My 6 year old son with scoliosis.....

[Guest guest]

My 6 year old was diagnosed with scoliosis yesterday at a chiro., i was in

shock, my son kept waking up during night in pain with his leg's since he was 2,

i have done all kinds of rubbing on his leg's and his feet hurt all the time he

wore feet/shoes molds, molded insoles which cost alot to do since insurance

doesn't cover, and extensive long Dr.'s appointments, the Dr.'s kept telling me

it was growing pain's, at first i did fall for this and thought it would go away

soon, but now he is 6 and has a lot of leg pain, can't seem to walk a very long

distance before complaining his legs hurt. he is overweight and i know this

doesn't help with his pain. the chiropractor yesterday want's him to do

extensive long term treatment's which is very expensive since once again my

insurance doesn't pay for, and now i am stuck tring to do all my best to get

him better, he has been in pain for so long now that i know i want to do

something for him, but i don't have this kind of money for him, i feel i have to

do something maybe get a second opinion and take it from their, i don't know

else to do at this point when i don't have that kind of money, and know what is

best for him to get started right away so that he can start feeling better, i am

stuck has anyone bee through this kind of situation, this is the first time i

ever knew anything about scoliosis and i searching the internet all night and

day for options, solution's and now i have come to this point and asking for

opinions. thank you so much for any replies.

[Guest guest]

Shriner's hospitals are free in the USA, Canada and Mexico. I would contact them

and see what they can do for your son. We don't discuss chiropractic medicine

here however. If your son is in that much pain I think you need to see an

orthopaedic surgeon right away or at least go the Shriner's Hospital route.

Usually they will pay for transportation and care for your youngster.

>

> My 6 year old was diagnosed with scoliosis yesterday at a chiro., i was in

shock, my son kept waking up during night in pain with his leg's since he was 2,

i have done all kinds of rubbing on his leg's and his feet hurt all the time he

wore feet/shoes molds, molded insoles which cost alot to do since insurance

doesn't cover, and extensive long Dr.'s appointments, the Dr.'s kept telling me

it was growing pain's, at first i did fall for this and thought it would go away

soon, but now he is 6 and has a lot of leg pain, can't seem to walk a very long

distance before complaining his legs hurt. he is overweight and i know this

doesn't help with his pain. the chiropractor yesterday want's him to do

extensive long term treatment's which is very expensive since once again my

insurance doesn't pay for, and now i am stuck tring to do all my best to get

him better, he has been in pain for so long now that i know i want to do

something for him, but i don't have this kind of money for him, i feel i have to

do something maybe get a second opinion and take it from their, i don't know

else to do at this point when i don't have that kind of money, and know what is

best for him to get started right away so that he can start feeling better, i am

stuck has anyone bee through this kind of situation, this is the first time i

ever knew anything about scoliosis and i searching the internet all night and

day for options, solution's and now i have come to this point and asking for

opinions. thank you so much for any replies.

>

[Guest guest]

I like to thank you first before anything, but yes i really appreciate your

words on this matter, i will look into this matter and let everyone know with

my searching. once again thank you!!!

> >

> > My 6 year old was diagnosed with scoliosis yesterday at a chiro., i was in

shock, my son kept waking up during night in pain with his leg's since he was 2,

i have done all kinds of rubbing on his leg's and his feet hurt all the time he

wore feet/shoes molds, molded insoles which cost alot to do since insurance

doesn't cover, and extensive long Dr.'s appointments, the Dr.'s kept telling me

it was growing pain's, at first i did fall for this and thought it would go away

soon, but now he is 6 and has a lot of leg pain, can't seem to walk a very long

distance before complaining his legs hurt. he is overweight and i know this

doesn't help with his pain. the chiropractor yesterday want's him to do

extensive long term treatment's which is very expensive since once again, my

insurance doesn't pay for, and now i am stuck tring to do all my best to get

him better, he has been in pain for so long now that i know i want to do

something for him, but i don't have this kind of money for him, i feel i have to

do something maybe get a second opinion and take it from their, i don't know

what else to do at this point when i don't have that kind of money, and know

what is best for him to get started right away so that he can start feeling

better, i am stuck has anyone been through this kind of situation, this is the

first time i heard anything about scoliosis and i am searching the internet

all night and day for options, solution's and now i have come to this point and

asking for opinions. thank you so much for any replies.

> >

>

[Guest guest]

I agree with . Please take your son to see a PEDIATRIC orthopedic surgeon.

I also suggest seeing a pediatric neuroSURGEON (not neurologist). His symptoms

sounds very much like a tethered spinal cord issue. He needs medical care.

Does he have issues with his bowel and bladder? Frequency? Accidents? Low

back pain? These can also be signs of a spinal cord issue. The good news is

that there IS treatment available. He can be helped, and hopefully caught soon

enough that the symptoms can be reversed. I don't know where you live. This

list can offer suggestions on who can help your son. Shriners would be a good

place to start.

My best,

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 20, GERD, and

Braydon 15, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 5cm length discrepancy-wears 3cm lift, valgus

deformity, GERD, Gastroparesis, SUA, etc.

http://carmellb-ivil.tripod.com/myfamily/

Congenital scoliosis support group

Scoliosis Treatment

From: closetclone123@...

