Re: New here, had surgery at 11, grown up now and research finally paying off.......

[Guest guest]

Hi and welcome, Alison, I hope you share more with us! I remember reading that

the percent of women with scoliosis who had problems getting their hormones

balanced was much higher than the general population. Interesting. Bea

Alison <planet2334@...> wrote: Hi, my name's

Alison, I live in New York State, I was the first in my

school to be detected with scoliosis when the screenings at the

schools started by state law back in 1978. The nurses gathered 'round

and whispered to each other, I learned later that I had a 78 degree

curve at 11 years old, my parents were told without surgery I would

be in a wheelchair by the age of 14, and research I did in my 20's

showed that only 10 years earlier people with my level of severity to

my curve had not been living much past the age of 35.

I'm 40 now, I have a great 19 year old daughter who fortunately did

not have scoliosis to my degree of severity; and tho I was grateful

to get past that 35 age, for the last 13-14 years I have been in

worsening pain all over, first in joints and then in all muscles,

some difficulty breathing, 10-15 specialists (including my surgeon in

NYU Medical Center, 20 years after the surgery) saying they didn't

know what was wrong; also some hormone level problems and the results

of that, including weight loss being impossible.

I've been researching everything I can for the last 7 years in

extremely complex scientific research formats and in two languages. I

come from a Yale family, my aunt runs a biogenetics lab and is on the

Genome Board (and is a REALLY super-nice person) and I also have a

good new (to me) older doctor who moved in to the area who is also a

clergywoman in my religion (Eckankar) so I've had some people on my

side, but I was still asking questions that were hearing the words " I

don't know " from even them.

It's been a looooooooong process of learning one biochemical process

and it's affected by this other one and the path has been a really

long and winding one.

Last week I found that collagen supplementation in the liquid

(complete) form had been the answer.

Scoliosis has collagen problems associated with it, and once I and my

daughter (who has very mild scoliosis, found after 14yo) started

taking spoonfuls of Amino-Sculpt, soooo many problems are

disappearing I'm really in shock. The all-over, every-time I move

pain is gone most all the way, that muscle pain is diminished a LOT,

the joint pain's still there a little bit but heck I've only been

taking it for a week and the pain's been there for years.

It also suppresses hormones progesterone (which was directly

responsible for weight gain when my doctor put me on it for low

levels but found I have a high reactivity of it, the hard way) and

also estradiol. My pain level during my period is MUCH less now (it

was horrible all of my teenage years, including when it started when

I still had my cast on after surgery, my parents felt so bad for me).

Weight loss should be possible now, I'm seeing some progress but have

also been sick so I won't know all the results for a while yet.

There is also another HUGE thing that did help me in the past, which

the collagen is now completely fixing, which is cranio-sacral

adjustments (info: www.upledger.com ) I had a family friend turn out

to be a practitioner of a VERY light touch on the head to align the

bones of the skull very slightly so they have a profound impact on

the rest of the whole cranio-sacral system, a fluid that surrounds

the brain and spinal cord, and would fix my hip pain and its limited

mobility, and also help my double vision (I'd had surgery for that

when I was 5yo) as well as straighten teeth, it's all physically

connected, there's no magic to it, completely physically scientific.

The problem was the adjustments wouldn't last for more than a few

weeks.

Now, with the collagen, the skull bone plates in my head went from

needing adjustment (spaces in some places, overlapped ridges in other

places, you can feel it just by touching the head) to totally

adjusted, even my teeth straightened after I took the first dose

(dentists tried to offer my daughter braces for TMJ cuz her teeth

weren't meeting, I touched her on the head to adjust her and they

straightened, the dentist had tried to tell me that " chiropractic "

adjustments couldn't work, I corrected him that I had said " cranio-

sacral " and explained it to him, looked him straight in the eye and

kept talking like a scientist like I've had to do with a few doctors

who were emotionally-based... IMHO any dentist should be required to

study it). Also my daughter's knee problem's gone after years, she's

a happy person able to go up and down hills without pain. (I wonder

why the orthopedist group wouldn't start with collagen and not with

physical therapy, which she declined) Mainly she's happy to the point

of tears that her mom's going to finally be OK.

Maybe this will help someone out there to know. After years of work,

I figured I'd better put it out there, in case someone else is

struggling. Probably the last piece of the puzzle will be to connect

the cause of scoliosis (proven to be a parasite in many other

animals) to something that degrades collagen. We may be seeing the

problem more and more since sugar is a substance that does

deteriorate collagen. I thought I hated Jello from being force-fed it

in the hospital, but I can make it my best friend if it'll help keep

my collagen in line. It's probably the only way sugar should be

ingested for anyone with scoliosis.

So, some of us scientifically stubborn Aquarian kids grow up from

being in traction at NYU Medical Center to teaching their own doctors

what they hadn't known after years of work Mostly I'm glad I'm

finally out of pain, and feel rather unemployed now I'll need to

find a new hobby besides researching day & night

Maybe stamp collecting.....

-Alison