Re: Scoliosis & esophageal issues. Can anyone relate?

[Guest guest]

Hi-

What is " some " scoliosis? Have you had your curvature(s) measured and where

in your spine are they located? I assume you are seeing a adult scoliosis

specialist, what have they told you about your spine? I am 52 and had

scoliosis Harrington rod fusion surgery in 1977. I started have

difficulties around 5 - 6 years ago in my lower lumbar and shoulder/neck

area, pain, muscle tightness and spasms, etc. I have acid reflux issues as

well but I don't believe they are caused by the scoliosis as my curve was

significantly reduced from surgery. Like you, I have degenerative disc

issues that are above and below the fused part of my spine. I have problems

with joint pain in nearly all my joints, hands, feet, knees, hips, wrist -

etc., that I have been seeing doctors for during the past 6 years. Nobody

has found anything other than regular arthritis. Currently I am receiving

physical therapy for all the knotted muscles in my hips, back, and neck,

trying to loosen them up. I do find that stretching - exercises prescribed

by my p/t really help a lot to reduce my pain.

If you haven't seen a scoliosis specialist, I recommend you do so. You

might also try and find a physiatrist that specializes in back pain. They

focus on non-surgical pain remedies and might be able to help you reduce

some of your pain.

Best of luck to you,

Jeanne

From: Scoliosis Treatment

[mailto:Scoliosis Treatment ] On Behalf Of sanderspeggy01

Sent: Wednesday, August 10, 2011 3:32 PM

Scoliosis Treatment

Subject: Scoliosis & esophageal issues. Can anyone

relate?

I am 61 and have some scoliosis I have beenn aware of for years. Chronic

back pain for 20 years & esophageal issues that started probably 10 yrs ago

but more intense around 2007. I have chronic throat pain and neck pain. I do

have some degenerative neck disease and osteoporosis. I have had every test

you can imagine and it just dawned on me the other day that maybe all these

spine issues could be causing my coughing, hoarse throat, nect pain, etc. Of

course doctors never mentioned it.

[Guest guest]

Hi Jeanne,

Just this morning I read an article by Dr. Mercola about how flouride in our

water, toothpaste, etc. can cause joint pain.  Here is the link:

http://articles.mercola.com/sites/articles/archive/2011/08/10/fluoride-can-damag\

e-your-bones.aspx

Warmly,

M. (Toronto)

________________________________

From: Slinker <slinkers5@...>

Scoliosis Treatment

Sent: Thursday, August 11, 2011 7:56:23 AM

Subject: RE: Scoliosis & esophageal issues. Can anyone

relate?

 

Hi-

What is " some " scoliosis? Have you had your curvature(s) measured and where

in your spine are they located? I assume you are seeing a adult scoliosis

specialist, what have they told you about your spine? I am 52 and had

scoliosis Harrington rod fusion surgery in 1977. I started have

difficulties around 5 - 6 years ago in my lower lumbar and shoulder/neck

area, pain, muscle tightness and spasms, etc. I have acid reflux issues as

well but I don't believe they are caused by the scoliosis as my curve was

significantly reduced from surgery. Like you, I have degenerative disc

issues that are above and below the fused part of my spine. I have problems

with joint pain in nearly all my joints, hands, feet, knees, hips, wrist -

etc., that I have been seeing doctors for during the past 6 years. Nobody

has found anything other than regular arthritis. Currently I am receiving

physical therapy for all the knotted muscles in my hips, back, and neck,

trying to loosen them up. I do find that stretching - exercises prescribed

by my p/t really help a lot to reduce my pain.

If you haven't seen a scoliosis specialist, I recommend you do so. You

might also try and find a physiatrist that specializes in back pain. They

focus on non-surgical pain remedies and might be able to help you reduce

some of your pain.

Best of luck to you,

Jeanne

From: Scoliosis Treatment

[mailto:Scoliosis Treatment ] On Behalf Of sanderspeggy01

Sent: Wednesday, August 10, 2011 3:32 PM

Scoliosis Treatment

Subject: Scoliosis & esophageal issues. Can anyone

relate?

