Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Thanks - you were the only one to respond. I was afraid that most people have died by the time that this happens with the ribs. My mother isn't on oxygen yet and refuses to stay in bed for very long - she said she doesn't want to spend her last times laying still and tries to do too much most of the time and then suffers more pain. Just curious if you had surgery yourself....and what is your status right now?Martha Knott/What-Knott Farm www.whatknottfarm.com Scoliosis Treatment@...: kdebats@...: Mon, 14 Jan 2008 10:31:37 -0700Subject: Martha's mom Hi Martha My mother is 77. We have congenital scoliosis in my family. My mother has a105 degree and 80 degree curves. She is on oxygen most of the time becausethe lungs are so small they can't work properly. She also take pain meds onschedule and breaks up her day with a nap. But she still manages to get outone a week for a card game. She can only sit for so long so has a TV in herroom as well for when she lays down. Yes ribs are grinding and she is verycolapsed. D -- severe scoliosis I am on this list because I have 62 degree curve and am 59 years old. I didnt realize it was so severe until about 5-6 years ago - only went to a doctorthen because my sciatic was causing a lot of pain. Right now the orthopedicspecialist is just monitoring the progression of the curve which so far isstable. But my inquiry is about my 92 year old mother who is visiting with me rightnow. She developed scoliosis in the last few years due to osteoporosis. Itis major curvature, but don't know what degree. She is very independent andstill lives by herself although we're not sure how much longer than cancontinue. But in the few days, she's complaining that it feels like her ribsare rubbing together. As much as she's curved, I imagine they are. Hasanyone known anyone that has been that severe and how glum is the futureahead of her? She has pain pills and today tried a pain patch. Her familydoctors are 5 hours away at her hometown and I'm not sure if she can eventravel that far right now. Just need someone to " talk with " .MarthaKnott/What-Knott Farm www.whatknottfarm.com __________________________________________________________ Share life as it happens with the new Windows Live. http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Thanks - you were the only one to respond. I was afraid that most people have died by the time that this happens with the ribs. My mother isn't on oxygen yet and refuses to stay in bed for very long - she said she doesn't want to spend her last times laying still and tries to do too much most of the time and then suffers more pain. Just curious if you had surgery yourself....and what is your status right now? Martha Knott/What-Knott Farm www.whatknottfarm.com > > Hi Martha > My mother is 77. We have congenital scoliosis in my family. My mother has a > 105 degree and 80 degree curves. She is on oxygen most of the time because > the lungs are so small they can't work properly. She also take pain meds on > schedule and breaks up her day with a nap. But she still manages to get out > one a week for a card game. She can only sit for so long so has a TV in her > room as well for when she lays down. Yes ribs are grinding and she is very > colapsed. > > D > -- severe scoliosis > > I am on this list because I have 62 degree curve and am 59 years old. I didn > t realize it was so severe until about 5-6 years ago - only went to a doctor > then because my sciatic was causing a lot of pain. Right now the orthopedic > specialist is just monitoring the progression of the curve which so far is > stable. > But my inquiry is about my 92 year old mother who is visiting with me right > now. She developed scoliosis in the last few years due to osteoporosis. It > is major curvature, but don't know what degree. She is very independent and > still lives by herself although we're not sure how much longer than can > continue. But in the few days, she's complaining that it feels like her ribs > are rubbing together. As much as she's curved, I imagine they are. Has > anyone known anyone that has been that severe and how glum is the future > ahead of her? She has pain pills and today tried a pain patch. Her family > doctors are 5 hours away at her hometown and I'm not sure if she can even > travel that far right now. Just need someone to " talk with " .Martha > Knott/What-Knott Farm www.whatknottfarm.com > __________________________________________________________ > Share life as it happens with the new Windows Live. > http://www.windowslive.com/share.html? ocid=TXT_TAGHM_Wave2_sharelife_012008 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Martha I think my mother does well. She is up in the morning, cooking and things like that, rest in bed in the afternoon and up in the evening. She can't sit all evening though and has to lay on the couch to watch tv. As for myself. In 1974 I had fusions form T2-L4 and a Harrington rod placement at the age of 14 Did well up to about 5 years ago. I started to have a harder time walking without pain in my Right SI joint and had to use a cane for longer distances. Then this last year started popping and grinding and had terribl nerve pain. I couldn't drive. My orth sent all my stuff to a college in Twin Cities Spinal Center and the said they would like to take me on. I went in Aug for 6 procedures. One was to go in the front and build up the collapsed vertabrae with bone dowels. Then in the back They fixed my flat back and removed some of the rod, repositioned the best they could and refused using new hardware. My recover was quick and my therapy was walking of all things. Something I hadn't done forevern. I used a walker and went a little bit more everyday. Now I need no help in walking and I have NO PAIN!!! D -- severe scoliosis > > I am on this list because I have 62 degree