introduction

[Guest guest]

It is exciting!!!!! I don't know of her plans but you should check out the website and schedule that is posted on it....www.masgutovamethod.com - best wishes, Tricia

From: my2boyz3 <my2boyz3 (DOT) com>Subject: [childrenwithchalle nges] Re: Introductionchildrenwithchallen gesgroups (DOT) comDate: Sunday, January 31, 2010, 5:17 PM

Hi Tricia, It is nice to hear you had a good experience at the conference. Would you mind telling me about it. I have an 8 yr old son named n who has C.P. he was born 26 weeks gestation and had a severe bilateral brain bleed when he was 1 day old. He started walking at age 6 and i don't think he's stopped since (lol). He is nonverbal. I am interested in this method b/c n has so many abnormal body movements and the older and stronger he gets the more severe they are becoming. His most severe is crossing bent at his right elbo over to his left shoulder then he gets himself so tight in that position. He can do this for so long. I have a hard time pulling him from the position he has gotton so strong. His therapist don't have any answers which is why I am checking this it. Any information you have I would love to hear!Diane>> Hi, my name is Tricia Borsch. My daughter, Holly and I just returned from a Family Conference in CA with Svetlana. OH MY GOODNESS, what a life changing experience it was for both of us!!!!!> > Holly was diagnosed with Developmental Delays at age 3. Being a teacher for children with autism, I always thought that she was somewhere on the Spectrum but she was never diagnosed with it even though I asked many Drs. for their opinion. Svetlana proved to us that she has "characteristics of being on the spectrum" but it was really holding onto her primitive flexes. We saw and continue to see on an everyday basis so many changes. I have become the biggest advocate of this program and telling anyone and everyone that I know that have children with disabilities to

look into this program.> > Holly and I live in Tequesta, Florida - about 20 minutes north of West Palm Beach. We have 3 dogs and 2 cats. Anyone else in this area?> > Looking forward to being involved with this group.>

Express yourself instantly with MSN Messenger! MSN Messenger

[Guest guest]

Hello! My son Josh, 8 yrs old, is also an extremely picky eater. He gags at most foods. Following Masgutova camp, his range of taste expanded. We should say we also added zinc supplements. He regressed a bit when he caught a cold, but his desire to try new things came back a month later, to our great excitement. The camp and the hotel were incredibly accomodating when it came to diet--they even made chicken bone broth for him. Naturally Nova Scotia makes a greens powder with 44 vegetables, organic, gluten- and casein-free, with no sugar. We put it in his juice. Going organic in addition to gluten- and casein-free has been helpful. It's not a cure, but he isn't getting worse, either. Good luck! ine Sent from my BlackBerry device on the Wireless NetworkFrom: " " <collinsfour@...>Date: Tue, 13 Apr 2010 20:24:29 -0400<CHILDRENWITHCHALLENGESGROUPS (DOT) COM>Subject: Introduction Hi all.We have two children, the youngest, a girl diagnosed with ADHD and sensory integration disorder. We live in southern Maine and see a wonderful woman in Portland for Brain Gym that has helped tremendously. We had a session with Dr. Svetlana this month - absolutely amazing woman. We've heard about crainosacral massage but not sure of the technique. She goes to Occupational Therapy once a week and also receives OT at school. Our oldest child may benefit from some of the techniques we've already learned although she hasn't been tested formally - just mother's instinct! Dr. Svetlana gave us some dietary suggestions, which because of the picky nature of her appetite are proving challening. We'd like to connect with other parents for suggestions and support as we travel this journey. I found out about this group through Dr. Svetlana's site and in doing other searches.Thank you!

[Guest guest]

I read somewhere in my studies that gagging and taste sensitivity could be a b vitamin deficiency. Something to investigate.

From: sleepie@... <sleepie@...>Subject: Re: Introduction Date: Wednesday, April 14, 2010, 3:22 AM

Hello! My son Josh, 8 yrs old, is also an extremely picky eater. He gags at most foods. Following Masgutova camp, his range of taste expanded. We should say we also added zinc supplements. He regressed a bit when he caught a cold, but his desire to try new things came back a month later, to our great excitement. The camp and the hotel were incredibly accomodating when it came to diet--they even made chicken bone broth for him. Naturally Nova Scotia makes a greens powder with 44 vegetables, organic, gluten- and casein-free, with no sugar. We put it in his juice. Going organic in addition to gluten- and casein-free has been helpful. It's not a cure, but he isn't getting worse, either. Good luck! ine Sent from my BlackBerry device on the Wireless Network

From: " " <collinsfour@ maine.rr. com>

Date: Tue, 13 Apr 2010 20:24:29 -0400

<CHILDRENWITHCHALLEN GESGROUPS (DOT) COM>

Subject: [childrenwithchalle nges] Introduction

Hi all.

We have two children, the youngest, a girl diagnosed with ADHD and sensory integration disorder. We live in southern Maine and see a wonderful woman in Portland for Brain Gym that has helped tremendously. We had a session with Dr. Svetlana this month - absolutely amazing woman.

We've heard about crainosacral massage but not sure of the technique. She goes to Occupational Therapy once a week and also receives OT at school. Our oldest child may benefit from some of the techniques we've already learned although she hasn't been tested formally - just mother's instinct! Dr. Svetlana gave us some dietary suggestions, which because of the picky nature of her appetite are proving challening. We'd like to connect with other parents for suggestions and support as we travel this journey. I found out about this group through Dr. Svetlana's site and in doing other searches.

Thank you!

[Guest guest]

I made home made soup with many different vegetables and legumes, added lemon and cilantro for flavour and maybe agave, then blended it so nothing was identifiable. Very yummy. Good luck.

