scoliosis

[Guest guest]

Hi Raju...

Unfortunately, there are never any guarantees in terms of pain reduction

from scoliosis surgery. Your friend can increase her odds of a good outcome

by choosing a surgeon with a lot of experience. If you tell us where your

friend lives, you might be able to get some recommendations from other

subscribers.

Here are links to some outcome study abstracts from the more current

scoliosis surgery techniques:

http://www.lwwonline.com/article.asp?ISSN=0362-2436 & VOL=28 & ISS=11 & PAGE=1163

http://www.lwwonline.com/article.asp?ISSN=0362-2436 & VOL=27 & ISS=18 & PAGE=2046

http://www.lwwonline.com/article.asp?ISSN=0362-2436 & VOL=28 & ISS=4 & PAGE=358

http://www.lwwonline.com/article.asp?ISSN=0362-2436 & VOL=27 & ISS=7 & PAGE=776

http://www.lwwonline.com/article.asp?ISSN=0362-2436 & VOL=26 & ISS=9 & PAGE=E182

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_ui

ds=8976485 & dopt=Abstract

If you're looking for anecdotal evidence, the pain I had before surgery was

completely gone after surgery. (Unfortunately, the surgery itself can be

fairly painful.) Also, many patients have disc problems above or below

their fusion, 5-10 years post-op, which may require an extension of the

fusion.

Hope this helps.

Regards,

[Guest guest]

> If you tell us where your friend lives,

Sorry for the delay in replying, Bethesda MD.

> Hi Raju...

>

> Unfortunately, there are never any guarantees in terms of pain

reduction

> from scoliosis surgery. Your friend can increase her odds of a

good outcome

> by choosing a surgeon with a lot of experience. you might be able

to get some recommendations from other

> subscribers.

>

> Here are links to some outcome study abstracts from the more

current

> scoliosis surgery techniques:

>

> http://www.lwwonline.com/article.asp?ISSN=0362-

2436 & VOL=28 & ISS=11 & PAGE=1163

> http://www.lwwonline.com/article.asp?ISSN=0362-

2436 & VOL=27 & ISS=18 & PAGE=2046

> http://www.lwwonline.com/article.asp?ISSN=0362-

2436 & VOL=28 & ISS=4 & PAGE=358

> http://www.lwwonline.com/article.asp?ISSN=0362-

2436 & VOL=27 & ISS=7 & PAGE=776

> http://www.lwwonline.com/article.asp?ISSN=0362-

2436 & VOL=26 & ISS=9 & PAGE=E182

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_ui

> ds=8976485 & dopt=Abstract

>

> If you're looking for anecdotal evidence, the pain I had before

surgery was

> completely gone after surgery. (Unfortunately, the surgery itself

can be

> fairly painful.) Also, many patients have disc problems above or

below

> their fusion, 5-10 years post-op, which may require an extension

of the

> fusion.

>

> Hope this helps.

>

> Regards,

>

[Guest guest]

Hi Raju...

There are lots of good doctors in your area. I'm not sure which treat

adults, but here are some names for you to check out:

C. Ain, MD Baltimore, MD

Spiro B. Antoniades, MD Baltimore, MD

L. Asdourian, MD Baltimore, MD

W. Cunningham, MSc Baltimore, MD

Cannon II, MD Baltimore, MD

C. , MD Baltimore, MD

E. Gelb, MD Baltimore, MD

Vicki Kalen, MD Baltimore, MD

P. Kostuik, MD Baltimore, MD

R. Kuklo, MD JD Rockville, MD

Alan Marc Levine, MD Baltimore, MD

C. McAfee, MD Towson, MD

Hadley , MD Baltimore, MD

H. Owen, PhD Cockeysville, MD

Lee H. Riley III, MD Baltimore, MD

D. Sponseller, MD Baltimore, MD

Many of these surgeons have their credentials on the internet. You can find

links here:

http://www.scoliosislinks.com/ScoliosisSpecialists.htm

I recommend trying to find a specialist who specifically treats adults, is

board certified in orthopaedics, and (if possible) one who has performed a

spinal deformity fellowship.

Good luck.

Regards,

[Guest guest]

......I feel like diving in a corner and just staying there, I don't feel

cute or sexy,

Clair clair clair. You've earned your stripes! I am so proud of my scar(s) and

don't mind to show it off to anyone. We live at the coast and I don't make any

effort to hide them. In fact, when I walk on the beach I feel I can walk even

taller because of what I've accomplished and gotten through and I have something

to prove it! The other day when I got back to my car from a couple of hours at

the beach, I found a cop at my car (parked on a disabled spot) and he asked me:

" who's disabled? " Well it was right there that I took off my T-shirt (wearing a

bathing suit) and turned around and said: " ME " . He said something to himself and

walked away.....What would I have DONE without it?!

Don't worry, I think you have the answer already. Just hang in there- it will

come. You will feel better and even cute and sexy.

