Re: Hope every1 is ok

[Guest guest]

Hi, Vik,

I'm sorry to hear about your hip. 

 

Yes, I have had lots of problems with my hips, especially the left one.  I

limped for 20 years, and the limp and the hip pain went away after scoli surgery

in 2002.  My surgeon told me that people with scoli don't have one leg longer

than the other:  he measured mine twice from the hip to heel, both legs were the

same length.  But, the scoli curve(s) will give the illusion that they are

different lengths.  Have your scoli MD measure your legs, not the GP, as he may

not know how to meassure properly.    But, you say you have sensory loss in your

hip as opposed to having pain.

 

And, you say you have a bunion or two and scoliosis.  So do I.  I had carpal

tunnel in both wrists for which I had a splint, but no operation for that, as

the splints worked and the pain in the wrists goes away if I keep them warm and

wear the splint,when I get pain, had a heel spur removed in 1982, have hand bone

deformities like bent fingers, water cysts and a tremor of the hands and head,

which aren't always noticable in the head.

 

Well, I think there are several considerations.  Xrays of your hip are a good

idea.  If nothing shows up on them, ask for an ortho to look at your hip.  He

may order an MRI to rule out any structural stuff going on.  And, if still

nothing shows up, I'd recommend getting nerve conduction tests and an EMG to

rule out Charcot-Marie-Tooth Disease.  Bone deformities of all kinds and sensory

loss, especially in the feet and hands, are common with CMT.  In 28% of CMT

patients, scoli is present. 

 

Please, complain, complain, complain or the MDs won't do what they need to do

for you.

 

I have CMT had have sensory loss from my feet to my hips.  That means, I have

trouble sensing heat and cold, worse in the feet and gradually getting better

as something cold goes up the leg:  in my case, the neurologist used a cold

reflex hammer to test for that.

 

Yesterday, I had to have a cortisone shot in the hip joint due to pain for

stress fractures and a torn tendon that I've had since Sept. 2007!!!  Today, I

feel so much better.  The fractures are half healed after spending 80% of my

time in a wheelchair or just sitting, but the pain kept me from walking better

than I could have.

 

I've written a lot to think about, Vic, I know that.  But, start with the xrays,

and progress to the MRI and nerve conduction tests and EMT, and see what shows

up.

 

(My bunions aren't bad enough, yet, for surgery.  I can still wear

closed-heel, normal-looking shoes, so I'm in a holding pattern for that.)

 

Take care.

 

Fyfer

From: vik <vicciwalford@...>

Subject: Hope every1 is ok

Scoliosis Treatment

Date: Monday, November 10, 2008, 10:00 PM

Hello again,hope every1 is ok(apart from the obvious!)

My doc has finally given me tablets that work and its so much better to

not be in complete agony day in day out.

My left hip is somewhat of a mystery at the moment-Obviously the

majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

the other,I was wondering if any1 has encountered any problems with

their hips?I can hardly feel my left hip,it seems to have half

dissapeared and I wanted the MRI people to check it out in the scan but

there was nothing to say to do it,wondering if I should try and

persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

me any pain but I do have very slightly less sensation on the thigh

area and my leg has given way few times,so it would be great to hear

any experiences/ complications.

The other thing I wanted to ask is if any1 has suffered from bunions,as

Ive just read on a medical site that bunions are common in scoliosis

sufferers,Ive got quite a painful 1 on my longer leg side(didnt

realsise u r advised to have it operated on-the way im going,i may as

well buy a lifetime hospital pass!!!)Just be great to hear anything

about either of these.Kindest regards to all

Vicci x

[Guest guest]

I too have bunions. I have a different question and was wondering if anyone

else ever had this problem. I had 3 surgeries for the scoliosis. The

original posterior only from T4-L4, a partial rod removal because of pain, then

a

total anterior/posterior revision from T1-L4. I've been doing fairly well

since the revision surgery, have had my share of aches and pains. Muscles in

the upper back and neck always very tight. Go to PT sometimes and he is able

to alleviate a lot of the tension. This past summer I started to get pain in

my right shoulder blade. It was getting more and more sore but I tried to

ignore it. By the end of September if I moved a certain way the pain would be

so severe that it would take my breath away and then it would be very sore

all day. It feels almost like when I move the muscle gets stuck on the bone.

Anyway went back to PT for the last 6 weeks. Not doing anything. When I

wake up in the am no pain at all. But once I start to move around it starts

and then if like I say I move a certain way then I'm done. It will hurt all

day. It can be as simple as shrugging my shoulders. I am going back to Dr.

Boachie next week. My PT person thinks it is something mechanical in nature.

Could be my rib is pinching the muscle when I move a certain way or scar

tissue has formed and it is catching or maybe " God forbid " one of the hooks

could have dislodged. It's been 8 years since my revision surgery. I only had

a check up in March and was so happy when Dr. Boachie said that I didn't have

to come back for 2 years since everything looked good. Now I have this. I

am a bit nervous. I had to have eye surgery done last year. I am so done

with surgeries that just the thought of it makes me sick.

I am sorry if I am rambling but has anyone else had something similar? And

if so, was it serious or did it just go away.

Thanks to all of you.

