Medications

[Guest guest]

Shirley, we have tried various naturnal enzymes and vitamins with Evan and

except for a very healthy child have seen no differences in his behaivor. I

am just ventured into the essential or aromtherapy oils and am not sure

what, if any results that we will see with his behavior. If I see something

definate, I will certainly post.

As far as having something to sell, I have seen items occasionally posted.

BETTY

----- Original Message -----

From: " wild61child " <wild61child@...>

> I would like to hear from people who have used a natural enzymes or

> vitamin therapy to help with behavior problems and what type of

> results they see. Also would like to know if it is acceptable to

> post autism related items for sale on here. Thank you, Shirley

[Guest guest]

We've been doing the enzymes thru houston nutritionals and watching

the casien, he didn't test bad on the wheat, but I'm still kind of

watching it too. I'm hoping the enzymes will help with that.

I've read on Boyd Haley's website that Thimerosal inhibits like 30

some enzymes. So were are doing that to help with is digestion etc.

Enzymes are suppose to be the catalyst for many biochemical

reactions in the body.

We're giving him Brainchild's vitamins and minerals too and working

up on the dosage of them. So far I think he's done rather well.

However, we've had our raspberry problem. Not sure if that's

related or not! But he seems to be more verbal these days so I

think the vitamins and minerals are helping alot. I've e-mail Terri

at Brainchilds and she said that the minerals really help calm our

kiddos down. It seemed to be true with my son. . . he

doesn't " speak in whale " (as we affectionately call it, You know

like Dory in Finding Nemo)LOL!

[Guest guest]

For those who have had medications that worked, I am wondering at what

point did you switch to another medicine if it was not working and at

what dose did you need to take before the medicine did work. My 16 yr

old son took 40 Mg prozac for 3 months and then switched to lexapro,

currently 20 mg has been on it for 6 weeks. He has not improved at all;

actually is worse at this point. Wondering whether to change

medication, increase medication, or stick with what he's taking for a

longer period of time. Thanks,

[Guest guest]

My daughter tried Zoloft first, at a very low dose (perhaps too low) but seemed

to get even worse on it. She was only on it for a few weeks before being

switched to Prozac, which has been her " wonder drug. " We saw dramatic

improvement within a week or two of switching. FYI, she is now 10 and was 9 when

diagnosed.

P.

lsl80 <LL0854@...> wrote:

For those who have had medications that worked, I am wondering at what

point did you switch to another medicine if it was not working and at

what dose did you need to take before the medicine did work. My 16 yr

old son took 40 Mg prozac for 3 months and then switched to lexapro,

currently 20 mg has been on it for 6 weeks. He has not improved at all;

actually is worse at this point. Wondering whether to change

medication, increase medication, or stick with what he's taking for a

longer period of time. Thanks,

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[Guest guest]

I would do your research about use of Ritalin with children on the

spectrum. Many children with autism do not respond well to Ritalin.

It makes me wonder how much experience your psychiatrist has with

autism. There are a variety of other medications that can be used

(Tenex, Concerta, Strettera, etc.)

Bill

>

>

> In a message dated 11/28/2005 5:54:04 P.M. Central Standard Time,

> Autism and Aspergers Treatment writes:

>

> MUCH better off at home with me. However, he has a lot of issues

that

> I don't know how to help. The psychiatrist wants to put him on

> Ridalin. I am STRONGLY against that, or any medication. The

problem

> is that he get's mean, violent and distructive

>

>

> * I would suggest that you be open minded about the possibility

of

> medicines if they are needed for your son. Many times medicines are

very necessary

> and with them a child is completely changed.

> My son is completely different on his medicines and without them

he is not

> able to function like a normal human at all. He is now 16, ADHD

and

> ASpergers, on the high honor roll, all As, does well , and his

medicines have really

> been a godsend for him. He has been on the medicines since he was

about 3. I

> know that sounds odd, but he needed them DRASTICALLY then, he was

very hyper

> and was on a low dose. He has never been hurt by any kind of

medicine and

> everyone has to find the right medication for their situation all

are different

> and of course some never need medications and for them, if that

works, that

> is great!

>

> in IL

>

[Guest guest]

I would have to agree here. A lot of kids don't respond to these types of meds, and from experience, I'd start with something else. My son did horrible on Concerta, Adderall, Ritalin and Strattera. The only drug that ever helped was an SSRI. It helped with temper and anxiety.

a-- "Bill Nason" <nasonbill@...> wrote:I would do your research about use of Ritalin with children on the spectrum. Many children with autism do not respond well to Ritalin. It makes me wonder how much experience your psychiatrist has with autism. There are a variety of other medications that can be used (Tenex, Concerta, Strettera, etc.)

