beautiful words

[Guest guest]

Dear Heidi,

Those were such beautiful words you sent earlier and

they truly warmed my day. You seem to have a

beautiful, happy and content soul.

I am fairly new to this group; but your words

inspired me to write. I am 27 and am employed as a

design consultant. In design (home, office,landscape,

whatever) we listen much also! I love reading books,

they are treasures to me; I am raising my sister's

child also. (My sister passed away last year at age

34 of cancer). My neice is only 6 now and I listen

very much there too.

It is so nice to connect with a positive-outlook CMT

comunity after last year's tradegy. My therapist

suggested this group, so I will try it out. My CMT

fatigue is a big issue - it is almost like at about

3 pm, I run completely down. So my neice and I have

a 'shared quiet' time, but together. First some

orange juice, then cuddles and sort of nap/shut

our eyes. But I do feel better after. You would

think after 17 years of CMT I would have this issue

more under control, but I gave up control, for

simplicity of 'the moment'.

Emiley

[Guest guest]

Hello Emiley,

I like your name how pretty. Reading opens up such a

world of many gifts. You have much courage and a loving

nature about you to raise your sister's child. I am sure

this is challenging at times for you. I can not say I

understand what you are going through losing your sister

from cancer for every one deals with death in their own

way. Yet, I can say I understand my own personal

experience from losing my mom at age 46 from breast

ancer. I miss her and she has been gone 6 years this last

February. Yet, I see her spirit in my own children she

lives on and she will always be remembered no matter

where we are in our life's travel. Know I am here to

listen, yet I am unable to change things in anyone's life. That is for the

individual to do.

Children are world's teachers if only more of us

could stop and seriously listen contently to what the

lesson truly is.

I can understand the fatigue factor, and if I find

the need to nap I do.

There is some type of research also done on all people

seem to unwind and become tired around 2pm I read it

some where but I do not recall where exactly. If I find

it I will let you know. I have also read that is good

for a parent/guardian to take a nap since it revitalizes

their bodies for the next round so to speak.

I do not believe that we can truly control the fatigue factor in cmt

however we can follow better diets and get some exercise

and learn to listen to our bodies. For I too am learning

to listen to my body and have taken naps when I need to

and walked when I wanted and ate good meals and this

seems to be very helpful in my positive emotional state

along with the physical state of being. This is just my

own personal experience and trial and error.

Always remember that CMT is individual and to focus

on your own needs as much as possible.

Take good care of yourself,

Be happy above all be yourself

Heidi