Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Maybe we start referring to HMSN? When I was first diagnosed, , the orthos refered to PMA (pereonal muscular atropy), then somewhere in my teens/20's it was CMT, maybe this HMSN explains more of what we have since more is known than 30-40 years ago. ~ G Mommy2Adam@... wrote: > > I wonder how we get the tooth out of the name? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 In a message dated 5/24/2002 7:15:17 PM Pacific Daylight Time, liliwigg@... writes: > HMSN explains more of what we have > since more is known than 30-40 years ago. ~ G > > Except for HMSN sounds like the HSN ( Home shopping network) Or MSN that news channel. People will think we have a television disorder. I like this name MNAMDWD. My Nerves and muscles don't work disorder. (( )) > Quote Link to comment Share on other sites More sharing options...
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