[Guest guest]

IM also against meds although ….not totally. I hold a

prescription (not yet filled) of a very strong medication used for scheiziphemia patients. Risperdal. My son is 8 on the spectrum, high IQ with

variation of aspergers with language disorder. Our

doctor told us he has more sensory issues than anything and could possibly grow

out of them. The doctor was real understanding about his meds told me to take

my time that it doesn’t work for everyone and I would know right away if

it worked or not. My son had been

on various meds for his first dx of ADHD going by this, the doctor asked if it had been effective, I don’t

think any of them were. But because of this, he has decided to try this med. I

see other children on the spectrum and I think, hmm…my son doesn’t do

that or that…no melt downs…IM just a bit

confused.

Deb’s J

medications

In a

message dated 11/28/2005 5:54:04 P.M. Central Standard Time,

Autism and Aspergers Treatment writes:

MUCH

better off at home with me. However, he has a lot of issues that

I don't know how to help. The psychiatrist wants to put him on

Ridalin. I am STRONGLY against that, or any medication. The problem

is that he get's mean, violent and distructive

*

I would suggest that you be open minded about the possibility of medicines if

they are needed for your son. Many times medicines are very necessary and with

them a child is completely changed.

My son

is completely different on his medicines and without them he is not able

to function like a normal human at all. He is now 16, ADHD and ASpergers, on

the high honor roll, all As, does well , and his medicines have really

been a godsend for him. He has been on the medicines since he was about 3. I

know that sounds odd, but he needed them DRASTICALLY then, he was very hyper

and was on a low dose. He has never been hurt by any kind of medicine and everyone

has to find the right medication for their situation all are different and of

course some never need medications and for them, if that works, that is great!

in IL

--

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[Guest guest]

Hi. also never responded to meds as one would expect. I'm a

psychiatric advanced practice nurse (meaning I prescribe psych meds)

and from everything I've read and seen, our " aspies " respond much more

quickly to very low doses of meds than the " NT " kids. This has been

one area I've had difficulty convincing 's doctors of...when the

meds works and he still has some anxiety, they tend to boost the med

(which is what you do with " NT " people. The med then either loses its

efficacy or worse yet, increases anxiety. As you may have read in my

earlier postings, 's currently in a psychiatric hospital due to

his depression. I'm trying to get the inpt. psychiatrists to consult

with a psychiatrist whose specialty is in AS/PDD/autism.

>

>

> I would do your research about use of Ritalin with children on the

> spectrum. Many children with autism do not respond well to Ritalin.

> It makes me wonder how much experience your psychiatrist has with

> autism. There are a variety of other medications that can be used

> (Tenex, Concerta, Strettera, etc.)

>

[Guest guest]

At least for anxiety, SSRIs seem to do best for children on the

spectrum. For agitation and anxiety, I would recommend trying a low

dose of SSRIs (Zoloft, prozac, paxil, etc.) before using anti-anxiety

agents of anti-psychotic medication.

Bill

>

>

> I would do your research about use of Ritalin with children on the

> spectrum. Many children with autism do not respond well to Ritalin.

> It makes me wonder how much experience your psychiatrist has with

> autism. There are a variety of other medications that can be used

> (Tenex, Concerta, Strettera, etc.)

>

[Guest guest]

Trileptal is often used as a mood stablizer in the few cases that I

have seen it used. It depends if the ADHD symptoms are a by product

of a mood disorder I would imagine. ADHD type symptoms can occur

for different reasons with children on the spectrum.

Ritalin in frequently presribed for chidren with ADHD, but doesn't

usually work as well for the same symptoms in autism. They often

use different medication for ADHD symptoms in Autism. I think that

may lie in the different deficits underlying the same symptoms

(difficulty focusing, implusivity, and overactivity). For example,

if the symptoms are due to an under aroused nervous system, than the

child will be hyperactive to maintain an optimum level of arousal.

In such cases a stimulant medication would probably be helpful.

However, if the same symptoms were due to an over-aroused nervous

system, than the child would be overactive and disorganized because

their nervous is on " high alert " and constantly in a " fight or

flight " mode. I would imagine that stimulants would not be good

for that, whereas medication to calm the nervous system would work

better. Also, if the ADHD symptoms are actually due to executive

functioning deficits in neurological pathways unrelated to hypo or

hyper aroused nervous system, than different medications might be

prescribed. That is why several different classes of medication are

available for treating these systems.

I know this is confusing, and I am not a medical expert on

medication and ADHD. However, the main difference in ADHD without

autism is that usually the child has greater social/emotional

connection with others (joint attention, emotion sharing, social

referencing, etc.).