I am 61 and have some scoliosis I have beenn aware of for years. Chronic

back pain for 20 years & esophageal issues that started probably 10 yrs ago

but more intense around 2007. I have chronic throat pain and neck pain. I do

have some degenerative neck disease and osteoporosis. I have had every test

you can imagine and it just dawned on me the other day that maybe all these

spine issues could be causing my coughing, hoarse throat, nect pain, etc. Of

course doctors never mentioned it.

[Guest guest]

What are your curve degrees (including neck)? Do you have trouble

swallowing food?

Jolene Morell

Shop online at _www.InheritedButtons.com_

(http://www.inheritedbuttons.com/)

[Guest guest]

i may sound like a smart-ass but I don't understand the pain issues.  I have

scoliosis and had it fixed many years ago (1966)  I have no pain or have ever

had pain associate with the scoliosis.  Am I missing something with the pain

issues--this has bothered me for sometime and I have asked before but don't get

an answer back to my question. I have received some rather strange replies such

as why am I on this site if I don't suffer.  I thought this was a scoliosis

site for all people with this.  Can I get a legimate answer as to the pain

From: Slinker <slinkers5@...>

Scoliosis Treatment

Sent: Thursday, August 11, 2011 7:56:23 AM

Subject: RE: Scoliosis & esophageal issues. Can anyone

relate?

 

Hi-

What is " some " scoliosis? Have you had your curvature(s) measured and where

in your spine are they located? I assume you are seeing a adult scoliosis

specialist, what have they told you about your spine? I am 52 and had

scoliosis Harrington rod fusion surgery in 1977. I started have

difficulties around 5 - 6 years ago in my lower lumbar and shoulder/neck

area, pain, muscle tightness and spasms, etc. I have acid reflux issues as

well but I don't believe they are caused by the scoliosis as my curve was

significantly reduced from surgery. Like you, I have degenerative disc

issues that are above and below the fused part of my spine. I have problems

with joint pain in nearly all my joints, hands, feet, knees, hips, wrist -

etc., that I have been seeing doctors for during the past 6 years. Nobody

has found anything other than regular arthritis. Currently I am receiving

physical therapy for all the knotted muscles in my hips, back, and neck,

trying to loosen them up. I do find that stretching - exercises prescribed

by my p/t really help a lot to reduce my pain.

If you haven't seen a scoliosis specialist, I recommend you do so. You

might also try and find a physiatrist that specializes in back pain. They

focus on non-surgical pain remedies and might be able to help you reduce

some of your pain.

Best of luck to you,

Jeanne

From: Scoliosis Treatment

[mailto:Scoliosis Treatment ] On Behalf Of sanderspeggy01

Sent: Wednesday, August 10, 2011 3:32 PM

Scoliosis Treatment

Subject: Scoliosis & esophageal issues. Can anyone

relate?

I am 61 and have some scoliosis I have beenn aware of for years. Chronic

back pain for 20 years & esophageal issues that started probably 10 yrs ago

but more intense around 2007. I have chronic throat pain and neck pain. I do

have some degenerative neck disease and osteoporosis. I have had every test

you can imagine and it just dawned on me the other day that maybe all these

spine issues could be causing my coughing, hoarse throat, nect pain, etc. Of

course doctors never mentioned it.

[Guest guest]

Okay in response to your question... People have problems with scoliosis. It

causes pain in a large percentage of the population. Corrective surgeries don't

always eliminate the problems. The doctors used to say that scoliosis didn't

cause pain. However in my case that's how it was discovered that I had

scoliosis, because I hurt like hell. I was 12 years old and I haven't had a pain

free day since. After FOUR surgeries I am now completely disabled and in

absolute sheer and terrifying pain each and every day. Some days I don't even

know how I can possibly stand it for a second longer. I can no longer function

as a normal person because of Flat Back Syndrome and scoliosis. I can hardly

walk, sit or stand. Laying down is also painful so I can rarely get any relief.

So if you don't have pain, then I suggest you count yourself very lucky indeed.

