Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Last year I had blood drawn so the doctors could tell which CMT I may have. I had no idea that the test would cost $3,400.00. My ins company would not pay for it, so I was lucky enough to find out that MDA would pay for it. I then found out that because the way test is done and what they know to look for as far as which type I have (could not be verified. )The end result was yes I have CMT but it is unclear which one. If you are told that a muscle biopsy or nerve biopsy would 100% tell you which one he has,then I would suggest the later. Quote Link to comment Share on other sites More sharing options...
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