Kathy

**************AOL Search: Your one stop for directions, recipes and all other

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[Guest guest]

Thankyou for ur reply hun,god u av been in the wars a bit! I do occasionally get

pain in my hip and it lasts for up to a few weeks.i have to wear an orthotic in

my shoe to level my hips out as the specialist found that my right leg was

nearly half an inch shorter & when I am able to go out & about it makes me feel

loads taller(im already 5`8)My curve is not noticable from the outside(yet) the

docs failed to spot the scoliosis a few yrs ago because as the curve had rotated

the vertabrae,it gave a false spinal line so to them it looked normal and

straight,obviously thats why it took them 17years to realise!!I am due at

hospital friday so hope to be asking a lot of questions.Im also due to see the

nurse thursday due to high blood pressure because of the pain & painkillers,so

hopefully find out about my foot coz excuse my language-it bloody hurts now!

Thanks again for ur advice hun.xx

 

________________________________

From: Lana Jarvis <fyfer1949@...>

Scoliosis Treatment

Sent: Tuesday, November 11, 2008 6:04:23 PM

Subject: Re: Hope every1 is ok

Hi, Vik,

I'm sorry to hear about your hip. 

 

Yes, I have had lots of problems with my hips, especially the left one.  I

limped for 20 years, and the limp and the hip pain went away after scoli surgery

in 2002.  My surgeon told me that people with scoli don't have one leg longer

than the other:  he measured mine twice from the hip to heel, both legs were the

same length.  But, the scoli curve(s) will give the illusion that they are

different lengths.  Have your scoli MD measure your legs, not the GP, as he may

not know how to meassure properly.    But, you say you have sensory loss in your

hip as opposed to having pain.

 

And, you say you have a bunion or two and scoliosis.  So do I.  I had carpal

tunnel in both wrists for which I had a splint, but no operation for that, as

the splints worked and the pain in the wrists goes away if I keep them warm and

wear the splint,when I get pain, had a heel spur removed in 1982, have hand bone

deformities like bent fingers, water cysts and a tremor of the hands and head,

which aren't always noticable in the head.

 

Well, I think there are several considerations.  Xrays of your hip are a good

idea.  If nothing shows up on them, ask for an ortho to look at your hip.  He

may order an MRI to rule out any structural stuff going on.  And, if still

nothing shows up, I'd recommend getting nerve conduction tests and an EMG to

rule out Charcot-Marie- Tooth Disease.  Bone deformities of all kinds and

sensory loss, especially in the feet and hands, are common with CMT.  In 28% of

CMT patients, scoli is present. 

 

Please, complain, complain, complain or the MDs won't do what they need to do

for you.

 

I have CMT had have sensory loss from my feet to my hips.  That means, I have

trouble sensing heat and cold, worse in the feet and gradually getting better

as something cold goes up the leg:  in my case, the neurologist used a cold

reflex hammer to test for that.

 

Yesterday, I had to have a cortisone shot in the hip joint due to pain for

stress fractures and a torn tendon that I've had since Sept. 2007!!!  Today, I

feel so much better.  The fractures are half healed after spending 80% of my

time in a wheelchair or just sitting, but the pain kept me from walking better

than I could have.

 

I've written a lot to think about, Vic, I know that.  But, start with the xrays,

and progress to the MRI and nerve conduction tests and EMT, and see what shows

up.

 

(My bunions aren't bad enough, yet, for surgery.  I can still wear closed-heel, 

normal-looking  shoes, so I'm in a holding pattern for that.)

 

Take care.

 

Fyfer

From: vik <vicciwalford>

Subject: Hope every1 is ok

Scoliosis Treatment

Date: Monday, November 10, 2008, 10:00 PM

Hello again,hope every1 is ok(apart from the obvious!)

My doc has finally given me tablets that work and its so much better to

not be in complete agony day in day out.

My left hip is somewhat of a mystery at the moment-Obviously the

majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

the other,I was wondering if any1 has encountered any problems with

their hips?I can hardly feel my left hip,it seems to have half

dissapeared and I wanted the MRI people to check it out in the scan but

there was nothing to say to do it,wondering if I should try and

persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

me any pain but I do have very slightly less sensation on the thigh

area and my leg has given way few times,so it would be great to hear

any experiences/ complications.

The other thing I wanted to ask is if any1 has suffered from bunions,as

Ive just read on a medical site that bunions are common in scoliosis

sufferers,Ive got quite a painful 1 on my longer leg side(didnt

realsise u r advised to have it operated on-the way im going,i may as

well buy a lifetime hospital pass!!!)Just be great to hear anything

about either of these.Kindest regards to all

Vicci x

[Guest guest]

Hi Vik,

Sorry to hear about your problems. It seems that once you have

scoliosis, you just continually have problems your whole life. I

thought mine was taken care of after 2 surgeries but now it's back in

the L4-S1 area and I am leaning again. I too have a limp that has

developed in the past year (after having sciatica). It's kind of

embarrasing but the people who know what's wrong, doesn't think a

thing about it. The hard part for me is walking through stores, etc. I

hope I don't end up in a wheelchair but being only 29, I'm sure that

in my old age, it'll happen.

Speaking of bunions...funny you should mention that. I too have

bunions on both feet. I've had them my whole life and have always had

to get wide width shoes or a size bigger than usual in normal width. I

have never been able to wear heels as my ankles are too weak and I've

always sprained them frequently. They just kind of " give out " on me

for no reason. I never even knew that my foot things were bunions

until a couple of years ago. No one has ever said anything about it. I

thought it was just normal. I always just thought it was my bone and

how my feet grew. I never realized that it actually had a name and

that they were bunions. So, it would be interesting to hear or do a

study about how many people have problems like this with scoliosis.

Good luck at the doc!

>

> Hello again,hope every1 is ok(apart from the obvious!)

> My doc has finally given me tablets that work and its so much better to

> not be in complete agony day in day out.

