Re:Scoliosis AND Fibromyalgia

December 17, 2007

Debbie,

I have fibromyalgia and scoliosis. I was dx 10 years ago but once I started

reading about it, I realized I have had it for at least 30 years. Mine is

moderate, but I really take care of myself to not provoke it. I was dxd by a

rheumatologist. I really think mine started after I had mono.

Jolene

**************************************See AOL's top rated recipes

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December 17, 2007

Debbie,

I have flares of fibromyalgia. It was diagnosed 10+

years ago. (Sometimes it shows up after a trauma to

the body or psyche.) I had deep muscle pain in all of

the tender point sites used for diagnosing

fibromyalgia. The worst pain was in my ischael

tuberosities (butt bones)making sitting excruciating

even on a gel cushion. I would also experience

fibro-fog - where your mind is muddled & you just

can't get a grip on your thoughts. Otherwise, I would

ache all over like when you have the flu. Thankfully,

the flares have been occuring less frequently for the

past couple of years.

I've got at least a dozen friends who have

fibromyalgia, but none of them has scoliosis. I don't

know anyone personally, but a few ppl who post here

have fibromyalgia. I haven't read of any correlation

between the two, but if I do, I will let you know.

In the past, elavil was prescribed to help with the

symptoms. It didn't help me much that I could tell,

only gave me dry mouth.I also took Neurontin, which

seemed to help more. Recently Lyrica has been approved

for the symptoms. Beverlee, who posts here, was

telling me about it. I know of a local woman who just

started taking it last week, so I'll keep you abreast

of her experience & whether it helps her or not.

~Moonbeam

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

December 17, 2007

Thanks so much for your input. I've been trying to put a finger on this pain and

THAT pain for so long. I'm confused when they overlap.

Debbie

L Howell <moonbeamblessings@...> wrote:

Debbie,

I have flares of fibromyalgia. It was diagnosed 10+

years ago. (Sometimes it shows up after a trauma to

the body or psyche.) I had deep muscle pain in all of

the tender point sites used for diagnosing

fibromyalgia. The worst pain was in my ischael

tuberosities (butt bones)making sitting excruciating

even on a gel cushion. I would also experience

fibro-fog - where your mind is muddled & you just

can't get a grip on your thoughts. Otherwise, I would

ache all over like when you have the flu. Thankfully,

the flares have been occuring less frequently for the

past couple of years.

I've got at least a dozen friends who have

fibromyalgia, but none of them has scoliosis. I don't

know anyone personally, but a few ppl who post here

have fibromyalgia. I haven't read of any correlation

between the two, but if I do, I will let you know.

In the past, elavil was prescribed to help with the

symptoms. It didn't help me much that I could tell,

only gave me dry mouth.I also took Neurontin, which

seemed to help more. Recently Lyrica has been approved

for the symptoms. Beverlee, who posts here, was

telling me about it. I know of a local woman who just

started taking it last week, so I'll keep you abreast

of her experience & whether it helps her or not.

~Moonbeam

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

December 17, 2007

And thanks for your help too. I'm going to my GP this week: he's a holistic doc

but not afraid to use tradional methods. He was the one to finally tell me this

spring that I needed surgery. Then I had to start thinking about surgery,

because I really do believe he would have suggested something else if he could

have. I had been through all the alternative therapies for my lower back

problems. Now, I see this pattern of flare-ups that seem to affect my whole body

and of course, since my left hip and leg are in crisis right now, it is terrible

there.But I hurt all over. Today it got better. But I did take that Elavil last

night and extra pain meds. Ah, I ramble.

Thanks again.

Debbie

Buttonjo@... wrote:

Debbie,

I have fibromyalgia and scoliosis. I was dx 10 years ago but once I started

reading about it, I realized I have had it for at least 30 years. Mine is

moderate, but I really take care of myself to not provoke it. I was dxd by a

rheumatologist. I really think mine started after I had mono.

Jolene

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

January 7, 2008

I've been lurking on a fibro board plus talking with other who have fibro.

Most usually have a secondary condition with their fibro, so it could be a

complication of the original condition that some people experience. The

other thing that may be a factor is being hereditary. I know that my mother

has it, as well as myself, and she suspects that her father may have had it

but not recognized in his days. I am keeping an eye and ear out for other

members of the family, to see if this is theoretically the case.

Llweyn

_____

From: Scoliosis Treatment

[mailto:Scoliosis Treatment ] On Behalf Of L Howell

Sent: December 17, 2007 12:47 PM

Scoliosis Treatment

Subject: Re:Scoliosis AND Fibromyalgia

Debbie,

I have flares of fibromyalgia. It was diagnosed 10+

years ago. (Sometimes it shows up after a trauma to

the body or psyche.) I had deep muscle pain in all of

the tender point sites used for diagnosing

fibromyalgia. The worst pain was in my ischael

tuberosities (butt bones)making sitting excruciating

even on a gel cushion. I would also experience

fibro-fog - where your mind is muddled & you just

can't get a grip on your thoughts. Otherwise, I would

ache all over like when you have the flu. Thankfully,

the flares have been occuring less frequently for the

past couple of years.

I've got at least a dozen friends who have

fibromyalgia, but none of them has scoliosis. I don't

know anyone personally, but a few ppl who post here

have fibromyalgia. I haven't read of any correlation

between the two, but if I do, I will let you know.

