newbie

March 19, 2004

In a message dated 3/18/2004 10:28:51 PM Eastern Standard Time,

a.hultman@... writes:

> I'm guessing that's " Low-Carb chick For Life " ?

>

> Or are you in florida?

I'm in FL but I am in this for life too. Believe it or not, you're the first

one that came up w/that interpretation. I love it!!

> Well, as good as LC *can* be for me...

>

> I'd have to agree. Maybe moms with lovin' in the oven need more? What if

> people who are athletic need more energy in the form of carbs, too? I know it

is

> easy to go low-carb being lazy and casual, but I sure get boosted on

> high-carb into high gear during the bouts of type O exercise I enjoy. I'm a

> secretor, which may be something of a tolerance thing going on.

How do you know if you're a secretor or a non-secretor? Is this something

you need a test for or are there symptoms? (Sorry if this is a basic question, I

haven't received my book yet).

As far as Atkins goes, you find your own CCLL (critical carb level for

losing), which for some non-metabolically resistant people can be up to 100

carbs a

day (mostly from LC veggies). You can get your carbs from 'allowed' foods if

you need more for exercising, pregnancy, etc. Personally, I'm not a marathon

exerciser, so it's not a big issue for me. Once you get past the weight loss

phases of Atkins, you can incorporate grains into your diet if you choose to.

Actually with the LC breads and such on the market, you can even have them

during the WL phases if you can tolerate them.

June

My Atkins Journey

AtkinsFL AtkinsOver40

ICQ: 1761085 & AIM: LCchickFL

We are not held back by what we are,

but by what we think we are not!

April 12, 2004

Hello, Barb - welcome

I believe we are int the process of licking this e-mail problem

Tell us more about your case, if you like, there are a lot of knowledgeable

people on the group.

July 28, 2004

Hi ,

Welcome to the group. Don't hesitate to ask questions. We'll be glad to

answer any we are able to. There have been some changes in the food lists

since, ER4YT came out. You can go to www.dadamo.com/typebase/typebase.cgi

put the food you are looking for in the search box. Use only one word. Be

sure to click on the search button, instead of hitting your enter key.

You already have wonderful results, that is the results of the first day and

after only dripping grains. It's one of the biggest and sometimes the

hardest to talk yourself into dropping. And I thought it was a big thing

when I dropped wheat, when I started this diet probably 4 years ago now. I

imagine you are enjoying the results already.

Newbie

> Hello all,

> I purchased Eat Right 4 Your Type yesterday evening and I haven't

> been able to put it down since. Now, I know why I'm always full of

> gas. I am about to move into my own home next month and I wanted to

> figure out what I was doing or eating wrong so that when I begin

> grocery shopping to fill my kitchen I'll know what to avoid. A

> friend told me about the book and I immediately purchased it. I

> figured I'd begin gradually, so I started off today by avoiding

> breads. It made a huge difference in only one day, being as though

> all I was eating before was wheat bread thinking it was healthier. I

> have less gas and cramping and no sinus drainage.

August 11, 2004

Trisha,

We are glad to have you, too. Welcome to the group. How long have you known

about eating right for your blood type? If you have any questions, don't

hesitate to ask them.

newbie

> glad to join here. hey thanks

>

August 17, 2004

Hi Trudy, welcome! It seems hormones might play a significant role

in the onset of Samters, not necessarily pregnancy hormones, but it

seems the symptoms often start in early adulthood or late teen years

so a hormonal link seems very possible.

I am thinking of getting pregnant and I know it's probably a bad

idea. I just hate to think I've survived all these hospitalizations

from Samters and cancer (I had breast cancer) and to not have the

kind of life I want, you know?

If you don't mind my asking, how is it that you came to get COPD in

addition to the Samters? Were you a smoker? I've often wondered if

my parents' smoking all throughout my childhood had anything to do

with the illnesses I've suffered from.

I don't know how to upload messages, unless you have the emails from

the group sent to your address directly. Maybe someone else knows

another way.

Hope you'll find some answers here, although it sounds like you have

quite a bit of experience yourself.

Lori

---

August 18, 2004

" I am thinking of getting pregnant and I know it's probably a bad

idea. I just hate to think I've survived all these hospitalizations

from Samters and cancer (I had breast cancer) and to not have the

kind of life I want, you know? "

Lori

Wow, Lori. This is a hard one isn't it? It is such a personal

decision among all the advice you will get. It was a hard decision

for me too, as I didn't want to possibly leave a newborn without a

mother. I knew my children would have a very sick mother but that

could be worked around. I chose to go with my gut, find a doctor who

supported my choice, and prayed alot. I related it back to myself and

my birth actually. My bio-dad was not in my life...ever. Someone once

asked me why I was so forgiving of him and I told them " he gave me

life " . The chance to live out-weighed the fact that he wasn't there

and that is what I based my choice of having a child on. I knew my

husband and my family would care for a child if I wasn't around,

though that might be a weird way to look at it.

