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In a message dated 4/2/00 1:35:52 PM Central Daylight Time,

onelist writes:

<< Treatments tried for CFS

Saw Dr. Rea of the Environmental Health Center 1996- Diagnosed with above

stated illnesses. >>

, as you know I live in Dallas. Do you recommend Dr. Rea for people

with CFS or is he more for MCS? The last time I called his office I believe

they

said he treats PWCs with Chinese herbs.

Mike

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In a message dated 5/7/00 3:08:37 PM Pacific Daylight Time,

marchristy@... writes:

<< Also, I am

surprised as to how often my daughter has been getting sick with

colds and runny noses. >>

Quick note for you...a runny nose is not always a sign of a cold or illness.

Runny noses are prevalent in babies who are teething. If she has no other

symptoms, she more than likely is just teething.

Teri and (6/4/99)

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Intro

> Hello, I am Christy, wife to Marc and mother of 8 month old Abigail.

> I am also expecting another baby who is due at the beginning of

> October. I have been a member of this list for a few weeks and have

> been learning a lot from all of the information. At first we decided

> to delay our daughter's immunizations until 6 months, but here we are

> at 8 months and are still delaying, due to her recurrent colds and

> still doubting several of the vaccines we were thinking of getting

> her. I would appreciate any information any of you have on the DTaP

> shot. Does the aP really have less side effects? Also, I am

> surprised as to how often my daughter has been getting sick with

> colds and runny noses. That is another reason I'm hesitant of

> getting her vaccinations at this point. I would appreciate any

> wisdom any of you have to offer.

> Christy

Hi,

a bit on aP http://home.sprynet.com/~noshots/prtusis.htm

http://pages.prodigy.com/gval/viera.htm

I didn't vaccinate my last two kids as I reckoned the vaccines were more

dangerous than the diseases, and I wasn't sure some of them like measles &

chickenpox weren't a necessary process for the immune.

http://www.whaleto.freeserve.co.uk/vaccines.html

>

>

> ------------------------------------------------------------------------

> You have a voice mail message waiting for you at iHello.com:

> 1/3555/7/_/489317/_/957737283/

> ------------------------------------------------------------------------

>

>

>

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Guest guest

Welcome Dawn! Sorry to hear about your son though it sounds like you have a

good doctor, a rare thing for many parents here.

List Owner of Vaccinations and Vaccine Info

www.geocities.com/mom2q (my work in progress!)

Mom of two great kids who are vaccine free!

Intro

Hello! I just joined this group and wanted to introduce myself. My name

is Dawn and my husband, , and I are the proud parents of

(3yrs), Naomi Ruth (18mo), and Rebekah (due in Aug.). is high

functioning autistic and we believe that it is due to his vaccines. So

does his doctor. Since we learned about the connection, neither child has

received any further shots and they will not ever again. Rebekah will be

our first completely unvaccinated child. Yeah! I only wish that I knew

then what I know now. Our lives would be so different. I look forward to

getting to know those of you on this group!

God bless, Dawn

--- Dawn Hall

--- dawnrh@...

--- EarthLink: It's your Internet.

------------------------------------------------------------------------

Find out your allergy risks online!

Get a $10 discount at eNutrition just for trying it.

And a chance to win a desert Spa Getaway.

Click Here:

1/4575/7/_/489317/_/959484408/

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welcome dawn and congratulations on your upcoming birth!! i hope you get as

much out of being on this list as i have. and again, welcome!

brigit

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At 01:40 PM 06/23/2000 -0400, you wrote:

> At my daughters 18 month check up she was given her MMR w/o my

>permission (she had been running a fever) so I have a total distrust for

>MD's now. Our pediatrician also refused to acknowledge that she had gotten

>Rubella from her shot although she said that " she was presenting as having

>the disease " . Enough to gag you huh? I love the info that I have gotten

>from the list so far. Our families think Dh and are crazy because of our

>beliefs but they have respected them so far. It's always nice to have more

>research to send them. I do want my nieces and nephews healthy too!! Sorry

>so long, can't wait to meet everyone. ~

>

>

Welcome, . The nerve to give a vaccine without asking! I tell you, if

I could do what I wanted to about all this.........well, you probably would

join me. It may come to that.

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS

MEDICAL OR LEGAL ADVICE. THE DECISION TO

VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

Bookstore - http://www.nccn.net/~wwithin/bookstor.htm

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA

CEU's for nurses, Books & Multi-Pure Water Filters

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Sheri,

Take a deep breath. You are far more useful not sinking to their level.

