Intro

[Guest guest]

Oh Ok Mike, I'm sorry if I upset you. I had no idea that

rheumatologists treated chondromalacia patients. That is

interesting what you said about having knee pain in your teens and

it coming back later in life. I'm glad you have reached a point now

where you are functioning better with it.

I guess I'm so confused about it because it is so different to my

daughters arthritis. My daughters arthritis is food related most of

the time, and different foods flare the arthritis. The arthritis

started with almonds but has been caused by many foods over the

years (and mostly the good healthy stuff too). So by being aware of

this (and a very good allergy clinic) we've been able to keep her

arthritis drug free. So this chrondromalacia is totally different

and doesn't have the simple food explanation that I am used to, plus

she does need painkillers now (doctors have said something like 5 a

day but that is ridiculous).

I hope you can continue to improve :-)

Donna

Australia

>

> In the first place, chondromalacia is a name doctors give anterior

knee pain

> when they really don't know what is causing it. Fortunately

children with

> it usually fully recover without harsh treatment. I was under the

treatment

> of a rheumatologist, and took many different types of prescription

arthritis

> drugs for it. The only one that really worked for me was Vioxx,

but I quit

> taking it about a month before it was taken off the market because

it was

> giving me severe headaches. I had undiagnosed severe pain in both

knees for

> years in my teens, but was relatively painfree for about 25 years

after

> that. I am now 50 and have gone through 4 arthroscopic surgeries

and have

> managed to reach a point where I can function in life hopefully

for years

> yet.

> Mike

> MT

>

> Re: Intro

>

[Guest guest]

Before I wrote my other post, I hadn't read your original post. I think it

would be a good idea to get your daughter out of the forced running until she's

lost weight.

Also, how was she diagnosed as having arthritis?

Ann

Re: Intro

>

[Guest guest]

Well our arthrits diagnosis is a bit strange. She has " reactive

arthritis " most of the time. She does not qualify for a diagnosis

of JIA and JRA as her joints don't swell up enormously (only little

swelling). I've had a few doctors tell me that is what she has. So

it is different to standard child arthrits because of the lack of

really awful swelling, but it is pretty much polyarticular JIA

without the swelling. It is in most big joints - knees, elbows,

ankles, wrists, shoulders and occassionally in fingers too. A few

times it's been her whole body locked up and not be able to move.

She has the morning stiffness, and worse in cold weather symptoms

that others with arthritis have.

I've just emailed her teacher about the not running. Thanks for the

advice :-)

Donna

> >

> > In the first place, chondromalacia is a name doctors give

anterior

> knee pain

> > when they really don't know what is causing it. Fortunately

> children with

> > it usually fully recover without harsh treatment. I was under

the

> treatment

> > of a rheumatologist, and took many different types of

prescription

> arthritis

> > drugs for it. The only one that really worked for me was

Vioxx,

> but I quit

> > taking it about a month before it was taken off the market

because

> it was

> > giving me severe headaches. I had undiagnosed severe pain in

both

> knees for

> > years in my teens, but was relatively painfree for about 25

years

> after

> > that. I am now 50 and have gone through 4 arthroscopic

surgeries

> and have

> > managed to reach a point where I can function in life

hopefully

> for years

> > yet.

> > Mike

> > MT

> >

> > Re: Intro

> >

>

>

>

>

>

>

>

>

[Guest guest]

Re: Intro

> Oh Ok Mike, I'm sorry if I upset you.

No apologies necessary, in fact if anyone apologizes it should be me .

Sometimes when I write it comes off as being mean. I need to work on that.

Mike

MT

[Guest guest]

Re: Intro

> Well our arthrits diagnosis is a bit strange. She has " reactive

> arthritis " most of the time. She does not qualify for a diagnosis

> of JIA and JRA as her joints don't swell up enormously (only little

> swelling). I've had a few doctors tell me that is what she has.

Actually, I have had a few doctors tell me I might have something like this.

Arthritis is nothing more than ANY inflammatory condition of your joints.

There are over 100 types of arthritis including gout. As I have posted

before you joined this group, I currently keep the swelling and pain mostly

under control by wearing Tubigrips;

http://www.continentostomystore.com/Merchant2/merchant.mvc?Screen=PROD & Product_C\

ode=CON151434 & Category_Code=

I would suggest your daughter try this to control swelling. She would need

to get sized probably by going to a large medical supply house. Tubigrips

are made in Great Britain.

I have also had doctors suggest I try going to an allergist, but at this

point I have had my fill of doctors . I'm sure most on this group know

what I mean.

Mike

MT

[Guest guest]

Philip - http://www.xcskiwinn.org/community/blogs/panmanphil/default.aspx

This is all very interesting to me. I'm doing pretty well right now, even made

it through a yoga class this week without any additional pain. My daughter was

diagnosed with JRA at age 2 and now at 16 we have hoped for the signs of

recovery that should have started by now. The only great thing about JRA is that

the diagnosis is its unambiguous and not hard to make. But now that she is

nearly out of adolescence, I wonder what can be done for her. Her pain has been

below the level where drugs are required for many years now, but it is a daily

issue for her. Like others, weight is a problem for her.