From: <collinsfour@...>Subject: IntroductionCHILDRENWITHCHALLENGESGROUPS (DOT) COMDate: Wednesday, April 14, 2010, 12:24 AM

Hi all.

We have two children, the youngest, a girl diagnosed with ADHD and sensory integration disorder. We live in southern Maine and see a wonderful woman in Portland for Brain Gym that has helped tremendously. We had a session with Dr. Svetlana this month - absolutely amazing woman.

We've heard about crainosacral massage but not sure of the technique. She goes to Occupational Therapy once a week and also receives OT at school. Our oldest child may benefit from some of the techniques we've already learned although she hasn't been tested formally - just mother's instinct! Dr. Svetlana gave us some dietary suggestions, which because of the picky nature of her appetite are proving challening. We'd like to connect with other parents for suggestions and support as we travel this journey. I found out about this group through Dr. Svetlana's site and in doing other searches.

Thank you!

[Guest guest]

Thanks Vicki for the information.   Yes, I am also beginning to believe electroporation is nota major factor before, during, or after use with the Bob Beck device for short term use, especially since I have read laboratory tests saying it usually requires very high voltage (100v or higher) for it to occur.  If there

were cases of people dying that were moderately healthy and used this, I would questionit, but there hasn't been any reported yet.   The only two were the HIV patients, whichI'm sure already had compromised immune systems.   At least 2 hrs of zapping

recommended by Beck should not cause this.  Possibly of 6 or 8 hrs of zapping mightpotentially cause issues, but this needs to be looked into further.  Its possible that if youexposed cells to electrical current long enough, it might have some effect similar to

short term bursts of 100v.     On Thu, Apr 15, 2010 at 2:44 PM, sharing_health <sharing_health@...> wrote:

 

Dear Friends:

This is my first time posting here. I'm happy to have joined first of all and to meet all of you.

My background is that I worked for SOTA several years ago. I was their research and government correspondent. I have used this technology for 10 years, and have had the opportunity to interview

dozens of different people, well over one hundred...people from all different backgrounds, countries, ages, etc. and those that I associate with also have spoken with hundreds more people that choose to share their experiences.

I'd like to say that this technology has been used safely for many years. To my knowledge there has never been anyone using this technology that has died of electroporation or has been harmed in anyway. I would suggest that electroporation may not even be a factor and as RB stated, as well as many others, they have safely used vitamins, herbs, and even in some cases strong pharmaceuticals without any ill effect.

At the birth of this particular type of microcurrent techology in the 90s, no one knew the effects, and largely we still don't. So obviously everyone needed to proceed with caution. Bob Beck strongly emphasized these cautions. But, what would Bob Beck say now if he were alive today?... years later. I believe he too would

soften his cautions. In the absence of politically-correct scientific data, we do have true science at work - experimentation and observation collectively self-administered and shared between us. I would suggest that safety has been established through the passage of time.

Just because a cell may or may not be more permeable during the use of this technology does not mean it is " electroporation. " In a lab when they study electroporation, they are typically using several hundred volts across a few millimetres. If someone experiences sickness, or increase of symptoms, this is usually the Herxheimer effect when they are dumping toxins faster than their body can process.

Bottom line is most of us involved with this stuff long-term don't have a problem using good quality natural products before, during, or after using microcurrent technology. This technology is meant to mimic our own electrical system and is one of many tools to bring us back to, or keep us at optimum health. That being said, the

only suggestion I have for all is to simply do your research, listen to what others have to say, but in the end, feel what is right for you. The heart never lies.

On another note, look for changes over the coming months on www.bobbeck.com and www.sharinghealth.com , two non-commercial, educational sites. They are currently being re-vamped with a new look and new information and new community building. I will enjoy meeting you all.

Warmly, Vicki

[Guest guest]

Nice post....thanks for the info....!

Phil

From: sharing_health <sharing_health@...> Sent: Thu, April 15, 2010 2:44:37 PMSubject: Introduction

Dear Friends:This is my first time posting here. I'm happy to have joined first of all and to meet all of you.My background is that I worked for SOTA several years ago. I was their research and government correspondent. I have used this technology for 10 years, and have had the opportunity to interviewdozens of different people, well over one hundred...people from all different backgrounds, countries, ages, etc. and those that I associate with also have spoken with hundreds more people that choose to share their experiences.I'd like to say that this technology has been used safely for many years. To my knowledge there has never been anyone using this technology that has died of electroporation or has been harmed in anyway. I would suggest that electroporation may not even be a factor and as RB stated, as well as many others, they have safely used vitamins, herbs, and even in some cases strong pharmaceuticals without any ill

effect.At the birth of this particular type of microcurrent techology in the 90s, no one knew the effects, and largely we still don't. So obviously everyone needed to proceed with caution. Bob Beck strongly emphasized these cautions. But, what would Bob Beck say now if he were alive today?... years later. I believe he too would soften his cautions. In the absence of politically- correct scientific data, we do have true science at work - experimentation and observation collectively self-administered and shared between us. I would suggest that safety has been established through the passage of time.Just because a cell may or may not be more permeable during the use of this technology does not mean it is "electroporation. " In a lab when they study electroporation, they are typically using several hundred volts across a few millimetres. If someone experiences sickness, or increase of symptoms, this is usually the Herxheimer effect when

they are dumping toxins faster than their body can process.Bottom line is most of us involved with this stuff long-term don't have a problem using good quality natural products before, during, or after using microcurrent technology. This technology is meant to mimic our own electrical system and is one of many tools to bring us back to, or keep us at optimum health. That being said, the only suggestion I have for all is to simply do your research, listen to what others have to say, but in the end, feel what is right for you. The heart never lies.On another note, look for changes over the coming months on www.bobbeck. com and www.sharinghealth. com , two non-commercial, educational sites. They are currently being re-vamped with a new look and new information and new community building. I will enjoy meeting you all.Warmly, Vicki

[Guest guest]

Hello

Jeanette, and welcome to our forum where I hope you get all the help and

support you need. You will find lots of information in our Files and Links

section, and you will soon come to realise why the majority of endocrinologists

take up diabetes as their specialty and not thyroid disease.