March 1, 2005

---Welcome Jan. I am about to start my second trial. I am also a

registered nurse of 27 years so tell me what you want to know? Is

your husband on a lot of medication for his pain? Karel

In Stimulator , " Jan " <hisdove2002@y...> wrote:

>

> Im new here and would really like to know more about the

> stimulator--my husband has a severe problem with pain in his back,

he

> also has many other things wrong with him -hes had 3 heart attacks

for

> one of them,plus diabetes etc. Im trying to learn more so I might be

> able to talk to our dr about the stimulator for him.

March 2, 2005

My hubby is on morphine about 4 times a day-I am just gathering

information to give to him,it would sure be better if he wasnt in pain

all the time. Plus he takes about 16 meds a day for other things-its

starting to affect his memory.

> >

> > Im new here and would really like to know more about the

> > stimulator--my husband has a severe problem with pain in his back,

> he

> > also has many other things wrong with him -hes had 3 heart attacks

> for

> > one of them,plus diabetes etc. Im trying to learn more so I might be

> > able to talk to our dr about the stimulator for him.

March 4, 2005

Jan,

You may want to check out the following websites:

www.medtronic.com

www.tamethepain.com

These were both very helpful for me in regards all my problems with my back.

What does your husband have for a problem with his back? I have had two back

surgeries.

I don't read this mailbox too often, so if you would like to chat and maybe I

can be of some help, write to me at purplebutterfly1@...

Take care and I hope to hear from you soon.

Jan <hisdove2002@...> wrote:

Im new here and would really like to know more about the

stimulator--my husband has a severe problem with pain in his back, he

also has many other things wrong with him -hes had 3 heart attacks for

one of them,plus diabetes etc. Im trying to learn more so I might be

able to talk to our dr about the stimulator for him.

November 28, 2005

>

> Doreen

Hi Doreen, I have to say I was very skeptical when I heard of this diet and

sort of did it for a friend, but was amazed at how well it worked for me.

My pain level is so much lower when I stay faithful to the diet that some

days I don't hurt at all, that never happened before. It's helped with

arthritis, allergies, energy, IBS and colitis to a tremendous degree. Most

days my thinking seems clearer also. Check your library for Eat Right 4

Your Type and Live Right 4 Your Type to get the basics down. It helps to

understand how Dr. D. came to the conclusions he did. Try it and see how it

works for you, hopefully, you will be convinced as I was.

Later,

> janetlee

>

> Be kind to dragons, for thou art crunchy when

> roasted and taste good with ketchup.

November 28, 2005

You've come to the right place.

You have to improve your diet. And include some supplements and you should

see your health return.

I usually tell people to get the little food & supplement book for O Type ($6)

and start eliminating the avoids. Make changes a step at a time so you can

monitor how you're doing.

Ask us anything. Very helpful, knowlegeable group.

Kathy

crochet4jesus <crochet4jesus@...> wrote:

Hi guys I was searching for the group with alzhiemers and came across

this one. Mom sufferes with the ad and I suffer from arthritis and

fibro and possible rheumitoid arthritis. I am interested in learning

more of this diet. I am 0 possitive for my blood not sure on mom.

I am Doreen and live in New York about an hour from NYC.

Searching for cures

Doreen

February 5, 2006

Welcome Audrey,

I agree with you 100 percent about the need for for than the " you're

on your own mentality " . The best way for people to cope with

disasters of this or any other nature is to get together as

communities. People need to be organized and have contingency plans.

Duties need to be shared. If people work together even the worst

case scnerios might not be any where near as bad as they could be. I

fear that the survivalist mentality, that of holing up in your own

home and waiting, only contributes to the chaos. Its important to

protect your self and be prepared, but it is equally important to be

ready to work with others and help others.

Pete

July 27, 2006

Hello Sweet sweet swee, This is a message group about bird flu for those who are concerned about flu pandemic and flu related information. Why don't you find out some spam place and spam around than making yourself awkward here. Muni swee swee <> wrote: Hi Friends! Sometimes u just cant predict what ur gonna find in ur mail! Justopened my mail n guess what? voip ! Check it out Have fun Guys, i think am gonna love it here, i just hope somebodysends me a mail soon! Join the largest Artificial Life Group on the Internet today voipip Music Unlimited - Access over 1 million songs. Try it free.

January 8, 2007

Hi Izarah,

Welcome back to the group! But sorry to hear that you are still

having hip and leg pain and hope that your doctor is monitoring it.