In the past, elavil was prescribed to help with the

symptoms. It didn't help me much that I could tell,

only gave me dry mouth.I also took Neurontin, which

seemed to help more. Recently Lyrica has been approved

for the symptoms. Beverlee, who posts here, was

telling me about it. I know of a local woman who just

started taking it last week, so I'll keep you abreast

of her experience & whether it helps her or not.

~Moonbeam

__________________________________________________________

Never miss a thing. Make your home page.

http://www.. <http://www./r/hs> com/r/hs

January 7, 2008

I had my first scoliosis surgery in 1976 at age 22. My second surgery

was Oct. 2005. My hip muscles remained sore long after I thought they

should after surgery, then I started having pain in my forearms,

hands,knees and feet. Didn't think it was arthritis but to be sure, I

visited a rheumatologist who diagnosed me with fibromyalgia. Took

Lyrica for a while which seemed to help some but made me sleep alot.

Switched to gabapentin about 2 months ago--now I feel like I'm not

taking anything at all. Have had 2 bad flare-ups in the past 2

months. Going to see my primary care doc tomorrow. Thinking about

going back to rheumatologist for trigger point injections. Has anyone

tried them? Also, do any of you think that the trauma to my body

after my 2nd surgery triggered the fibromyalgia? I am so tired of

hurting and having no energy. I never feel like going to work but I

have bills to pay, so i push myself to the limit to work a 12-hour

shift as a nurse. I did go part-time in March or April 2007.

I was a member of this group a while back--LLweyn, I remember your

wedding and the great pics you sent us--glad to be back and hope that

we can all help each other.

Janet in SC

>

> I've been lurking on a fibro board plus talking with other who have

fibro.

> Most usually have a secondary condition with their fibro, so it

could be a

> complication of the original condition that some people experience.

The

> other thing that may be a factor is being hereditary. I know that

my mother

> has it, as well as myself, and she suspects that her father may

have had it

> but not recognized in his days. I am keeping an eye and ear out for

other

> members of the family, to see if this is theoretically the case.

>

> Llweyn

>

> _____

>

> From: Scoliosis Treatment

> [mailto:Scoliosis Treatment ] On Behalf Of L Howell

> Sent: December 17, 2007 12:47 PM

> Scoliosis Treatment

> Subject: Re:Scoliosis AND Fibromyalgia

>

> Debbie,

> I have flares of fibromyalgia. It was diagnosed 10+

> years ago. (Sometimes it shows up after a trauma to

> the body or psyche.) I had deep muscle pain in all of

> the tender point sites used for diagnosing

> fibromyalgia. The worst pain was in my ischael

> tuberosities (butt bones)making sitting excruciating

> even on a gel cushion. I would also experience

> fibro-fog - where your mind is muddled & you just

> can't get a grip on your thoughts. Otherwise, I would

> ache all over like when you have the flu. Thankfully,

> the flares have been occuring less frequently for the

> past couple of years.

>

> I've got at least a dozen friends who have

> fibromyalgia, but none of them has scoliosis. I don't

> know anyone personally, but a few ppl who post here

> have fibromyalgia. I haven't read of any correlation

> between the two, but if I do, I will let you know.

>

> In the past, elavil was prescribed to help with the

> symptoms. It didn't help me much that I could tell,

> only gave me dry mouth.I also took Neurontin, which

> seemed to help more. Recently Lyrica has been approved

> for the symptoms. Beverlee, who posts here, was

> telling me about it. I know of a local woman who just

> started taking it last week, so I'll keep you abreast

> of her experience & whether it helps her or not.

> ~Moonbeam

>

> __________________________________________________________

> Never miss a thing. Make your home page.

> http://www.. <http://www./r/hs> com/r/hs

>

January 8, 2008

Hi Janet,

I'm sorry you are having so much trouble. It's always a good thing, I think,

when people get a little inactive in the support groups because it usually means

they are doing better and out there living their lives. I have been there- doing

too good to be on line. But, then again, the folks that are doing well can be

such a great help to others in giving us hope that we may do better in time.

Do you mind if I ask where you had your second surgery? I also live in SC ( and

I'm a nurse, too!) and I was not able to find any place where a dr was

recommended for adult scoliosis surgery. I ended up going to NYC for my initial

surgery at the age of 45, in 1996.

I will be interested in what you find out about the stress of surgery triggering

other illnesses. I went thru a real down spell about 4-5 years ago, where my

blood work indicated a possibility of lupus. I was having pain in my elbows,

feet, legs and hips. I couldn't stand to have the covers touch my feet at night.

And my hip muscles have never stopped being very tender to touch. That was the

problem with my elbows as well- they hurt a little bit, but were extremely

tender. At the time I was already on a high dose of Kadian ( a 24 hour morphine)

with rapid release morphine for breakthru pain. I couldn't help but wonder what

all my pain meds were masking, pain-wise. I was checked by a rheumatologist and

and she ruled out lupus. I often wonder if I might have fibromyalgia. And I

mentally resist another surgery for fear that the stress on my body might

trigger some new problems. At the age of almost 57 I feel safer coasting along

on my pain meds.

Good luck with getting answers about your condition and what will help you the

most.. Bea

cu76rn <cu76rn@...> wrote: I had my first

scoliosis surgery in 1976 at age 22. My second surgery