Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Hi - welcome to our group. I think a lot of it is like you said about the "closer to 40" thing. I just turned 40 last summer and this has been the hardest time for me losing weight this go around. Very S-L-O-W!! Of course, I give myself leeway for "treats" too, but still!! Good luck with the journey. in WA Start the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 saint chie calliope <VaguelyWeird@...> wrote: i'm also rather intimidated by the high prices of quality essential oils, and the lack of relatively inexpensive samplers. i like bergamot and vanilla, chie Hi Chie mm yes bergamot and vanilla ...lovely oils as per samples.... there are many companies out there that offer samples at a very reasonable price. Around $2 per sample... Check the suppliers list and it would be worth your while to make some enquiries... as some companies require a minimum irder and others don't ... I'm not sure where you are from so cannot advise. Of course if you are in the EU or not? ! :-D... Albert Vielle a veritable french company has just joined the Guild.... when looking on his site a few days ago I was delighted to see he gives the names of retailers who he supplies to so one can purchase smaller amounts of oils. HTH Every good wish, Janita Janita Haan Natural Perfume http://www.hayspace.co.uk temp new tba Project http://www.flowersofmyddfaiproject.blogspot.com Janita's Attar http://www.janitasattars.blogspot.com --------------------------------- Rise to the challenge for Sport Relief with for Good Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 saint chie calliope wrote: > > i'm also rather intimidated > by the high prices of quality essential oils, and the lack of > relatively inexpensive samplers. > Hi Chie.... Quality EO, absolute, and other perfumery essesnces may seem expensive...but you're really getting a bargain..... If you're working on small scale blending, you won't need much to get where you want to go.... You can look at it (I do) as an investment in your pallette...... A number of the suppliers offer samples....you can check the Guild suppliers for starters.... I've been bumping around this stuff for a while....One tactic I've used many times over the years is to find someone else with the same interests as you, and you together can get around the minimums some suppliers have by co-oping your orders... Oh....Have fun, too....Take notes.... This can be a life-long thing.... -- W. Bourbonais L'Hermite Aromatique Also known as The Hedge Wizard... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 At 09:12 PM 4/13/2008, you wrote: >Hi my name is and I'm mommy to one year old who we are >not vaxing. I look forward to learning lots here! > > >Colorado Welcome So glad you are aware! Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Hey Heidi, Glad you found us. If you look thru the archives I think we went thru a stage of talking about what led us to macrobiotics. There are some geniuses here who can really help you with the prednisone detox issues. Keep asking and reading. Peace, Reggie > > Hello, all! I am very grateful to be here, and look forward to > learning more about macrobiotics. I'm trying to bounce back from years > of severe asthma and allergies, and wondered if anyone has experienced > a significant change in either of those conditions after incorporating > macrobiotics into his or her lifestyle. I'm not only trying to > counteract disease but also the side effects of years of medication > (specifically steroids such as Prednisone). Please know that I'm not > looking for a quick fix, but rather a lasting " shift " in physical state > and mindset. > > It's obvious that this is my best path to pursue for reasons of overall > health -- the food is far more nutritious than the typical Western diet > I've eaten most of my life -- but I was also curious as to whether > anyone had begun their macro journey at a starting point similar to > mine. > > Thank you in advance for any guidance! > > Best, > Hedi > > P.S. I've delved into a number of the recommended texts, and placed an > order at Cybermacro yesterday -- great stuff! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Reggie, I looked through the archives and realized I had the same questions the last time I was a member of this group! I tried to delve into macro in late '06/early '07 and became so overwhelmed with lung issues that any more change wiped me out. I was at the end of my rope energy-wise, which is why I temporarily turned away from macro before fully making it a lifestyle. (WHY is it so hard to do the right thing when you know it's right? Years of habit from eating whatever I wanted, rather than whatever I needed, I suspect!) I kept being drawn back to macro, however, and recently my MIL, who has stage 4 lung cancer, has been urged by one of her physicians to fully adopt a macro diet. Talk about a wake-up call! Best, Hedi > > Hey Heidi, > Glad you found us. > If you look thru the archives I think we went thru a stage of talking about what led us to > macrobiotics. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Reggie, I looked through the archives and realized I had the same questions the last time I was a member of this group! I tried to delve into macro in late '06/early '07 and became so overwhelmed with lung issues that any more change wiped me out. I was at the end of my rope energy-wise, which is why I temporarily turned away from macro before fully making it a lifestyle. (WHY is it so hard to do the right thing when you know it's right? Years of habit from eating whatever I wanted, rather than whatever I needed, I suspect!) I kept being drawn back to macro, however, and recently my MIL, who has stage 4 lung cancer, has been urged by one of her physicians to fully adopt a macro diet. Talk about a wake-up call! Best, Hedi > > Hey Heidi, > Glad you found us. > If you look thru the archives I think we went thru a stage of talking about what led us to > macrobiotics. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Well this is the time to go for it girl!!!! Some people have a difficult time quitting smoking and finally do it, this could be the same for you? Amazing that a physician actually told your MIL to try macro! Maybe with her you can keep up the good work? Look even if you get too overwhelmed don't leave just post whatever you're feeling. Sometimes the support of strangers helps. You can just lurk too, so many here do that. Have a great one Reggie > > Reggie, I looked through the archives and realized I had the same > questions the last time I was a member of this group! I tried to > delve into macro in late '06/early '07 and became so overwhelmed with > lung issues that any more change wiped me out. I was at the end of > my rope energy-wise, which is why I temporarily turned away from > macro before fully making it a lifestyle. (WHY is it so hard to do > the right thing when you know it's right? Years of habit from eating > whatever I wanted, rather than whatever I needed, I suspect!) I kept > being drawn back to macro, however, and recently my MIL, who has > stage 4 lung cancer, has been urged by one of her physicians to fully > adopt a macro diet. Talk about a wake-up call! > > Best, > Hedi > > > > > > > Hey Heidi, > > Glad you found us. > > If you look thru the archives I think we went thru a stage of > talking about what led us to > > macrobiotics. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Well this is the time to go for it girl!!!! Some people have a difficult time quitting smoking and finally do it, this could be the same for you? Amazing that a physician actually told your MIL to try macro! Maybe with her you can keep up the good work? Look even if you get too overwhelmed don't leave just post whatever you're feeling. Sometimes the support of strangers helps. You can just lurk too, so many here do that. Have a great one Reggie > > Reggie, I looked through the archives and realized I had the same > questions the last time I was a member of this group! I tried to > delve into macro in late '06/early '07 and became so overwhelmed with > lung issues that any more change wiped me out. I was at the end of > my rope energy-wise, which is why I temporarily turned away from > macro before fully making it a lifestyle. (WHY is it so hard to do > the right thing when you know it's right? Years of habit from eating > whatever I wanted, rather than whatever I needed, I suspect!) I kept > being drawn back to macro, however, and recently my MIL, who has > stage 4 lung cancer, has been urged by one of her physicians to fully > adopt a macro diet. Talk about a wake-up call! > > Best, > Hedi > > > > > > > Hey Heidi, > > Glad you found us. > > If you look thru the archives I think we went thru a stage of > talking about what led us to > > macrobiotics. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hi, Reggie! I've never smoked -- I've just had severe asthma all my life! My MIL only smoked socially for two years FORTY YEARS ago and it's possible that it contributed to her lung cancer, which blows my mind. I hope that my husband and I can encourage her to fully adopt macro. She met with a macro counselor last week, and she likes the philosophy and recipes. She's physically and emotionally drained from the chemo and radiation, though, so we're trying to talk my FIL into getting on board with macro, as well. If she has a support system "in-house," so to speak, it should help tremendously. Thanks for your encouragement!!! Best, Hedipurpleveg <purpleveg@...> wrote: Well this is the time to go for it girl!!!!Some people have a difficult time quitting smoking and finally do it, this could be the same for you?Amazing that a physician actually told your MIL to try macro! Maybe with her you can keep up the good work?Look even if you get too overwhelmed don't leave just post whatever you're feeling. Sometimes the support of strangers helps. You can just lurk too, so many here do that.Have a great oneReggie . Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hi, Reggie! I've never smoked -- I've just had severe asthma all my life! My MIL only smoked socially for two years FORTY YEARS ago and it's possible that it contributed to her lung cancer, which blows my mind. I hope that my husband and I can encourage her to fully adopt macro. She met with a macro counselor last week, and she likes the philosophy and recipes. She's physically and emotionally drained from the chemo and radiation, though, so we're trying to talk my FIL into getting on board with macro, as well. If she has a support system "in-house," so to speak, it should help tremendously. Thanks for your encouragement!!! Best, Hedipurpleveg <purpleveg@...> wrote: Well this is the time to go for it girl!!!!Some people have a difficult time quitting smoking and finally do it, this could be the same for you?Amazing that a physician actually told your MIL to try macro! Maybe with her you can keep up the good work?Look even if you get too overwhelmed don't leave just post whatever you're feeling. Sometimes the support of strangers helps. You can just lurk too, so many here do that.Have a great oneReggie . Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Heidi I think you misunderstood what I was saying. You said you keep going back to macro and then stopping. I was comparing that to smoking, not saying you smoked. Great about your MIL keep us posted what happens. There are lots of links and recipes here too. Reggie > Well this is the time to go for it girl!!!! > Some people have a difficult time quitting smoking and finally do it, this could be the > same for you? > Amazing that a physician actually told your MIL to try macro! Maybe with her you can > keep up the good work? > Look even if you get too overwhelmed don't leave just post whatever you're feeling. > Sometimes the support of strangers helps. You can just lurk too, so many here do that. > > Have a great one > Reggie > > > > Messages | Files | Photos | Links | Database | Polls | Members | Calendar > > > Change settings via the Web ( ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Terms of Use | Unsubscribe > > . > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Heidi I think you misunderstood what I was saying. You said you keep going back to macro and then stopping. I was comparing that to smoking, not saying you smoked. Great about your MIL keep us posted what happens. There are lots of links and recipes here too. Reggie > Well this is the time to go for it girl!!!! > Some people have a difficult time quitting smoking and finally do it, this could be the > same for you? > Amazing that a physician actually told your MIL to try macro! Maybe with her you can > keep up the good work? > Look even if you get too overwhelmed don't leave just post whatever you're feeling. > Sometimes the support of strangers helps. You can just lurk too, so many here do that. > > Have a great one > Reggie > > > > Messages | Files | Photos | Links | Database | Polls | Members | Calendar > > > Change settings via the Web ( ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Terms of Use | Unsubscribe > > . > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Sorry, Reggie - I TOTALLY misunderstood. The steroid inhaler I'm on for another three weeks has me awake for over 24 hours at a time, then falling asleep for about three, so I'm not at my optimal functioning level right now (and to further prove it, I initially typed "optional" rather than "optimal" -- ugh!). I understand the analogy, and agree with it. What's very weird is that my constant craving of sweets has been zapped in four days . . . I've never lived without it before, so this is lovely. I didn't realize that macro could shake up (and rebuild?) the "psyche" of tastebuds so quickly! Best, Hedipurpleveg <purpleveg@...> wrote: Heidi I think you misunderstood what I was saying. You said you keep going back to macro and then stopping. I was comparing that to smoking, not saying you smoked.Great about your MIL keep us posted what happens.There are lots of links and recipes here too.Reggie> Well this is the time to go for it girl!!!!> Some people have a difficult time quitting smoking and finally do it, this could be the > same for you?> Amazing that a physician actually told your MIL to try macro! Maybe with her you can > keep up the good work?> Look even if you get too overwhelmed don't leave just post whatever you're feeling. > Sometimes the support of strangers helps. You can just lurk too, so many here do that.> > Have a great one> Reggie> > > > Messages | Files | Photos | Links | Database | Polls | Members | Calendar > > > Change settings via the Web ( ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Terms of Use | Unsubscribe > > .> > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Sorry, Reggie - I TOTALLY misunderstood. The steroid inhaler I'm on for another three weeks has me awake for over 24 hours at a time, then falling asleep for about three, so I'm not at my optimal functioning level right now (and to further prove it, I initially typed "optional" rather than "optimal" -- ugh!). I understand the analogy, and agree with it. What's very weird is that my constant craving of sweets has been zapped in four days . . . I've never lived without it before, so this is lovely. I didn't realize that macro could shake up (and rebuild?) the "psyche" of tastebuds so quickly! Best, Hedipurpleveg <purpleveg@...> wrote: Heidi I think you misunderstood what I was saying. You said you keep going back to macro and then stopping. I was comparing that to smoking, not saying you smoked.Great about your MIL keep us posted what happens.There are lots of links and recipes here too.Reggie> Well this is the time to go for it girl!!!!> Some people have a difficult time quitting smoking and finally do it, this could be the > same for you?> Amazing that a physician actually told your MIL to try macro! Maybe with her you can > keep up the good work?> Look even if you get too overwhelmed don't leave just post whatever you're feeling. > Sometimes the support of strangers helps. You can just lurk too, so many here do that.> > Have a great one> Reggie> > > > Messages | Files | Photos | Links | Database | Polls | Members | Calendar > > > Change settings via the Web ( ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Terms of Use | Unsubscribe > > .> > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 I've been misunderstood for worse things. Sorry about your sleep deprivation, that sux You're not the first person to tell me sweet cravings have gone away. I wish that would happen to me!!!! Keep up the good work Reggie > > Well this is the time to go for it girl!!!! > > Some people have a difficult time quitting smoking and finally do it, this could be the > > same for you? > > Amazing that a physician actually told your MIL to try macro! Maybe with her you can > > keep up the good work? > > Look even if you get too overwhelmed don't leave just post whatever you're feeling. > > Sometimes the support of strangers helps. You can just lurk too, so many here do that. > > > > Have a great one > > Reggie > > > > > > > > Messages | Files | Photos | Links | Database | Polls | Members | Calendar > > > > > > Change settings via the Web ( ID required) > > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > > Visit Your Group | Terms of Use | Unsubscribe > > > > . > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 I've been misunderstood for worse things. Sorry about your sleep deprivation, that sux You're not the first person to tell me sweet cravings have gone away. I wish that would happen to me!!!! Keep up the good work Reggie > > Well this is the time to go for it girl!!!! > > Some people have a difficult time quitting smoking and finally do it, this could be the > > same for you? > > Amazing that a physician actually told your MIL to try macro! Maybe with her you can > > keep up the good work? > > Look even if you get too overwhelmed don't leave just post whatever you're feeling. > > Sometimes the support of strangers helps. You can just lurk too, so many here do that. > > > > Have a great one > > Reggie > > > > > > > > Messages | Files | Photos | Links | Database | Polls | Members | Calendar > > > > > > Change settings via the Web ( ID required) > > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > > Visit Your Group | Terms of Use | Unsubscribe > > > > . > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Hi, . Good for you to follow your instincts on this. I wasn't so smart early on. I would tell your husband (nicely, of course) that one person getting polio does not mean all children should be given dozens of vaccines for various other diseases. Have him read the vaccine ingredients on the package inserts, along with the warnings and side effects. That should wake him up! Winnie Intro Vaccinations > Hi, > > Just thought I would post an intro per the welcome email I received. > We have a 3 month old boy named . It took us four years and > IVF to conceive, and we're overjoyed to have him at long last! > > One of my cousins has an autistic son, and that plus all the recent > news coverage on autism and vaccines has really made me wonder about > their safety, so I began reading up about it. I started to get really > frightened of " losing " my son to autism or some other > complication. > > We have decided at the very least not to give some vaccinations > and to > delay the rest. We did allow the Hep B vaccine at birth, because I > hadn't started reading up on all of the concerns about vaccines > I > feel miserably guilty about it and hope I haven't harmed my son. He > hasn't had any vaccinations since. His doctor is less than thrilled. > > The more I read the more I am considering not giving any vaccinations. > My husband is a little more reluctant about all of this since his > father had polio as a child and it left him impaired. I am continuing > to research the issue, and hope this group will help, so I can > convince him I'm right! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 Peggy Cordero is in Lompoc, I'll email you privately w/her email. She and I and others had surgery @ Cedars. Dr. Fuller is the esophageal surgeon there. His wife is a pediatric surgeon and he brings her in for children. Chavez's son Adam had surgery that way last fall and is doing wonderfully. He is about 14 I believe. At UCLA Dr. Maisch is the achalasia surgeon, I believe. Personally, I'd advise against a dialation from any local doctor. Achalasia is very rare, especially in children. There is no way (I'd bet almost anything on it) a pediatric gi could have seen more than one or 2 patients w/ achalasia in their whole career. Ask how many he/she has seen. Dialations can cause scarring making surgery more difficult later. For such a young patient I'd move heaven and earth to make a decision on the best surgeon you can find and get it right the first time. Go to pubmed.com, that is a great resource of summaries of medical articles world wide. For pediatric patients, seems like most parents opt to find the best esophageal surgeon they can find and let that surgeon include the best pediatric surgeon as an assistant. It is really really important the surgeon be done by the best you can find... and you have to make a choice on what you consider the best. People here will advise you, but to my knowledge none of us are doctors of any kind. Email and call the top surgeons and they will call you back almost immediately. They may be on vacation, so ask their staff. Send a little summary of the tests so far. I'd guess w/i a day or so you will have the doctors narrowed down to 3 or 4. Call them and ask them pointed questions about the different approaches. You don't need to get a gossip session out of them, but ask how they do the surgery, tell them what choices you are considering and what they do differently from the other doctors, why is their way better. What differences do they see in pediatric patients. If your achalasis diagnosis is confirmed, I wouldn't suggest any more tests locally. I'd make the decision about which doctors and most of them will request the tests to be done in their hospital for liability reasons. There is great skill needed in any tests, and the surgeons know the abilities and equipment in their own hospital. Achalasia is very rare in adults and even rarer in children. Peggy went through every one in Central Coast area and she is really thorough. I'm not sure who is in San Francisco now, Dr. Campos is who Venable sees in San Francisco Dr. Maisch is at UCLA, Dr. Fuller @ Cedars. Dr. DeMeester @ USC. I'm not aware of anyone in San Diego. Go to those facilities' websites and type in esophageal diseases; chest diseases; achalasia and get the heads of the departments. Others will give you names outside of CA, I'm sure. I'll send you Peggy's and 's phone numbers privately. Sandy in Long Beach > > Hi, > > I am the mother of a new adopted 4 year old daughter that has recently > been diagnosed with achalasia. The pediatric gastro doc we saw in town > wants to schedule and endoscopy with a possible dilatation. > > We are in central California, are there any other people on the list > with children on the west coast? The doctor we saw is at UCLA, his name > is Dr. Vargas. Does anyone have any pediatric gastro references in > California? Our older daughter had heart surgery at Children's in LA, > do they have someone qualified to treat achalasia? > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 I've " heard " that many of the doctors at UCLA, Cedars, USC also have privileges at Childrens' Hospital. That hospital is part of the medical schools and seems like they all kind of overlap. If you prefer Childrens' ask if those names I gave you also come there. There is also Children's Hospital of Orange County, I know a girl that has had really BAD reflux and had to have a fundoplication a few months ago, 10 years old and the family is really happy w/ CHOC. UC Irvine is the one major hospital I haven't really heard of any great surgeon or department. I was referred to a name there early on, but he was REALLY young and new so I passed. Sandy > > > > Hi, > > > > I am the mother of a new adopted 4 year old daughter that has recently > > been diagnosed with achalasia. The pediatric gastro doc we saw in town > > wants to schedule and endoscopy with a possible dilatation. > > > > We are in central California, are there any other people on the list > > with children on the west coast? The doctor we saw is at UCLA, his > name > > is Dr. Vargas. Does anyone have any pediatric gastro references in > > California? Our older daughter had heart surgery at Children's in LA, > > do they have someone qualified to treat achalasia? > > > > Thanks! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2008 Report Share Posted July 24, 2008 Hi, Claudy--welcome! It is worrisome to think of your child getting a disease and smart of you to stay in for a bit when they're brand new to this world. I know of only one person who didn't vax at all and her college-aged son is the picture of good health. Others I know quit because of vaccine reactions, learning the hard way like you did. About the three diseases you specifically mentioned that worry you: vaccines to prevent them and drugs to treat them are two different things. FYI--you can get tetanus over and over, so if it doesn't give you natural immunity, a vaccine won't either. If you choose to use antibiotics to treat diphtheria or meningitis, then do that. However, it might very well never happen that your children get them. My children (ages 9-18) haven't, but if they did it would never occur to me to regret not vaccinating because I don't believe vaccines work. By the way, my first two are partially vaxed, the others not--and none have had any meningitis vaccine. Never got meningitis. Didn't need the vaccine. You had good luck with homeopathy so I suggest you continue learning about that. Wonderful stuff. Winnie Intro Vaccinations > Hi My name is Claudy (for this list anyway) > > I have two sons. DS1 is 9 and is vaxed (uk schedule) up to MMR > when he > developed a measles type rash and had tempreture spikes for > weeks later. He was > put on penecillen and was allergic. We have not vaxed him > since. He then > went on to develop henoch schonlein pupura and got bad > arthritus along with it. > He recovered well but it took nearly a year for him to become > half the > energetic person he was. He often complains of tiredness now, > even though he can > be very active for long periods. He got this at 7. My new > baby is 12 weeks > and has had no vaxes at all. We refused vit K for both boys. > My elder son > also suffered many many ear infections after his DTaP > injections and had a > massive febrile convulsion (not at the time of vaxing). My > brother also > suffered febrile convulsions that became so normal to us, he is > also very > dyslexic. > > The whole reasearch thing is daunting, I am blessed to know a > large family > that dont vax and that gives me some comfort. I am very scared > of my little > one getting diseases and I basically stayed in for the first > month of his life > and am very selective where I go. > > I did use homeopathy for my DS1 after the MMR and I dont know > how but it > fixed him and he changed to a happy, healthy little boy, whereas > before he was > clingy and poorly. > > I am a committed christian and am doing my upmost to give my > family organic > foods. > > I have some questions, The childhood diseases I can sort of get > my head > around, but when it comes to the more difficult diseases like > tetnus and > diptheria and mennigitus I dont think that I am ready to let go > with allopathic > medicines, anitbiotics do save lives. What do other's think. > Also any other > christians have views about the nature of homeopathy and any > possible conflict > it may have with christianity, I would be happy to be contacted > off list so as > to avoid any bad feelings or situations developing. > > Also just testamonials of bringing up children vax free would be > great. > > blessings > > Claudy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Welcome!!!! All though I wish for no child or parent to walk done this path, at least you have found a place were we all share a common bound!!! Wow you have your hands full! Considering your son's NEMO DX I would ask about Genetic testing for your daughter for the known PFS diseases. Also I would at least have you immuno doc contact Dr. KAstner at NIH as he may be of help..He might be hard to get intouch with but worth the effort...he will proberly be very interested in your family's medical History...as some of the families whom children are seen at NIH have very 'odd/rare' immune deficiency's...my daughter being one of those Breana,. my daughter, is 7.5 years old and has been dealing with everything you said since 2 wks post birth. No peeling of skin and symptoms were not all present until 2 years of age but ulcers and fevers and stomach issues since 2 wks. She also has hearing loss learning disabilities, PT OT and speech issues! We battle 107+ fevers since she was 1.5 years old(fevers started at 104 for her first 1.5yrs). She has had the genetic testing and everything has come back - She also has rare immunodeficiency stuff. We travel to NIH in land every 4-6 months for treatment and have been doing this for 5.5yrs. She had a T & A when she was 2 and it did extend her fever's from every 12 days