I'd not heard that food allergies are an issue with arthritis. I have to admit

that the hairs on the back of my neck stand up when I here that for a few

different reasons. First, I see many people with " self-diagnosed " food allergies

that seem to me to be as much about fashion or making personal statements than

about pain. Wheat, dairy, sugar, all the trappings of conventional diet are

suspect. Nevertheless, food allergies are as real as the air we breath. My wife

as a shellfish allergy that has nearly killed her.

Has anyone else connected JRA and fibromialgia symptoms to specific (as

determined by tests) food allergies with success? One of my sisters suffers from

fibromialgia and has focused on food a lot without much luck in terms of relief.

Re: Intro

> Well our arthrits diagnosis is a bit strange. She has " reactive

> arthritis " most of the time. She does not qualify for a diagnosis

> of JIA and JRA as her joints don't swell up enormously (only little

> swelling). I've had a few doctors tell me that is what she has.

Actually, I have had a few doctors tell me I might have something like this.

Arthritis is nothing more than ANY inflammatory condition of your joints.

There are over 100 types of arthritis including gout. As I have posted

before you joined this group, I currently keep the swelling and pain mostly

under control by wearing Tubigrips;

[Guest guest]

Good luck. I'm sorry your child has arthritis at such a young age. Life is

hard enough without that.

Ann

Re: Intro

> >

>

>

>

>

>

>

>

>

[Guest guest]

Since your daughter has food allergies too, she may have a hyperactive immune

system. Have you had her checked by an immunologist?

Ann

Re: Intro

> Well our arthrits diagnosis is a bit strange. She has " reactive

> arthritis " most of the time. She does not qualify for a diagnosis

> of JIA and JRA as her joints don't swell up enormously (only little

> swelling). I've had a few doctors tell me that is what she has.

Actually, I have had a few doctors tell me I might have something like this.

Arthritis is nothing more than ANY inflammatory condition of your joints.

There are over 100 types of arthritis including gout. As I have posted

before you joined this group, I currently keep the swelling and pain mostly

under control by wearing Tubigrips;

http://www.continentostomystore.com/Merchant2/merchant.mvc?Screen=PROD & Product_C\

ode=CON151434 & Category_Code=

I would suggest your daughter try this to control swelling. She would need

to get sized probably by going to a large medical supply house. Tubigrips

are made in Great Britain.

I have also had doctors suggest I try going to an allergist, but at this

point I have had my fill of doctors . I'm sure most on this group know

what I mean.

Mike

MT

[Guest guest]

Hi, Donna:

Just my 2 cents worth: Tell that *?*? Teacher at gym that if SHE says it

hurts, then IT HURTS!

She should definitely be excused from running, jumping, lunges, anything

that causes her pain - and these all probably do - along with walking any

amount.

Oh, and I am also being treated by a rheumatologist, and I'm seeing an ortho

surgical physician May 2nd - I'm going to ask him if this is

arthritis-related or not.

Good luck,

-- Re: Intro

Oh Ok Mike, I'm sorry if I upset you. I had no idea that

rheumatologists treated chondromalacia patients. That is

interesting what you said about having knee pain in your teens and

it coming back later in life. I'm glad you have reached a point now

where you are functioning better with it.

I guess I'm so confused about it because it is so different to my

daughters arthritis. My daughters arthritis is food related most of

the time, and different foods flare the arthritis. The arthritis

started with almonds but has been caused by many foods over the

years (and mostly the good healthy stuff too). So by being aware of

this (and a very good allergy clinic) we've been able to keep her

arthritis drug free. So this chrondromalacia is totally different

and doesn't have the simple food explanation that I am used to, plus

she does need painkillers now (doctors have said something like 5 a

day but that is ridiculous).

I hope you can continue to improve :-)

Donna

Australia

>

> In the first place, chondromalacia is a name doctors give anterior

knee pain

> when they really don't know what is causing it. Fortunately

children with

> it usually fully recover without harsh treatment. I was under the

treatment

> of a rheumatologist, and took many different types of prescription

arthritis

> drugs for it. The only one that really worked for me was Vioxx,

but I quit

> taking it about a month before it was taken off the market because

it was

> giving me severe headaches. I had undiagnosed severe pain in both

knees for

> years in my teens, but was relatively painfree for about 25 years

after

> that. I am now 50 and have gone through 4 arthroscopic surgeries

and have

> managed to reach a point where I can function in life hopefully

for years

> yet.

> Mike

> MT

>

> Re: Intro

>

[Guest guest]

Hi Philip and anyone else interested in allergies causing arthrits

There are some books you can borrow from the library on arthritis

and food allergies.