> My left hip is somewhat of a mystery at the moment-Obviously the

> majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

> the other,I was wondering if any1 has encountered any problems with

> their hips?I can hardly feel my left hip,it seems to have half

> dissapeared and I wanted the MRI people to check it out in the scan but

> there was nothing to say to do it,wondering if I should try and

> persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

> me any pain but I do have very slightly less sensation on the thigh

> area and my leg has given way few times,so it would be great to hear

> any experiences/complications.

> The other thing I wanted to ask is if any1 has suffered from bunions,as

> Ive just read on a medical site that bunions are common in scoliosis

> sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> realsise u r advised to have it operated on-the way im going,i may as

> well buy a lifetime hospital pass!!!)Just be great to hear anything

> about either of these.Kindest regards to all

> Vicci x

>

[Guest guest]

Dear Vic,

A lot of pain over time like yours causes high blood pressure!  Mine went away

as soon as I had the surgery.  Today, I saw the neurologist Dr. Tandon and he

told me I need leg braces.  At the appointment, my bp was 114 over 65.  It used

to be 145 over 120!

 

Well, keep this in mind, too, that a lot pain over time can cause high blood

pressure.

 

Fyfer

From: vik <vicciwalford>

Subject: Hope every1 is ok

Scoliosis Treatment

Date: Monday, November 10, 2008, 10:00 PM

Hello again,hope every1 is ok(apart from the obvious!)

My doc has finally given me tablets that work and its so much better to

not be in complete agony day in day out.

My left hip is somewhat of a mystery at the moment-Obviously the

majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

the other,I was wondering if any1 has encountered any problems with

their hips?I can hardly feel my left hip,it seems to have half

dissapeared and I wanted the MRI people to check it out in the scan but

there was nothing to say to do it,wondering if I should try and

persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

me any pain but I do have very slightly less sensation on the thigh

area and my leg has given way few times,so it would be great to hear

any experiences/ complications.

The other thing I wanted to ask is if any1 has suffered from bunions,as

Ive just read on a medical site that bunions are common in scoliosis

sufferers,Ive got quite a painful 1 on my longer leg side(didnt

realsise u r advised to have it operated on-the way im going,i may as

well buy a lifetime hospital pass!!!)Just be great to hear anything

about either of these.Kindest regards to all

Vicci x

[Guest guest]

I have a lot of problems with my hips, mostly the left one. Right now

it is so sensitive it hurts to wear even baggy sweats. The pain in my

hip is as bad as my back pain. Sitting in hot water helps some.

www.ginasmakingsandmusings.blogspot.com

On Nov 10, 2008, at 9:00 PM, " vik " <vicciwalford@...> wrote:

> Hello again,hope every1 is ok(apart from the obvious!)

> My doc has finally given me tablets that work and its so much better

> to

> not be in complete agony day in day out.

> My left hip is somewhat of a mystery at the moment-Obviously the

> majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

> the other,I was wondering if any1 has encountered any problems with

> their hips?I can hardly feel my left hip,it seems to have half

> dissapeared and I wanted the MRI people to check it out in the scan

> but

> there was nothing to say to do it,wondering if I should try and

> persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

> me any pain but I do have very slightly less sensation on the thigh

> area and my leg has given way few times,so it would be great to hear

> any experiences/complications.

> The other thing I wanted to ask is if any1 has suffered from

> bunions,as

> Ive just read on a medical site that bunions are common in scoliosis

> sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> realsise u r advised to have it operated on-the way im going,i may as

> well buy a lifetime hospital pass!!!)Just be great to hear anything

> about either of these.Kindest regards to all

> Vicci x

>

>

[Guest guest]

There are 120 different operations for bunions! depending on the curve

degree(wen avent we heard that before lol) luckily mine are only mild at the

moment,but if you dont get them sorted,they can become worse with time(like

everything else we go through)Ive never worn high or pointed shoes(im a bit of a

tomboy) so I was a bit suprised myself!its been quite good to hear of other ppl

having the same as most docs wouldnt even think about bunions being a problem

with us scoliosis sufferers.i to walk with a limp and I am thinking of getting

myself some crutches to take a bit of pressure off when Im out and

about(although carrying even the lightest of shopping will be made a bit more

difficult!)it might help.Ive got my pilates set-it made me laugh seeing the

video of two young fit slender girls putting their toes behind their heads-Im

thinking thats probably not goin to happen for me but it was worth a giggle.I

found a couple of lower back stretches that I can

do,although I ache a lot after,I try and think positive and remember its

helping my muscles strengthen up.

________________________________

From: <ladams9200@...>

Scoliosis Treatment

Sent: Tuesday, November 11, 2008 10:37:54 PM

Subject: Re: Hope every1 is ok

Hi Vik,

Sorry to hear about your problems. It seems that once you have

scoliosis, you just continually have problems your whole life. I

thought mine was taken care of after 2 surgeries but now it's back in

the L4-S1 area and I am leaning again.. I too have a limp that has

developed in the past year (after having sciatica). It's kind of

embarrasing but the people who know what's wrong, doesn't think a

thing about it. The hard part for me is walking through stores, etc. I

hope I don't end up in a wheelchair but being only 29, I'm sure that

in my old age, it'll happen.

Speaking of bunions...funny you should mention that. I too have

bunions on both feet. I've had them my whole life and have always had

to get wide width shoes or a size bigger than usual in normal width. I

have never been able to wear heels as my ankles are too weak and I've

always sprained them frequently. They just kind of " give out " on me

for no reason. I never even knew that my foot things were bunions

until a couple of years ago. No one has ever said anything about it. I

thought it was just normal. I always just thought it was my bone and

how my feet grew. I never realized that it actually had a name and

that they were bunions. So, it would be interesting to hear or do a

study about how many people have problems like this with scoliosis.

