Re: SARA DOLAN--16-year-old daughter--surgery

[Guest guest]

Sara, here is a dumb question. But, how did you know it was starting to crush

your lungs and heart? I have a story similar to yours and was told a long time

ago that I could experience what you are going through.

Thanks!!

Joann

16-year-old daughter--surgery

Hi,

My 16-year-old daughter is scheduled for fusion surgery 8/11. She was

diagnosed

with scoliosis about 4 yrs ago. She did the brace thing but to no avail. She

currently has a 58 degree thoracic curve and a 37 degree compensatory lumbar

curve. Her doctor is planning to fuse T5 to L2 with titanium rods. We've

gotten

2 opinions so far and plan to get a 3rd before the surgery.

My daughter is all for the surgery, she's just a little anxious. I, however,

am

terrified.

Any suggestions would be much appreciated.

Thank you,

Robin Ahearn

[Guest guest]

Joann - I also have asthma. It was very bad for years but is well under control

now. Yet, I am having trouble breathing. I can't walk even short distances. I am

so tired all the time. I have to lay down often even though I might not sleep.

I have been to my pulmonary dr. several times in the last few months and he

continues to tell me my lungs are clear.  My breathing is diminished though. He

says he believes it is the spine. Breathing medication will not help. I spent

three days in the hospital a year ago June with chest pain - which I still get

occassional. My heart races from time to time. All heart tests are okay and yet

there is some strain. Again, heart medication is not the answer.

I have seen one scoliosis specialist in Boston and hope to get another opinion

this summer. Surgery is recommended - I am just trying to figure out how we as a

family can cope without my income for 6 months or more.

have you seen a surgeon?

Good luck Joann.

________________________________

From: Joann <bunnypete@...>

Scoliosis Treatment

Sent: Wed, July 6, 2011 11:55:09 AM

Subject: Re: SARA DOLAN--16-year-old daughter--surgery

 

Sara, here is a dumb question. But, how did you know it was starting to crush

your lungs and heart? I have a story similar to yours and was told a long time

ago that I could experience what you are going through.

Thanks!!

Joann

16-year-old daughter--surgery

Hi,

My 16-year-old daughter is scheduled for fusion surgery 8/11. She was diagnosed

with scoliosis about 4 yrs ago. She did the brace thing but to no avail. She

currently has a 58 degree thoracic curve and a 37 degree compensatory lumbar

curve. Her doctor is planning to fuse T5 to L2 with titanium rods. We've gotten

2 opinions so far and plan to get a 3rd before the surgery.

My daughter is all for the surgery, she's just a little anxious. I, however, am

terrified.

Any suggestions would be much appreciated.

Thank you,

Robin Ahearn

[Guest guest]

Thank you Sara. I have not seen a surgeon in years. Like others, I was

diagnosed when I was just a kid. Surgery was recommended, but my parents said

no. I'm now almost 41, and I think I am getting arthritis in my spine, my hips

hurt, and of course, my back hurts pretty much everywhere. I actually live

north of Providence. What surgeon in Boston do you see??

Joann

16-year-old daughter--surgery

Hi,

My 16-year-old daughter is scheduled for fusion surgery 8/11. She was

diagnosed

with scoliosis about 4 yrs ago. She did the brace thing but to no avail. She

currently has a 58 degree thoracic curve and a 37 degree compensatory lumbar

curve. Her doctor is planning to fuse T5 to L2 with titanium rods. We've

gotten

2 opinions so far and plan to get a 3rd before the surgery.

My daughter is all for the surgery, she's just a little anxious. I, however,

am

terrified.

Any suggestions would be much appreciated.

Thank you,

Robin Ahearn

[Guest guest]

Joann - I saw Dr. Glazer at Beth Israel Hosp. last summer and I would like

to also get an opinion from Dr. Rand in Boston. Both are recommended on the

scoliosis sites - specialists in Adult scoliosis. A couple of people told me

that they did not care for Dr. Rand but I am more interested in the best outcome

than bedside manner. I believe he is at New England Baptist.