There is a Cure for Arhritis by Paava O Airola - this was written in

1968 and tells of a health farm in sweeden where they cured people

from arthritis. Worth finding and reading.

Arthritis - Allergy, nutrition and the environment, by Dr

Mansfield, 1995 - this book is excellent, worth reading and worth

searching out for, this doctor cures arthritis by a sort of allergy

treatment called the Provocation Neutralization technique. This

doctor has a website http://www.burghwoodclinic.co.uk/. He is in

the UK, but I think there are a few doctors who practice this in

America. If I magically won a trip to the UK I would book my

daughter in to see this guy as I would love to talk to him. If you

read nothing else, please read this book - it will totally change

your thinking about arthritis.

There is also another one by a chinese man called Dong (I think) and

is basically a cookbook. It is worth getting if you can find cheap

and borrowing from the library if you can. Problem with diet books

like this is they offer no cure other than denying yourself normal

foods for the rest of your life. Good for lists of foods that might

contribute.

The allergy clinic we go to is called AAE. In the US there is one

in Denver. This is the Aust website.

http://www.aaeclinics.com.au. The first thing we found that caused

Hayleys arthritis (apart from the almonds which started it) was

frozen peas. When she got " glutamates " treated at the allergy

clinic her pain level went down enormously. It's pretty obvious

when foods affect her (which is why I knew the chondromalacia wasn't

arthritis, as it wasn't food affected) as the reaction (pain).

Foods that have caused hayley pain over the years black pepper,

tomatoes, chocolate, hazelnuts, bananas, capsicum, all melons,

citrus, all spices, ginger, garlic, almonds, peas. There would be

more but I have forgotten at the moment. Most of these things have

been treated and she can eat them again. At the moment she is

having problems with spices. Most people with arthritis react to

gluten/dairy but not in my daughters case, though she was allergic

to those things (needed treatment for them and reacted to them in

other ways) neither flared her arthrits.

If you see a regular " allergist " and have normal allergy tests you

are really not going to get all the information you need and all

your allergies/intolerances show up (there are a heap of different

levels of allergy, IgA, IgE, IgG etc, and a regular allergy test

only does one of these). There are food intolerances (as opposed to

allergies) that would not show up on a stanard allergy test. You

need to do your own research before you find someone to go to for

treatment. Don't expect doctors to know all the answers (or even

any) so rely on yourself.

Goodluck Philip for you and your daughter.

Donna

>

>

>

> Philip -

http://www.xcskiwinn.org/community/blogs/panmanphil/default.aspx

> This is all very interesting to me. I'm doing pretty well right

now, even made it through a yoga class this week without any

additional pain. My daughter was diagnosed with JRA at age 2 and now

at 16 we have hoped for the signs of recovery that should have

started by now. The only great thing about JRA is that the diagnosis

is its unambiguous and not hard to make. But now that she is nearly

out of adolescence, I wonder what can be done for her. Her pain has

been below the level where drugs are required for many years now,

but it is a daily issue for her. Like others, weight is a problem

for her.

>

> I'd not heard that food allergies are an issue with arthritis. I

have to admit that the hairs on the back of my neck stand up when I

here that for a few different reasons. First, I see many people

with " self-diagnosed " food allergies that seem to me to be as much

about fashion or making personal statements than about pain. Wheat,

dairy, sugar, all the trappings of conventional diet are suspect.

Nevertheless, food allergies are as real as the air we breath. My

wife as a shellfish allergy that has nearly killed her.

>

> Has anyone else connected JRA and fibromialgia symptoms to

specific (as determined by tests) food allergies with success? One

of my sisters suffers from fibromialgia and has focused on food a

lot without much luck in terms of relief.

>

> Re: Intro

>

>

> > Well our arthrits diagnosis is a bit strange. She has " reactive

> > arthritis " most of the time. She does not qualify for a

diagnosis

> > of JIA and JRA as her joints don't swell up enormously (only

little

> > swelling). I've had a few doctors tell me that is what she has.

>

> Actually, I have had a few doctors tell me I might have something

like this.

> Arthritis is nothing more than ANY inflammatory condition of your

joints.

> There are over 100 types of arthritis including gout. As I have

posted

> before you joined this group, I currently keep the swelling and

pain mostly

> under control by wearing Tubigrips;

>

[Guest guest]

No, I've never been referred to an immunologist. Hayleys immune

system is totally screwed, sometimes it is so bad, that everything

new she eats (like a food she hasn't eaten before or for a few

months) will come up as a new allergy that causes arthrits. Other

times it tones down and is OK.. but yeah, her immune system is

weird. I'll ask the doctor about it next time we go.

Donna

>

> Since your daughter has food allergies too, she may have a

hyperactive immune system. Have you had her checked by an

immunologist?

>

> Ann

> Re: Intro

>

>

> > Well our arthrits diagnosis is a bit strange. She

has " reactive

> > arthritis " most of the time. She does not qualify for a

diagnosis

> > of JIA and JRA as her joints don't swell up enormously (only

little

> > swelling). I've had a few doctors tell me that is what she

has.