Good luck at the doc!

>

> Hello again,hope every1 is ok(apart from the obvious!)

> My doc has finally given me tablets that work and its so much better to

> not be in complete agony day in day out.

> My left hip is somewhat of a mystery at the moment-Obviously the

> majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

> the other,I was wondering if any1 has encountered any problems with

> their hips?I can hardly feel my left hip,it seems to have half

> dissapeared and I wanted the MRI people to check it out in the scan but

> there was nothing to say to do it,wondering if I should try and

> persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

> me any pain but I do have very slightly less sensation on the thigh

> area and my leg has given way few times,so it would be great to hear

> any experiences/ complications.

> The other thing I wanted to ask is if any1 has suffered from bunions,as

> Ive just read on a medical site that bunions are common in scoliosis

> sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> realsise u r advised to have it operated on-the way im going,i may as

> well buy a lifetime hospital pass!!!)Just be great to hear anything

> about either of these.Kindest regards to all

> Vicci x

>

[Guest guest]

Hi, , did you see my note to Vic?

Fyfer

From: <ladams9200@...>

Subject: Re: Hope every1 is ok

Scoliosis Treatment

Date: Tuesday, November 11, 2008, 5:37 PM

Hi Vik,

Sorry to hear about your problems. It seems that once you have

scoliosis, you just continually have problems your whole life. I

thought mine was taken care of after 2 surgeries but now it's back in

the L4-S1 area and I am leaning again. I too have a limp that has

developed in the past year (after having sciatica). It's kind of

embarrasing but the people who know what's wrong, doesn't think a

thing about it. The hard part for me is walking through stores, etc. I

hope I don't end up in a wheelchair but being only 29, I'm sure that

in my old age, it'll happen.

Speaking of bunions...funny you should mention that. I too have

bunions on both feet. I've had them my whole life and have always had

to get wide width shoes or a size bigger than usual in normal width. I

have never been able to wear heels as my ankles are too weak and I've

always sprained them frequently. They just kind of " give out " on me

for no reason. I never even knew that my foot things were bunions

until a couple of years ago. No one has ever said anything about it. I

thought it was just normal. I always just thought it was my bone and

how my feet grew. I never realized that it actually had a name and

that they were bunions. So, it would be interesting to hear or do a

study about how many people have problems like this with scoliosis.

Good luck at the doc!

>

> Hello again,hope every1 is ok(apart from the obvious!)

> My doc has finally given me tablets that work and its so much better to

> not be in complete agony day in day out.

> My left hip is somewhat of a mystery at the moment-Obviously the

> majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

> the other,I was wondering if any1 has encountered any problems with

> their hips?I can hardly feel my left hip,it seems to have half

> dissapeared and I wanted the MRI people to check it out in the scan but

> there was nothing to say to do it,wondering if I should try and

> persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

> me any pain but I do have very slightly less sensation on the thigh

> area and my leg has given way few times,so it would be great to hear

> any experiences/ complications.

> The other thing I wanted to ask is if any1 has suffered from bunions,as

> Ive just read on a medical site that bunions are common in scoliosis

> sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> realsise u r advised to have it operated on-the way im going,i may as

> well buy a lifetime hospital pass!!!)Just be great to hear anything

> about either of these.Kindest regards to all

> Vicci x

>

[Guest guest]

My very best advice is this:  do absolutely NOTHING after your fusion

revisions.  It helps not only with the healing, but it helps with nonfusion

disease.

 

Fyfer

From: Khanley40@... <Khanley40@...>

Subject: Re: Re: Hope every1 is ok

Scoliosis Treatment

Date: Tuesday, November 11, 2008, 8:39 PM

I too have bunions. I have a different question and was wondering if anyone

else ever had this problem. I had 3 surgeries for the scoliosis. The

original posterior only from T4-L4, a partial rod removal because of pain, then

a

total anterior/posterior revision from T1-L4. I've been doing fairly well

since the revision surgery, have had my share of aches and pains. Muscles in

the upper back and neck always very tight. Go to PT sometimes and he is able

to alleviate a lot of the tension. This past summer I started to get pain in

my right shoulder blade. It was getting more and more sore but I tried to

ignore it. By the end of September if I moved a certain way the pain would be

so severe that it would take my breath away and then it would be very sore

all day. It feels almost like when I move the muscle gets stuck on the bone.

Anyway went back to PT for the last 6 weeks. Not doing anything. When I

wake up in the am no pain at all. But once I start to move around it starts

and then if like I say I move a certain way then I'm done. It will hurt all

day. It can be as simple as shrugging my shoulders. I am going back to Dr.

Boachie next week. My PT person thinks it is something mechanical in nature.

Could be my rib is pinching the muscle when I move a certain way or scar

tissue has formed and it is catching or maybe " God forbid " one of the hooks

could have dislodged. It's been 8 years since my revision surgery. I only had

a check up in March and was so happy when Dr. Boachie said that I didn't have

to come back for 2 years since everything looked good. Now I have this. I

am a bit nervous. I had to have eye surgery done last year. I am so done

with surgeries that just the thought of it makes me sick.

I am sorry if I am rambling but has anyone else had something similar? And

if so, was it serious or did it just go away.

Thanks to all of you.

Kathy

************ **AOL Search: Your one stop for directions, recipes and all other

Holiday needs. Search Now.

(http://pr.atwola. com/promoclk/ 100000075x121279 2382x1200798498/ aol?redir=

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-aol-search/ ?ncid=emlcntusse ar00000001)

[Guest guest]

oh dear,  I mean, do absolutely nothing for at least three months after fusion

and revisions.

