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Neotrophin

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Hi, my name is Theo, I’m 28 years old and I come from Greece. I have been a

member of this group for 2 years now. I have had CMT since the age of 4. I have

foot drop, balance problems and muscle atrophy in my hands. I had surgery at the

age of 13 in my legs in order to improve my gait. At the moment I am doing a

Ph.D. in law in the UK. At the same time I am teaching undergraduate law

students.

I think the group is doing a great job to inform its members about new research

on possible treatments of CMT. As I was surfing the internet I myself came

across information on a new drug currently tested on patients with peripheral

neuropathy who have undergone chemotherapy. So, I thought, why not share it with

the group. I ‘m not a doctor so do not know whether this could be relevant to

CMT. Perhaps the doctors in the group could give an opinion. The drug is said to

stimulate nerve regeneration in adult rats and is now in Phase II clinical

trials. The drug is also said to be tested on patients with spinal cord injury.

See the following link:

http://clinicaltrials.gov/ct/gui/show/NCT00041795;jsessionid=700633B944C18510976\

5C5D258E36264?order=1

Cheers

THEO

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