>

> Actually, I have had a few doctors tell me I might have

something like this.

> Arthritis is nothing more than ANY inflammatory condition of

your joints.

> There are over 100 types of arthritis including gout. As I have

posted

> before you joined this group, I currently keep the swelling and

pain mostly

> under control by wearing Tubigrips;

>

> http://www.continentostomystore.com/Merchant2/merchant.mvc?

Screen=PROD & Product_Code=CON151434 & Category_Code=

>

> I would suggest your daughter try this to control swelling. She

would need

> to get sized probably by going to a large medical supply house.

Tubigrips

> are made in Great Britain.

>

> I have also had doctors suggest I try going to an allergist, but

at this

> point I have had my fill of doctors . I'm sure most on this

group know

> what I mean.

>

> Mike

> MT

>

>

>

>

>

>

[Guest guest]

Hi, thanks for the advice about tubigrips. I know what you mean

about doctors, Hayleys brother has medical problems too (he has

autism) and being to so many doctors/specialists etc for that too.

I'm just so over it.

So do you have pain in other joints apart from your knees?

With the chondromalacia (as oppossed to the arthritis) do you tape

it, or have some sort of wrap around the knee thing that does up

with velcro? Something that makes the kneecap move in a slightly

different way down the bone behind it.

Donna

>> Actually, I have had a few doctors tell me I might have something

like this.

> Arthritis is nothing more than ANY inflammatory condition of your

joints.

> There are over 100 types of arthritis including gout. As I have

posted

> before you joined this group, I currently keep the swelling and

pain mostly

> under control by wearing Tubigrips;

>

> http://www.continentostomystore.com/Merchant2/merchant.mvc?

Screen=PROD & Product_Code=CON151434 & Category_Code=

>

> I would suggest your daughter try this to control swelling. She

would need

> to get sized probably by going to a large medical supply house.

Tubigrips

> are made in Great Britain.

>

> I have also had doctors suggest I try going to an allergist, but

at this

> point I have had my fill of doctors . I'm sure most on this

group know

> what I mean.

>

> Mike

> MT

>

[Guest guest]

Re: Intro

>

> So do you have pain in other joints apart from your knees?

I currently am taking Celebrex for arthritis (not osteoarthritis) in my

right shoulder and hip. I have had surgery for tendonitis in both elbows in

the last 15 years, and have had 2 surgeries for an inflammatory condition in

my sinuses and 2 surgeries for an inflammatory condition of my colon.

>

> With the chondromalacia (as oppossed to the arthritis) do you tape

> it, or have some sort of wrap around the knee thing that does up

> with velcro?

Actually, I still don't believe chondromalacia is a real, defineable medical

diagnosis from anything I can find out. I know I have some type of arthritis

that has been mostly taken care of by 4 release and clean-out surgeries, and

the Tubigrips.

Something that makes the kneecap move in a slightly

> different way down the bone behind it.

That is something many people find relief with, but most doctors said my

mechanical functions are almost perfect. I did get a measured level of

relief with generic Cho-pats, but Tubigrips are much better for me.

Mike

MT

[Guest guest]

One possibility (I don't want to scare you, am basing this on documentaries I've

seen on TV (mostly Discovery Health Channel) about cases that went years w/o

diagnosis) is a tumor (could be benign) on the pituitary gland or the thymus

(see http://en.wikipedia.org/wiki/Thymus_gland and

http://www.hon.ch/Library/Theme/Allergy/Glossary/thymus.html). There are so

many things wrong with your daughter, it's very suspicious. Have you tried

communicating with doctors from Mayo and other institutions where they actually

use their brains (this is a slam on doctors, not on you)?

Here's an example of a disease that would be very hard to diagnose:

http://arthritis.about.com/od/diet/a/leakygut.htm . You've probably looked into

probiotics already, but if not, having too much or too little of the right or

wrong kind of intestinal flora can cause illness & is hardly ever looked into.

Another problem with diagnosis is that your daughter might have more than one

illness.

Another frequent cause of mystery illnesses is toxins in the environment or her

food (due to toxins in the soil where it's grown). For some reason, at least in

these shows I've seen, about the last thing doctors think of is a tox test.

Almost anything can be toxic in large quantities. For example, we need

selenium, but if we get too much, it can kill us. Ditto with vitamin A. So not

only " normal " toxins like cyanide or arsenic should be tested for, but high

levels of " good " minerals and nutrients.

Hope this helps & doesn't just confuse you.

Ann

Re: Intro

>

>

> > Well our arthrits diagnosis is a bit strange. She

has " reactive

> > arthritis " most of the time. She does not qualify for a

diagnosis

> > of JIA and JRA as her joints don't swell up enormously (only

little

> > swelling). I've had a few doctors tell me that is what she

has.

