly addressed all your questions in great detail in the past. So you may want to check the archives at the Internet site for the group. I'm so glad you've joined us. Newbie Hi all! I just joined this group because I am in desperate need of advice/direction. I have not been "officially" diagnosed with flatback syndrome, but my posture is pretty much classic. None of the docs in my area have ever heard of it. I was wondering if anyone in this group had any of the same symptoms as me, as from my what I can gather, most flatbackers have a lot of thoracic pain.I am fused from (I think) T3 to (I know) L3. I worked as a nurse for a few years & injured my lumbar area moving a patient about several years ago. I have not been able to work since, & have walked with the assistance of a cane (which ended up causing problems with my neck & shoulder), & later forearm crutches (still on them). My pain has always been primarily in the lumbar area, & radiating unilaterally across one hip & down that leg. Now however, I am bent very noticeably forward at the waist. Whenever I try to force myself into standing erect, I get HORRIBLE pain down into my coccyx, & now BILATERAL pain in hips & legs. I have to lie down to dress myself & dd often. I am starting to become short of breath on mild exertion. I won't even get into how I feel about myself these days. I first started noticing that I was bending forward more about a year ago, but this usually occurred in the evenings. Now I am like this all the time.I am considering (IF I can get the money to travel & pay someone to take care of dd) going to see Dr. Boachie of NY. Has anyone else in here had revision done by him? Also, I'd be interested in speaking with anyone who has been fused from the upper thoracic area to the sacrum. I have a lot of concerns, & if anyone is willing to share, I'd really like to know what it's like not to be able to move your spine at all. Do you have a lot of neck tension/headaches? These are things I feel I must consider, as from the research I've done, if surgery is recommended, I will most likely be fused to the sacrum. Can you shave your legs, clip toenails, tie shoes? How do you look when you walk? Any women who've given birth AFTER revision surgery (from upper thoracic to sacrum) would be especially appreciated. There are issues/questions I have that only a woman with this experience could answer. I hope I haven't overwhelmed you folks with questions. I would sincerely appreciate your honest responses.Thanks,Carla KaySupport for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Carla, Welcome to the list! Where are you located? Banner-Lach, RN, CCM, RN-WCCM Nurse Case Manager First Rehabilitation Resources, Inc. Newbie > Hi all! I just joined this group because I am in desperate need of > advice/direction. I have not been " officially " diagnosed with > flatback syndrome, but my posture is pretty much classic. None of > the docs in my area have ever heard of it. I was wondering if anyone > in this group had any of the same symptoms as me, as from my what I > can gather, most flatbackers have a lot of thoracic pain. > > I am fused from (I think) T3 to (I know) L3. I worked as a nurse for > a few years & injured my lumbar area moving a patient about several > years ago. I have not been able to work since, & have walked with > the assistance of a cane (which ended up causing problems with my > neck & shoulder), & later forearm crutches (still on them). My pain > has always been primarily in the lumbar area, & radiating > unilaterally across one hip & down that leg. Now however, I am bent > very noticeably forward at the waist. Whenever I try to force myself > into standing erect, I get HORRIBLE pain down into my coccyx, & now > BILATERAL pain in hips & legs. I have to lie down to dress myself & > dd often. I am starting to become short of breath on mild exertion. > I won't even get into how I feel about myself these days. I first > started noticing that I was bending forward more about a year ago, > but this usually occurred in the evenings. Now I am like this all > the time. > > I am considering (IF I can get the money to travel & pay someone to > take care of dd) going to see Dr. Boachie of NY. Has anyone else in > here had revision done by him? Also, I'd be interested in speaking > with anyone who has been fused from the upper thoracic area to the > sacrum. I have a lot of concerns, & if anyone is willing to share, > I'd really like to know what it's like not to be able to move your > spine at all. Do you have a lot of neck tension/headaches? These > are things I feel I must consider, as from the research I've done, if > surgery is recommended, I will most likely be fused to the sacrum. > Can you shave your legs, clip toenails, tie shoes? How do you look > when you walk? Any women who've