Sheri Nakken wrote:

>

> At 01:40 PM 06/23/2000 -0400, you wrote:

> > At my daughters 18 month check up she was given her MMR w/o my

> >permission (she had been running a fever) so I have a total distrust for

> >MD's now. Our pediatrician also refused to acknowledge that she had gotten

> >Rubella from her shot although she said that " she was presenting as having

> >the disease " . Enough to gag you huh? I love the info that I have gotten

> >from the list so far. Our families think Dh and are crazy because of our

> >beliefs but they have respected them so far. It's always nice to have more

> >research to send them. I do want my nieces and nephews healthy too!! Sorry

> >so long, can't wait to meet everyone. ~

> >

> >

>

> Welcome, . The nerve to give a vaccine without asking! I tell you, if

> I could do what I wanted to about all this.........well, you probably would

> join me. It may come to that.

> Sheri

> --------------------------------------------------------

> Sheri Nakken, R.N., MA

> ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS

> MEDICAL OR LEGAL ADVICE. THE DECISION TO

> VACCINATE IS YOURS AND YOURS ALONE.

>

> Well Within's Earth Mysteries & Sacred Site Tours

> http://www.nccn.net/~wwithin

> Bookstore - http://www.nccn.net/~wwithin/bookstor.htm

> International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

> Education, Homeopathic Education

> KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA

> CEU's for nurses, Books & Multi-Pure Water Filters

>

> ------------------------------------------------------------------------

> Shop at gazoontite.com & breathe happier and healthier! Click here!

> 1/5491/10/_/489317/_/961784008/

> ------------------------------------------------------------------------

--

@...

***************************************************************

Any information obtained here is not to be construed as medical

OR legal advice. The decision to vaccinate and how you

implement that decision is yours and yours alone.

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At 02:23 PM 06/23/2000 -0400, you wrote:

>Sheri,

>Take a deep breath. You are far more useful not sinking to their level.

>

No, I was talking about activism of some shape or form.

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS

MEDICAL OR LEGAL ADVICE. THE DECISION TO

VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

Bookstore - http://www.nccn.net/~wwithin/bookstor.htm

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA

CEU's for nurses, Books & Multi-Pure Water Filters

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Ok...GO FOR IT!! :):)

Sheri Nakken wrote:

>

> At 02:23 PM 06/23/2000 -0400, you wrote:

> >Sheri,

> >Take a deep breath. You are far more useful not sinking to their level.

> >

>

> No, I was talking about activism of some shape or form.

> Sheri

> --------------------------------------------------------

> Sheri Nakken, R.N., MA

> ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS

> MEDICAL OR LEGAL ADVICE. THE DECISION TO

> VACCINATE IS YOURS AND YOURS ALONE.

>

> Well Within's Earth Mysteries & Sacred Site Tours

> http://www.nccn.net/~wwithin

> Bookstore - http://www.nccn.net/~wwithin/bookstor.htm

> International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

> Education, Homeopathic Education

> KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA

> CEU's for nurses, Books & Multi-Pure Water Filters

>

> ------------------------------------------------------------------------

> Over 1,000 solutions for allergies & asthma-gazoontite.com! Shop now!

> 1/5490/10/_/489317/_/961785008/

> ------------------------------------------------------------------------

--

@...

***************************************************************

Any information obtained here is not to be construed as medical

OR legal advice. The decision to vaccinate and how you

implement that decision is yours and yours alone.

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Hi my name is Nikki and I have a 10yr old daughter with OCD. She is taking

Luvox and the first 3-4wks had sleep problems she also was very hyper and had

very poor attention span and focus as a side effect from the med they added

Wellbutrin (100mg daily) and now she is sleeping well and has calmed down to

normal again. Hope this helps you. Take care

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Hi Vicki, welcome to our list!

Many of us have sleeping issues with our kids. My now 11 yo daughter, ziv,

has been on 200mg zoloft for 1.5 years. She is doing very well ocd and

anxiety wise. She used to be wide awake hours after she needed to sleep so

we give her trasadone 1 hour before bed. This helps her with a good night

sleep.

My son, 17, tom, with severe ocd, etc. has been prescribed 300mg anafranil

and 100mg serzone. To help calm down at the end of his day he puts a few

drops of lavender oil on his pillow. He controls his breathing, thinks about

hte lavender and it relaxes his mind - which is very active.

He was on Risperadol for a year. It made him a zombie and he only took

..5mg! He was far too aggressive at school and his O's and C's were too

difficult for the teachers. The doc prescribed the risperadol to help Tom

calm down, which he did. He slept as often as he could.