When my hip arthritis got painful enough to consult a doctor

(orthopedic hip surgeon) he wanted me to come back every six months

for new hip x-rays. I think he wanted to monitor it so closely so he

could recommend surgery before damage to the bone from the arthritis

got to the point where allowing further damage would make the surgery

more complicated.

Although being on disability has its disadvantages, I would bet that

you, like many of us here, are grateful that it helps allow a more

comfortable existence (painwise) than if you were working.

Take care, and again, welcome,

loriann

>

> hello all,

> I am new to the boards and just wanted to introduce myself.

> I am a 42 year old who had her harrington rod put in way back in 1979-

> (sic kids toronto). I have been having some major problems lately and

> am now on a Disability pension as well as a long list of pain killers.

> My current problem is a severe pain in my hip and leg.

> I look forward to reading your posts and adding in when i can.

> Thanks!

> Izarah,

>

January 8, 2007

Hey there, Thanks for remembering me and for the welcome back to the group. loriann262000 <lcmelko@...> wrote: Hi Izarah,Welcome back to the group! But sorry to hear that you are stillhaving hip and leg pain and hope that your doctor is monitoring it. When my hip arthritis got painful enough to consult a doctor(orthopedic hip surgeon) he wanted me to come back every six monthsfor new hip x-rays. I think he wanted to monitor it so closely so hecould

recommend surgery before damage to the bone from the arthritisgot to the point where allowing further damage would make the surgerymore complicated.Although being on disability has its disadvantages, I would bet thatyou, like many of us here, are grateful that it helps allow a morecomfortable existence (painwise) than if you were working. Take care, and again, welcome,loriann>> hello all,> I am new to the boards and just wanted to introduce myself.> I am a 42 year old who had her harrington rod put in way back in 1979-> (sic kids toronto). I have been having some major problems lately and > am now on a Disability pension as well as a long list of pain killers.> My current problem is a severe pain in my hip

and leg.> I look forward to reading your posts and adding in when i can.> Thanks!> Izarah,>An awkward morning is always better than a boring night.... __________________________________________________Do You

?Tired of spam? has the best spam protection around http://mail.

January 12, 2007

Welcome to the group. Firstly try not to worry too much, this is a common story of what we hear of so often in the group and we're here to offer help, advice or whatever it is you need.

I was diagnosed in 1979 (live in Australia) and have had five operations to date, the longest period between was ten years. I have been to an Immunologist who carried out various tests and try not to be terrified of the tests. Once you have an answer then you can start addressing the problem with what not to eat etc. You could be allergic to salicylates - here's a couple of websites with information about it:

http://au.health./041101/25/1ufq.html?r=96750785%7C5

http://www.users.bigpond.com/mywebhome/s2index.html

I tests negative to most of them and the down side is I don't have a sense of smell - only get that when I go back on pred. Aspirin I can't be desensitized too so I just need to be careful.

Once you get sorted out as to allergies etc. and get on the right track with medication you'll notice a difference. Mine is under control at the moment although I still have the occasional outbreak of asthma but my doctor has me on a very good management plan.

Keep asking questions, and we're here for you and hope that we can help.

Cheers

From: samters [mailto:samters ] On Behalf Of ambercat99Sent: Saturday, 13 January 2007 8:17 AMsamters Subject: Newbie

Hey I have just joined this group - I am pretty low - I knew this group existed but have been in a sort of denial. Just looking to chat with people who have samters as it feels very lonely to have it.I've had Samters since 1997 and am having my third op to remove the polyps in two weeks' time, about 2 years after my second - my consultant thinks i should be having them evry 18 months which depresses the hell out of me. I have no sense of smell, have scary asthma reactions to sausages, fruit juice and salad dressings which I understand is from sodium metabisulphate and taking aspirin blows my face up. I also get terrible itching everywhere which i havent yet sorted - but have recently developed hives as a reaction over my arms and middle (and occasionally my neck) which i think i have isolated as a reaction to Mono sodium glutamate. I am soon to see an immunologist as am terrified of a suprise reaction. Plus all this i have constant nasal infections and my asthma is out of control. Feeling pretty sorry for myself as you can probably read and just want someone to put it into perspective for me before i go crazy. Am really only just realising I have to be proactive about this and have relied mainly over the last 4 years on prednisolone doses which are wonderful (wow the smell of bacon! ooo tasting chocolate!) but obviously not a long term solution. Would love to hear any suggestions, similar experiences, or just a general 'snap out of it you daft cow!' I live in the UK so would love to hear from UK people as well as anyone else out there!

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January 12, 2007

Hi Amber,

First I will say that everything that says is great, but I’ll add a few words of my own.

I’m in the US, I’ve had samters since 1998, and I’ve had three surgeries (the last one four years ago).

The main lessons that I have learned from this group are 1. You can get much better that you are now, but probably not cured. 2. It is important that you take charge of your own treatment. You need to be educated and responsible. The doctor is only one crucial player in your team, you are the other, and your health is most important to you.