given birth AFTER revision surgery > (from upper thoracic to sacrum) would be especially appreciated. > There are issues/questions I have that only a woman with this > experience could answer. > > I hope I haven't overwhelmed you folks with questions. I would > sincerely appreciate your honest responses. > > Thanks, > Carla Kay > > > > Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Hi Carla Kay, I'm new to this group too, but I've already had revision surgery and it was the best decision I ever made!!! I live in Tucson, Arizona and went to St. Louis for surgery with Dr. Bridwell at -Jewish Hospital. He's fantasitc and is one of the most prominent surgeons in the country for flatback surgery. I am fused from T9 to the sacrum and can clip my toenails, tie my shoes and shave my legs. It did take a while to be able to do all of these things. I had a series of three surgeries in October and December of 2001 and was in a body brace until June of 2002. (The rehab center in St. Louis built me a special handle for my razor that allowed me to shave my legs while sitting. Now I can use a regular razor, but I do need to sit on the corner of my tub and it does take a bit longer than normal.)I stand straight now and really don't notice a difference in my walk with regard to the fusion to the sacrum. The only time I noticed it was at a wedding last summer when I went on the dance floor. I couldn't really move my hips to the music and felt I was dancing a little odd. But, it's a very small price to pay for being mobile and pain free! I haven't worked since 1998 and will be starting a job in August as an instructional aide at an elementary shcool. I'm really looking forward to it. For the most part I am pain free. Once in a while I'll get a muscle spasm that lasts a few days, but it's very minor compared to all the pain I was in before the surgeries. Prior to the surgeries, I was on tons of medication and now I only take something occassionally for the muscle spasms (which happen very infrequently). I have my life back! As far as pregnancy goes, I'm 36 and thought I'd never be able to have a child of my own because of my back, but Dr. Bridwell told me last summer that in two to three years I should be able to carry my own child. His nurse told me they have a number of patients who had the surgery I did and who successfully had a child afterward. I don't know if I'll be one of them, but time will tell. I'll see what he says in a couple years. It's definitely worth traveling to see a good surgeon and to get a second opinion. This surgery is very specialized and there are only a handful of sergeons in the U.S. who have significant experience with this type of surgery. My husband and I were very financially strained and were trying to recover from a bankruptcy, but we found a way to get to New York City to see Dr. Jean-Pierre Farcy (who is someone you might want to look into)and to St. Louis to see Dr. Bridwell. Gather as much information as you can and see at least two surgeons who specialize in surgery for flatback syndrome, before you decide to have the surgery done. For me, it was the best decision I ever made and even though its a difficult recovery process, the results are so worth it! If you have any specific questions you'd like to ask, I'd love to hear from you. Best of luck, Anne Mink > Hi all! I just joined this group because I am in desperate need of > advice/direction. I have not been " officially " diagnosed with > flatback syndrome, but my posture is pretty much classic. None of > the docs in my area have ever heard of it. I was wondering if anyone > in this group had any of the same symptoms as me, as from my what I > can gather, most flatbackers have a lot of thoracic pain. > > I am fused from (I think) T3 to (I know) L3. I worked as a nurse for > a few years & injured my lumbar area moving a patient about several > years ago. I have not been able to work since, & have walked with > the assistance of a cane (which ended up causing problems with my > neck & shoulder), & later forearm crutches (still on them). My pain > has always been primarily in the lumbar area, & radiating > unilaterally across one hip & down that leg. Now however, I am bent > very noticeably forward at the waist. Whenever I try to force myself > into standing erect, I get HORRIBLE pain down into my coccyx, & now > BILATERAL pain in hips & legs. I have to lie down to dress myself & > dd often. I am starting to become short of breath on mild exertion. > I won't even get into how I feel about myself these days. I first > started noticing that I was bending forward more about a year ago, > but this usually occurred in the evenings. Now I am like this all > the time. > > I am considering (IF I can get the money to travel & pay someone to > take care of dd) going to see Dr. Boachie