curve and am 59 years old. I didn > t realize it was so severe until about 5-6 years ago - only went to a doctor > then because my sciatic was causing a lot of pain. Right now the orthopedic > specialist is just monitoring the progression of the curve which so far is > stable. > But my inquiry is about my 92 year old mother who is visiting with me right > now. She developed scoliosis in the last few years due to osteoporosis. It > is major curvature, but don't know what degree. She is very independent and > still lives by herself although we're not sure how much longer than can > continue. But in the few days, she's complaining that it feels like her ribs > are rubbing together. As much as she's curved, I imagine they are. Has > anyone known anyone that has been that severe and how glum is the future > ahead of her? She has pain pills and today tried a pain patch. Her family > doctors are 5 hours away at her hometown and I'm not sure if she can even > travel that far right now. Just need someone to " talk with " .Martha > Knott/What-Knott Farm www.whatknottfarm.com > __________________________________________________________ > Share life as it happens with the new Windows Live. > http://www.windowslive.com/share.html? ocid=TXT_TAGHM_Wave2_sharelife_012008 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 bone dowls -- severe scoliosis > > I am on this list because I have 62 degree curve and am 59 years old. I didn > t realize it was so severe until about 5-6 years ago - only went to a doctor > then because my sciatic was causing a lot of pain. Right now the orthopedic > specialist is just monitoring the progression of the curve which so far is > stable. > But my inquiry is about my 92 year old mother who is visiting with me right > now. She developed scoliosis in the last few years due to osteoporosis. It > is major curvature, but don't know what degree. She is very independent and > still lives by herself although we're not sure how much longer than can > continue. But in the few days, she's complaining that it feels like her ribs > are rubbing together. As much as she's curved, I imagine they are. Has > anyone known anyone that has been that severe and how glum is the future > ahead of her? She has pain pills and today tried a pain patch. Her family > doctors are 5 hours away at her hometown and I'm not sure if she can even > travel that far right now. Just need someone to " talk with " .Martha > Knott/What-Knott Farm www.whatknottfarm.com > __________________________________________________________ > Share life as it happens with the new Windows Live. > http://www.windowslive.com/share.html? ocid=TXT_TAGHM_Wave2_sharelife_012008 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Great to hear that your latest surgeries have been so successful!Martha Knott/What-Knott Farm www.whatknottfarm.com Scoliosis Treatment@...: kdebats@...: Wed, 16 Jan 2008 09:01:50 -0700Subject: Re: Re: Martha's mom Martha I think my mother does well. She is up in the morning, cooking and thingslike that, rest in bed in the afternoon and up in the evening. She can't sitall evening though and has to lay on the couch to watch tv. As for myself. In 1974 I had fusions form T2-L4 and a Harrington rodplacement at the age of 14 Did well up to about 5 years ago. I started tohave a harder time walking without pain in my Right SI joint and had to usea cane for longer distances. Then this last year started popping andgrinding and had terribl nerve pain. I couldn't drive. My orth sent all mystuff to a college in Twin Cities Spinal Center and the said they would liketo take me on. I went in Aug for 6 procedures. One was to go in the frontand build up the collapsed vertabrae with bone dowels. Then in the back They fixed my flat back and removed some of the rod, repositioned the bestthey could and refused using new hardware. My recover was quick and mytherapy was walking of all things. Something I hadn't done forevern. I useda walker and went a little bit more everyday. Now I need no help in walking and I have NO PAIN!!! D -- severe scoliosis > > I am on this list because I have 62 degree curve and am 59 years old. I didn > t realize it was so severe until about 5-6 years ago - only went to a doctor > then because my sciatic was causing a lot of pain. Right now the orthopedic > specialist is just monitoring the progression of the curve which so far is > stable. > But my inquiry is about my 92 year old mother who is visiting with me right > now. She developed scoliosis in the last few years due to osteoporosis. It > is major curvature, but don't know what degree. She is very independent and > still lives by herself although we're not sure how much longer than can > continue. But in the few days, she's complaining that it feels like her ribs > are rubbing together. As much as she's curved, I imagine they are. Has > anyone known anyone that has been that severe and how glum is the future > ahead of her? She has pain pills and today tried a pain patch. Her family > doctors are 5 hours away at her hometown and I'm not sure if she can even > travel that far right now. Just need someone to " talk with " .Martha > Knott/What-Knott Farm www.whatknottfarm.com > __________________________________________________________ > Share life as it happens with the new Windows Live. > http://www.windowslive.com/share.html? ocid=TXT_TAGHM_Wave2_sharelife_012008 > > [Non-text portions of this message have been removed] > > > > > > [Non-text portions of this message have been removed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 , I'm so happy for you. NO pain. Wow. It's so hard to make those choices, but sounds like you made the right one. Debbie <kdebats@...