The

presence of a goitre indicates there is an abnormality of the thyroid gland and

it is important to determine the it's true cause. Are you absolutely 100% certain

that the cause for yours is Hashimoto's Thyroiditis. I ask because if I

remember correctly, you told me on the phone that your TSH was suppressed.

Hashimoto's is confirmed by the presence of thyroid peroxidase (TPO),antibodies,

detected via blood test . These antibodies see your thyroid gland as public

enemy number one and set about its gradual destruction.

As

well as the Thyroid Stimulating Hormone (TSH) you also need to check your free

T4 and free T3 levels to determine if your thyroid is under active or

overactive. If blood tests show that your thyroid is overactive (a high

level of thyroid hormone in the blood plus a suppressed TSH), your doctor may

arrange for a thyroid scan. The scan will find out if your entire thyroid gland

is overactive or whether you have a toxic nodular goitre. A test that measures the

ability of the gland to collect iodine may be done at the same time.

Your

doctor may also wish to do a blood test to confirm the presence of

thyroid-stimulating antibodies (TSAb) that cause Graves’ disease, but

this test is not always necessary.

If,

on the other hand, you are hyPOThyroid (a low level of thyroid hormone in the

blood plus a high TSH) you may have Hashimoto's Thyroiditis and you may get

additional blood tests to confirm such a diagnosis.

I

believe you mentioned that you have several nodules. These need to be

investigated by specialised tests such as a thyroid fine needle biopsy, a

thyroid scan, and/or thyroid ultrasound if this has not already been done.

Many

doctors won't treat patients who test positive for Hashimoto's antibodies, but who

have TSH in the normal range. There are, however, some endocrinologists who

believe that the presence of thyroid antibodies alone is enough to warrant

treatment with small amounts of thyroid hormone. If you've tested positive for Hashimoto's

antibodies, and have a 'normal' TSH' your doctor might wish to look into this

further.

Such practice is supported by a study, reported in the March 2001 issue of the

journal Thyroid. In this study, German researchers reported that use of

levothyroxine treatment for cases of Hashimoto's autoimmune thyroiditis, (where

TSH was not raised beyond normal range) could reduce the incidence and degree

of autoimmune disease progression.

In the study of 21 patients with euthyroid Hashimoto's Thyroiditis (normal

range TSH, but elevated antibodies), half of the patients were treated with

levothyroxine for a year, the other half were not treated. After 1 year of

therapy with levothyroxine, the antibody levels and lymphocytes (evidence of

inflammation) decreased significantly only in the group receiving the

medication. Among the untreated group, the antibody levels rose or remained the

same.

The researchers concluded that preventative treatment of normal TSH range

patients with Hashimoto's disease reduced the various markers of autoimmune

thyroiditis, and speculated that that such treatment might even be able to stop

the progression of Hashimoto's disease, or perhaps even prevent development of

the hypothyroidism. Journal Reference: Thyroid, 2001

Mar;11(3):249-55, " One-year prophylactic treatment of euthyroid

Hashimoto's thyroiditis patients with levothyroxine: is there a benefit? "

On the subject of iodine I brought up, I have attached Dr

Peatfield's speech I referred to in our conversation, but here is an extract

" So, on the whole, the use of iodine started to get less and less

and less, and it all got so much worse; since the RDA was set at a very low

figure of 0.15 mg (ie 150 mcg), when 37.5 – 50 mg is a far more realistic

dose. Very small amounts (75 mcg) will prevent goitre, since with iodine

deficiency, the thyroid enlarges to obtain as much iodine as possible, and when

iodine is given it will shrink. This is where Derbyshire neck comes in. This is

enough to stop you getting a goitre, but it

is not enough for your general

health. In fact, as I shall say in a moment, you can have something like, ten

times that dose, and benefit from it. I saw a lady the other day with a classic

Derbyshire Neck. This would have been prevented with sufficient iodine , and

what I am actually giving her will be iodine, probably in the form of kelp,

possibly Lugol’s Iodine, and this will shrink Derbyshire Neck. Derbyshire

Neck is where there is insufficiency in iodine - wherever you are living,

particularly in inland areas, and the thyroid enlarges to try and make better

use of the iodine it can get. "

I do believe there is a good

doctor who has been highly recommended in your area but I don't have them on my

list. I will contact my member and ask her for his name and get back to you

later.

Luv - Sheila

Hi

I am 42 have Hashimotos and a huge goitre...mum had one too but not sure if it

was hashi or not!

My GP is v. good and will probably prescribe meds if I know what to ask for and

can present a good case. She is currently prescribing a gluten free diet which

I find helps. However, she has suggested we get a sympathetic endo to endorse

her continuing to prescribe G/F diet. Is there one in the N.Yorks area? I have

done Prof At*** in Hull four years ago and would not want to go there so any

other suggestions greatly received.

I will get my blood test results when back from hols but in the meantime any

advice greatly received.

Just had a chat with Sheila and discussed iodine...I am open to most treatments

I need to up my energy levels to cope with energetic 11 yr old with autism! xjx

No virus

found in this incoming message.