of NY. Has anyone else in > here had revision done by him? Also, I'd be interested in speaking > with anyone who has been fused from the upper thoracic area to the > sacrum. I have a lot of concerns, & if anyone is willing to share, > I'd really like to know what it's like not to be able to move your > spine at all. Do you have a lot of neck tension/headaches? These > are things I feel I must consider, as from the research I've done, if > surgery is recommended, I will most likely be fused to the sacrum. > Can you shave your legs, clip toenails, tie shoes? How do you look > when you walk? Any women who've given birth AFTER revision surgery > (from upper thoracic to sacrum) would be especially appreciated. > There are issues/questions I have that only a woman with this > experience could answer. > > I hope I haven't overwhelmed you folks with questions. I would > sincerely appreciate your honest responses. > > Thanks, > Carla Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Hi Carla Kay, I'm new to this group too, but I've already had revision surgery and it was the best decision I ever made!!! I live in Tucson, Arizona and went to St. Louis for surgery with Dr. Bridwell at -Jewish Hospital. He's fantasitc and is one of the most prominent surgeons in the country for flatback surgery. I am fused from T9 to the sacrum and can clip my toenails, tie my shoes and shave my legs. It did take a while to be able to do all of these things. I had a series of three surgeries in October and December of 2001 and was in a body brace until June of 2002. (The rehab center in St. Louis built me a special handle for my razor that allowed me to shave my legs while sitting. Now I can use a regular razor, but I do need to sit on the corner of my tub and it does take a bit longer than normal.)I stand straight now and really don't notice a difference in my walk with regard to the fusion to the sacrum. The only time I noticed it was at a wedding last summer when I went on the dance floor. I couldn't really move my hips to the music and felt I was dancing a little odd. But, it's a very small price to pay for being mobile and pain free! I haven't worked since 1998 and will be starting a job in August as an instructional aide at an elementary shcool. I'm really looking forward to it. For the most part I am pain free. Once in a while I'll get a muscle spasm that lasts a few days, but it's very minor compared to all the pain I was in before the surgeries. Prior to the surgeries, I was on tons of medication and now I only take something occassionally for the muscle spasms (which happen very infrequently). I have my life back! As far as pregnancy goes, I'm 36 and thought I'd never be able to have a child of my own because of my back, but Dr. Bridwell told me last summer that in two to three years I should be able to carry my own child. His nurse told me they have a number of patients who had the surgery I did and who successfully had a child afterward. I don't know if I'll be one of them, but time will tell. I'll see what he says in a couple years. It's definitely worth traveling to see a good surgeon and to get a second opinion. This surgery is very specialized and there are only a handful of sergeons in the U.S. who have significant experience with this type of surgery. My husband and I were very financially strained and were trying to recover from a bankruptcy, but we found a way to get to New York City to see Dr. Jean-Pierre Farcy (who is someone you might want to look into)and to St. Louis to see Dr. Bridwell. Gather as much information as you can and see at least two surgeons who specialize in surgery for flatback syndrome, before you decide to have the surgery done. For me, it was the best decision I ever made and even though its a difficult recovery process, the results are so worth it! If you have any specific questions you'd like to ask, I'd love to hear from you. Best of luck, Anne Mink > Hi all! I just joined this group because I am in desperate need of > advice/direction. I have not been " officially " diagnosed with > flatback syndrome, but my posture is pretty much classic. None of > the docs in my area have ever heard of it. I was wondering if anyone > in this group had any of the same symptoms as me, as from my what I > can gather, most flatbackers have a lot of thoracic pain. > > I am fused from (I think) T3 to (I know) L3. I worked as a nurse for > a few years & injured my lumbar area moving a patient about several > years ago. I have not been able to work since, & have walked with > the assistance of a cane (which ended up causing problems with my > neck & shoulder), & later forearm crutches (still on them). My pain > has always been primarily in the lumbar area, & radiating > unilaterally across one hip & down that leg. Now however, I am bent > very noticeably