Sorry so confusing,

Bill

[Guest guest]

Thanks for your input. It does make sense

and it sounds like I need to know the underlying reason for the ADHD

characteristics in my daughter. I have really learned a lot from your

responses to others and what to thank you fro sharing your expertise with all

of us.

Gretchen

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Bill Nason

Sent: Tuesday, November 29, 2005

11:45 PM

Autism and Aspergers Treatment

Subject: Re:

medications

Trileptal is often used as a mood stablizer in the

few cases that I

have seen it used. It depends if the ADHD

symptoms are a by product

of a mood disorder I would imagine. ADHD

type symptoms can occur

for different reasons with children on the

spectrum.

Ritalin in frequently presribed for chidren with

ADHD, but doesn't

usually work as well for the same symptoms in

autism. They often

use different medication for ADHD symptoms in

Autism. I think that

may lie in the different deficits underlying the

same symptoms

(difficulty focusing, implusivity, and

overactivity). For example,

if the symptoms are due to an under aroused

nervous system, than the

child will be hyperactive to maintain an optimum

level of arousal.

In such cases a stimulant medication would

probably be helpful.

However, if the same symptoms were due to an

over-aroused nervous

system, than the child would be overactive and

disorganized because

their nervous is on " high alert " and

constantly in a " fight or

flight " mode. I would imagine

that stimulants would not be good

for that, whereas medication to calm the nervous

system would work

better. Also, if the ADHD symptoms are

actually due to executive

functioning deficits in neurological pathways

unrelated to hypo or

hyper aroused nervous system, than different

medications might be

prescribed. That is why several different

classes of medication are

available for treating these systems.

I know this is confusing, and I am not a medical

expert on

medication and ADHD. However, the main

difference in ADHD without

autism is that usually the child has greater

social/emotional

connection with others (joint attention, emotion

sharing, social

referencing, etc.).

Sorry so confusing,

Bill

[Guest guest]

Thanks for your input. It does make sense

and it sounds like I need to know the underlying reason for the ADHD

characteristics in my daughter. I have really learned a lot from your

responses to others and what to thank you fro sharing your expertise with all

of us.

Gretchen

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Bill Nason

Sent: Tuesday, November 29, 2005

11:45 PM

Autism and Aspergers Treatment

Subject: Re:

medications

Trileptal is often used as a mood stablizer in the

few cases that I

have seen it used. It depends if the ADHD

symptoms are a by product

of a mood disorder I would imagine. ADHD

type symptoms can occur

for different reasons with children on the

spectrum.

Ritalin in frequently presribed for chidren with

ADHD, but doesn't

usually work as well for the same symptoms in

autism. They often

use different medication for ADHD symptoms in

Autism. I think that

may lie in the different deficits underlying the

same symptoms

(difficulty focusing, implusivity, and

overactivity). For example,

if the symptoms are due to an under aroused

nervous system, than the

child will be hyperactive to maintain an optimum

level of arousal.

In such cases a stimulant medication would

probably be helpful.

However, if the same symptoms were due to an

over-aroused nervous

system, than the child would be overactive and

disorganized because

their nervous is on " high alert " and

constantly in a " fight or

flight " mode. I would imagine

that stimulants would not be good

for that, whereas medication to calm the nervous

system would work

better. Also, if the ADHD symptoms are

actually due to executive

functioning deficits in neurological pathways

unrelated to hypo or

hyper aroused nervous system, than different

medications might be

prescribed. That is why several different

classes of medication are

available for treating these systems.

I know this is confusing, and I am not a medical

expert on

medication and ADHD. However, the main

difference in ADHD without

autism is that usually the child has greater

social/emotional

connection with others (joint attention, emotion

sharing, social

referencing, etc.).

Sorry so confusing,

Bill

[Guest guest]

Since Trileptal is a seizure medication for epileptics it would make me a

little nervous used for a mood stabilizer, however I do know a 12 year old

who is on it for that reason while her 4 year old epileptic brother is on it

for a totally different reason!

Re: medications

Trileptal is often used as a mood stablizer in the few cases that I

have seen it used. It depends if the ADHD symptoms are a by product

of a mood disorder I would imagine. ADHD type symptoms can occur

for different reasons with children on the spectrum.

[Guest guest]

Charlotte,

Interesting enough, several of the anti-convulsant medications are

used to mood disorders. Depakote and Tegretal are other seizure

medications use for mood control. There side effects are less

intense than something like Lithium. If you look closely at many of

the psychotropic medications, they were initially developed for

another use and than became know to be good behavior/mood medications.