Checked by AVG - www.avg.com

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18:34:00

1 of 1 File(s)

Dr P's Speech. IODINE.doc

[Guest guest]

Hi Jeanette, Th problem is that the tests did not incluse free T3 ans well as free T4- withour both you can't tell if you can convert the storgae hormone T4 into the active T3. you can get the test done at Genova- see the files. thyroid treatment From: dentonjeanette@...Date: Fri, 20 Aug 2010 06:03:30 -0700Subject: Re: Introduction

Dear Sheila

Thank you for your very informative email last weekend.

I did listen to DR P and have appointed with him twice in 2006. He had my the IWDL results but did not recommend any meds or Iodine.

I wonder have you heard back from the member who knows of an Endo in my area?

It is nearly five years since I was found to have TPO antibodies. My goitre grown has got bigger since my first pregnancy in 1998. I lost twins at 23 weeks in 2005 and my goitre and post partum thyroid and eyes were a nightmare!

I saw Prof A in Hull privately and he sent me away unmedicated in 2006. He had my thyroid scanned twice ...once in 2006 and again in 2007 under the care of a Mr E. I was told it was multinodular and not a hashi goitre as it would have to be smooth to be a hashi one! I have since read this is not the case. I was discharged and told that two scans a year a part were all that was needed to rule out anything "sinister".

I have lost 4.5 stone due to my hubby of 22 years abandoning my son and I ....but am still very heavy and not eating enough to warrant the weight I carry. Feel better for weight loss but it was so very stress induced.

I have seen my GP today. She is very willing to refer me to whoever you recommend..which is great! She will also medicate but says she can't get the local labs to produce me a T3 result as if TSH is normal they don't do it ...even when she asks. I have seen her write it on the green forms.

My :-

TPO antibodies were 121 ui/ml

TSH 0.25 miu/L

Serum free T4 15.7 pmoi/l

I have had tests done at IWDL in the past. My Gp says the Endo will be able to get all the test done. I will try and find my tests from IWDl but they are old but I think they showed other antibodies than TPO ones.

I am always confused why I look like a Hypo patient but my TSH is hyper!

Thank you for your help.

Jeanette

[Guest guest]

I've taken some training in Rhythmic Movement Training and a couple

Neuro-Development classes that included some Brain Gym. We've also done HANDLE.

I've worked with the ATNR, STNR, Moro, Palmer, Hand Pulling, Spinal Galant, a

couple other hand/grip reflexes and others I can't think of now. We've done a

lot of repatterning work, cross crawl activities and integrating activities. He

has this odd stiffness in his wrist that doesn't seem to be addressed. He wants

to hold his hand and the paper in the wrong position and his writing looks like

that of a 3rd grader.

There doesn't seem to be any classes or persons trained that are anywhere near

me. I'm in the State of Washington.

>

> Hello .

> Can you tell us what type of neuro-reflex therapy you have been doing with

> your son. Thanks.

> Joan

>

>

[Guest guest]

Hi ,

Have you looked at his wrists structurally to see if there is a reason they are stiff ? If non of the work has addressed this it might be something to check out. You could also try joint rotations with traction to the joint.

Diane

From: <theparkersrus@...> Sent: Fri, August 27, 2010 4:35:39 PMSubject: Re: Introduction

I've taken some training in Rhythmic Movement Training and a couple Neuro-Development classes that included some Brain Gym. We've also done HANDLE. I've worked with the ATNR, STNR, Moro, Palmer, Hand Pulling, Spinal Galant, a couple other hand/grip reflexes and others I can't think of now. We've done a lot of repatterning work, cross crawl activities and integrating activities. He has this odd stiffness in his wrist that doesn't seem to be addressed. He wants to hold his hand and the paper in the wrong position and his writing looks like that of a 3rd grader.There doesn't seem to be any classes or persons trained that are anywhere near me. I'm in the State of Washington.>>

Hello .> Can you tell us what type of neuro-reflex therapy you have been doing with> your son. Thanks.> Joan> >

[Guest guest]

April,Where are you located?On Thu, Sep 2, 2010 at 8:59 AM, choulat <purplpeople@...> wrote:

 

I wanted to introduce myself to the group formally, as I've been lurking for a few months but only recently took my first MM course - so now I feel a little more comfortable with the jargon:)

I am an Autism Specialist, certified in Relationship Development Intervention and HANDLE, and I have training in various approaches to autism treatment, including Floortime, Method and ABA. I tend to explore various approaches and based on the results observed, decide whether or not they are worth pursuing further - I am very excited about Dr. Masgutova's work and feel it is a very important piece for many children and adults with autism. I can't wait to learn more:) I look forward to learning from the group and meeting some of you in person in future courses.

April Choulat

-- Donna BatemanNeurodevelopmental Specialistwww.parentswithpurpose.comCheck out my blog: www.parentswithpurpose.blog.com

Natural Moms Talk Radio Interview Podcast:  http://is.gd/4WwibMom to 25, Katy Kartchner 23 (just married) , Preston 21 (serving a full-time mission in Mendoza, Argentina), Annie 19, Kent 17, Callie 14 (cured from dyslexia), Carson 12, Dawson 10 (brain injured--was severe now mild!)

[Guest guest]

Hello,

Are there any MNRI practioners who live in Bejing, China?

