Need help on where to go

[Guest guest]

I have been in pain for many years, I got something called TRANSVERSE MYELITIS,

which only 1400 of a million people get; it paralyzed from T12 down and left me

in burning feet pain 24 hrs. a day, with deep spasms; then 3 years later, I

suddenly got scoliosis & debated 9 mths. to do it; I was hospitalized 4 mths.

many complications followed within 24 hrs. or less of surgery. Even on a

respirator, kidneys failed, neph. tubes put in & 80,000 white ct.; finally found

out they didn't take care of my urostomy bag during the 10 1/2 surgery and urine

backed up to my abdomen, formed an abscess, which required my urologist to have

to go in surgery redo my urostomy drained 2 liters of infection and fluid from

my abdm., but after the scol. surgery, I have been bedridden for 17 mths.

because of I think the scol. surgeon cut a nerve or severely damaged one which

goes into my bottom; now I can't even get out of bed only when forced to see one

oe two drs. who are dragging their feet. I was fused from T10 down and I have

lost 100 lbs. in 11 mths. & no one in this backward state even seems concerned

about that. We have had to wait way too long and my 33 yr. retired military

husband & I deserve more of a life than this. My bottom burns like it is in an

oven now and if I had known I wud never let that dr. touch me for that surgery.

I am asking alot, but where would you go if you were reduced to 1 1/2 yrs.

bedridden cause you can't even sit due to the immense pain. I went to Baylor

Rehab. when I was 1st paralyzed from TM. I can accept paralyzation BUT NOT THE

PAIN and condition of being reduced to bed!!!

I hate how it has affected my family and friends don't even come but maybe one a

year. HELP???? and THANKS in advance.