>

> Actually, I have had a few doctors tell me I might have

something like this.

> Arthritis is nothing more than ANY inflammatory condition of

your joints.

> There are over 100 types of arthritis including gout. As I have

posted

> before you joined this group, I currently keep the swelling and

pain mostly

> under control by wearing Tubigrips;

>

> http://www.continentostomystore.com/Merchant2/merchant.mvc?

Screen=PROD & Product_Code=CON151434 & Category_Code=

>

> I would suggest your daughter try this to control swelling. She

would need

> to get sized probably by going to a large medical supply house.

Tubigrips

> are made in Great Britain.

>

> I have also had doctors suggest I try going to an allergist, but

at this

> point I have had my fill of doctors . I'm sure most on this

group know

> what I mean.

>

> Mike

> MT

>

>

>

>

>

>

[Guest guest]

Thanks Ann, we've been to many doctors, none of them ever really

helpful. I will research what you wrote. She is always OK on blood

tests. She definately has leaky gut syndrome, candida etc. Have

heaps of probiotics in the fridge and so many supplements and

alternative medicines I could open a chemist store LOL! My son has

autism, so I've been researching and trying alternative therapies

for close to five years. Hayley also needs chelation (to remove

heavy metals) - doing this with my son at the moment. Problem with

Hayley is tht she doesn't like taking medicines, so I have to take

it slow with her. So many things we have tried have made the

arthritis worse (especially things that cure arthritis, vitamin d

and malic acid were two things that are " cures " but caused huge

flares in my daughter). So she is very wary of trying new stuff too.

I'm interested in something called transfer factor, which is an

immune system builder. I've heard some good things about it, and

some bad things too. One particular woman in the autism e-community,

bought the transfer factor for her son (its an autism treatment too)

and started taking it herself aswell. She end up developing

rheumatoid arthritis from it. I mean there are thousands of good

stories about transfer factor, and that is the only really bad story

I have heard, but that is enough for me not to use it.

You know you can buy powdered thymus gland quite cheap. Something

I've always meant to do one day and give it a try on Hayley.

Thanks so much for your help Ann :-)

Donna

> >

> > Since your daughter has food allergies too, she may have a

> hyperactive immune system. Have you had her checked by an

> immunologist?

> >

> > Ann

> > Re: Intro

> >

> >

> > > Well our arthrits diagnosis is a bit strange. She

> has " reactive

> > > arthritis " most of the time. She does not qualify for a

> diagnosis

> > > of JIA and JRA as her joints don't swell up enormously

(only

> little

> > > swelling). I've had a few doctors tell me that is what

she

> has.

> >

> > Actually, I have had a few doctors tell me I might have

> something like this.

> > Arthritis is nothing more than ANY inflammatory condition of

> your joints.

> > There are over 100 types of arthritis including gout. As I

have

> posted

> > before you joined this group, I currently keep the swelling

and

> pain mostly

> > under control by wearing Tubigrips;

> >

> > http://www.continentostomystore.com/Merchant2/merchant.mvc?

> Screen=PROD & Product_Code=CON151434 & Category_Code=

> >

> > I would suggest your daughter try this to control swelling.

She

> would need

> > to get sized probably by going to a large medical supply

house.

> Tubigrips

> > are made in Great Britain.

> >

> > I have also had doctors suggest I try going to an allergist,

but

> at this

> > point I have had my fill of doctors . I'm sure most on

this

> group know

> > what I mean.

> >

> > Mike

> > MT

> >

> >

> >

> >

> >

> >

[Guest guest]

for Donna Dwyer, my name is Moran, i am a massage therapist, i might have

chondromalacia patellar, but hadnt seen a specialist yet, i will pretty soon, in

the mean time i am just dealing with it, avoiding bending my knee and icing it.

You mentioned your son's autism, i guess you had try a lot of things, i believe

in energy, reincarnation and those issues. I saw a program in a latin tv

channel, where a little kid who had autism actually recovered and start behaving

like any other kid, with the help of clarovoyant/medium person, sounds crazy,

but at the same time makes sense, just a thought for you, it wouldnt hurt to

try. I know that if i had a kid with autism i would try it.

Donna Dwyer <donnadwyer@...> wrote: Thanks Ann, we've been to many

doctors, none of them ever really

helpful. I will research what you wrote. She is always OK on blood

tests. She definately has leaky gut syndrome, candida etc. Have

heaps of probiotics in the fridge and so many supplements and

alternative medicines I could open a chemist store LOL! My son has

autism, so I've been researching and trying alternative therapies

for close to five years. Hayley also needs chelation (to remove

heavy metals) - doing this with my son at the moment. Problem with

Hayley is tht she doesn't like taking medicines, so I have to take

it slow with her. So many things we have tried have made the

arthritis worse (especially things that cure arthritis, vitamin d

and malic acid were two things that are " cures " but caused huge

flares in my daughter). So she is very wary of trying new stuff too.

