Re: CMT vs. Carpal tunnel

[Guest guest]

: I decided that I wanted more proof that it was carpal tunnel

although I believe that that is most of the problem. I consulted

with the Philadelphia Hand Clinic and they are sending me for another

Nerve conduction study to see if they can pin point it more accurately.

I have lost some hand strength (I can no longer shoot basketball foul

shots with the accuracy or velocity that I could a few years ago) but

the pain is the most annoying factor. I appreciate your comments as

I have doubts myself although even if the surgery only takes away

some of the pain, I think it would be worth it, and I have a 50-50

chance that it will do more! I have postponed any surgery until after

the NCS are completed again. I don't know if it will make any difference

but I felt that I should have a more recent one done anyhow if to only see

a progression from the last one completed in 1998. Please feel to comment

further on anything., I welcome any feedback from everyone.

Sharon

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[Guest guest]

Sharon,

I also have CMT and underwent bilateral carpal tunnel releases as well as

bilateral cubital tunnel releases(elbow) and it made all the difference in

the world. The CMT caused the clumsiness that I have in my hands, the

surgery alleviated the significant numbness and pain. I was back typing and

essentially doing my normal activities about 10 days after surgery. My

surgery was done in 1999 and I have not regretted.

I'm not sure what line of work you are in, but for anyone that is in a

repetitive work activity environment (i.e. typing, sorting mail by

hand,etc.) you can get nerve entrapment at the elbow as well as the wrist.

If your physician doesn't do a thorough examination, the elbow entrapment is

easily missed and once the CTS surgery is done, some people find their

numbness/pain etc. did not go away because it was also coming from the

elbow.

CMT shadows nerve entrapment/damage due to the nature of the disease. That

is why a good thorough, hands-on examination by the physician needs to occur

and not total reliance on one particular test.

Blair

A positive attitude ensures a positive quality of life. At , we are not a

glum lot! We absolutely insist on

enjoying life! The key to this enjoyment is acceptance of our CMT, because

acceptance means freedom.

Acceptance is: Attitude Covered Clearly (in) Experiential Posts Towards

Awareness Now Creating Expression.