I am sensitive to MSG, too. I also avoid all artificial ingredients like food coloring, preservatives, and artificial flavors. Look into the Feingold diet, it is for ADD and ADHD, but it helps us, too.

There are many medicines that can help, Singulair, Advair, and Nasonex are the first ones to try. If they don’t work, there are others, like Zyflo or (not to be combined with) Theophyline. The first step is to get your symptoms under control.

Keep in touch,

Pam

On 1/12/07 4:39 PM, " " <soniarobins@...> wrote:

Welcome to the group. Firstly try not to worry too much, this is a common story of what we hear of so often in the group and we're here to offer help, advice or whatever it is you need.

I was diagnosed in 1979 (live in Australia) and have had five operations to date, the longest period between was ten years. I have been to an Immunologist who carried out various tests and try not to be terrified of the tests. Once you have an answer then you can start addressing the problem with what not to eat etc. You could be allergic to salicylates - here's a couple of websites with information about it:

http://au.health./041101/25/1ufq.html?r=96750785%7C5

http://www.users.bigpond.com/mywebhome/s2index.html

I tests negative to most of them and the down side is I don't have a sense of smell - only get that when I go back on pred. Aspirin I can't be desensitized too so I just need to be careful.

Once you get sorted out as to allergies etc. and get on the right track with medication you'll notice a difference. Mine is under control at the moment although I still have the occasional outbreak of asthma but my doctor has me on a very good management plan.

Keep asking questions, and we're here for you and hope that we can help.

Cheers

From: samters [mailto:samters ] On Behalf Of ambercat99

Sent: Saturday, 13 January 2007 8:17 AM

samters

Subject: Newbie

Hey I have just joined this group - I am pretty low - I knew this

group existed but have been in a sort of denial. Just looking to

chat with people who have samters as it feels very lonely to have it.

I've had Samters since 1997 and am having my third op to remove the

polyps in two weeks' time, about 2 years after my second - my

consultant thinks i should be having them evry 18 months which

depresses the hell out of me. I have no sense of smell, have scary

asthma reactions to sausages, fruit juice and salad dressings which

I understand is from sodium metabisulphate and taking aspirin blows

my face up. I also get terrible itching everywhere which i havent

yet sorted - but have recently developed hives as a reaction over my

arms and middle (and occasionally my neck) which i think i have

isolated as a reaction to Mono sodium glutamate. I am soon to see

an immunologist as am terrified of a suprise reaction. Plus all

this i have constant nasal infections and my asthma is out of

control. Feeling pretty sorry for myself as you can probably read

and just want someone to put it into perspective for me before i go

crazy. Am really only just realising I have to be proactive about

this and have relied mainly over the last 4 years on prednisolone

doses which are wonderful (wow the smell of bacon! ooo tasting

chocolate!) but obviously not a long term solution. Would love to

hear any suggestions, similar experiences, or just a general 'snap

out of it you daft cow!' I live in the UK so would love to hear from

UK people as well as anyone else out there!

January 13, 2007

Hi

Thanks! You've had it ages then - That's rotten. It's reassuring to know that you can get it under control - thanks. I am looking forward (I think) to the immunologist, but am concerned that they are going to tell me not to eat all of my favourite things.

How do you deal with the loss of smell? I know there's not much you can do - but I have gassed myself twice (perhaps I should get rid of the gas cooker!) , set fire to the kitchen and not known about it and I have served up sour milk in tea several times for friends and not known! It's like you lose a whole dimension to life?

But thanks for the advice - makes me feel much better - I found out most of the info I know (mainly about salicylates) from Australian websites - they seem to be more switched on to it there? I read a lot of stuff about the preservatives in meat - which is a biggie for me.

Thanks again, and i will try the websites.

Cat x

From: "" <soniarobins@...>Reply-samters To: <samters >Subject: RE: NewbieDate: Sat, 13 Jan 2007 08:39:25 +1100

Welcome to the group. Firstly try not to worry too much, this is a common story of what we hear of so often in the group and we're here to offer help, advice or whatever it is you need.

I was diagnosed in 1979 (live in Australia) and have had five operations to date, the longest period between was ten years. I have been to an Immunologist who carried out various tests and try not to be terrified of the tests. Once you have an answer then you can start addressing the problem with what not to eat etc. You could be allergic to salicylates - here's a couple of websites with information about it:

http://au.health./041101/25/1ufq.html?r=96750785%7C5

http://www.users.bigpond.com/mywebhome/s2index.html

I tests negative to most of them and the down side is I don't have a sense of smell - only get that when I go back on pred. Aspirin I can't be desensitized too so I just need to be careful.