forward at the waist. Whenever I try to force myself > into standing erect, I get HORRIBLE pain down into my coccyx, & now > BILATERAL pain in hips & legs. I have to lie down to dress myself & > dd often. I am starting to become short of breath on mild exertion. > I won't even get into how I feel about myself these days. I first > started noticing that I was bending forward more about a year ago, > but this usually occurred in the evenings. Now I am like this all > the time. > > I am considering (IF I can get the money to travel & pay someone to > take care of dd) going to see Dr. Boachie of NY. Has anyone else in > here had revision done by him? Also, I'd be interested in speaking > with anyone who has been fused from the upper thoracic area to the > sacrum. I have a lot of concerns, & if anyone is willing to share, > I'd really like to know what it's like not to be able to move your > spine at all. Do you have a lot of neck tension/headaches? These > are things I feel I must consider, as from the research I've done, if > surgery is recommended, I will most likely be fused to the sacrum. > Can you shave your legs, clip toenails, tie shoes? How do you look > when you walk? Any women who've given birth AFTER revision surgery > (from upper thoracic to sacrum) would be especially appreciated. > There are issues/questions I have that only a woman with this > experience could answer. > > I hope I haven't overwhelmed you folks with questions. I would > sincerely appreciate your honest responses. > > Thanks, > Carla Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Anne, welcome to the group and the information you gave us is very encouraging. I'm past the age of wanting or having any more children but the knowledge that it is possible is very reassuring. Your post gave me the sense that there is life after surgery, given time for recovery. I would like to hear more about how you were before and more of the after surgery. Llweyn in BC -----Original Message-----From: ebbyfrodo [mailto:scc_az@...]Sent: July 24, 2003 3:32 PM Subject: Re: NewbieHi Carla Kay,I'm new to this group too, but I've already had revision surgery and it was the best decision I ever made!!! I live in Tucson, Arizona and went to St. Louis for surgery with Dr. Bridwell at -Jewish Hospital. He's fantasitc and is one of the most prominent surgeons in the country for flatback surgery. I am fused from T9 to the sacrum and can clip my toenails, tie my shoes and shave my legs. It did take a while to be able to do all of these things. I had a series of three surgeries in October and December of 2001 and was in a body brace until June of 2002. (The rehab center in St. Louis built me a special handle for my razor that allowed me to shave my legs while sitting. Now I can use a regular razor, but I do need to sit on the corner of my tub and it does take a bit longer than normal.)I stand straight now and really don't notice a difference in my walk with regard to the fusion to the sacrum. The only time I noticed it was at a wedding last summer when I went on the dance floor. I couldn't really move my hips to the music and felt I was dancing a little odd. But, it's a very small price to pay for being mobile and pain free!I haven't worked since 1998 and will be starting a job in August as an instructional aide at an elementary shcool. I'm really looking forward to it. For the most part I am pain free. Once in a while I'll get a muscle spasm that lasts a few days, but it's very minor compared to all the pain I was in before the surgeries. Prior to the surgeries, I was on tons of medication and now I only take something occassionally for the muscle spasms (which happen very infrequently). I have my life back!As far as pregnancy goes, I'm 36 and thought I'd never be able to have a child of my own because of my back, but Dr. Bridwell told me last summer that in two to three years I should be able to carry my own child. His nurse told me they have a number of patients who had the surgery I did and who successfully had a child afterward. I don't know if I'll be one of them, but time will tell. I'll see what he says in a couple years.It's definitely worth traveling to see a good surgeon and to get a second opinion. This surgery is very specialized and there are only a handful of sergeons in the U.S. who have significant experience with this type of surgery. My husband and I were very financially strained and were trying to recover from a bankruptcy, but we found a way to get to New York City to see Dr. Jean-Pierre Farcy (who is someone you might want to look into)and to St. Louis to see Dr. Bridwell. Gather as much information as you can and see at least two surgeons who specialize in surgery for flatback syndrome, before you decide to have the surgery done. For me, it was the best decision I ever made and even though its a difficult recovery process, the results are so worth it!If you have any specific questions you'd like to ask, I'd love to hear from you.Best of luck,Anne Mink> Hi all! I just joined this group because I am in desperate need of > advice/direction. I have not been "officially" diagnosed with > flatback syndrome, but my posture is pretty much classic. None of > the docs in my area have ever heard of it. I was wondering if anyone > in this group had any of the same symptoms as me, as from my what I > can gather, most flatbackers have a lot of thoracic pain.