I'm interested in something called transfer factor, which is an

immune system builder. I've heard some good things about it, and

some bad things too. One particular woman in the autism e-community,

bought the transfer factor for her son (its an autism treatment too)

and started taking it herself aswell. She end up developing

rheumatoid arthritis from it. I mean there are thousands of good

stories about transfer factor, and that is the only really bad story

I have heard, but that is enough for me not to use it.

You know you can buy powdered thymus gland quite cheap. Something

I've always meant to do one day and give it a try on Hayley.

Thanks so much for your help Ann :-)

Donna

> >

> > Since your daughter has food allergies too, she may have a

> hyperactive immune system. Have you had her checked by an

> immunologist?

> >

> > Ann

> > Re: Intro

> >

> >

> > > Well our arthrits diagnosis is a bit strange. She

> has " reactive

> > > arthritis " most of the time. She does not qualify for a

> diagnosis

> > > of JIA and JRA as her joints don't swell up enormously

(only

> little

> > > swelling). I've had a few doctors tell me that is what

she

> has.

> >

> > Actually, I have had a few doctors tell me I might have

> something like this.

> > Arthritis is nothing more than ANY inflammatory condition of

> your joints.

> > There are over 100 types of arthritis including gout. As I

have

> posted

> > before you joined this group, I currently keep the swelling

and

> pain mostly

> > under control by wearing Tubigrips;

> >

> > http://www.continentostomystore.com/Merchant2/merchant.mvc?

> Screen=PROD & Product_Code=CON151434 & Category_Code=

> >

> > I would suggest your daughter try this to control swelling.

She

> would need

> > to get sized probably by going to a large medical supply

house.

> Tubigrips

> > are made in Great Britain.

> >

> > I have also had doctors suggest I try going to an allergist,

but

> at this

> > point I have had my fill of doctors . I'm sure most on

this

> group know

> > what I mean.

> >

> > Mike

> > MT

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks

I've even tried this avenue. This is an organisation in my area

that sends free spiritual healers out to people with kids in need.

Made no difference LOL!! I think it depends on the healing quality

of the medium/psychic. If you read some books by healers they do

amazing work, but not all of them are that good.

Goodluck you with your knee pain . We just got a diagnosis

from a local doctor and not a specialist. I didn't know you had to

see a specialist.

Donna

> > >

> > > Since your daughter has food allergies too, she may have a

> > hyperactive immune system. Have you had her checked by an

> > immunologist?

> > >

> > > Ann

> > > Re: Intro

> > >

> > >

> > > > Well our arthrits diagnosis is a bit strange. She

> > has " reactive

> > > > arthritis " most of the time. She does not qualify for a

> > diagnosis

> > > > of JIA and JRA as her joints don't swell up enormously

> (only

> > little

> > > > swelling). I've had a few doctors tell me that is what

> she

> > has.

> > >

> > > Actually, I have had a few doctors tell me I might have

> > something like this.

> > > Arthritis is nothing more than ANY inflammatory condition

of

> > your joints.

> > > There are over 100 types of arthritis including gout. As

I

> have

> > posted

> > > before you joined this group, I currently keep the

swelling

> and

> > pain mostly

> > > under control by wearing Tubigrips;

> > >

> > > http://www.continentostomystore.com/Merchant2/merchant.mvc?

> > Screen=PROD & Product_Code=CON151434 & Category_Code=

> > >

> > > I would suggest your daughter try this to control

swelling.

> She

> > would need

> > > to get sized probably by going to a large medical supply

> house.

> > Tubigrips

> > > are made in Great Britain.

> > >

> > > I have also had doctors suggest I try going to an

allergist,

> but

> > at this

> > > point I have had my fill of doctors . I'm sure most on

> this

> > group know

> > > what I mean.

> > >

> > > Mike

> > > MT

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I would highly recommend not only seeing a specialist, but a specialist in

anterior knee pain, and in your case, probably a pediatric specialist. You

may very well need to travel across country to do it. My general

practitioner diagnosed me originally with osteoarthritis and that was the

diagnosis I lived with and treated for a few years until it got to the point

I could no longer walk. Nothing was further from the truth in my case.

I really feel for your situation and pray for you, whether you believe in

that type of healing or not ;-).

Mike

MT

Re: Intro

> > >

> > >

> > > > Well our arthrits diagnosis is a bit strange. She

> > has " reactive

> > > > arthritis " most of the time. She does not qualify for a

> > diagnosis

> > > > of JIA and JRA as her joints don't swell up enormously

> (only

> > little

> > > > swelling). I've had a few doctors tell me that is what

> she

> > has.

> > >

> > > Actually, I have had a few doctors tell me I might have

> > something like this.

> > > Arthritis is nothing more than ANY inflammatory condition

of

> > your joints.