Fyfer

On Tue, 11/11/08, Khanley40@... <Khanley40@...> wrote:

From: Khanley40@... <Khanley40@...>

Subject: Re: Re: Hope every1 is ok

Scoliosis Treatment

Date: Tuesday, November 11, 2008, 8:39 PM

I too have bunions. I have a different question and was wondering if anyone

else ever had this problem. I had 3 surgeries for the scoliosis. The

original posterior only from T4-L4, a partial rod removal because of pain, then

a

total anterior/posterior revision from T1-L4. I've been doing fairly well

since the revision surgery, have had my share of aches and pains. Muscles in

the upper back and neck always very tight. Go to PT sometimes and he is able

to alleviate a lot of the tension. This past summer I started to get pain in

my right shoulder blade. It was getting more and more sore but I tried to

ignore it. By the end of September if I moved a certain way the pain would be

so severe that it would take my breath away and then it would be very sore

all day. It feels almost like when I move the muscle gets stuck on the bone.

Anyway went back to PT for the last 6 weeks. Not doing anything. When I

wake up in the am no pain at all. But once I start to move around it starts

and then if like I say I move a certain way then I'm done. It will hurt all

day. It can be as simple as shrugging my shoulders. I am going back to Dr.

Boachie next week. My PT person thinks it is something mechanical in nature.

Could be my rib is pinching the muscle when I move a certain way or scar

tissue has formed and it is catching or maybe " God forbid " one of the hooks

could have dislodged. It's been 8 years since my revision surgery. I only had

a check up in March and was so happy when Dr. Boachie said that I didn't have

to come back for 2 years since everything looked good. Now I have this. I

am a bit nervous. I had to have eye surgery done last year. I am so done

with surgeries that just the thought of it makes me sick.

I am sorry if I am rambling but has anyone else had something similar? And

if so, was it serious or did it just go away.

Thanks to all of you.

Kathy

************ **AOL Search: Your one stop for directions, recipes and all other

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[Guest guest]

Hi, , have you considered asking your doctor about a cortisone shot in the

hip joint?  I just had one.  Remember all my notes recently, since May(!) about

my left hip pain?  I had a shot two days ago, and I have no pain and I don't

limp.  My anesthesiologist who gave me the shot saw a lot of arthritis in my

moving xray...

Fyfer

> Hello again,hope every1 is ok(apart from the obvious!)

> My doc has finally given me tablets that work and its so much better

> to

> not be in complete agony day in day out.

> My left hip is somewhat of a mystery at the moment-Obviously the

> majority of scoliosis sufferers have wonky hips wiv 1 leg shorter than

> the other,I was wondering if any1 has encountered any problems with

> their hips?I can hardly feel my left hip,it seems to have half

> dissapeared and I wanted the MRI people to check it out in the scan

> but

> there was nothing to say to do it,wondering if I should try and

> persuade the doc to get it xrayed as it hasnt been yet,It doesnt cause

> me any pain but I do have very slightly less sensation on the thigh

> area and my leg has given way few times,so it would be great to hear

> any experiences/ complications.

> The other thing I wanted to ask is if any1 has suffered from

> bunions,as

> Ive just read on a medical site that bunions are common in scoliosis

> sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> realsise u r advised to have it operated on-the way im going,i may as

> well buy a lifetime hospital pass!!!)Just be great to hear anything

> about either of these.Kindest regards to all

> Vicci x

>

>

[Guest guest]

I haven't tried that. I'm glad you have had such good results from that.

On Nov 12, 2008, at 4:46 PM, Lana Jarvis <fyfer1949@...> wrote:

> Hi, , have you considered asking your doctor about a cortisone

> shot in the hip joint? I just had one. Remember all my notes

> recently, since May(!) about my left hip pain? I had a shot two

> days ago, and I have no pain and I don't limp. My anesthesiologist

> who gave me the shot saw a lot of arthritis in my moving xray...

> Fyfer

>

>

>

> > Hello again,hope every1 is ok(apart from the obvious!)

> > My doc has finally given me tablets that work and its so much better

> > to

> > not be in complete agony day in day out.

> > My left hip is somewhat of a mystery at the moment-Obviously the

> > majority of scoliosis sufferers have wonky hips wiv 1 leg shorter

> than

> > the other,I was wondering if any1 has encountered any problems with

> > their hips?I can hardly feel my left hip,it seems to have half

> > dissapeared and I wanted the MRI people to check it out in the scan

> > but

> > there was nothing to say to do it,wondering if I should try and

> > persuade the doc to get it xrayed as it hasnt been yet,It doesnt

> cause

> > me any pain but I do have very slightly less sensation on the thigh

> > area and my leg has given way few times,so it would be great to hear

> > any experiences/ complications.

