Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 I have listened to your outcry for years, how I can empathize with you all. I have had cmt for 57 years and was lucky it appeared dormant for at least 40 yrs. I do not ever remember losing my entire feelings in my feet or lower legs but I must have been lucky. Now I live to feel the pain and loss of sensation in my hands. I was a bio chemist by education; and then wrote welfare reform for the state in which I live. But now it is hell. My hands feel as if frozen in ice or burn in fire. I take 2700 mg of neurotin daily, but I am fighting \ a losing battle. I also was diagnosed with fibromyalga... so double whammy. Each day I am thankful to be able to take one step. Every morning I think I can feel my hands, when I get depressed I go online and listen to how very lucky I am. To each who have cried out, I have heard and felt your pain; but each day we go on because we are so very strong at heart and brave of mind. Thank you for giving me strength. I wish you a peaceful evening and a happy tomorrow. I am off to vacation and will tune in once again mid May. Shane Quote Link to comment Share on other sites More sharing options...
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