Once you get sorted out as to allergies etc. and get on the right track with medication you'll notice a difference. Mine is under control at the moment although I still have the occasional outbreak of asthma but my doctor has me on a very good management plan.

Keep asking questions, and we're here for you and hope that we can help.

Cheers

From: samters [mailto:samters ] On Behalf Of ambercat99Sent: Saturday, 13 January 2007 8:17 AMsamters Subject: Newbie

Hey I have just joined this group - I am pretty low - I knew this group existed but have been in a sort of denial. Just looking to chat with people who have samters as it feels very lonely to have it.I've had Samters since 1997 and am having my third op to remove the polyps in two weeks' time, about 2 years after my second - my consultant thinks i should be having them evry 18 months which depresses the hell out of me. I have no sense of smell, have scary asthma reactions to sausages, fruit juice and salad dressings which I understand is from sodium metabisulphate and taking aspirin blows my face up. I also get terrible itching everywhere which i havent yet sorted - but have recently developed hives as a reaction over my arms and middle (and occasionally my neck) which i think i have isolated as a reaction to Mono sodium glutamate. I am soon to see an immunologist as am terrified of a suprise reaction. Plus all this i have constant nasal infections and my asthma is out of control. Feeling pretty sorry for myself as you can probably read and just want someone to put it into perspective for me before i go crazy. Am really only just realising I have to be proactive about this and have relied mainly over the last 4 years on prednisolone doses which are wonderful (wow the smell of bacon! ooo tasting chocolate!) but obviously not a long term solution. Would love to hear any suggestions, similar experiences, or just a general 'snap out of it you daft cow!' I live in the UK so would love to hear from UK people as well as anyone else out there!

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January 13, 2007

Hello

Thanks for this - all of this is making me feel much better! It has only been the last month or so that i have realised I need to take control of this - so I hear exactly what you are saying. It's a relief (not sure that's the right word) to hear similar stuff - when i have my reactions to msg and other things some people are very quick to say it's in my head, I'm bringing it on myself because of stress etc - so it's brilliant to hear it's not me!

I take Nasonex at the moment - I think I might have tried Advair - it gave me hives unfortunatley - but i've not heard of the others so will have a word with my consultant.

I had a look at feingold last night - looks daunting but will have another look today with a clear head.

Thanks guys - you dont know how much this has lifted me

Cat x

From: Pamela <pam@...>Reply-samters To: <samters >Subject: Re: NewbieDate: Fri, 12 Jan 2007 18:18:58 -0500

Hi Amber,First I will say that everything that says is great, but I’ll add a few words of my own.I’m in the US, I’ve had samters since 1998, and I’ve had three surgeries (the last one four years ago).The main lessons that I have learned from this group are 1. You can get much better that you are now, but probably not cured. 2. It is important that you take charge of your own treatment. You need to be educated and responsible. The doctor is only one crucial player in your team, you are the other, and your health is most important to you.I am sensitive to MSG, too. I also avoid all artificial ingredients like food coloring, preservatives, and artificial flavors. Look into the Feingold diet, it is for ADD and ADHD, but it helps us, too.There are many medicines that can help, Singulair, Advair, and Nasonex are the first ones to try. If they don’t work, there are others, like Zyflo or (not to be combined with) Theophyline. The first step is to get your symptoms under control.Keep in touch,PamOn 1/12/07 4:39 PM, "" <soniarobinstsn (DOT) cc> wrote:

Welcome to the group. Firstly try not to worry too much, this is a common story of what we hear of so often in the group and we're here to offer help, advice or whatever it is you need.I was diagnosed in 1979 (live in Australia) and have had five operations to date, the longest period between was ten years. I have been to an Immunologist who carried out various tests and try not to be terrified of the tests. Once you have an answer then you can start addressing the problem with what not to eat etc. You could be allergic to salicylates - here's a couple of websites with information about it: http://au.health./041101/25/1ufq.html?r=96750785%7C5http://www.users.bigpond.com/mywebhome/s2index.htmlI tests negative to most of them and the down side is I don't have a sense of smell - only get that when I go back on pred. Aspirin I can't be desensitized too so I just need to be careful.Once you get sorted out as to allergies etc. and get on the right track with medication you'll notice a difference. Mine is under control at the moment although I still have the occasional outbreak of asthma but my doctor has me on a very good management plan.Keep asking questions, and we're here for you and hope that we can help.Cheers