> > The other thing I wanted to ask is if any1 has suffered from

> > bunions,as

> > Ive just read on a medical site that bunions are common in scoliosis

> > sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> > realsise u r advised to have it operated on-the way im going,i may

> as

> > well buy a lifetime hospital pass!!!)Just be great to hear anything

> > about either of these.Kindest regards to all

> > Vicci x

> >

> >

>

>

[Guest guest]

I can have severe pain in my right pelvic bone - worse when I was lying down. (I

have not had any surgery and am 60 with a 62 degree curve). The orthopedic

doctor said that maybe my ribs were rubbing on it; which i doubted because it

didn't show that in the x-ray. But he did give me a cortisone shot and it helped

for maybe a month and then back to the same problem. However, it seems to have

gotten better; still painful but not as severe. I've heard of others that say

their ribs are rubbing on the pelvice. I go to Curves to keep up my flexibility

and one day I was pushign myself and I did actually feel some bones rubbing that

made me think that this could be the cause. As far as actual hip pain, it's

usually my sciatic in the opposite hip that flairs up on me.Martha

Knott/What-Knott Farm www.whatknottfarm.com

Scoliosis Treatment@...: makeyellow@...: Wed, 12 Nov

2008 21:22:44 -0600Subject: Re: Hope every1 is ok

I haven't tried that. I'm glad you have had such good results from that.On

Nov 12, 2008, at 4:46 PM, Lana Jarvis <fyfer1949@...> wrote:> Hi, ,

have you considered asking your doctor about a cortisone > shot in the hip

joint? I just had one. Remember all my notes > recently, since May(!) about my

left hip pain? I had a shot two > days ago, and I have no pain and I don't limp.

My anesthesiologist > who gave me the shot saw a lot of arthritis in my moving

xray...> Fyfer>> >> > Hello again,hope every1 is ok(apart from

the obvious!)> > My doc has finally given me tablets that work and its so much

better> > to> > not be in complete agony day in day out.> > My left hip is

somewhat of a mystery at the moment-Obviously the> > majority of scoliosis

sufferers have wonky hips wiv 1 leg shorter > than> > the other,I was wondering

if any1 has encountered any problems with> > their hips?I can hardly feel my

left hip,it seems to have half> > dissapeared and I wanted the MRI people to

check it out in the scan> > but> > there was nothing to say to do it,wondering

if I should try and> > persuade the doc to get it xrayed as it hasnt been yet,It

doesnt > cause> > me any pain but I do have very slightly less sensation on the

thigh> > area and my leg has given way few times,so it would be great to hear> >

any experiences/ complications.> > The other thing I wanted to ask is if any1

has suffered from> > bunions,as> > Ive just read on a medical site that bunions

are common in scoliosis> > sufferers,Ive got quite a painful 1 on my longer leg

side(didnt> > realsise u r advised to have it operated on-the way im going,i may

> as> > well buy a lifetime hospital pass!!!)Just be great to hear anything> >

about either of these.Kindest regards to all> > Vicci x> >> >>> [Non-text

portions of this message have been removed]>> [Non-text portions of this message

have been removed]>>

[Guest guest]

Chiming in....I have that rib rubbing pelvis bone thingy at times. It

really disables me for weeks. In that situation I can't get out of bed so I'm

not

able to go to the doctor for a shot. It is starting now. I'm allergic to

opiates but I wonder if a strong nsaid might help.

Jolene

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[Guest guest]

Hi Lana,

No...I must have missed it. I haven't had time to read all of the

posts but I'm trying to catch up. You always have great advice

though!

> >

> > Hello again,hope every1 is ok(apart from the obvious!)

> > My doc has finally given me tablets that work and its so much

better to

> > not be in complete agony day in day out.

> > My left hip is somewhat of a mystery at the moment-Obviously the

> > majority of scoliosis sufferers have wonky hips wiv 1 leg shorter

than

> > the other,I was wondering if any1 has encountered any problems

with

> > their hips?I can hardly feel my left hip,it seems to have half

> > dissapeared and I wanted the MRI people to check it out in the

scan but

> > there was nothing to say to do it,wondering if I should try and

> > persuade the doc to get it xrayed as it hasnt been yet,It doesnt

cause

> > me any pain but I do have very slightly less sensation on the

thigh

> > area and my leg has given way few times,so it would be great to

hear

> > any experiences/ complications.

> > The other thing I wanted to ask is if any1 has suffered from

bunions,as

> > Ive just read on a medical site that bunions are common in

scoliosis

> > sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> > realsise u r advised to have it operated on-the way im going,i

may as

> > well buy a lifetime hospital pass!!!)Just be great to hear

anything

> > about either of these.Kindest regards to all

> > Vicci x

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I also had good results from the injection. I'm going to get 2 more for my other

screw areas, since I have to wait to get them removed. The pain is driving me

insane.

________________________________

From: <makeyellow@...>

" Scoliosis Treatment " <Scoliosis Treatment >

Sent: Wednesday, November 12, 2008 8:22:44 PM

Subject: Re: Hope every1 is ok

I haven't tried that. I'm glad you have had such good results from that.

On Nov 12, 2008, at 4:46 PM, Lana Jarvis <fyfer1949 (DOT) com> wrote:

> Hi, , have you considered asking your doctor about a cortisone

> shot in the hip joint? I just had one. Remember all my notes

> recently, since May(!) about my left hip pain? I had a shot two

> days ago, and I have no pain and I don't limp. My anesthesiologist

> who gave me the shot saw a lot of arthritis in my moving xray...

> Fyfer

>

>

>

> > Hello again,hope every1 is ok(apart from the obvious!)

> > My doc has finally given me tablets that work and its so much better

> > to

> > not be in complete agony day in day out.

> > My left hip is somewhat of a mystery at the moment-Obviously the

> > majority of scoliosis sufferers have wonky hips wiv 1 leg shorter

> than

> > the other,I was wondering if any1 has encountered any problems with

> > their hips?I can hardly feel my left hip,it seems to have half

> > dissapeared and I wanted the MRI people to check it out in the scan

> > but

> > there was nothing to say to do it,wondering if I should try and

> > persuade the doc to get it xrayed as it hasnt been yet,It doesnt

> cause

> > me any pain but I do have very slightly less sensation on the thigh

> > area and my leg has given way few times,so it would be great to hear

> > any experiences/ complications.