> > I am fused from (I think) T3 to (I know) L3. I worked as a nurse for > a few years & injured my lumbar area moving a patient about several > years ago. I have not been able to work since, & have walked with > the assistance of a cane (which ended up causing problems with my > neck & shoulder), & later forearm crutches (still on them). My pain > has always been primarily in the lumbar area, & radiating > unilaterally across one hip & down that leg. Now however, I am bent > very noticeably forward at the waist. Whenever I try to force myself > into standing erect, I get HORRIBLE pain down into my coccyx, & now > BILATERAL pain in hips & legs. I have to lie down to dress myself & > dd often. I am starting to become short of breath on mild exertion. > I won't even get into how I feel about myself these days. I first > started noticing that I was bending forward more about a year ago, > but this usually occurred in the evenings. Now I am like this all > the time.> > I am considering (IF I can get the money to travel & pay someone to > take care of dd) going to see Dr. Boachie of NY. Has anyone else in > here had revision done by him? Also, I'd be interested in speaking > with anyone who has been fused from the upper thoracic area to the > sacrum. I have a lot of concerns, & if anyone is willing to share, > I'd really like to know what it's like not to be able to move your > spine at all. Do you have a lot of neck tension/headaches? These > are things I feel I must consider, as from the research I've done, if > surgery is recommended, I will most likely be fused to the sacrum. > Can you shave your legs, clip toenails, tie shoes? How do you look > when you walk? Any women who've given birth AFTER revision surgery > (from upper thoracic to sacrum) would be especially appreciated. > There are issues/questions I have that only a woman with this > experience could answer. > > I hope I haven't overwhelmed you folks with questions. I would > sincerely appreciate your honest responses.> > Thanks,> Carla KaySupport for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Anne, Thanks so much for writing. I'm so glad to have more information on Dr. Bridwell and to know how well you are doing after revision. You may have covered this before, but how many vertebrae were involved, and was your Harrington rod removed? How long did the revision take, and was it your second fusion or had you had more than one previously? Any information about the technique would be most welcome. If you have posted this all before, kindly refer me to the post number! I am hoping so much we can start getting some of these histories into the files area as a permanent site feature. And what about photos? X-rays? Are any members inclined to start doing some of this? Just a reminder that everyone has free access to these features but few seem to be using them . . . . Best to all, Re: Newbie Hi Carla Kay,I'm new to this group too, but I've already had revision surgery and it was the best decision I ever made!!! I live in Tucson, Arizona and went to St. Louis for surgery with Dr. Bridwell at -Jewish Hospital. He's fantasitc and is one of the most prominent surgeons in the country for flatback surgery. I am fused from T9 to the sacrum and can clip my toenails, tie my shoes and shave my legs. It did take a while to be able to do all of these things. I had a series of three surgeries in October and December of 2001 and was in a body brace until June of 2002. (The rehab center in St. Louis built me a special handle for my razor that allowed me to shave my legs while sitting. Now I can use a regular razor, but I do need to sit on the corner of my tub and it does take a bit longer than normal.)I stand straight now and really don't notice a difference in my walk with regard to the fusion to the sacrum. The only time I noticed it was at a wedding last summer when I went on the dance floor. I couldn't really move my hips to the music and felt I was dancing a little odd. But, it's a very small price to pay for being mobile and pain free!I haven't worked since 1998 and will be starting a job in August as an instructional aide at an elementary shcool. I'm really looking forward to it. For the most part I am pain free. Once in a while