From: samters [mailto:samters ] On Behalf Of ambercat99Sent: Saturday, 13 January 2007 8:17 AMsamters Subject: NewbieHey I have just joined this group - I am pretty low - I knew this group existed but have been in a sort of denial. Just looking to chat with people who have samters as it feels very lonely to have it.I've had Samters since 1997 and am having my third op to remove the polyps in two weeks' time, about 2 years after my second - my consultant thinks i should be having them evry 18 months which depresses the hell out of me. I have no sense of smell, have scary asthma reactions to sausages, fruit juice and salad dressings which I understand is from sodium metabisulphate and taking aspirin blows my face up. I also get terrible itching everywhere which i havent yet sorted - but have recently developed hives as a reaction over my arms and middle (and occasionally my neck) which i think i have isolated as a reaction to Mono sodium glutamate. I am soon to see an immunologist as am terrified of a suprise reaction. Plus all this i have constant nasal infections and my asthma is out of control. Feeling pretty sorry for myself as you can probably read and just want someone to put it into perspective for me before i go crazy. Am really only just realising I have to be proactive about this and have relied mainly over the last 4 years on prednisolone doses which are wonderful (wow the smell of bacon! ooo tasting chocolate!) but obviously not a long term solution. Would love to hear any suggestions, similar experiences, or just a general 'snap out of it you daft cow!' I live in the UK so would love to hear from UK people as well as anyone else out there!

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January 13, 2007

Hi Cat,

If you have to delete certain foods from your diet, you soon learn to deal with it because the end result of eating those foods and bringing on a bad sinus or asthma attack just isn't worth it.

Dealing with the loss of smell is something you end up getting used to unfortunately. Mind you when I go back on pred. and ,y sense of smell returns I think my family have thoughts of locking me up in the funny farm because I just love smelling all the herbs and spices in the pantry. I sniff just about anything that I can because it all smells so fantastic. Food even tastes better as well. I now have an electric stove because I had problems with the gas myself, not being able to smell it. Other things relating to lack of smell are a problem too e.g. the inside bin might be a bit off and I won't know and then I'm constantly having showers just in case I mightn't be so fresh. Things like that can be so embarrassing but it's just something you learn to live with. It does have a huge advantage though - try changing a dirty nappy when you can't smell it hahaha.

I like to think Australia is up there amongst the top researchers when it comes to this but in fact I've found a lot of information overseas as well that's been useful.

If you can find a doctor who knows Samters that's always a bonus.

I remember the day many years ago when my problem was given a name i.e. Samters. I think it was a turning point in my life that to have this 'name' I knew I wasn't alone. I've had tremendous help from this forum as I'm sure you will too.

Keep us informed of how you go.

Cheers

From: samters [mailto:samters ] On Behalf Of Cat Sent: Saturday, 13 January 2007 8:09 PMsamters Subject: RE: Newbie

Hi

Thanks! You've had it ages then - That's rotten. It's reassuring to know that you can get it under control - thanks. I am looking forward (I think) to the immunologist, but am concerned that they are going to tell me not to eat all of my favourite things.

How do you deal with the loss of smell? I know there's not much you can do - but I have gassed myself twice (perhaps I should get rid of the gas cooker!) , set fire to the kitchen and not known about it and I have served up sour milk in tea several times for friends and not known! It's like you lose a whole dimension to life?

But thanks for the advice - makes me feel much better - I found out most of the info I know (mainly about salicylates) from Australian websites - they seem to be more switched on to it there? I read a lot of stuff about the preservatives in meat - which is a biggie for me.

Thanks again, and i will try the websites.

Cat x

From: "" <soniarobinstsn (DOT) cc>Reply-samters To: <samters >Subject: RE: NewbieDate: Sat, 13 Jan 2007 08:39:25 +1100

Welcome to the group. Firstly try not to worry too much, this is a common story of what we hear of so often in the group and we're here to offer help, advice or whatever it is you need.

I was diagnosed in 1979 (live in Australia) and have had five operations to date, the longest period between was ten years. I have been to an Immunologist who carried out various tests and try not to be terrified of the tests. Once you have an answer then you can start addressing the problem with what not to eat etc. You could be allergic to salicylates - here's a couple of websites with information about it:

http://au.health./041101/25/1ufq.html?r=96750785%7C5

http://www.users.bigpond.com/mywebhome/s2index.html

I tests negative to most of them and the down side is I don't have a sense of smell - only get that when I go back on pred. Aspirin I can't be desensitized too so I just need to be careful.

Once you get sorted out as to allergies etc. and get on the right track with medication you'll notice a difference. Mine is under control at the moment although I still have the occasional outbreak of asthma but my doctor has me on a very good management plan.

Keep asking questions, and we're here for you and hope that we can help.