The other part of the equation is that these newsgroups exist by and large

either to help out those going through the surgery process or those experiencing

issues and problems post surgical. In other words they are either for or about

people that are going to have surgery or are having problems with the recovery.

And one further point is that Flat Back Syndrome doesn't necessarily start for

twenty to thirty years post operative with Harrington procedures from that time.

So some people are now coping with pain that has just popped up to their horror

and surprise. The people like yourself that have no pain don't join the

newsgroups. They don't need to. They can go about their lives in relative peace.

The rest of us do need them and rely on the advice of others. I have been

moderating scoliosis newsgroups since the old MIT server of the early nineties.

I have seen and heard enough stories to convince me that scoliosis is one of the

worse diseases you can possible have because by and large no one understands the

trauma and pain that exists for some people. We have to fight tooth and nail to

convince people that the pain is real. Ask people that are disabled due to

scoliosis in the USA and trying to get disability payments about how hard it is

to get anybody to recognize that the pain is real and debilitating. Even some

doctors, who should better still maintain that scoliosis doesn't cause pain.

So hopefully I answered your question... you don't need to understand the pain,

you just have to understand that some people are in a world of hurt. I guess if

some people are reluctant to answer your queries it might be a case of a failure

to understand. I used to talk to my ex-wife about the pain. She would nod her

head and listen to what I had to say but she never really got it because she

didn't have a clue just how bad it was. And I could never tell her or even make

her understand how I felt because we weren't on the same page in terms of pain.

But I can honestly tell you that talking to someone on the Flat Back Syndrome

group about how bad things can get, they do understand and they will respond.

Anyway I really hope this helps. Your most welcome to be here and I sincerely

hope you never get to the point that you will understand because that will mean

that you finally got hit with a pain issue.

As a further note... those dealing with surgical procedures now shouldn't

compare the results to what I have stated above. The surgeries are much

different now.

Moderator

>

> i may sound like a smart-ass but I don't understand the pain issues.  I have

scoliosis and had it fixed many years ago (1966)  I have no pain or have ever

had pain associate with the scoliosis.  Am I missing something with the pain

issues--this has bothered me for sometime and I have asked before but don't get

an answer back to my question. I have received some rather strange replies such

as why am I on this site if I don't suffer.  I thought this was a scoliosis

site for all people with this.  Can I get a legimate answer as to the pain

>

[Guest guest]

I would say you are very fortunate not to have pain issues. What kind of

“legitimate†answer to the pain issue do you need? I don’t understand.

If you have been reading all the posting here from people who are in pain, you

should really have an idea about what is causing their pain. For me, I had my

fusion (11 levels) done in 1977 and up until about 5 years ago I didn’t have

any real problems. During these past five years I have developed arthritis in

my facet joints in my lumbar spine, I have a few compressed vertebrae in my neck

and lower unfused lumbar spine. My muscles are knotted from my neck to my rump

and I am now getting physical therapy and massage to try and loosen things up.

Why did this happen to me and not you – I have no idea. We would need to see

a doctor together and have them compare your spine to mine. Everyone is

different.

From: Scoliosis Treatment

[mailto:Scoliosis Treatment ] On Behalf Of Durand

Sent: Thursday, August 11, 2011 2:11 PM

Scoliosis Treatment

Subject: Re: Scoliosis & esophageal issues. Can anyone

relate?

i may sound like a smart-ass but I don't understand the pain issues. I have

scoliosis and had it fixed many years ago (1966) I have no pain or have ever

had pain associate with the scoliosis. Am I missing something with the pain

issues--this has bothered me for sometime and I have asked before but don't get

an answer back to my question. I have received some rather strange replies such

as why am I on this site if I don't suffer. I thought this was a scoliosis site

for all people with this. Can I get a legimate answer as to the pain

From: Slinker <slinkers5@... <mailto:slinkers5%40sbcglobal.net> >

Scoliosis Treatment

<mailto:Scoliosis Treatment%40>

Sent: Thursday, August 11, 2011 7:56:23 AM

Subject: RE: Scoliosis & esophageal issues. Can anyone

relate?