Many thanks in advance,

Iris

CHILDRENWITHCHALLENGESGROUPS (DOT) COMFrom: liljaurban@...Date: Tue, 7 Sep 2010 17:52:06 -0700Subject: Introduction

Hello All,My name is Lilja. I am a pediatric (and sometimes adult) physical therapist who is completely enamored with MNRI. I have taken 6 classes and attended one workshop so far. I eat, drink, and breathe this work because I have seen nothing but success, success, success since I started on the journey. I have seen some really nice changes in my own body as I do a little of the work on myself. I have seen children make dramatic changes (even in the homes where I do an hour a week of therapy and nobody else does anything - of course not anywhere near as fast as when the parents do the home program!). I have taken many many classes over the years and none compare to what I am learning here. I look forward to learning more and am excited about the group e-mails. Thanks,

[Guest guest]

Wow what a great vote of confidence from a Therapist!!! I, as a parent who has seen amazing results in my 13 year old daughter, feel the same way!!! Where are you located - hopefully in South Florida!!

From: Lilja <liljaurban@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Tue, September 7, 2010 7:52:06 PMSubject: Introduction

Hello All,My name is Lilja. I am a pediatric (and sometimes adult) physical therapist who is completely enamored with MNRI. I have taken 6 classes and attended one workshop so far. I eat, drink, and breathe this work because I have seen nothing but success, success, success since I started on the journey. I have seen some really nice changes in my own body as I do a little of the work on myself. I have seen children make dramatic changes (even in the homes where I do an hour a week of therapy and nobody else does anything - of course not anywhere near as fast as when the parents do the home program!). I have taken many many classes over the years and none compare to what I am learning here. I look forward to learning more and am excited about the group e-mails. Thanks,

[Guest guest]

Hello , So glad to hear from you and hear about this profound work.Best Regards,Steve BestOn Sep 7, 2010, at 8:52 PM, Lilja wrote:

Hello All,

My name is Lilja. I am a pediatric (and sometimes adult) physical

therapist who is completely enamored with MNRI. I have taken 6 classes and

attended one workshop so far. I eat, drink, and breathe this work because I

have seen nothing but success, success, success since I started on the journey.

I have seen some really nice changes in my own body as I do a little of the work

on myself. I have seen children make dramatic changes (even in the homes where

I do an hour a week of therapy and nobody else does anything - of course not

anywhere near as fast as when the parents do the home program!). I have taken

many many classes over the years and none compare to what I am learning here. I

look forward to learning more and am excited about the group e-mails.

Thanks,

Best Ed.S Sp. Ed. Brain Gym instructor/consultant537 McJunkin RdTellico Plains, TN 37385423-261-2279423-261-4228 cellwww.mindbodyconnects.netwww.braingym.org

[Guest guest]

Hi Tricia,I live in Northern IL. I do know you from the Houston course. I followed you around the first and last day. How is your wonderful 13 year old doing now? From: Tricia Borsch <tspearfish@...> Sent: Wed, September 8, 2010 9:03:13

AMSubject: Re: Introduction

Wow what a great vote of confidence from a Therapist!!! I, as a parent who has seen amazing results in my 13 year old daughter, feel the same way!!! Where are you located - hopefully in South Florida!!

From: Lilja <liljaurban@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Tue, September 7, 2010 7:52:06 PMSubject: Introduction

Hello All,My name is Lilja. I am a pediatric (and sometimes adult) physical therapist who is completely enamored with MNRI. I have taken 6 classes and attended one workshop so far. I eat, drink, and breathe this work because I have seen nothing but success, success, success since I started on the journey. I have seen some really nice changes in my own body as I do a little of the work on myself. I have seen children make dramatic changes (even in the homes where I do an hour a week of therapy and nobody else does anything - of course not anywhere near as fast as when the parents do the home program!). I have taken many many classes over the years and none compare to what I am learning here. I look forward to learning more and am excited about the group e-mails. Thanks,

[Guest guest]

Thank you, , for following up - yes, I know and remember you now from Houston - Holly is doing GREAT - however, she is 13 1/2 and sometimes I want to stuff some of this Masgutova stuff back in and not have to deal with the typical 13 year old stuff....they always say, be careful what you ask for.....it is so amazing that in 9 months we have gained what we have...I am glad that you feel the same way about MNRI - it has changed her life and our lives so much....I am soo blessed by the therapy and the wonderful people I have met on this journey....may our paths cross again....Best regards, Tricia

From: Lilja <liljaurban@...> Sent: Wed, September 8, 2010 8:32:30 PMSubject: Re: Introduction

Hi Tricia,I live in Northern IL. I do know you from the Houston course. I followed you around the first and last day. How is your wonderful 13 year old doing now?

From: Tricia Borsch <tspearfish@...> Sent: Wed, September 8, 2010 9:03:13 AMSubject: Re: Introduction

Wow what a great vote of confidence from a Therapist!!! I, as a parent who has seen amazing results in my 13 year old daughter, feel the same way!!! Where are you located - hopefully in South Florida!!

From: Lilja <liljaurban@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Tue, September 7, 2010 7:52:06 PMSubject: Introduction

Hello All,My name is Lilja. I am a pediatric (and sometimes adult) physical therapist who is completely enamored with MNRI. I have taken 6 classes and attended one workshop so far. I eat, drink, and breathe this work because I have seen nothing but success, success, success since I started on the journey. I have seen some really nice changes in my own body as I do a little of the work on myself. I have seen children make dramatic changes (even in the homes where I do an hour a week of therapy and nobody else does anything - of course not anywhere near as fast as when the parents do the home program!). I have taken many many classes over the years and none compare to what I am learning here. I look forward to learning more and am excited about the group e-mails. Thanks,

[Guest guest]

Hi April,

Glad to see another Florida person in the mix:) Looking forward to meeting you~

Jami

>

> I wanted to introduce myself to the group formally, as I've been lurking for a

few months but only recently took my first MM course - so now I feel a little

more comfortable with the jargon:)

> I am an Autism Specialist, certified in Relationship Development Intervention

and HANDLE, and I have training in various approaches to autism treatment,

including Floortime, Method and ABA. I tend to explore various approaches

and based on the results observed, decide whether or not they are worth pursuing

further - I am very excited about Dr. Masgutova's work and feel it is a very

important piece for many children and adults with autism. I can't wait to learn

more:) I look forward to learning from the group and meeting some of you in

person in future courses.