> wrote: Martha I think my mother does well. She is up in the morning, cooking and things like that, rest in bed in the afternoon and up in the evening. She can't sit all evening though and has to lay on the couch to watch tv. As for myself. In 1974 I had fusions form T2-L4 and a Harrington rod placement at the age of 14 Did well up to about 5 years ago. I started to have a harder time walking without pain in my Right SI joint and had to use a cane for longer distances. Then this last year started popping and grinding and had terribl nerve pain. I couldn't drive. My orth sent all my stuff to a college in Twin Cities Spinal Center and the said they would like to take me on. I went in Aug for 6 procedures. One was to go in the front and build up the collapsed vertabrae with bone dowels. Then in the back They fixed my flat back and removed some of the rod, repositioned the best they could and refused using new hardware. My recover was quick and my therapy was walking of all things. Something I hadn't done forevern. I used a walker and went a little bit more everyday. Now I need no help in walking and I have NO PAIN!!! D -- severe scoliosis > > I am on this list because I have 62 degree curve and am 59 years old. I didn > t realize it was so severe until about 5-6 years ago - only went to a doctor > then because my sciatic was causing a lot of pain. Right now the orthopedic > specialist is just monitoring the progression of the curve which so far is > stable. > But my inquiry is about my 92 year old mother who is visiting with me right > now. She developed scoliosis in the last few years due to osteoporosis. It > is major curvature, but don't know what degree. She is very independent and > still lives by herself although we're not sure how much longer than can > continue. But in the few days, she's complaining that it feels like her ribs > are rubbing together. As much as she's curved, I imagine they are. Has > anyone known anyone that has been that severe and how glum is the future > ahead of her? She has pain pills and today tried a pain patch. Her family > doctors are 5 hours away at her hometown and I'm not sure if she can even > travel that far right now. Just need someone to " talk with " .Martha > Knott/What-Knott Farm www.whatknottfarm.com > __________________________________________________________ > Share life as it happens with the new Windows Live. > http://www.windowslive.com/share.html? ocid=TXT_TAGHM_Wave2_sharelife_012008 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 , One of my severe areas is my left SI joint. I was just going to post a question to ask if anyone else had problems with their SI joint. So-anyone else? ~Moonbeam ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Hi, yes, sometimes I have trouble with S1, my last unfused vertebra, besides my neck. My Surgeon told me if I took good care of it, it could last up to 10 years. Well, sometimes lately, it has hurt. I take advil and take it easy. Losing S1 is a big deal: it affords a lot of body movement. Be sure not to swivel or twist. I will go as long as possible before this one is fused, including injections if need be. Lana L Howell <moonbeamblessings@...> wrote: , One of my severe areas is my left SI joint. I was just going to post a question to ask if anyone else had problems with their SI joint. So-anyone else? ~Moonbeam __________________________________________________________ Never miss a thing. Make your home page. http://www./r/hs --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Yes, Yes, Yes: That is my BIG problem. I thought that my sciatica was due to my lumbar curvature and deterioration of that area including herniated discs. Now that I have had my lumbar fusion and that is stabilized, I see now that most of my problem is my piriformis muscle and SI joint that has clamped down around my sciatic nerve. And that is because those muscles were compensating for my weak lower back for so long. I am doing physical therapy exercises, ultrasound, etc. and still having a very hard time getting that area to calm down. There's a big knot back there. I think my sciatica has decreased somewhat, but will I ever get that SI joint back to normal, and the piriformis? Also left side, by the way. As an aside, has anyone had any experience with their 1st vertebrae, the atlas, that the skull sits on? Several years ago I discovered this elderly chiro that adjusts that area with a device that uses compression to push it back into place. My atlas had probably been out all my life, part of the whole curvature process.( I find the stress on my spine is at my atlas on the right, then to my lower neck on the left, then mid thoracic on the right, then it WAS my lumbar on the right. That has been deleted after my lumbar fusion and straightening of my lumbar curvature. A zigzag from head to sacrum that is my scoliosis curvature. )There are very few chiros in this country that do this precise manuever. (It's hard to manually put your atlas back in because the area is small )I had another adjustment 2 days ago, and this time I could tell it helped my hip and SI joint alot. This is alot of information. If you are confused, let me know and I can explain the atlas adjustment further. It is really amazing and has helped many people I know. People travel from all over the country to see this chiro, who is now 85, to get this adjustment done. I feel lucky to be living in the same small town that he is practicing in. Supposedly, cranio-sacral therapy can also release your atlas, but I think it would take many sessions and quite awhile. I guess what I'm saying is that I think SI problems can actually be related to your atlas being out of place. Debbie L Howell <moonbeamblessings@...> wrote: , One of my severe areas is my left SI joint. I was just going to post a question to ask if anyone else had problems with their SI joint. So-anyone else? ~Moonbeam __________________________________________________________ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
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