Hi-

What is " some " scoliosis? Have you had your curvature(s) measured and where

in your spine are they located? I assume you are seeing a adult scoliosis

specialist, what have they told you about your spine? I am 52 and had

scoliosis Harrington rod fusion surgery in 1977. I started have

difficulties around 5 - 6 years ago in my lower lumbar and shoulder/neck

area, pain, muscle tightness and spasms, etc. I have acid reflux issues as

well but I don't believe they are caused by the scoliosis as my curve was

significantly reduced from surgery. Like you, I have degenerative disc

issues that are above and below the fused part of my spine. I have problems

with joint pain in nearly all my joints, hands, feet, knees, hips, wrist -

etc., that I have been seeing doctors for during the past 6 years. Nobody

has found anything other than regular arthritis. Currently I am receiving

physical therapy for all the knotted muscles in my hips, back, and neck,

trying to loosen them up. I do find that stretching - exercises prescribed

by my p/t really help a lot to reduce my pain.

If you haven't seen a scoliosis specialist, I recommend you do so. You

might also try and find a physiatrist that specializes in back pain. They

focus on non-surgical pain remedies and might be able to help you reduce

some of your pain.

Best of luck to you,

Jeanne

From: Scoliosis Treatment

<mailto:Scoliosis Treatment%40>

[mailto:Scoliosis Treatment

<mailto:Scoliosis Treatment%40> ] On Behalf Of sanderspeggy01

Sent: Wednesday, August 10, 2011 3:32 PM

Scoliosis Treatment

<mailto:Scoliosis Treatment%40>

Subject: Scoliosis & esophageal issues. Can anyone

relate?

I am 61 and have some scoliosis I have beenn aware of for years. Chronic

back pain for 20 years & esophageal issues that started probably 10 yrs ago

but more intense around 2007. I have chronic throat pain and neck pain. I do

have some degenerative neck disease and osteoporosis. I have had every test

you can imagine and it just dawned on me the other day that maybe all these

spine issues could be causing my coughing, hoarse throat, nect pain, etc. Of

course doctors never mentioned it.

[Guest guest]

I was diagnosed with scoliosis when I was six. After five unsuccessful surgeries

I now live with pain. Every day. All day. Some days I can barely get out of bed.

Some days I don't, I just lay there and cry. I have a wonderfully supportive

husband that tries to understand but because he does not live in pain he can't.

He tries. The only description I could give him was to imagine you were carrying

around an eight year old on your back that had a dull knife and a hammer.

Whenever he feels like it he pokes you with the knife and hits you with the

hammer. Over and over again. Everyday. Sometimes both at the same time.

Every decision I make has to take my pain into consideration. We can never make

plans ahead of time because it depends on how I feel. Even the clothes I wear

have to fit a certain way. Seating is a major problem-- it's hard to get

comfortable.

I am glad you don't have pain. I wouldn't wish it on my worst enemy. Finding

this group has probably kept me from going crazy. Or worse. My doctor kept

telling me I didn't have pain that there was no reason for it. Everything was

designed to " fix me " didn't. I felt like a freak. I hate that everyone else on

here has pain. But since they do I'm glad I found them. It's nice to know I'm

not the only one, I'm not imagining the pain and I am not a freak.

I'm 42 now and have always hated my body for betraying me. I've been in

counseling for the past year with someone that understands chronic pain to try

and get to the point that I can like myself again.

On Aug 11, 2011, at 3:11 PM, Durand <d.durand56@...> wrote:

> i may sound like a smart-ass but I don't understand the pain issues. I have

scoliosis and had it fixed many years ago (1966) I have no pain or have ever

had pain associate with the scoliosis. Am I missing something with the pain

issues--this has bothered me for sometime and I have asked before but don't get

an answer back to my question. I have received some rather strange replies such

as why am I on this site if I don't suffer. I thought this was a scoliosis site

for all people with this. Can I get a legimate answer as to the pain

>

> From: Slinker <slinkers5@...>

> Scoliosis Treatment

> Sent: Thursday, August 11, 2011 7:56:23 AM

> Subject: RE: Scoliosis & esophageal issues. Can anyone

relate?