I'm going to give you my 'warning'! It is extremely important that you

take care of yourself. As the main care giver, you need to be able to think

and act when demanded to do so. Please, find time for yourself. Try to find

time away from everyone, meeting friends, going for walk or reading a

novel... find something to distract you from your regular thoughts and give

you some time out!

take care, wendy in canada wb4@...

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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Hi Vicki, welcome to our list!

Many of us have sleeping issues with our kids. My now 11 yo daughter, ziv,

has been on 200mg zoloft for 1.5 years. She is doing very well ocd and

anxiety wise. She used to be wide awake hours after she needed to sleep so

we give her trasadone 1 hour before bed. This helps her with a good night

sleep.

My son, 17, tom, with severe ocd, etc. has been prescribed 300mg anafranil

and 100mg serzone. To help calm down at the end of his day he puts a few

drops of lavender oil on his pillow. He controls his breathing, thinks about

hte lavender and it relaxes his mind - which is very active.

He was on Risperadol for a year. It made him a zombie and he only took

..5mg! He was far too aggressive at school and his O's and C's were too

difficult for the teachers. The doc prescribed the risperadol to help Tom

calm down, which he did. He slept as often as he could.

I'm going to give you my 'warning'! It is extremely important that you

take care of yourself. As the main care giver, you need to be able to think

and act when demanded to do so. Please, find time for yourself. Try to find

time away from everyone, meeting friends, going for walk or reading a

novel... find something to distract you from your regular thoughts and give

you some time out!

take care, wendy in canada wb4@...

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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Hi Vicki,

Welcome to the list.

Our older son (17), Louis, was diagnosed at age 12. Zoloft is one of the medications that he takes. It helps with his OCD symptoms. He also takes Buspar, Depakote, and Wellbutrin.

If Louis has a problem with sleep we have permission from his psychiatrist to use an antihistamine, (diphenhydramine HCI), to help him go to sleep; however, we rarely have to do so.

's doctor might be willing to let you give most of his Zoloft early in the day and that might also have a positive effect on his ability to sleep.

Again, welcome and take care.

Louis

harkins@...

Intro

Hi! My name is Vicki and I am the mom of 2 boys, ages 8 and 2. My oldestson, , is the reason I am joining this list. As most people who workwith him say, is a very complex child. He was born extremelypremature, 25 wks gestation, with resulting developmental delays and hasbeen labeled either PDD-NOS (pervasive developmental delay, not otherwisespecified) or high-functioning autism, depends on which professional you aretalking too. His current neurologist seems to feel that a lot of hisbehaviors are OCD. The neuro seems to feel that his going off into his ownlittle world, blank stares, limited range of conversation, inattention, allhave to do with compulsive thought processes. He said that when goesinto these thought processes (video games, Pokemon) he can't reconnect withwhat is going on around him until his thought process has come to an end.Since he has a wonderful imagination he can be "gone" for awhile : ). He mayalso have Tourette's, not sure about that one yet. is currently onZoloft and we just recently upped him to 100 mg.. The neuro thinks once heis at this level for a few weeks he should stabilize. I certainly hope so.The Zoloft has already done wonders for his anxiety levels, which were skyhigh, and there are a few subjects that I don't have to talk about all ofthe time anymore, yeah! The only problem is that we maybe dealing withinsomnia. Except for a 1 1/2 years when we he was on tegretol for suspectedseizures, he has never slept well. So it is kind of hard to tell if it justa return of his old sleep patterns(weaned him off of tegretol in March) orif this is actually from the Zoloft. Has anyone else experienced insomniafrom meds? The neuro said we could either change meds or add clonipin (sp?).After reading some of the post today I feel that I am in the right place toget info and support for some of the issues we are experiencing. Thanks forlistening!Vicki Mom to 8 and Zach 2You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

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Welcome to the list, Vicki. I, too, am the parent of a child with PDD-NOS.

Often children on the autism spectrum have OCD. It is very, very common. My

son takes Celexa and Risperdal. He was never a good sleeper, although on his

current regimen is sleeping quite well. If you think the medication might be

adding to his insomnia, try giving it in the morning. Other meds can be added

to aid in sleep, but I think I would try adjusting the time of the dose first

and see if that helps.

Jule in Cleveland

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HI Vicki:

Welcome to the list and thanks for telling us about your son .

As you know insomnia can be caused by a variety of things. My son, Steve,

now 13, has suffered from insomnia from obsessions swarming around in his

head ceaselessly, from behavioral side effects from SSRIs, and from worries

associated with his MDD (major depressive disorder). We treated the BSEs

from his SSRI with Benadryl and this helped him. The OCD was treated best

with exposure and response prevention (E & RP), the best form of CBT for OCD.