Cheers

From: samters [mailto:samters ] On Behalf Of ambercat99Sent: Saturday, 13 January 2007 8:17 AMsamters Subject: Newbie

Hey I have just joined this group - I am pretty low - I knew this group existed but have been in a sort of denial. Just looking to chat with people who have samters as it feels very lonely to have it.I've had Samters since 1997 and am having my third op to remove the polyps in two weeks' time, about 2 years after my second - my consultant thinks i should be having them evry 18 months which depresses the hell out of me. I have no sense of smell, have scary asthma reactions to sausages, fruit juice and salad dressings which I understand is from sodium metabisulphate and taking aspirin blows my face up. I also get terrible itching everywhere which i havent yet sorted - but have recently developed hives as a reaction over my arms and middle (and occasionally my neck) which i think i have isolated as a reaction to Mono sodium glutamate. I am soon to see an immunologist as am terrified of a suprise reaction. Plus all this i have constant nasal infections and my asthma is out of control. Feeling pretty sorry for myself as you can probably read and just want someone to put it into perspective for me before i go crazy. Am really only just realising I have to be proactive about this and have relied mainly over the last 4 years on prednisolone doses which are wonderful (wow the smell of bacon! ooo tasting chocolate!) but obviously not a long term solution. Would love to hear any suggestions, similar experiences, or just a general 'snap out of it you daft cow!' I live in the UK so would love to hear from UK people as well as anyone else out there!

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January 14, 2007

I will - the smell stuff made me laugh - I am the same - like getting excited about coffee or smelling perfume - and i do the same with showers!!

Thanks a lot

Cat

From: "" <soniarobins@...>Reply-samters To: <samters >Subject: RE: NewbieDate: Sun, 14 Jan 2007 08:05:39 +1100

Hi Cat,

If you have to delete certain foods from your diet, you soon learn to deal with it because the end result of eating those foods and bringing on a bad sinus or asthma attack just isn't worth it.

Dealing with the loss of smell is something you end up getting used to unfortunately. Mind you when I go back on pred. and ,y sense of smell returns I think my family have thoughts of locking me up in the funny farm because I just love smelling all the herbs and spices in the pantry. I sniff just about anything that I can because it all smells so fantastic. Food even tastes better as well. I now have an electric stove because I had problems with the gas myself, not being able to smell it. Other things relating to lack of smell are a problem too e.g. the inside bin might be a bit off and I won't know and then I'm constantly having showers just in case I mightn't be so fresh. Things like that can be so embarrassing but it's just something you learn to live with. It does have a huge advantage though - try changing a dirty nappy when you can't smell it hahaha.

I like to think Australia is up there amongst the top researchers when it comes to this but in fact I've found a lot of information overseas as well that's been useful.

If you can find a doctor who knows Samters that's always a bonus.

I remember the day many years ago when my problem was given a name i.e. Samters. I think it was a turning point in my life that to have this 'name' I knew I wasn't alone. I've had tremendous help from this forum as I'm sure you will too.

Keep us informed of how you go.

Cheers

From: samters [mailto:samters ] On Behalf Of Cat Sent: Saturday, 13 January 2007 8:09 PMsamters Subject: RE: Newbie

Hi

Thanks! You've had it ages then - That's rotten. It's reassuring to know that you can get it under control - thanks. I am looking forward (I think) to the immunologist, but am concerned that they are going to tell me not to eat all of my favourite things.

How do you deal with the loss of smell? I know there's not much you can do - but I have gassed myself twice (perhaps I should get rid of the gas cooker!) , set fire to the kitchen and not known about it and I have served up sour milk in tea several times for friends and not known! It's like you lose a whole dimension to life?

But thanks for the advice - makes me feel much better - I found out most of the info I know (mainly about salicylates) from Australian websites - they seem to be more switched on to it there? I read a lot of stuff about the preservatives in meat - which is a biggie for me.

Thanks again, and i will try the websites.

Cat x

From: "" <soniarobinstsn (DOT) cc>Reply-samters To: <samters >Subject: RE: NewbieDate: Sat, 13 Jan 2007 08:39:25 +1100

Welcome to the group. Firstly try not to worry too much, this is a common story of what we hear of so often in the group and we're here to offer help, advice or whatever it is you need.

I was diagnosed in 1979 (live in Australia) and have had five operations to date, the longest period between was ten years. I have been to an Immunologist who carried out various tests and try not to be terrified of the tests. Once you have an answer then you can start addressing the problem with what not to eat etc. You could be allergic to salicylates - here's a couple of websites with information about it:

http://au.health./041101/25/1ufq.html?r=96750785%7C5

http://www.users.bigpond.com/mywebhome/s2index.html

I tests negative to most of them and the down side is I don't have a sense of smell - only get that when I go back on pred. Aspirin I can't be desensitized too so I just need to be careful.

Once you get sorted out as to allergies etc. and get on the right track with medication you'll notice a difference. Mine is under control at the moment although I still have the occasional outbreak of asthma but my doctor has me on a very good management plan.

Keep asking questions, and we're here for you and hope that we can help.