Let me know what you decide.  Sara

________________________________

From: Joann <bunnypete@...>

Scoliosis Treatment

Sent: Mon, July 11, 2011 11:21:35 PM

Subject: Re: SARA DOLAN--16-year-old daughter--surgery

 

Thank you Sara. I have not seen a surgeon in years. Like others, I was diagnosed

when I was just a kid. Surgery was recommended, but my parents said no. I'm now

almost 41, and I think I am getting arthritis in my spine, my hips hurt, and of

course, my back hurts pretty much everywhere. I actually live north of

Providence. What surgeon in Boston do you see??

Joann

16-year-old daughter--surgery

Hi,

My 16-year-old daughter is scheduled for fusion surgery 8/11. She was diagnosed

with scoliosis about 4 yrs ago. She did the brace thing but to no avail. She

currently has a 58 degree thoracic curve and a 37 degree compensatory lumbar

curve. Her doctor is planning to fuse T5 to L2 with titanium rods. We've gotten

2 opinions so far and plan to get a 3rd before the surgery.

My daughter is all for the surgery, she's just a little anxious. I, however, am

terrified.

Any suggestions would be much appreciated.

Thank you,

Robin Ahearn

[Guest guest]

Thank you Sara! I'll look into both doctors. Thanks for the help

Joann

16-year-old daughter--surgery

Hi,

My 16-year-old daughter is scheduled for fusion surgery 8/11. She was

diagnosed

with scoliosis about 4 yrs ago. She did the brace thing but to no avail. She

currently has a 58 degree thoracic curve and a 37 degree compensatory lumbar

curve. Her doctor is planning to fuse T5 to L2 with titanium rods. We've

gotten

2 opinions so far and plan to get a 3rd before the surgery.

My daughter is all for the surgery, she's just a little anxious. I, however,

am

terrified.

Any suggestions would be much appreciated.

Thank you,

Robin Ahearn

[Guest guest]

Have you tried Shriners Hospitals? They provide top notch medical treatment for

scoliosis including diagnosis, 'second opinions', bracing and surgery all at no

cost including transportation to and from the closest location to where you

live.

Re: SARA DOLAN--16-year-old daughter--surgery

Thank you Sara! I'll look into both doctors. Thanks for the help

Joann

16-year-old daughter--surgery

Hi,

My 16-year-old daughter is scheduled for fusion surgery 8/11. She was

diagnosed

with scoliosis about 4 yrs ago. She did the brace thing but to no avail. She

currently has a 58 degree thoracic curve and a 37 degree compensatory lumbar

curve. Her doctor is planning to fuse T5 to L2 with titanium rods. We've

gotten

2 opinions so far and plan to get a 3rd before the surgery.

My daughter is all for the surgery, she's just a little anxious. I, however, am

terrified.

Any suggestions would be much appreciated.

Thank you,

Robin Ahearn

[Guest guest]

How did your daughter's surgery turn out? I hope all is well!! Mother of a

thirteen year old daughter that will need surgery soon. Sue

>

> Have you tried Shriners Hospitals? They provide top notch medical treatment

for scoliosis including diagnosis, 'second opinions', bracing and surgery all

at no cost including transportation to and from the closest location to where

you live.

>

>

>

>

>

> Re: SARA DOLAN--16-year-old daughter--surgery

>

>

>

>

>

> Thank you Sara! I'll look into both doctors. Thanks for the help

>

> Joann

>

> 16-year-old daughter--surgery

>

> Hi,

> My 16-year-old daughter is scheduled for fusion surgery 8/11. She was

diagnosed

> with scoliosis about 4 yrs ago. She did the brace thing but to no avail. She

> currently has a 58 degree thoracic curve and a 37 degree compensatory lumbar

> curve. Her doctor is planning to fuse T5 to L2 with titanium rods. We've

gotten

> 2 opinions so far and plan to get a 3rd before the surgery.

>

> My daughter is all for the surgery, she's just a little anxious. I, however,

am

> terrified.

>

> Any suggestions would be much appreciated.

> Thank you,

> Robin Ahearn

>

>