Date: Sat, 7 May 2011 22:49:16 +0000

Subject: My 6 year old son with scoliosis.....

My 6 year old was diagnosed with scoliosis yesterday at a chiro., i was in

shock, my son kept waking up during night in pain with his leg's since he was 2,

i have done all kinds of rubbing on his leg's and his feet hurt all the time he

wore feet/shoes molds, molded insoles which cost alot to do since insurance

doesn't cover, and extensive long Dr.'s appointments, the Dr.'s kept telling me

it was growing pain's, at first i did fall for this and thought it would go away

soon, but now he is 6 and has a lot of leg pain, can't seem to walk a very long

distance before complaining his legs hurt. he is overweight and i know this

doesn't help with his pain. the chiropractor yesterday want's him to do

extensive long term treatment's which is very expensive since once again my

insurance doesn't pay for, and now i am stuck tring to do all my best to get

him better, he has been in pain for so long now that i know i want to do

something for him, but i don't have this kind of money for him, i feel i have to

do something maybe get a second opinion and take it from their, i don't know

else to do at this point when i don't have that kind of money, and know what is

best for him to get started right away so that he can start feeling better, i am

stuck has anyone bee through this kind of situation, this is the first time i

ever knew anything about scoliosis and i searching the internet all night and

day for options, solution's and now i have come to this point and asking for

opinions. thank you so much for any replies.

[Guest guest]

Hi, I know you're concerned about your son's diagnosis and you're so right to be

concerned about his pain, too. I'll share our story below, but first I want to

say that it is very important to get orthopedic and other specialists to rule

out any other causes of your son's leg pains. You can ask your pediatrician to

confirm the diagnosis and refer your son to an orthopedic specialist, who would

know about ruling out other causes of leg pain. If the chiropractor took any

x-rays, you would want to bring a copy of them to see the pediatrician or the

orthopedist.

My daughter was diagnosed with scoliosis just after she turned 10, and we

brought her to the pediatrician because of pain, too -- in her case, back pain

when she walked that cropped up suddenly, but she had been complaining about leg

pain for years ( " growing pains " ). I still don't know whether her leg pain was

related to the scoliosis, but I do know that her back pain completely

disappeared after the surgery she needed because her curves were already severe.

My daughter wears shoe orthotics, and sometime I would like to find out if her

flat feet and scoliosis are part of an underlying non-life-threatening genetic

disorder of the connective tissue, such as Ehlers-Danlos syndrome. If you go to

see a medical specialist, you should ask him or her to evaluate your son for

" underlying conditions " that could contribute to scoliosis and might give a

better idea of whether the condition is likely to worsen. That could have

implications for treatment.

Good luck, and I've also heard great things about the expertise at the Shriners'

Hospitals, which (I think) recommended. By the way, we went to Boston

Children's Hospital for a second opinion and found it very helpful, even though

we had to travel for it. It was worth it, getting another expert's

confirmation of our orthopedic surgeon's recommendations, along with a new

suggestion for reducing the intensity of the surgery, which we took back to our

surgeon. By the way, not everyone needs surgery, but it IS important to get

everything checked out.

Janet

>

> My 6 year old was diagnosed with scoliosis yesterday at a chiro., i was in

shock, my son kept waking up during night in pain with his leg's since he was 2,

i have done all kinds of rubbing on his leg's and his feet hurt all the time he

wore feet/shoes molds, molded insoles which cost alot to do since insurance

doesn't cover, and extensive long Dr.'s appointments, the Dr.'s kept telling me

it was growing pain's, at first i did fall for this and thought it would go away

soon, but now he is 6 and has a lot of leg pain, can't seem to walk a very long

distance before complaining his legs hurt. he is overweight and i know this

doesn't help with his pain. the chiropractor yesterday want's him to do

extensive long term treatment's which is very expensive since once again my

insurance doesn't pay for, and now i am stuck tring to do all my best to get

him better, he has been in pain for so long now that i know i want to do

something for him, but i don't have this kind of money for him, i feel i have to

do something maybe get a second opinion and take it from their, i don't know

else to do at this point when i don't have that kind of money, and know what is

best for him to get started right away so that he can start feeling better, i am

stuck has anyone bee through this kind of situation, this is the first time i

ever knew anything about scoliosis and i searching the internet all night and

day for options, solution's and now i have come to this point and asking for

opinions. thank you so much for any replies.

>

[Guest guest]

http://www.shrinershospitalsforchildren.org/

Patient Referal/Eligibilty Information

E-mail: patientreferrals@...

Telephone: 800-237-5055 (in the U.S.)

Telephone: 800-361-7256 (in Canada)

The above addresses and phone numbers should get you started if you go that

route. I am not sure but I suspect that you need a doctor referral first from

someone in your area. I used to be a Shriner a long time ago but I am not up to

date on the procedures anymore nor do I have any contacts left there so it's

kind of up to you to find out. Usually the local Shrine office in your state or

province will pay for transportation to and from the hospital (don't quote me on

this stuff because it's been a long time) and the Shriner Hospital visits are

free. The Shriner members pay for the hospital out of their dues, etc. and raise

money locally to pay for transportation. At least that's how it was about 15

years ago.

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