Cheers

From: samters [mailto:samters ] On Behalf Of ambercat99Sent: Saturday, 13 January 2007 8:17 AMsamters Subject: Newbie

Hey I have just joined this group - I am pretty low - I knew this group existed but have been in a sort of denial. Just looking to chat with people who have samters as it feels very lonely to have it.I've had Samters since 1997 and am having my third op to remove the polyps in two weeks' time, about 2 years after my second - my consultant thinks i should be having them evry 18 months which depresses the hell out of me. I have no sense of smell, have scary asthma reactions to sausages, fruit juice and salad dressings which I understand is from sodium metabisulphate and taking aspirin blows my face up. I also get terrible itching everywhere which i havent yet sorted - but have recently developed hives as a reaction over my arms and middle (and occasionally my neck) which i think i have isolated as a reaction to Mono sodium glutamate. I am soon to see an immunologist as am terrified of a suprise reaction. Plus all this i have constant nasal infections and my asthma is out of control. Feeling pretty sorry for myself as you can probably read and just want someone to put it into perspective for me before i go crazy. Am really only just realising I have to be proactive about this and have relied mainly over the last 4 years on prednisolone doses which are wonderful (wow the smell of bacon! ooo tasting chocolate!) but obviously not a long term solution. Would love to hear any suggestions, similar experiences, or just a general 'snap out of it you daft cow!' I live in the UK so would love to hear from UK people as well as anyone else out there!

--No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.9/623 - Release Date: 11/01/2007 3:33 PM

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MSN Hotmail is evolving – check out the new Windows Live Mail

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January 14, 2007

All,

Here is one tip when you have no sense of smell. In some towns you can call the gas company, tell them you have a condition where you have no sense of smell (some require a doctor's note), and they will install an audible alarm that will sound when there is a gas leak. In the U.S. they add a sulfur-like smell to natural gas so that we can detect leaks, but if you can't smell at all, that does no good!

Regards,

Lilah

--------- RE: NewbieDate: Sat, 13 Jan 2007 08:39:25 +1100

Welcome to the group. Firstly try not to worry too much, this is a common story of what we hear of so often in the group and we're here to offer help, advice or whatever it is you need.

I was diagnosed in 1979 (live in Australia) and have had five operations to date, the longest period between was ten years. I have been to an Immunologist who carried out various tests and try not to be terrified of the tests. Once you have an answer then you can start addressing the problem with what not to eat etc. You could be allergic to salicylates - here's a couple of websites with information about it:

http://au.health./041101/25/1ufq.html?r=96750785%7C5

http://www.users.bigpond.com/mywebhome/s2index.html

I tests negative to most of them and the down side is I don't have a sense of smell - only get that when I go back on pred. Aspirin I can't be desensitized too so I just need to be careful.

Once you get sorted out as to allergies etc. and get on the right track with medication you'll notice a difference. Mine is under control at the moment although I still have the occasional outbreak of asthma but my doctor has me on a very good management plan.

Keep asking questions, and we're here for you and hope that we can help.

Cheers

From: samters [mailto:samters ] On Behalf Of ambercat99Sent: Saturday, 13 January 2007 8:17 AMsamters Subject: Newbie

Hey I have just joined this group - I am pretty low - I knew this group existed but have been in a sort of denial. Just looking to chat with people who have samters as it feels very lonely to have it.I've had Samters since 1997 and am having my third op to remove the polyps in two weeks' time, about 2 years after my second - my consultant thinks i should be having them evry 18 months which depresses the hell out of me. I have no sense of smell, have scary asthma reactions to sausages, fruit juice and salad dressings which I understand is from sodium metabisulphate and taking aspirin blows my face up. I also get terrible itching everywhere which i havent yet sorted - but have recently developed hives as a reaction over my arms and middle (and occasionally my neck) which i think i have isolated as a reaction to Mono sodium glutamate. I am soon to see an immunologist as am terrified of a suprise reaction. Plus all this i have constant nasal infections and my asthma is out of control. Feeling pretty sorry for myself as you can probably read and just want someone to put it into perspective for me before i go crazy. Am really only just realising I have to be proactive about this and have relied mainly over the last 4 years on prednisolone doses which are wonderful (wow the smell of bacon! ooo tasting chocolate!) but obviously not a long term solution. Would love to hear any suggestions, similar experiences, or just a general 'snap out of it you daft cow!' I live in the UK so would love to hear from UK people as well as anyone else out there!

--No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.9/623 - Release Date: 11/01/2007 3:33 PM

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MSN Hotmail is evolving – check out the new Windows Live Mail

--No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.10/624 - Release Date: 12/01/2007 2:04 PM

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January 15, 2007

thanks!

From: J_9@...Reply-samters To: samters , <samters >CC: "" <soniarobins@...>Subject: RE: NewbieDate: Sun, 14 Jan 2007 22:12:11 +0000