Bill

>

> Since Trileptal is a seizure medication for epileptics it would

make me a

> little nervous used for a mood stabilizer, however I do know a 12

year old

> who is on it for that reason while her 4 year old epileptic brother

is on it

> for a totally different reason!

>

> Re: medications

>

>

> Trileptal is often used as a mood stablizer in the few cases that I

> have seen it used. It depends if the ADHD symptoms are a by

product

> of a mood disorder I would imagine. ADHD type symptoms can occur

> for different reasons with children on the spectrum.

>

[Guest guest]

Bill Nason wrote:

>

> Charlotte,

>

> Interesting enough, several of the anti-convulsant medications are

> used to mood disorders. Depakote and Tegretal are other seizure

> medications use for mood control. There side effects are less

> intense than something like Lithium. If you look closely at many of

> the psychotropic medications, they were initially developed for

> another use and than became know to be good behavior/mood medications.

>

In fact, Depakote is one of the meds Louie takes, along with his

Risperdal. Seems to keep him really level in his moods, but not robotic

in the least. Our kids tend to be atypical even in their reactions

to novel uses of meds meant for other things.

Annie, who loves ya annie@...

--

Madness takes its toll. Please have exact change ready. -- anon of ibid

[Guest guest]

Lithium is used effectively for bipolar disorder. The major problems

is it is very on the kidneys and liver, and you have to be careful of

toxicity. You have to have frequent blood work to monitor side

effects.

bill

> > >

> > > Since Trileptal is a seizure medication for epileptics it would

> > make me a

> > > little nervous used for a mood stabilizer, however I do know a

12

> > year old

> > > who is on it for that reason while her 4 year old epileptic

> brother

> > is on it

> > > for a totally different reason!

> > >

> > > Re: medications

> > >

> > >

> > > Trileptal is often used as a mood stablizer in the few cases

that

> I

> > > have seen it used. It depends if the ADHD symptoms are a by

> > product

> > > of a mood disorder I would imagine. ADHD type symptoms can

occur

> > > for different reasons with children on the spectrum.

> > >

> >

>

[Guest guest]

Yes,

I remember that the person who is taking lithium told me that the

doctor had prescribed it with no problems because he had good kidneys.

But, again, I ask the question, why would it be prescribed in the

case of AS? Also, what about cod liver, what does it do for AS kids?

Do you think that sugar or any foods with sugar can make a big

difference in the moods of an AS kid from one day to the next...

My son has been very good without eating ice cream and high sugar

content for a while and last week we have bought some again. If it is

in the house, it disappears in one or two days( my husband and

especially my son will dig into the bucket very fast.

Well, he has been more agressive and things are not good again.

Lolo

> > > >

> > > > Since Trileptal is a seizure medication for epileptics it

would

> > > make me a

> > > > little nervous used for a mood stabilizer, however I do know

a

> 12

> > > year old

> > > > who is on it for that reason while her 4 year old epileptic

> > brother

> > > is on it

> > > > for a totally different reason!

> > > >

> > > > Re: medications

> > > >

> > > >

> > > > Trileptal is often used as a mood stablizer in the few cases

> that

> > I

> > > > have seen it used. It depends if the ADHD symptoms are a by

> > > product

> > > > of a mood disorder I would imagine. ADHD type symptoms can

> occur

> > > > for different reasons with children on the spectrum.

> > > >

> > >

> >

>

[Guest guest]

Lithium is used to treat bipolar disorder, autism or not autism.

Usually when you see Lithium used in autism is when there is a co-

existing bipolar condition.

Bill

> > > > >

> > > > > Since Trileptal is a seizure medication for epileptics it

> would

> > > > make me a

> > > > > little nervous used for a mood stabilizer, however I do

know

> a

> > 12

> > > > year old

> > > > > who is on it for that reason while her 4 year old

epileptic

> > > brother

> > > > is on it

> > > > > for a totally different reason!

> > > > >

> > > > > Re: medications

> > > > >

> > > > >

> > > > > Trileptal is often used as a mood stablizer in the few

cases

> > that

> > > I

> > > > > have seen it used. It depends if the ADHD symptoms are a

by

> > > > product

> > > > > of a mood disorder I would imagine. ADHD type symptoms

can

> > occur

> > > > > for different reasons with children on the spectrum.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

It is not a med for aspergers, but for bipolar. The side effects can

be strong, so the medication has to be monitored closely.

bill

> > >

> > > Since Trileptal is a seizure medication for epileptics it would

> > make me a

> > > little nervous used for a mood stabilizer, however I do know a

12

> > year old

> > > who is on it for that reason while her 4 year old epileptic

> brother

> > is on it

> > > for a totally different reason!