> > > There are over 100 types of arthritis including gout. As

I

> have

> > posted

> > > before you joined this group, I currently keep the

swelling

> and

> > pain mostly

> > > under control by wearing Tubigrips;

> > >

> > > http://www.continentostomystore.com/Merchant2/merchant.mvc?

> > Screen=PROD & Product_Code=CON151434 & Category_Code=

> > >

> > > I would suggest your daughter try this to control

swelling.

> She

> > would need

> > > to get sized probably by going to a large medical supply

> house.

> > Tubigrips

> > > are made in Great Britain.

> > >

> > > I have also had doctors suggest I try going to an

allergist,

> but

> > at this

> > > point I have had my fill of doctors . I'm sure most on

> this

> > group know

> > > what I mean.

> > >

> > > Mike

> > > MT

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Wow, thanks so much Mike, that is so kind of you :-) I always think it

could be worse. I've just read a kids book called Jodie's Journey, which is

a book about a girl with juvenile rheumatoid arthritis. Talk about

depressing.. my daughters life is nowhere near that bad, so I guess I just

feel lucky that she is not worse.

So can you tell me what sort of doctor this specialist would be. Is it as

orthopaedic surgeon? Or some other sort of doctor?

I've been to the main paediatric orthopaedic surgeon in my city already as

my other daughter has a tiny bit of bone sticking out of the side of her

foot (only shows up on xray) that causes pain.

The physio is going well and he has really increased the range of movement

in her knees. He said not to avoid exercise at school. He really wants to

keep her joints moving and make her muscles stronger.

Donna

Re: Intro

I would highly recommend not only seeing a specialist, but a specialist in

anterior knee pain, and in your case, probably a pediatric specialist.

You

may very well need to travel across country to do it. My general

practitioner diagnosed me originally with osteoarthritis and that was the

diagnosis I lived with and treated for a few years until it got to the

point

I could no longer walk. Nothing was further from the truth in my case.

I really feel for your situation and pray for you, whether you believe in

that type of healing or not ;-).

Mike

MT

Re: Intro

> > >

> > >

> > > > Well our arthrits diagnosis is a bit strange. She

> > has " reactive

> > > > arthritis " most of the time. She does not qualify for a

> > diagnosis

> > > > of JIA and JRA as her joints don't swell up enormously

> (only

> > little

> > > > swelling). I've had a few doctors tell me that is what

> she

> > has.

> > >

> > > Actually, I have had a few doctors tell me I might have

> > something like this.

> > > Arthritis is nothing more than ANY inflammatory condition

of

> > your joints.

> > > There are over 100 types of arthritis including gout. As

I

> have

> > posted

> > > before you joined this group, I currently keep the

swelling

> and

> > pain mostly

> > > under control by wearing Tubigrips;

> > >

> > > http://www.continentostomystore.com/Merchant2/merchant.mvc?

> > Screen=PROD & Product_Code=CON151434 & Category_Code=

> > >

> > > I would suggest your daughter try this to control

swelling.

> She

> > would need

> > > to get sized probably by going to a large medical supply

> house.

> > Tubigrips

> > > are made in Great Britain.

> > >

> > > I have also had doctors suggest I try going to an

allergist,

> but

> > at this

> > > point I have had my fill of doctors . I'm sure most on

> this

> > group know

> > > what I mean.

> > >

> > > Mike

> > > MT

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

RE: Intro

So can you tell me what sort of doctor this specialist would be. Is it as

orthopaedic surgeon?

Out of desperation I scoured the internet and asked anyone I knew, including

visiting all three of the orthopedic surgical groups in our area. I went

1000 miles east to Mayo Clinic, and 1000 miles west to Portland OR to visit

a recommended surgeon there at Oregon Health and Science University. He was

the best one I talked to, and he referred me to a former collegue of his

(interned with Steadman-Hawkins Clinic in Denver) that was only 120 miles

from me who did an Anterior Interval Release on both my knees. That was

after I had the local surgeon I was most comfortable with do a lateral

release and clean-out on both knees. Please don't think I believe surgery

is the best avenue ESPECIALLY on children. The point here is that with this

condition you need to get extremely proactive. Remember, no one cares more

for your child than you do. I wish I could be more help to you, but I am

not familiar with the doctors in your country.

Mike

MT

[Guest guest]

Thanks Mike, I am glad you found good doctors. I will ask the

doctor about specialists next time I see him. I will have to make

an appointment for this week. I am wondering if damage will show up

on an xray. Back when she only had arthritis, there was no damage

on xrays ever, but it must have changed now I guess. Maybe you need

an MRI to see what is going on. You are right about the being

proactive.

Hayley had two days last week where she didn't need any

painkillers, but is needing them again now. On saturday we were at

a shopping centre and I ended up borrowing a wheelchair because

walking was too painful for her. I guess this is what life will be

like now, painkillers, icepacks and wheelchairs at shopping centres

when she does too much (like over 30 minutes walking).