>

> April Choulat

>

[Guest guest]

Hi Debbie

We live in Texas and were interested in the conference in June but could not afford the cost of it. Do you know of other more affordable ways to get trained, we have a toddler (2) whi has donw syndrome, we are doing the IAHP program along with homeopathy,any help- is greatly appreciated, blessings

Janet

From: Debby Gans <debgans@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Mon, September 13, 2010 7:38:34 AMSubject: introduction

My name is Debby Gans. I am mom to Benji, who is 6 and was diagnosed with PDD at 3 years old. We went to our first family conference this July and are planning to go again in January. The changes we have seen in the past few months are phenomenal. We have tried lots of therapies, both traditional and alternative. All have worked to some degree, but none with the rapid success of MNRI.

[Guest guest]

Hi Kim

Great to hear the story of Mattie, we also have an adorable little boy with Down Syndrome, his name is Mateo, we called him Matito, Mashishi, Mateito. He is 2 years and 2 months and started walking about 6 to 8 months ago, now we are working on getting him to run. We do not have any training on the Masgutova method and just started to learn about this. I got discouraged by the price onf the conference. We are already spending quite a bit of money on other therapies that seem to be effective. We are doing the intensive program with IAHP, Homeopathy for brain regeneration and will start soon a supplementation program with neurotrofic factors. Mateo is doing well. His main problem in life is language, I would like to know if you have seen progress in Mattie's language since your OT started working with the Masgutova method?

Thanks and perhaps we can exchange emails off the board, let me know if you are interested. God bless you

Janet

From: KIM FREDRICK <jkfredrick@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Tue, September 28, 2010 2:26:47 PMSubject: introduction

Hi, I'm Kim Fredrick from Mindoro, WI. I have three children; my youngest is (we call him Mattie). Mattie is two years old (turns three in November) and has Down syndrome. Our OT through Birth-to-3 introduced us to the Masgutova Method. When Mattie was 28 months old he was only combat crawling and scooting to get around. He had been getting up into "crawl" position but would always fall when he attempted to move his arms (for about two weeks). The day our OT started the Masgutova Method, crawled! That was six months ago. Since then, Mattie has started cruising around furniture, climbing on everything, standing on his own, and walking independently with a walker. Mattie also receives cranial sacral therapy monthly from an OT and he is doing Therapeutic Listening. Our OT has only taken two courses and is having a great deal of trouble finding more courses in our area. Mattie turns three soon and will no

longer be seeing this OT since he will be served thru the school system. We are going to try to work together informally, but we're not sure how this will work. I found your group after visiting Dr. Masgutova's website. We have seen such dramatic results in our son that I want to learn more about this method and make sure that Mattie continues to get treatment. Not many people in our area are familiar with the Masgutova Method so any info I can get from this group will be great!Thanks!

[Guest guest]

Hello Natarajan,

I am Subbu from India, I am Pediatic physiotherapist certified in NDT, can you send me your personal email to my email, if you dont mind, my email id is gvsrayalu@... .

I am from India, Hyderabad,

Thanks

Dr. Subbarayalu( Subbu)Theratogs specialist(USA); NDT(USA) pediatricsINDIA

From: Natarajan Krishnan <natarajan.s.krishnan@...>Subject: Introduction Date: Saturday, 18 December, 2010, 12:28 PM

Hello everyone - I am Rajan, my son Vivek (pronounced "we vake") is 3 yrs 3 mos, he was diagnosed as having some sensory processing issues when he was 22 mos, he also has issues with motor planning and organizing, self regulation and attention issues, and his fine motor skills are quite lacking. However he is socially quite good and has a good vocabulary and constructs age appropriate sentences.

My son's OT has been using some of Dr. Masgutova's techniques and in the last six to nine months he has responded quite well I feel. She strongly feels that he is not autistic but that he has sensory and motor issues. Other therapists that he was getting services from also felt the same way. A pediatric neuro-specialist that we took him to is sitting on the fence and not sure about his diagnosis yet. An EEG did not reveal anything out of the ordinary either.

My wife and I are drawing on every possible tool in the toolkit to help him out. Vivek's OT has him on ATNR and STNR now and I am learning to do it the right way. I am planning to attend one of the family conferences or clinics and look forward to sharing my experiences and his progress with this group. We live in the Lake County in IL and I would love to hear from others in the group.

Sincerely,Natarajan Krishnan

[Guest guest]

Thank you Janet, we've done ILS for a few months during the time she had speech and communication therapy. I did see an improvement. I did consider going back to what worked before, that being one of them. She's done so well that I stopped all therapy. I will check out reflux intergration. Thanks again!

We come to love not by finding a perfect person, but by learning to see an imperfect person perfectly.