> > The other thing I wanted to ask is if any1 has suffered from

> > bunions,as

> > Ive just read on a medical site that bunions are common in scoliosis

> > sufferers,Ive got quite a painful 1 on my longer leg side(didnt

> > realsise u r advised to have it operated on-the way im going,i may

> as

> > well buy a lifetime hospital pass!!!)Just be great to hear anything

> > about either of these.Kindest regards to all

> > Vicci x

> >

> >

>

>

[Guest guest]

What is sciatic?  I am having terrible pain in my left hip.  At first I thought

it was just pressure from my left curve.  The pain is constant lately though and

most recently expands down my left leg! Sara

>> > Hello

again,hope every1 is ok(apart from the obvious!)> > My doc has finally given me

tablets that work and its so much better> > to> > not be in complete agony day

in day out.> > My left hip is somewhat of a mystery at the moment-Obviously the>

> majority of scoliosis sufferers have wonky hips wiv 1 leg shorter > than> >

the other,I was wondering if any1 has encountered any problems with> > their

hips?I can hardly feel my left hip,it seems to have half> > dissapeared and I

wanted the MRI people to check it out in the scan> > but> > there was nothing to

say to do it,wondering if I should try and> > persuade the doc to get it xrayed

as it hasnt been yet,It doesnt > cause> > me any pain but I do have very

slightly less sensation on the thigh> > area and my leg has given way few

times,so it would be great to hear> >

any experiences/ complications. > > The other thing I wanted to ask is if any1

has suffered from> > bunions,as> > Ive just read on a medical site that bunions

are common in scoliosis> > sufferers,Ive got quite a painful 1 on my longer leg

side(didnt> > realsise u r advised to have it operated on-the way im going,i may

> as> > well buy a lifetime hospital pass!!!)Just be great to hear anything> >

about either of these.Kindest regards to all> > Vicci x> >> >>> [Non-text

portions of this message have been removed]>> [Non-text portions of this message

have been removed]>>

[Guest guest]

sounds like you may have it as the pain radiates down your leg. I'm not good at

explaining it but someon showed me a good exercise for it and that has helped

me. Maybe someone else is better at explaining or do a google search for it.

Sorry I'm not more helpful.Martha Knott/What-Knott Farm www.whatknottfarm.com

Scoliosis Treatment@...: mollymol6@...: Thu, 13 Nov

2008 16:30:19 -0800Subject: RE: Hope every1 is ok

What is sciatic? I am having terrible pain in my left hip. At first I thought

it was just pressure from my left curve. The pain is constant lately though and

most recently expands down my left leg! Sara>> > Hello again,hope every1 is ok(apart

from the obvious!)> > My doc has finally given me tablets that work and its so

much better> > to> > not be in complete agony day in day out.> > My left hip is

somewhat of a mystery at the moment-Obviously the> > majority of scoliosis

sufferers have wonky hips wiv 1 leg shorter > than> > the other,I was wondering

if any1 has encountered any problems with> > their hips?I can hardly feel my

left hip,it seems to have half> > dissapeared and I wanted the MRI people to

check it out in the scan> > but> > there was nothing to say to do it,wondering

if I should try and> > persuade the doc to get it xrayed as it hasnt been yet,It

doesnt > cause> > me any pain but I do have very slightly less sensation on the

thigh> > area and my leg has given way few times,so it would be great to hear>

>any experiences/ complications. > > The other thing I wanted to ask is if any1

has suffered from> > bunions,as> > Ive just read on a medical site that bunions

are common in scoliosis> > sufferers,Ive got quite a painful 1 on my longer leg

side(didnt> > realsise u r advised to have it operated on-the way im going,i may

> as> > well buy a lifetime hospital pass!!!)Just be great to hear anything> >

about either of these.Kindest regards to all> > Vicci x> >> >>> [Non-text

portions of this message have been removed]>> [Non-text portions of this message

have been removed]>>

[Guest guest]

Hello: I read the msgs sometimes but don't ever write. It is interesting though

to hear that others suffer from a lot of the same things - must mean it is all

related to the scoliosis. I had my rods and fusion done in 1970 - never had the

rods out but now I have a problem cause I have oestoporosis and am shrinking -

of course the rods dont shrink so the one is sticking out pretty good. I am

waiting to get into a specialist cause they will probably have to cut it down or

something. It hasn't come through the skin yet but any time now it looks like it

could. I also have had trouble with my hips and I have bunions too. Never really

thought those things were all related. I am pretty lucky cause even though I

have pain every day it has never been bad enough to do anything about it - I

can't imagine what a day would be like where nothing hurt - wouldn't that be

heaven! But I can honestly say that I have managed to live a pretty normal life

and scoliosis is just part of who I am. Lorraine

Scoliosis Treatment@...: taknitlite@...: Thu, 13 Nov

2008 16:22:11 -0800Subject: Re: Hope every1 is ok

I also had good results from the injection. I'm going to get 2 more for my other

screw areas, since I have to wait to get them removed. The pain is driving me

insane.________________________________From:

<makeyellow@...> " Scoliosis Treatment "