It's back to the physio this morning. He is going to get her on an

exercise bike today. I hope she will be able to move her knees this

morning, they were in a bad way last night.

Donna

>

>

> RE: Intro

>

>

>

> So can you tell me what sort of doctor this specialist would be.

Is it as

> orthopaedic surgeon?

>

> Out of desperation I scoured the internet and asked anyone I knew,

including

> visiting all three of the orthopedic surgical groups in our area.

I went

> 1000 miles east to Mayo Clinic, and 1000 miles west to Portland OR

to visit

> a recommended surgeon there at Oregon Health and Science

University. He was

> the best one I talked to, and he referred me to a former collegue

of his

> (interned with Steadman-Hawkins Clinic in Denver) that was only

120 miles

> from me who did an Anterior Interval Release on both my knees.

That was

> after I had the local surgeon I was most comfortable with do a

lateral

> release and clean-out on both knees. Please don't think I believe

surgery

> is the best avenue ESPECIALLY on children. The point here is that

with this

> condition you need to get extremely proactive. Remember, no one

cares more

> for your child than you do. I wish I could be more help to you,

but I am

> not familiar with the doctors in your country.

>

> Mike

> MT

>

[Guest guest]

>Hello all!

Welcome, anne. Nice name - I knew a doctor once with a similar name,

nna. She continued working into her 90's and is still kicking around

even though she's about to hit 100. She's a friend of my grandmother's.

>I just started a bible study called First Place that follows

the ADA food plan.

Never heard of that one before so let me Google it . . .

http://www.firstplace.org/index.html

What is involved in being a First Place member?

The program runs 11-13 weeks per session. Members are asked to make nine

commitments for the length of the session:

1. ATTEND a meeting each week.

2. Make one PHONE CALL to a class member weekly.

3. PRAY daily.

4. READ two chapters in the Bible daily.

5. MEMORIZE one Bible verse weekly.

6. Complete a weekly BIBLE STUDY, which takes about 15 minutes a day.

7. Follow the First Place LIVE-IT FOOD PLAN.

8. Keep a First Place COMMITMENT RECORD or food diary.

9. EXERCISE a minimum of three times weekly.

The food plan is the same as 's Foodmover or, as nna mentioned,

the government's pyramid:

http://www.mypyramid.gov

>My biggest problem is consistency.

That's how it is for just about all of us. We know *what* we have to do,

we've even *done* it more than once, it's just *continuing* to do it that's

giving up problems.

Sue in NJ

[Guest guest]

I am so sorry for the babies you have lost. That has to be difficult. Probably a

reason for much of your gains. (sorrow). I am glad you finally were able to have

a healthy baby! That's wonderful!

As for First Place, it looks really good. You know they have a online weight

loss message baord as well.

I know a lot of people on First Place also use Jo Lund recipes (

healthyexchanges.com ) just this month in the newsletter, I read about a woman

on First Place, who is doing really well. It sounds like a good plan. Like you

said we all know what to do.....but with places like First Place, you are also

getting some mental/spiritual strength to help you do what we know we need to.

So that helps you succeed I feel.

We're pulling for you!

>From: nne <pdxflower@...>

>Date: Thu May 04 15:40:41 CDT 2006

>100-plus

>Subject: Intro

>Hello all!  I just joined your group and am enjoying all of your posts

>already.  I've had about 100 pounds to lose since marrying 12 years

>ago - yikes!!  I am just trying to find something that works that I

>can do for the rest of my life, because I KNOW short-term diets don't

>work.  I just started a bible study called First Place that follows

>the ADA food plan.  I am doing that for the accountability - I KNOW

>what to do and eat, it's just a matter of doing it.  I like

>Sansone's walk videos because they are fun and easy.  My biggest

>problem is consistency. 

>

>I am married to a wonderful man and we have a sweet little girl we are

>very grateful for.  I have lost many babies during pregnancy, so she

>is extra special to us.

>

>Thanks for all your encouraging and fun posts ; ) 

>

>

>

>

>

>

>

>100-Plus Files page 100-plus/files

>100-Plus Links page 100-plus/links

>

>

>

>

[Guest guest]

Hi , Nice to meet you. My name is . There are two 's on this list now I think, so I go by from MO. I have a lot of weight to lose too. I have one of 's videos too. I haven't done it in awhile, but I might get it out and do it today. I think it is too wet outside to go walking today. I too am married to a wonderful man. Been married 3 years this coming August. We don't have any human children, but we have a furry four-legged one. She is a cat named Gracie, who thinks she owns us instead of the other way around. I am glad you were able to have a little girl. How old is she? Well, I just wanted to introduce myself and welcome you to the group. from MO

[Guest guest]

Welcome . Might want to add your state to your name. I think there is another julie besides me out there and now you. My weight is about 12 years old to. I have 2 girls. Arent little girls great. Dont forget to check out our files on the site. Sue does great work keeping them updates.

NH... Mom to Abby Liz 10/94 Anne 7/99