Heidi

From: Iris von Birgelen <irisvonbirgelen@...>Subject: RE: Introduction Date: Saturday, May 28, 2011, 7:31 PM

Dear Janet, what is the difference between ILS and the Listening program? Many thanks, Iris

From: jejacinto@...Date: Sat, 28 May 2011 05:00:37 -0700Subject: Re: Introduction

For sensory and speech I would highly recommend ILS (Integrated Listening Systems), we have been doing the therapy since January with great results, not only in speech but also in understanding, balance, etc). You can go to their website and read all about it...http://www.integratedlistening.com/. There is probably of good benefit to also start a reflex integration program, have you child been evaluated for this?, all the bestJanet

From: Heidi <hmbchey@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Fri, May 27, 2011 7:39:04 PMSubject: Introduction

Hello All,

My name is Heidi and I reside in Spring Hill, FL. My daughter Bree is 4 years old and was diagnosed with Sensory Integration Disorder. We went through occupational, speech and communication therapy at All Children's in Pasco for 2 years. Bree started school for her speech impairment at the age 3 part time. This school year has been full days Monday - Friday.I stumbled into this group when I was on Dr. Masgutova's website. My daughter is regressing and I feel it is because she is now challenged with so much more in life. I was hoping to meet others that may have or is going through what I am and could possibly give me some suggestions on what therapies really have improved with their children.

I feel very grateful to have found this group.

We come to love not by finding a perfect person, but by learning to see an imperfect person perfectly.

Heidi

[Guest guest]

Best wishes on the best journey of your life!!! Watch out for many more great changes!!!! Warmest wishes, Tricia

From: Bevier <cindybevier@...>"CHILDRENWITHCHALLENGESGROUPS (DOT) COM" <CHILDRENWITHCHALLENGESGROUPS (DOT) COM>Sent: Monday, June 27, 2011 7:45 PMSubject: introduction

Hi - I'm , mom to a 10 year old boy on the autism spectrum. We have been doing a Masgutova method home program since September 2010, and I've seen lots of really great developments. He is much calmer, we have much longer, almost deep conversations, he has acquired a best friend. There have been so many changes, so many developments that just feel like "normal" that it is hard for me to keep track of the progress. Lately we've been focusing on the tactile integration exercises, and right away I can see he is tolerating his clothing for longer periods before stripping everything off!! We work with Dr. Leah Light (and sometimes Hallman) at Brainchild Institute in Hollywood, FL. I joined this group under a different email address previously (that account is locked), so I'm just getting back to this group, and looking forward to hearing about others' experiences with

MNRI.

[Guest guest]

,

My first encounter with the fact that I had something wrong with my back came

when I married a man serving in the Air Force while he was stationed at Amarillo

Air Force Base (now closed) and I was having a a good bit of back pain and went

to the doctor at the base. He did x-rays and told me that I had a " flat back "

and that this was probably the cause of my pain. No mention was made of

scoliosis at that time, and you would think that if there had been any evidence

of it, I would have been told that at the time. My father had this same

condition and we assumed that it was an heriditary thing.

Throughout my life, I have had a lot of back pain, and when I finally couldn't

take it any longer, I went to my family doctor and he diagnosed it right off. I

had noticed in previous years that I had one hip a good bit higher than the

other (I sew, so I found this out when trying to work out a fitting problem),

but just surmised that none of us are the same from one side of the body to the

other, and didn't pursue it any further. I was probably 55 - 60 when this was

diagnosed. My curve is getting a lot worse as time goes on and I'm seeing that

if it continues at the rate it is going now, I will be unable to take care of

myself within the next few years, and I'd really like to have some quality of

life for the years I have remaining. My doctor (Francis Shen) at University

of Virginia at Charlottesville said that I might be a candidate for surgery, but

further tests (MRI, etc.) would need to be done before he could tell me

anything. He did say that I would probably need two surgeries - the second a

few days after the first - to correct as much as they can. He did tell me that

he can't straighten me out completely, but it would help straighten me some and

prevent further deterioration of my condition. I have two curves and the flat

back and I'm " listing forward " at an alarming rate. I can no longer shop - or

even walk very far - as it is now. I manage to go grocery shopping with the

help of the electric carts at the grocery stores. I am currently taking

physical therapy to see if that will help any (it does feel good - all those

massages, ultrasound, vibrator massage, etc.,) and now I'm doing stretching

excercises to try to loosen up my muscles and try to strengthen them. I'm not

sure that this is going to give me any long term relief. I am to return to UVA

on July 21 for a further examination and evaluation.

I have been looking at the many recommendations for physicians who do this type

of surgery and it is consoling to see so many that have had good results from

their revisions. It's really strange that so many of you had the harrington

rods put in only to find out that there were bad side effects years later, and

now the news about the stuff used in some of your surgeries may cause further

problems down the road. Dr. Shen did mention that they would have to harvest

bone for my fusions or use the other type of bone grafts from possibly the RGMP2

- I'm not sure if this was what he was talking about. From what I've read, some

doctors tend not to use the bone from the patient due to pain from the donation

site, but I want to go with my own bone if this produces a better fusion.

Thanks for your warm welcome and I'll be continuing to lurk and read of other's

experiences, even though I have not had any scoliosis surgery previously. I'm

continuing to learn a lot about it's many perils and also it's many wonderful

results.

Ann Chafin

> >

> > My name is Ann C and I was diagnosed with scoliosis about 15 years

> ago. I am currently 71 and under the care of Dr. Francis Shen at

> University of Virginia hospital.

> >

> > He has told me that I may be a candidate for surgery, but that further

> tests will need to be done to determine just what can be done surgically

> to alleviate some of my pain and partially correct my curves. Part of

> my diagnosis is flatback. This is not due to any previous surgery. I

> remember being told by an Air Force doctor that I had flat back and I

> was told this when I was 17. I had no idea what this meant and no

> treatment or other information was given to me. He didn't mention any

> other deformity such as scoliosis at the time.

> >

> > I have found this group through my reading of the book, Scoliosis

> Surgery by Wolpert. It has been very informative and has answered

> a lot of questions about what I might be facing if I should decide to

> have the surgery.