>

>

> Hi-

>

> What is " some " scoliosis? Have you had your curvature(s) measured and where

> in your spine are they located? I assume you are seeing a adult scoliosis

> specialist, what have they told you about your spine? I am 52 and had

> scoliosis Harrington rod fusion surgery in 1977. I started have

> difficulties around 5 - 6 years ago in my lower lumbar and shoulder/neck

> area, pain, muscle tightness and spasms, etc. I have acid reflux issues as

> well but I don't believe they are caused by the scoliosis as my curve was

> significantly reduced from surgery. Like you, I have degenerative disc

> issues that are above and below the fused part of my spine. I have problems

> with joint pain in nearly all my joints, hands, feet, knees, hips, wrist -

> etc., that I have been seeing doctors for during the past 6 years. Nobody

> has found anything other than regular arthritis. Currently I am receiving

> physical therapy for all the knotted muscles in my hips, back, and neck,

> trying to loosen them up. I do find that stretching - exercises prescribed

> by my p/t really help a lot to reduce my pain.

>

> If you haven't seen a scoliosis specialist, I recommend you do so. You

> might also try and find a physiatrist that specializes in back pain. They

> focus on non-surgical pain remedies and might be able to help you reduce

> some of your pain.

>

> Best of luck to you,

>

> Jeanne

>

> From: Scoliosis Treatment

> [mailto:Scoliosis Treatment ] On Behalf Of sanderspeggy01

> Sent: Wednesday, August 10, 2011 3:32 PM

> Scoliosis Treatment

> Subject: Scoliosis & esophageal issues. Can anyone

> relate?

>

> I am 61 and have some scoliosis I have beenn aware of for years. Chronic

> back pain for 20 years & esophageal issues that started probably 10 yrs ago

> but more intense around 2007. I have chronic throat pain and neck pain. I do

> have some degenerative neck disease and osteoporosis. I have had every test

> you can imagine and it just dawned on me the other day that maybe all these

> spine issues could be causing my coughing, hoarse throat, nect pain, etc. Of

> course doctors never mentioned it.

>

>

[Guest guest]

Dear Friends, Please ask your primary doctor(s) to refer you to a neurologist. 

Swallowing problems may be indicative of something else such as

Charcot-Marie-Tooth Disease, inherited peripheral neuropathy.  27% of CMTers

have scoli, also. 

Lana

From: Lida Kraz <lidakraz@...>

Subject: Scoliosis & esophageal issues. Can anyone relate?

Scoliosis Treatment

Date: Friday, August 12, 2011, 2:36 AM

 

Hello Peggy,

Your email stopped me in my tracks, because I too have begun to have

difficulty swallowing. And before that started, I have had a terrible pain

in my throat from time to time for years, unrelated to anything I can think

of. It can come on any time and in any situation. I have not mentioned it

to my GP because they are such asses (they even missed a severe,

life-threatening thyrotoxicosis!).

It never occurred to me it might be related to my scoliosis, but of course

it could be.

Lida in London

From: Scoliosis Treatment

<mailto:Scoliosis Treatment%40>

<mailto:Scoliosis Treatment%40>

[mailto:Scoliosis Treatment

<mailto:Scoliosis Treatment%40>

<mailto:Scoliosis Treatment%40> ] On Behalf Of sanderspeggy01

Sent: Wednesday, August 10, 2011 3:32 PM

Scoliosis Treatment

<mailto:Scoliosis Treatment%40>

<mailto:Scoliosis Treatment%40>

Subject: Scoliosis & esophageal issues. Can anyone

relate?

I am 61 and have some scoliosis I have beenn aware of for years. Chronic

back pain for 20 years & esophageal issues that started probably 10 yrs ago

but more intense around 2007. I have chronic throat pain and neck pain. I do

have some degenerative neck disease and osteoporosis. I have had every test

you can imagine and it just dawned on me the other day that maybe all these

spine issues could be causing my coughing, hoarse throat, nect pain, etc. Of

course doctors never mentioned it.