His depression is best treated with anti-depressants.

Sorting out what is causing a specific symptom can take a lot of time and

observation. You might need to consider taking the Zoloft up to at least

150 mg for a couple of months or longer to see if will respond with

a lessening of OCD symptoms. There is a helpful article on the OCF web

site (http://www.ocfoundation.org) regarding medication for children with

OCD.

Another thing to consider is changing the time you give his

medication. If it is keeping him awake he might want to take it in the

morning instead of at night.

BSEs including insomnia from meds are often a good sign that the medication

will eventually be effective against OCD. It is a matter of hanging in

there until their body gets accustomed to the medication and these side

effects diminish. Another tactic you might want to try is dropping back to

a lower dosage and then increasing quite slowly. Some of the SSRIS

(Prozac, Celexa and Paxil) are available in liquid form and this makes slow

titration very feasible.

You need to check any med changes with 's doc. I am not a doc just

another OCD mom who has learned through trial and error. Good luck, take

care, aloha, Kathy (H)

kathyh@...

At 11:41 PM 07/02/2000 -0500, you wrote:

>Hi! My name is Vicki and I am the mom of 2 boys, ages 8 and 2. My oldest

>son, , is the reason I am joining this list. As most people who work

>with him say, is a very complex child. He was born extremely

>premature, 25 wks gestation, with resulting developmental delays and has

>been labeled either PDD-NOS (pervasive developmental delay, not otherwise

>specified) or high-functioning autism, depends on which professional you are

>talking too. His current neurologist seems to feel that a lot of his

>behaviors are OCD. The neuro seems to feel that his going off into his own

>little world, blank stares, limited range of conversation, inattention, all

>have to do with compulsive thought processes. He said that when goes

>into these thought processes (video games, Pokemon) he can't reconnect with

>what is going on around him until his thought process has come to an end.

>Since he has a wonderful imagination he can be " gone " for awhile : ). He may

>also have Tourette's, not sure about that one yet. is currently on

>Zoloft and we just recently upped him to 100 mg.. The neuro thinks once he

>is at this level for a few weeks he should stabilize. I certainly hope so.

>The Zoloft has already done wonders for his anxiety levels, which were sky

>high, and there are a few subjects that I don't have to talk about all of

>the time anymore, yeah! The only problem is that we maybe dealing with

>insomnia. Except for a 1 1/2 years when we he was on tegretol for suspected

>seizures, he has never slept well. So it is kind of hard to tell if it just

>a return of his old sleep patterns(weaned him off of tegretol in March) or

>if this is actually from the Zoloft. Has anyone else experienced insomnia

>from meds? The neuro said we could either change meds or add clonipin (sp?).

>After reading some of the post today I feel that I am in the right place to

>get info and support for some of the issues we are experiencing. Thanks for

>listening!

>

>Vicki Mom to 8 and Zach 2

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Hi Vicki, I meant to tag this onto my last post: Zoloft can be activating

in some children, it is in mine. She takes her dose (125mg) in the morning

after breakfast to minimize its effect on her relaxing and falling asleep.

In addition her p-doc suggested Benedryl to help with sleep, and it did help

although I began to wonder if it was making her tics worse. She also takes

a small dose of Risperdol and this makes her sleepy, so this side-effect is

actually helpful at bedtime :-)

Kathy R. in Indiana

Intro

> Hi! My name is Vicki and I am the mom of 2 boys, ages 8 and 2. My oldest

> son, , is the reason I am joining this list. As most people who work

> with him say, is a very complex child. He was born extremely

> premature, 25 wks gestation, with resulting developmental delays and has

> been labeled either PDD-NOS (pervasive developmental delay, not otherwise

> specified) or high-functioning autism, depends on which professional you

are

> talking too. His current neurologist seems to feel that a lot of his

> behaviors are OCD. The neuro seems to feel that his going off into his own

> little world, blank stares, limited range of conversation, inattention,

all

> have to do with compulsive thought processes. He said that when

goes

> into these thought processes (video games, Pokemon) he can't reconnect

with

> what is going on around him until his thought process has come to an end.

> Since he has a wonderful imagination he can be " gone " for awhile : ). He

may

> also have Tourette's, not sure about that one yet. is currently on

> Zoloft and we just recently upped him to 100 mg.. The neuro thinks once he

> is at this level for a few weeks he should stabilize. I certainly hope so.

