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Hi

Welcome to the group!

I am sure you will find many answers to your questions here. I am also at a

similar stage of my treatment with the disease. I am having my manometry

test on the 7th of july and then surgery in november. My syptoms have been

apparent for about as long as yours also.

If you have any questions ,just fire away. You will always get plenty of

responses here.

I am 27 and from Dunedin, New Zealand.

Take care

Kim

At 00:54 23/06/2003 +0000, you wrote:

>Hi ....

>

>My name is and I live in Calgary, Canada. I am a 51 year old

>who is otherwise in good health. I was diagnosed as having Ashalasia

>earlier this month. I have had had swallowing difficulties for

>probably three years. Initially the family Dr. said I was eating too

>fast. The problem became more chronic by early in the new year and

>by

>March I was hardly able to keep down anything to the point I was

>getting dyhydrated. I had a gastroendoscopy on March 10th and the

>Dr.

>expanded my lower esophagus using a small balloon. The Dr. sent me

>for a barium swallow and manometry. When I met with the Dr. on June

>12th he gave me the definitive diagnosis of Ashalasia. Due to my age

>and good health he has recommended the Heller myotomy. I had another

>small balloon expansion last Tuesday but it does not seemed to have

>helped as much as the previous time. I have an appointment with the

>surgeon on July 2nd.

>

>I look forward to reading posts to get more information and would be

>glad to answer any questions.

>

>

>

>

>

>Sponsor<http://rd./M=251812.3170658.4537139.1261774/D=egroupweb/S=1705\

061589:HM/A=1564416/R=0/SIG=11ti81skc/*http://www.netflix.com/Default?mqso=60164\

797 & partid=3170658>

>

>

>

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Guest guest

Hi Kim ......

My apologies for not responding sooner ..... thank you for your kind

welcome message ...... the manometry is not too bad .... just try

and relax ...... I had a very good technician who took her time and

explained everything ..... let me know how you make out .....

> >Hi ....

> >

> >My name is and I live in Calgary, Canada. I am a 51 year old

> >who is otherwise in good health. I was diagnosed as having

Ashalasia

> >earlier this month. I have had had swallowing difficulties for

> >probably three years. Initially the family Dr. said I was eating

too

> >fast. The problem became more chronic by early in the new year

and

> >by

> >March I was hardly able to keep down anything to the point I was

> >getting dyhydrated. I had a gastroendoscopy on March 10th and the

> >Dr.

> >expanded my lower esophagus using a small balloon. The Dr. sent

me

> >for a barium swallow and manometry. When I met with the Dr. on

June

> >12th he gave me the definitive diagnosis of Ashalasia. Due to my

age

> >and good health he has recommended the Heller myotomy. I had

another

> >small balloon expansion last Tuesday but it does not seemed to

have

> >helped as much as the previous time. I have an appointment with

the

> >surgeon on July 2nd.

> >

> >I look forward to reading posts to get more information and would

be

> >glad to answer any questions.

> >

> >

> >

> >

> >

>

>Sponsor<http://rd./M=251812.3170658.4537139.1261774/D=egrou

pweb/S=1705061589:HM/A=1564416/R=0/SIG=11ti81skc/*http://www.netflix.

com/Default?mqso=60164797 & partid=3170658>

> >

> >

> >

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  • 4 years later...
Guest guest

Hi again Katy, day treatment has worked well for so many, I'm sure your

son will really benefit from going!!

I know we've had members here from Florida and/or those who have gone

to some really knowledgeable treatment centers/doctors in FL so hope

they see your post and can comment.

I don't guess there is anyone here who hasn't grieved over their child

and the ongoing OCD! And even after all these years (6 years) of

having OCD in our lives, I still have my bad days (weeks!) regarding my

son.

Have you read " Welcome to Holland " ? It's passed around to parents of

children with Down's or autism a lot but certainly fits for any

disability I think. Usually makes me feel a bit better to read it.

Maybe because growing up, Holland was a place I always said I wanted to

visit. http://www.creativeparents.com/Holland.html

I think (hope) that although my son and me could certainly have done

without OCD in our lives, that we've learned/benefited to understand

mental illness and that we've actually grown closer, even though I've

definitely given him some hard days, words, etc., at times. After all,

I've had to be his best friend thru all of this, the *one* who

understands and knows that he isn't doing/thinking all of this OC stuff

because he wants to and he is the one who is constantly living with it

inside himself. (Heck, I think I understand OCD better than him

because it's hard for him to separate himself from it sometimes, as if

it's *him* and not the illness. Plus I have a bit of OC tendencies

myself, but nothing that ever got out of control to the severity that

my son has it.)

Is Dad going to Florida too? Might help him to gain a better

understanding and handle it better in the future.

Well things to do, but glad you found our group! It's been my best

support thru the years!

single mom, 3 sons

, 18, with OCD, dysgraphia and Aspergers (autism/mild)

>

> We will be traveling to FL and are placing our son in a day treatment

> center. We are exhausted mentally, physically, and we are seeking

> something different in the way of treatment. I believe that when

what

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  • 7 months later...

Hello everyone,

I am Lida from London U.K. I was a member of a previous online forum

which (in my absence) has disappeared, presumably closed down by

Ysabol. It's good to see familiar names like Carole the elder, Joyce

and Racine.

Since mid-2005 I've been busy renovating my house (and having a

little love affair too). When both were over I returned to the

computer & found Scoliochat had gone.

I'm 56 and I had a 2-stage operation (Luque & Harrington) in October

1984. Mine is an idiopathic kyphosis; my mother spotted that

something was wrong when I was 4 months of age. Nothing genetically

in the families. I wore the Milwaukee for a little while - no

improvement. Also had traction plus plaster cast for a week, which

pulled out the kinks very well (I was afterall 13), but once removed

went back to the same position.

When I first consulted a surgeon in 1979 he told me to come back in 3

yrs because he couldnt do anything for me at that time. I returned

in 1984 and he said he was prepared to operate on me. I have one

curve which pre-op was 120 (although my surgeon softened that piece

of information at the time by telling me I was around 90). Reduced

to approx 90 now. I was 33 when I had the surgery, so the deformity

was well established and of course the rotational aspect prevented

further correction. The rotation also prevents decreasing the hump

size apparently.

Lida

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