Sanette

--

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[Guest guest]

May God ease your pain, suffering and give you strength. No one should have to

endure sooo much! Sara

From: M <n.mizenko@...>

Subject: SCOLIOSIS

Scoliosis Treatment

Date: Saturday, April 17, 2010, 12:30 AM

 

I'M PARALYZED FROM TRANSVERSE MYELITIS THEN WITHIN 3 YEARS GOT PROFOUND

SCOLIOSIS. THEY NEEDED TO OPERATE AS SOON AS I WAS READY. OCT.16,2009 I

UNDERWENT A 10 HOUR SURGERY THEN PNEUMONIA THE NEXT DAY. COMPLICATIONS FROM

LAYING 10 HRS. ON MY STOMACH CAUSED THEM TO RE-DO MY UROSTOMY -7 HRS, OF

SURGERY. LOTS OF PHYSICAL THERAPY TO GO NOW. I HAD 4 SUPERBUGS IN THE WOMB FROM

MY TOP CHEST TO MY PELVIC BONE. IT IS STILL CLEANED AND COVERED DAILY. NATALIE

[Guest guest]

!  You have been through the mill!  I hope you feel better very soon. 

Please keep us posted as to your progress.  I'll be praying for you.

lj

From: M <n.mizenko@...>

Subject: SCOLIOSIS

Scoliosis Treatment

Date: Saturday, April 17, 2010, 12:30 AM

 

I'M PARALYZED FROM TRANSVERSE MYELITIS THEN WITHIN 3 YEARS GOT PROFOUND

SCOLIOSIS. THEY NEEDED TO OPERATE AS SOON AS I WAS READY. OCT.16,2009 I

UNDERWENT A 10 HOUR SURGERY THEN PNEUMONIA THE NEXT DAY. COMPLICATIONS FROM

LAYING 10 HRS. ON MY STOMACH CAUSED THEM TO RE-DO MY UROSTOMY -7 HRS, OF

SURGERY. LOTS OF PHYSICAL THERAPY TO GO NOW. I HAD 4 SUPERBUGS IN THE WOMB FROM

MY TOP CHEST TO MY PELVIC BONE. IT IS STILL CLEANED AND COVERED DAILY. NATALIE

[Guest guest]

I am 69 years old & live in Australia. I have had scoliosis for numerous years &

finally found a surgeon who said he could possibly help with surgery. This was 2

and half years ago. I have no insurance so had to wait to go through the public

hospital system. The surgeon knew how much pain I was in yet I still had to wait

all that time until my turn came up. Now he doesn't want to do it because he

says the curve has got too bad, the osteoporosis has  got too bad & he is afraid

the pins he will put in may pop out again due to the osteoporosis. I also have

osteoarthritis, spondylethesis, fibromyalgia, disc bulge & nerve endings being

caught up in the disc where it has been pushed right out of line. The curve is

30 degrees. Also he was worried that due to the amount of drugs I take to cope

with the pain he would have nowhere to go with pain relief after the op. So now

says I have to make the call to have it done if I cannot possibly live with this

pain

continually. He said I would have a 60%/40% of getting some pain relief in my

leg where I get the sciatica pain but very little can be done for the pain in

the back. Breaking down the 40% he said 30% I would have the same amount of pain

as now & possibly more & 10% would be a disaster. I don't particularly like

those odds knowing that I seem to attract problems all my life & am afraid I

would be in the 40% bracket. How do you make a decision based on those odds? I

am so upset it wasn't done 2 and half years ago but what can I do, cannot change

that now. Somehow I have to make a choice.

[Guest guest]

A 30 deg curve is not very big. Usually surgery isn't even recommended before it

reaches 40-50. It sounds like your pain is caused by many factors and I would be

reluctant if I was you to undergo such an intense, painful, and life-changing

procedure at this point. I did have surgery when I was 47, 48, 51 and 52. I was

well prepared for the first 2 and I had very good results. After my rods broke

due to lack of fusion I had to have additional surgeries. Since then I've gone

down hill I think due to the inability to keep up with exercising and the normal

loss of muscle mass as I've aged. If you can get into some sort of exercise

program it might help. I understand pain, I've been suffering for 20 years. But

I also have endured added pain in order to increase my strength and it helped.

Now I can't due to spinal stenosis but I'm embarking on yet another option that

I've come across called Acuspcope and Myopulse. It's supposed to help blood flow

and other things that can help the body heal from damage and arthritis. Look on

the internet, I'm having it done at a physical therapy clinic.

________________________________

From: Terri Bradley <tbradley36@...>

Scoliosis Treatment

Sent: Fri, July 8, 2011 5:20:15 AM

Subject: scoliosis

 

I am 69 years old & live in Australia. I have had scoliosis for numerous years &

finally found a surgeon who said he could possibly help with surgery. This was 2

and half years ago. I have no insurance so had to wait to go through the public

hospital system. The surgeon knew how much pain I was in yet I still had to wait

all that time until my turn came up. Now he doesn't want to do it because he

says the curve has got too bad, the osteoporosis has  got too bad & he is

afraid

the pins he will put in may pop out again due to the osteoporosis. I also have

osteoarthritis, spondylethesis, fibromyalgia, disc bulge & nerve endings being

caught up in the disc where it has been pushed right out of line. The curve is

30 degrees. Also he was worried that due to the amount of drugs I take to cope

with the pain he would have nowhere to go with pain relief after the op. So now

says I have to make the call to have it done if I cannot possibly live with this

pain

continually. He said I would have a 60%/40% of getting some pain relief in my

leg where I get the sciatica pain but very little can be done for the pain in

the back. Breaking down the 40% he said 30% I would have the same amount of pain

as now & possibly more & 10% would be a disaster. I don't particularly like

those odds knowing that I seem to attract problems all my life & am afraid I

would be in the 40% bracket. How do you make a decision based on those odds? I

am so upset it wasn't done 2 and half years ago but what can I do, cannot change

that now. Somehow I have to make a choice.