CMT treatment question -NT-3

July 12, 2002

Yes, , I am especially excited, not only because this research is

so far advanced, but if nerves can be reinnervated, it will help so many

people with CMT. AS that article stated, the current study will end in

the fall. Maybe then human trials will become a reality, and yes, I

would go and participate, even if it is double-blind with placebo.

I will be writing to Dr. Sahenk over this weekend so see if I can find

out anything else.

It would be so amazing for me that in my lifetime of CMT where once I

was told I was hopeless(!) to actually having this new treatment that

spurns reinnervation. It also is so wonderful for all the children who

have CMT now, they won't have to go through the stuff we did.

~ Gretchen

Mommy2Adam@... wrote:

> Is anyone excited about the NT-3 testing? Does anyone think that a treatment

> will be found soon? Say they find a treatment will you be first in line to get

it?

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