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Hello

I am a 40 year old Norvegian male with CMT, type a1. I have an 11 year old

daughter that also have CMT. We where both diagnosed 6 years ago by blood and

cromosome test. I am working full time as an architect and my daughter is

going to an ordinary school. I also have two other daughters without CMT.

I cope daily with symptoms and pain in my feet (operated at 18, stiffended

with metal), fatigue and cramps in my legs. BUT, I get through with lots of

help from my wife and my own stubberness, a strong will and love for life.

I found through a chatroom and got address from " Angel nearby Seattle " .

By signing up for , I hope to get new information about CMT and learn

how other people live with it. I like your positive approach, because that

is how I try to live (no always that easy...) -think positive, -love my life

and take on problems with a smile.

Sincerely

Jørgen

(I hope you will excuse my english spelling....;o)

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