> >

> > I'm wondering if there are any others who have had similar surgery at

> my age? I am in pretty good health other than this, and my curves seems

> to be progressing pretty fast. I can envision myself being unable to

> function within the next year or two.

> >

> > I will be going back and reading your previous posts as I go. Thanks

> for letting me join.

> >

>

[Guest guest]

Hi, Ann --

Thanks so much for providing more details of your very interesting

story. I'm still amazed that someone diagnosed your flatback condition

that early on -- yet missed your scoliosis! I wonder what was causing

your pain: Was it one condition or the other, or some combination of

both, or biomechanical factors that may have been anyone's guess? Sadly,

countless members of this group have reported that their pain was not

taken seriously by specialists they consulted. One woman, I remember,

had seen at least ten doctors about her spine, only to be patted on the

head and sent on her way.

It sounds as if Dr. Shen is contemplating a scoliosis and flatback

correction that will be done in two parts because it includes anterior

surgery (operating from the front) as well as posterior? Again, many of

us have had this. Your procedure may be a little more complex or

involved since it includes a first-time scoliosis correction -- but then

again, many of our surgeons have tried to work in some scoliosis

correction along with the flatback revision, or have extended our

fusions in the course of correcting our flatback.

In a way -- and I emphasize only " in a way, " since you are obviously

facing something pretty major if you decide to go through with it -- you

are better off having the scoliosis correction now. The corrections that

many of us underwent in the 1960s were frankly pretty ghastly

experiences. These operations tended to be shorter than operations today

(resulting in shorter fusions, given the time constraints), simply

because anesthesia and blood banking methods back then were somewhat

more primitive. There have been vast improvements now, enabling longer,

more definitive surgeries to be performed fairly safely. The rate of

complications for today's surgeries is at least 30%, but most

complications are relatively minor and can be reversed fairly easily.

Another major improvement is the development of hardware sufficient to

stabilize your new fusion internally and providing all the protection

you need. Back in the day, you would have been confined to humongous

body casts for months, including 6-9 months flat on your back in bed.

These days you will be up and about in a minimal, lightweight,

custom-made little brace called a

TLSO, extending from your chest to your hips, which you can remove once

a day to take a shower. Alternatively, depending on your surgeon's

preference, you may not have to wear any kind of brace.

Many of us can sympathetize totally with what you are going through now,

Ann. I don't know why I didn't think to try an electric cart for

shopping, but I did appreciate those regular carts because I could shop

only by draping myself over one of them, leaning on it for support.

Eventually the cart was not enough, and I had to get a walker. When I

finally got to the point of revision surgery, I was carrying my torso at

a 90-degree angle to the ground. I was in excruciating pain day and

night, and my life had essentially become unlivable. People who knew me

in that state and who saw me again after the revision, standing straight

and tall, could not resist using the word " miracle " and referring to my

surgeon as " a miracle worker. "

Just please be sure that your surgeon has done many previous flatback

revisions -- not just scoliosis corrections -- and continues to perform

flatback revision surgery on a regular basis, e.g., at least once or

twice a month.

Regarding pain at the site where bone is harvested from your body for

the fusion, I experienced this only after the first fusion, when I was

13 years old. Others may have had different experiences, but I have now

donated graft tissue a number of times for my own surgeries, and I was

not aware of any pain at any donation site. I chose not to donate blood

in advance and did fine on blood that others had donated. If you do

decide to try and store blood for your surgery, it's important to be on

blood-building medication.

It's good that you're getting some benefit from PT. I wonder if you are

getting adequate help with pain. You may want to get set up with a pain

management specialist some time soon if you have not already done so.

Unfortunately you can not count on surgery to alleviate all the pain you

are living with, and it's possible you will need ongoing help with this

post-op. As you may know, there are any number of ways that pain

specialists can make you more comfortable. Although chronic pain is

still vastly undertreated (partly because of all the public

misinformation and anti-drug propaganda that has scared people silly),

adequate pain relief is every patient's right. In shopping for a pain

management doctor, it pays to be as assertive and persistent as you

should be in finding the absolute best possible surgeon. I hate to think

how many pain people I went through before I finally found the clinic I

am with now. My pain treatment, as much as my revision surgery, has

improved my quality of life immeasurably.

Best,

> > >

> > > My name is Ann C and I was diagnosed with scoliosis about 15 years

> > ago. I am currently 71 and under the care of Dr. Francis Shen at

> > University of Virginia hospital.

> > >

> > > He has told me that I may be a candidate for surgery, but that

further

> > tests will need to be done to determine just what can be done

surgically

> > to alleviate some of my pain and partially correct my curves. Part

of

> > my diagnosis is flatback. This is not due to any previous surgery.

I

> > remember being told by an Air Force doctor that I had flat back and

I

> > was told this when I was 17. I had no idea what this meant and no

> > treatment or other information was given to me. He didn't mention

any

> > other deformity such as scoliosis at the time.

> > >

> > > I have found this group through my reading of the book, Scoliosis

> > Surgery by Wolpert. It has been very informative and has

answered

> > a lot of questions about what I might be facing if I should decide

to

> > have the surgery.

> > >

> > > I'm wondering if there are any others who have had similar surgery

at

> > my age? I am in pretty good health other than this, and my curves

seems

> > to be progressing pretty fast. I can envision myself being unable

to

> > function within the next year or two.

> > >

> > > I will be going back and reading your previous posts as I go.

Thanks

> > for letting me join.

> > >

> >

>

[Guest guest]

Hi, i am starting the diet through my physician (who is also doing diet) 8/3-

sure hope this works. I hope i can do the 500 calories a day.Any tips will be

welcomed. thanks all for the support.