> The Zoloft has already done wonders for his anxiety levels, which were sky

> high, and there are a few subjects that I don't have to talk about all of

> the time anymore, yeah! The only problem is that we maybe dealing with

> insomnia. Except for a 1 1/2 years when we he was on tegretol for

suspected

> seizures, he has never slept well. So it is kind of hard to tell if it

just

> a return of his old sleep patterns(weaned him off of tegretol in March) or

> if this is actually from the Zoloft. Has anyone else experienced insomnia

> from meds? The neuro said we could either change meds or add clonipin

(sp?).

> After reading some of the post today I feel that I am in the right place

to

> get info and support for some of the issues we are experiencing. Thanks

for

> listening!

>

> Vicki Mom to 8 and Zach 2

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Hi! Thanks everyone for the warm welcome and the advise on insomnia.

is already taking his Zoloft in the morning, so that's not the cause.

Actually, since I posted he has been having an easier time getting to sleep.

We upped his dosage to 100 mgs about 2 1/2 weeks ago and maybe he is

starting to adjust. Also thanks to everyone who mentioned about OCD needing

a higher dose than depression. I had been concerned that the dosage was too

high because my brother, a big guy, was on 150 mgs., and they wanted to put

my skinny little kid on a dose almost as high. Boy, won't the neurologist be

surprised with my change of heart : ).

Vicki Mom to 8 and Zach 2

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In a message dated 7/16/00 1:10:11 PM Central Daylight Time,

egroups writes:

<< Don't get me wrong I'm perfectly willing to do it if

it's the best option and is going to work, but I'm also concerned about

the future. It's obvious that people can't stay on it forever, and it

seems too early to say that everyone is going to get out of their

hypercoagulation feedback loop and stay better without maintenance. >>

You don't even know if you have hypercoag. Even if you do, you don't KNOW

that it has anything to do with your CFS. I know lots of people who are fine

and have sed rates of 0-2. Bromelain won't hurt you, and heparin won't cure

you unless you boost your immune system or kill off the virus with Ipro

or OLE or whatever.

Mike

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  • 4 weeks later...
Guest guest

Hi Karyn,

I have a 10 year old, . He's Down Syndrome, Autistic, ADHD and

Oppositional Defiant disorder. Actually, since we started the gluten free diet,

I would almost venture to say we could drop the last 2 (now he's like a typical

8 year old as far as the defiance goes, still doesn't recognize authority

figures, though). He's improved dramatically over the last year and a half

since the diagnosis of autism. I live in Hawaii, DH is active duty Navy. We

retire in about 7 months, back to the St. Louis area (and I will be so glad -

it's rough with no family around). I just had a friend offer respite for every

other Friday - we get reimbursed for up to $100 a month at a minimum of

$5.15/hour, max of $10/hour. I know what it's like needing respite. I also

have a 13.5 month old, . He's typically developing so far, just a bundle

of energy.

I think you'll find this list great. I get so busy sometimes that I have to hit

the delete key more than I'd like, but they're a great bunch of people. It was

so nice to find other children like . I told my son's psychiatrist when

asked if I had a support group, that this was the only one I really needed.

Welcome aboard.

Loriann

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Karyn,

Hi and welcome. Sounds like you have your hands full! Hope you don't get so

busy that you don't have time to write in once in a while and let us know how

things are going.

Gail, Mom to; Seth-4, jo-8, Becky-9, -23, Jen-24, Grandma to Errick-4

and wife to -my hero

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In a message dated 8/9/00 10:28:18 AM Eastern Daylight Time,

KVanRyzin@... writes:

<< I'm also cleaning like crazy and have the carpet cleaner coming today. We

did

toilet training this winter so the furniture really needs it. >>

Sounds like nesting to me Karyn. LOL Remember that term. I swear my mother

believed it...LOL

Welcome to the group Karyn. It sure does sound like you're going to have

your hands full. Keep us posted on your new arrival if you can; I love

hearing about babies!!!

Donna

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Welcome karyn,

My name is S, I live in the Las Vegas area, and have 5 children.

Matt is the youngest of the bunch, age 9 (10 in a couple of weeks!) and

has DS and ASD.

This is a wonderful list, always full of laughs, support, sometimes

tears, and friendship.

Welcome. We are glad to have you.

S-

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Welcome aboard! We have heard from lots of new people and lurkers this

summer. I think it is great.

& Garry, parents of (9 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted.

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karyn, welcome to our group..i am sure your quite busy with your f-son and

your baby to be......... clonidine has worked some for us too in ashtons

life.....jump in anytime...and its okay to lurk, we like to help anyway we

can.....leah

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