I'll get a muscle spasm that lasts a few days, but it's very minor compared to all the pain I was in before the surgeries. Prior to the surgeries, I was on tons of medication and now I only take something occassionally for the muscle spasms (which happen very infrequently). I have my life back!As far as pregnancy goes, I'm 36 and thought I'd never be able to have a child of my own because of my back, but Dr. Bridwell told me last summer that in two to three years I should be able to carry my own child. His nurse told me they have a number of patients who had the surgery I did and who successfully had a child afterward. I don't know if I'll be one of them, but time will tell. I'll see what he says in a couple years.It's definitely worth traveling to see a good surgeon and to get a second opinion. This surgery is very specialized and there are only a handful of sergeons in the U.S. who have significant experience with this type of surgery. My husband and I were very financially strained and were trying to recover from a bankruptcy, but we found a way to get to New York City to see Dr. Jean-Pierre Farcy (who is someone you might want to look into)and to St. Louis to see Dr. Bridwell. Gather as much information as you can and see at least two surgeons who specialize in surgery for flatback syndrome, before you decide to have the surgery done. For me, it was the best decision I ever made and even though its a difficult recovery process, the results are so worth it!If you have any specific questions you'd like to ask, I'd love to hear from you.Best of luck,Anne Mink> Hi all! I just joined this group because I am in desperate need of > advice/direction. I have not been "officially" diagnosed with > flatback syndrome, but my posture is pretty much classic. None of > the docs in my area have ever heard of it. I was wondering if anyone > in this group had any of the same symptoms as me, as from my what I > can gather, most flatbackers have a lot of thoracic pain.> > I am fused from (I think) T3 to (I know) L3. I worked as a nurse for > a few years & injured my lumbar area moving a patient about several > years ago. I have not been able to work since, & have walked with > the assistance of a cane (which ended up causing problems with my > neck & shoulder), & later forearm crutches (still on them). My pain > has always been primarily in the lumbar area, & radiating > unilaterally across one hip & down that leg. Now however, I am bent > very noticeably forward at the waist. Whenever I try to force myself > into standing erect, I get HORRIBLE pain down into my coccyx, & now > BILATERAL pain in hips & legs. I have to lie down to dress myself & > dd often. I am starting to become short of breath on mild exertion. > I won't even get into how I feel about myself these days. I first > started noticing that I was bending forward more about a year ago, > but this usually occurred in the evenings. Now I am like this all > the time.> > I am considering (IF I can get the money to travel & pay someone to > take care of dd) going to see Dr. Boachie of NY. Has anyone else in > here had revision done by him? Also, I'd be interested in speaking > with anyone who has been fused from the upper thoracic area to the > sacrum. I have a lot of concerns, & if anyone is willing to share, > I'd really like to know what it's like not to be able to move your > spine at all. Do you have a lot of neck tension/headaches? These > are things I feel I must consider, as from the research I've done, if > surgery is recommended, I will most likely be fused to the sacrum. > Can you shave your legs, clip toenails, tie shoes? How do you look > when you walk? Any women who've given birth AFTER revision surgery > (from upper thoracic to sacrum) would be especially appreciated. > There are issues/questions I have that only a woman with this > experience could answer. > > I hope I haven't overwhelmed you folks with questions. I would > sincerely appreciate your honest responses.> > Thanks,> Carla KaySupport for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2003 Report Share Posted October 6, 2003 Hello Cliff Nice to meet you. I can tell you I have a SCS I had it almost 2 years now and I have Neropathic pain in left leg The Stimulator has Reduce my pain by 50 percent. Instead of getting that real Bad Burning type pain I now get a Dull pain. Some get 100 percent with it. I will tell you this It cannot hurt to get the Trial And see what happens. Most who have the Stimulator do have good results there a few that it just doesnt work. It should reduce your Neuopathic pain. I hope I was helpful. Are you a Chronic Pain Suffer? There is a Group that can help you get Proper Medical Treatment! Called North America Chronic Pain Society! Our Mission is to Bridge the Gap between Patient and Physican, It is time to Stand up be Notice to many people in North America Suffer Needlessly with Uncontrolable pain. Lets Work Together to Help others! Join Today! NACPS Mike-NACPS President! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 , I think making an appointment w/Dr. Ondra would be an excellent move. If you've gone through old posts at this site, you would know I have the utmost respect for him, and his abilities. Keep us posted. Good luck, and don't be discouraged by his office staff. Donna >From: " " <ak> >Reply- > >Subject: Newbie >Date: Tue, 30 Dec 2003 20:21:41 -0000 > >Hi All! >I thought I would do a short into post, so I don't feel like I'm lurking >My name is Angie, live in southern WI and had a spinal fusion in 1989. I'm > " pretty " >sure it was done with (Cotrel-Dubousset) Instrumentation. " Pretty " sure >because I'm >still getting hold of medical records and know there are 5 clamps along >with the two >rods. (Oh and I've blocked that time out of my memory, I swear) > >I had the fusion done for kyphosis and the rods are in the thoracic entire >area. I have >to say having that surgery was one of the major mistakes of my life. The >pain in my >neck/back has gotten worse in recent years and 2 pregnancies. I'm sure > " something " >moved during my first pregnancy in 1998 I was in such pain for a week. I >have major >pain right where the screws are on the top of the rods. I was told 7 years >ago that the >surgery wasn't really done correctly and the only thing to do would be to >get the >hardware out. I'm having alot of lower back and neck pain and stumbled on >this >group. I don't take anything for the pain...but as I get older I'm feeling >like I need >something...I feel 80! LOL! There no way I can have surgery right now with >two small >kids and working. I've already learned alot and found a ton of links thanks >to >'s welcome. I really need to find a good doctor and find out what >my options >are. I'm thinking of making an appointment with Dr. Ondra in >Chicago to see >what my options are. Okay back to scanning the archives and surfing the >links to >learn more. >Thanks! >Angie > > _________________________________________________________________ Enjoy a special introductory offer for dial-up Internet access — limited time only! http://join.msn.com/?page=dept/dialup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 In a message dated 3/18/2004 3:57:25 PM Eastern Standard Time, LCchickFL@... writes: > I've been interested > in the BTD for a while now, but never really started it, although I have > been > living a low carb lifestyle (Atkins) for 17 months now (and lost 137#). Way to go June!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Date: Thu, 18 Mar 2004 19:35:44 EST From: Maddviking@... Subject: Re: Newbie In a message dated 3/18/2004 3:57:25 PM Eastern Standard Time, LCchickFL@... writes: > I've been interested > in the BTD for a while now, but never really started it, although I have > been > living a low carb lifestyle (Atkins) for 17 months now (and lost 137#). Way to go June!!!!! ~~~~~ I'm guessing that's " Low-Carb chick For Life " ? Or are you in florida? Well, as good as LC *can* be for me... I'd have to agree. Maybe moms with lovin' in the oven need more? What if people who are athletic need more energy in the form of carbs, too? I know it is easy to go low-carb being lazy and casual, but I sure get boosted on high-carb into high gear during the bouts of type O exercise I enjoy. I'm a secretor, which may be something of a tolerance thing going on. I've been following some of this group, lately. I'm surprised no one's really talking about the other grains, it's as if all there is is wheat and other gluten grains, rice, and maybe kasha (buckwheat)? What about amaranth, quinoa, millet, teff? C'mon people! Anybody have any awesome strains of ergot for my grain cultivating live-food experiments? I have had a nice experience with " Power Factor " training principles. My " deadlift " of 275 has really made me feel my musculature more, today. Axel O+ secretor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 > I've been interested > in the BTD for a while now, but never really started it, although I have > been > living a low carb lifestyle (Atkins) for 17 months now (and lost 137#). Great Job June!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 In a message dated 3/18/2004 7:36:29 PM Eastern Standard Time, Maddviking@... writes: > Way to go June!!!!! Thanks. I'm really looking forward to see what the BTD can do to enhance the experience (and weight loss). June My Atkins Journey AtkinsFL AtkinsOver40 ICQ: 1761085 & AIM: LCchickFL We are not held back by what we are, but by what we think we are not! Quote Link to comment Share on other sites More sharing options...
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