<Scoliosis Treatment >Sent: Wednesday, November 12, 2008 8:22:44

PMSubject: Re: Hope every1 is okI haven't tried that. I'm

glad you have had such good results from that.On Nov 12, 2008, at 4:46 PM,

Lana Jarvis <fyfer1949 (DOT) com> wrote:> Hi, , have you considered asking

your doctor about a cortisone > shot in the hip joint? I just had one. Remember

all my notes > recently, since May(!) about my left hip pain? I had a shot two >

days ago, and I have no pain and I don't limp. My anesthesiologist > who gave me

the shot saw a lot of arthritis in my moving xray...> Fyfer>> >> > Hello again,hope

every1 is ok(apart from the obvious!)> > My doc has finally given me tablets

that work and its so much better> > to> > not be in complete agony day in day

out.> > My left hip is somewhat of a mystery at the moment-Obviously the> >

majority of scoliosis sufferers have wonky hips wiv 1 leg shorter > than> > the

other,I was wondering if any1 has encountered any problems with> > their hips?I

can hardly feel my left hip,it seems to have half> > dissapeared and I wanted

the MRI people to check it out in the scan> > but> > there was nothing to say to

do it,wondering if I should try and> > persuade the doc to get it xrayed as it

hasnt been yet,It doesnt > cause> > me any pain but I do have very slightly less

sensation on the thigh> > area and my leg has given way few times,so it would be

great to hear> > any experiences/ complications.> > The other thing I wanted to

ask is if any1 has suffered from> > bunions,as> > Ive just read on a medical

site that bunions are common in scoliosis> > sufferers,Ive got quite a painful 1

on my longer leg side(didnt> > realsise u r advised to have it operated on-the

way im going,i may > as> > well buy a lifetime hospital pass!!!)Just be great to

hear anything> > about either of these.Kindest regards to all> > Vicci x> >> >>>

[Guest guest]

Hello Sara,

It sounds like you may have the start of sciatica. Sciatica is when

your sciatic nerve (the main nerve that breaks off from your spinal

cord around the L2-L3 region down your legs) is pinched for whatever

reason or there is pressure on it. Even the least little bit can cause

a problem. I had it last September ('07) and I ended up in the ER and

flat on my back for a week because I couldn't walk. The pain was so

excruciating. I've had 2 kidney stones, 2 fusion surgeries, a c-

section, and that pain...sciatica pain...was the worst of any of them!

I had to literally drag my leg holding onto people and I was screaming

to cut my leg off! I had to take anti-inflammatories and pain killers

and eventually, it let up. But ever since, I've had problems with

walking and my scoliosis has progressed in the L4-S1 area, where I'm

not fused.

My advice for you is to take it easy and lay as much as possible. Take

anti-inflammatories and pain meds as much as possible, on schedule, and

don't move unless you have to. I know it's hard but it's very necessary

for it to go away. For whatever reason, your nerve is being compressed

somehow/someway and it's my understanding that it is the only way to

relieve it. Time, rest, and meds.

Good luck Sara...I know it's no fun and for your sake, I hope it's not

sciatica. But if it is, you'll make it through it. Just make sure no

one actually cuts your leg off! :0)

>

> What is sciatic?  I am having terrible pain in my left hip.  At first

I thought it was just pressure from my left curve.  The pain is

constant lately though and most recently expands down my left leg! Sara

[Guest guest]

Thanks !  I wondered if that is what is was and I definately thought it was

related to the scoliosis. I have been laying low this week - had to. I also have

tremendous fatigue

and wondering if that is connected to the scoliosis as well.  You are very

helpful and your support greatly appreciated.  Sara

From: <ladams9200@...>

Subject: Re: Hope every1 is ok

Scoliosis Treatment

Date: Friday, November 14, 2008, 4:06 PM

Hello Sara,

It sounds like you may have the start of sciatica. Sciatica is when

your sciatic nerve (the main nerve that breaks off from your spinal

cord around the L2-L3 region down your legs) is pinched for whatever

reason or there is pressure on it. Even the least little bit can cause

a problem. I had it last September ('07) and I ended up in the ER and

flat on my back for a week because I couldn't walk. The pain was so

excruciating. I've had 2 kidney stones, 2 fusion surgeries, a c-

section, and that pain...sciatica pain...was the worst of any of them!

I had to literally drag my leg holding onto people and I was screaming

to cut my leg off! I had to take anti-inflammatories and pain killers

and eventually, it let up. But ever since, I've had problems with

walking and my scoliosis has progressed in the L4-S1 area, where I'm

not fused.

My advice for you is to take it easy and lay as much as possible. Take

anti-inflammatories and pain meds as much as possible, on schedule, and

don't move unless you have to. I know it's hard but it's very necessary

for it to go away. For whatever reason, your nerve is being compressed

somehow/someway and it's my understanding that it is the only way to

relieve it. Time, rest, and meds.

Good luck Sara...I know it's no fun and for your sake, I hope it's not

sciatica. But if it is, you'll make it through it. Just make sure no

one actually cuts your leg off! :0)

>

> What is sciatic?  I am having terrible pain in my left hip.  At first

I thought it was just pressure from my left curve.  The pain is

constant lately though and most recently expands down my left leg! Sara

[Guest guest]

Your welcome Sara. I really do hope you feel better soon!

The fatigue...well, it could be from anything. I've noticed that since

my scoliosis has progressed I have become an insomniac. There are some

nights I just don't go to bed until about 4am. It's ridiculous and I

hate it. But I'm in pain most of the time anymore. My husband and I

went Christmas shopping for our daughter last night and it was all I

could do to make it through the stores but I wasn't going to let it

stop me. We have been looking forward for this for such a long time.

If you are stressed out (which I'm sure you are, especially having

sciatica) or in pain, you will probably be fatigued.

Feel better soon!

>

> Thanks !  I wondered if that is what is was and I definately

thought it was related to the scoliosis. I have been laying low this

week - had to. I also have tremendous fatigue

> and wondering if that is connected to the scoliosis as well.  You

are very helpful and your support greatly appreciated.  Sara