<;_ylc=X3oDMTJkMDNqdWw5BF9TAzk3MzU5NzE0BGdycElkAzIwN

zU4OTQEZ3Jwc3BJZAMxNzA1MDk0NzA5BHNlYwNmdHIEc2xrA2dmcARzdGltZQMxMzEzMTEwMzIz>

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[Guest guest]

Dear Diane,

I did not have pain until I was 38 and it was muscle strain. After that I

didn't have daily pain until I was 56. My short fusion done in 1960 did

not keep the above and below fusion from continuing to rotate and curve. I

now have curves of 95/55 and my pain is in my lower spine/hip as well as

muscular. I have a large hump and an opposite jutting out hip.

That You don't have pain is good for you. Maybe you will never have any,

but then again you may later.

Jolene Morell

Shop online at _www.InheritedButtons.com_

(http://www.inheritedbuttons.com/)

[Guest guest]

My pain also came on when I was in my 30s. I'd never had surgery and my curves

made a big jump in a short time, from about 40/30 to 55/45. I became disabled

over the course of a year and a half. I spent 13 years trying many different

treatments before I had surgery at age 47, then again at 48; after the 2nd

surgery I was almost pain free until my rods broke 2 years later. Then I had 2

revision surgeries at which time a screw was inserted into my iliac joint. I had

it removed once my fusion took, 20 months later, but I've been in constant pain

since the 3rd and 4th surgery. I guess all those surgeries and recovery periods

took their toll, especially since I'm not a spring chicken. I've always been

healthy and active so it's been beyond frustrating, not being able to do most of

the things I used to enjoy doing.

I also experienced the attitudes of all the people and doctors who wouldn't

believe that my scoliosis was the source of my pain. But it was. That was proven

after the curves were reduced by 60% and the pain went away. My surgeon became

much more of a believer after that. It is a terrible experience to attempt to

explain your pain to another person who can't possibly understand what it's

like. That's one of the reasons this forum is so helpful. It was the first time

I'd ever heard the types of pains I have described by another who is also

experiencing it. It was the first time I finally realized for sure that there

wasn't just something " wrong " with me. 

So yes, anyone who has scoliosis and no accompanying pain, be thankful. But be

careful too. It comes on in the blink of an eye. And it may not go away.

________________________________

From: " Buttonjo@... " <Buttonjo@...>

Scoliosis Treatment

Sent: Friday, August 12, 2011 11:53 AM

Subject: Re: Scoliosis & esophageal issues. Can anyone

relate?

 

Dear Diane,

I did not have pain until I was 38 and it was muscle strain. After that I

didn't have daily pain until I was 56. My short fusion done in 1960 did

not keep the above and below fusion from continuing to rotate and curve. I

now have curves of 95/55 and my pain is in my lower spine/hip as well as

muscular. I have a large hump and an opposite jutting out hip.

That You don't have pain is good for you. Maybe you will never have any,

but then again you may later.

Jolene Morell

Shop online at _www.InheritedButtons.com_

(http://www.inheritedbuttons.com/)

[Guest guest]

Your throat problem might be indirectly related to your scoliosis, but you might

want to have other conditions checked, like hythia hynera (Spelling?). It's a

valve at the top of the stomach and is more common than most people realize. I

discovered this when I had to take my brother in about his choke/coughing

spells. Just a thought. Llweyn

Sent from my BlackBerry device on the Wireless Network

Scoliosis & esophageal issues. Can anyone relate?

I am 61 and have some scoliosis I have beenn aware of for years. Chronic back

pain for 20 years & esophageal issues that started probably 10 yrs ago but more

intense around 2007. I have chronic throat pain and neck pain. I do have some

degenerative neck disease and osteoporosis. I have had every test you can

imagine and it just dawned on me the other day that maybe all these spine issues

could be causing my coughing, hoarse throat, nect pain, etc. Of course doctors

never mentioned it.