> > >

> > > Re: medications

> > >

> > >

> > > Trileptal is often used as a mood stablizer in the few cases

that

> I

> > > have seen it used. It depends if the ADHD symptoms are a by

> > product

> > > of a mood disorder I would imagine. ADHD type symptoms can

occur

> > > for different reasons with children on the spectrum.

> > >

> >

>

[Guest guest]

Hi,

goodquestion. We usually start our patients on liquid or effervescent (lettingit go flat first) of the medications in the first month or two, until theyprogress to n diet. However surgeons are usually ok with smallertablets.

Nazy

Medications

Hieveryone,

I have notseen this subject brought up, but my PA-C and I are having a discussion onwhen, or if, Pts s/p Roux-en-Y bypasses can begin taking regular pills withoutcrushing them. How aboutextended-release pills that tend to be very large (i.e.: ER-Depakote). Our major concern is the possibilityof large meds obstructing the stoma.

Any andall responses are appreciated!! Thanks!

PattiPatti Kuberski, RD, CNSDBariatricDietitianBariatric Surgery Program734-396-8394pkuberski@...

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[Guest guest]

Many RNY pts are advised to avoid timed-released meds because they

are forumlated to sit in the stomach and be bathed in stomach acid

to slowly dissolve. For RNY pts, they pass right through without

spending enough time in an acidic environment.

>

>

> Hi,

> good question. We usually start our patients on liquid or

effervescent (letting it go flat first) of the medications in the

first month or two, until they progress to n diet. However surgeons

are usually ok with smaller tablets.

> Nazy

>

> Medications

>

>

> Hi everyone,<?xml:namespace prefix = o ns = " urn:schemas-microsoft-

com:office:office " />

>

> I have not seen this subject brought up, but my PA-C and I are

having a discussion on when, or if, Pts s/p Roux-en-Y bypasses can

begin taking regular pills without crushing them. How about

extended-release pills that tend to be very large (i.e.: ER-

Depakote). Our major concern is the possibility of large meds

obstructing the stoma.

>

> Any and all responses are appreciated!! Thanks!

>

> Patti

>

>

> Patti Kuberski, RD, CNSD

> Bariatric Dietitian

> Bariatric Surgery Program

> 734-396-8394

> pkuberski@...

>

>

>

> _____

>

>

<http://us.rd./mail_us/taglines/virusmail/*http://mail.

..com> Mail - Helps protect you from nasty viruses.

>

>

>

[Guest guest]

We say pts can swallow pills whole @ the end of 4 wks post-op or 30 days.

Extended release once they can swallow.

Strathdee, RD, LD,.LMHC

Center for Bariatric Surgery

Genesis Medical Center, Davenport, IA

>>> pkuberski@... 2/8/2006 11:26 AM >>>

Hi everyone,

I have not seen this subject brought up, but my PA-C and I are having a

discussion on when, or if, Pts s/p Roux-en-Y bypasses can begin taking regular

pills without crushing them. How about extended-release pills that tend to be

very large (i.e.: ER-Depakote). Our major concern is the possibility of large

meds obstructing the stoma.

Any and all responses are appreciated!! Thanks!

Patti

Patti Kuberski, RD, CNSD

Bariatric Dietitian

Bariatric Surgery Program

734-396-8394

pkuberski@...

---------------------------------

- Helps protect you from nasty viruses.

[Guest guest]

I was at a mtg over the weekend, and it sounded like at their facility, they do

not use any extended release meds.

Strathdee

>>> pkuberski@... 2/13/2006 1:07 PM >>>

Thanks for all the info on when you allow pts to take whole

medications!!

Patti

[Guest guest]

>

> Thanks yall for your info about prozac. I just got done doing some

> surfing and found the funniest site with info about meds. The dude

> who writes had me HeeHee-ing through everything I read. Be sure to

> get to the bottom of the page.

>

> http://www.crazymeds.org/

>

> Kim

That was funny, and informative.

>

[Guest guest]

lately i've been wondering what i'd do if i had to switch to different

medications. currently i take feldene and sulfasalazine for pain relief, but

after reading about some of the more effective drugs that need to be injected,

i'm wondering how i'd deal with that. i have drug coverage paid for by an

insurance plan i belong to, and currently i have my medication sent from home

thru the post (i live in china). if i was prescribed remicade or some other

drug, i'm not sure how i could deal with it, since if i bought it here in asia,

my drug plan probably wouldnt cover it, and i'm not sure some of these more

effective injectable drugs can be safely sent thru the mail system.

does anyone have any comments on this? just thinking of contingencies in case my

condition changes......

warmest regards ~ james

__________________________________________________