Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Thank you for you input Jolene. You are right about the doctor's I saw in the past. My current internist admits that he " does not know anything about scoliosis. " He referred me to an orthopedic surgeon last summer who sent me for physical therapy. I don't know why he wasted my time. PT doesn't help...at least it does not stop the progression. We need to be in the care of a Scoliosis Surgeon who is an active member of the Scoliosis Research Society. The names can be looked up on the internet under srs.org. You can sort them by state. Regarding the bed: We are looking at the SAT bed. I found it online and am impressed with its features plus the 20-year warrantee. Does anyone have experience with this bed? It also has a 90-day trial period. Just learned that my surgeries are scheduled for: Anterior approach October 3rd, and Posterior approach October 10th. Did anyone have two surgeries? Did anyone use Dr. Behrooz Akbarnia in La Jolla, CA? I do not know the names of the other doctors on the surgical team yet. I will get all the details on August 14. I'm trying to keep a good attitude about all this. I have a friend who wants to hypnotize me before surgery. Says it will help me deal with the pain and keep my head in the right place. Any comments? The Sammon Preston Rolyans web site is a good one. Thanks for the referral. I don't know yet what I need to buy in terms of medical equipment. Patti > > Dear Pattijohn, > I'm only (only?) 59 but have had recent surgery, but mine is not typical with > typical results. > > With your history of physical strength I think age is not a factor you need > to worry about now. In my opinion you'd be wise to have surgery while in > such good shape. Your lungs are stronger now than they will be. > > Unfortunately the ortho doctors you saw growing up gave you incomplete info > about scoliosis and what could be done about it. My curves are also around > 100/55. I would strongly recommend you ask at this site about other specialists > and your medical coverage. > > I have an adjustable bed too. I've had it for about two years. I went to > each mattress store and tried them out. The feel was extremely different. They > are expensive, sorry I don't remember what. I bought a latex mattress that > is no longer made from Sleep Train. There are some that sell only online that > will send you a video but won't mention the price until the 3rd or 4th > contact. (the the price goes down miraculously over time.Sorry, I can't think of the > name) And the Tempuric is the most expensive of all. $5000 for a queen I > think. Don't quote me on prices. I don't remember much. > > You've read some good books. Racine is a wealth of information. The > SammonsPrestonRolyan.com catalog 18003235547 was a good source of medical > equipment for me. > > Good luck. > Jolene, 59, surgery 1960, 2006 A/P, osteoporosis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Dear Pattijohn, I had hypnoses, but it was way too distant from the actual surgery (2 years) so I don't know if it was effective. I should have in retrospect had another session once I finally got my date. Seems like I had a lot of other things to occupy that 8 weeks to get in. Racine has a list of things to purchase/have ready at home prior to surgery on her site. ? I looked for things used before I bought new at thrifts, in the newspaper, and garage sales. I did buy a bar to assist me in getting out of bed in the Sammons catalog that sure came in handy. I got an adjustable chair in the newspaper ads for $300 that was almost brand new. Jolene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi Patti... Here you go: http://www.scoliosislinks.com/PreparingforSurgery.htm Regards, > > Also, Racine, if you are out there, could you let me know your list of things to purchase/have ready prior to surgery so that I can have my home set up. I don't want my caregiver (mainly my husband) to have more to deal with than necessary. > > Thanks again for your comments. > > Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 If you haven't exercised before now, join the YMCA and start exercising to improve cardiovascular health and also to strengthen your legs. If you're already exercising, focus on leg strength. There is still a lot of time between now and October to improve on leg strength. The reason for the leg strength is that you'll need your legs to lift yourself up from a chair or from the toilet. The very first thing that they taught me in the hospital was how to get up from a chair without using your arms to push up. Instead, one wiggles to the front of the chair and then stands up totally with the legs and not pushing off the arms. Good luck with the surgery. You'll do fine and will be greatly pleased with the results. Don't think about the surgery, focus on the results. Quote Link to comment Share on other sites More sharing options...
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