to every 18! For us that was huge, plus her sleep was better! We have tried many different treatments and nothing has completely stopped everything and she more often than not is on pain meds also. Her DX is auto immune inflammatory disease of unknown etiology...which is with known inflammation and constant inflammation markers no matter if fever is present or not. By inflammation markers I mean C-Reactive protein and SEd rates. Have your daughter have lab work that includes these markers when she is fevering and not fevering and also if she has sign with no fever! When you say her immune markers are off but not severe which ones and are they close to yours sons? , from MA Breana 7.5years 18!! Jeez were have the years gone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Welcome!!!! All though I wish for no child or parent to walk done this path, at least you have found a place were we all share a common bound!!! Wow you have your hands full! Considering your son's NEMO DX I would ask about Genetic testing for your daughter for the known PFS diseases. Also I would at least have you immuno doc contact Dr. KAstner at NIH as he may be of help..He might be hard to get intouch with but worth the effort...he will proberly be very interested in your family's medical History...as some of the families whom children are seen at NIH have very 'odd/rare' immune deficiency's...my daughter being one of those Breana,. my daughter, is 7.5 years old and has been dealing with everything you said since 2 wks post birth. No peeling of skin and symptoms were not all present until 2 years of age but ulcers and fevers and stomach issues since 2 wks. She also has hearing loss learning disabilities, PT OT and speech issues! We battle 107+ fevers since she was 1.5 years old(fevers started at 104 for her first 1.5yrs). She has had the genetic testing and everything has come back - She also has rare immunodeficiency stuff. We travel to NIH in land every 4-6 months for treatment and have been doing this for 5.5yrs. She had a T & A when she was 2 and it did extend her fever's from every 12 days to every 18! For us that was huge, plus her sleep was better! We have tried many different treatments and nothing has completely stopped everything and she more often than not is on pain meds also. Her DX is auto immune inflammatory disease of unknown etiology...which is with known inflammation and constant inflammation markers no matter if fever is present or not. By inflammation markers I mean C-Reactive protein and SEd rates. Have your daughter have lab work that includes these markers when she is fevering and not fevering and also if she has sign with no fever! When you say her immune markers are off but not severe which ones and are they close to yours sons? , from MA Breana 7.5years 18!! Jeez were have the years gone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Welcome!!!! All though I wish for no child or parent to walk done this path, at least you have found a place were we all share a common bound!!! Wow you have your hands full! Considering your son's NEMO DX I would ask about Genetic testing for your daughter for the known PFS diseases. Also I would at least have you immuno doc contact Dr. KAstner at NIH as he may be of help..He might be hard to get intouch with but worth the effort...he will proberly be very interested in your family's medical History...as some of the families whom children are seen at NIH have very 'odd/rare' immune deficiency's...my daughter being one of those Breana,. my daughter, is 7.5 years old and has been dealing with everything you said since 2 wks post birth. No peeling of skin and symptoms were not all present until 2 years of age but ulcers and fevers and stomach issues since 2 wks. She also has hearing loss learning disabilities, PT OT and speech issues! We battle 107+ fevers since she was 1.5 years old(fevers started at 104 for her first 1.5yrs). She has had the genetic testing and everything has come back - She also has rare immunodeficiency stuff. We travel to NIH in land every 4-6 months for treatment and have been doing this for 5.5yrs. She had a T & A when she was 2 and it did extend her fever's from every 12 days to every 18! For us that was huge, plus her sleep was better! We have tried many different treatments and nothing has completely stopped everything and she more often than not is on pain meds also. Her DX is auto immune inflammatory disease of unknown etiology...which is with known inflammation and constant inflammation markers no matter if fever is present or not. By inflammation markers I mean C-Reactive protein and SEd rates. Have your daughter have lab work that includes these markers when she is fevering and not fevering and also if she has sign with no fever! When you say her immune markers are off but not severe which ones and are they close to yours sons? , from MA Breana 7.5years 18!! Jeez were have the years gone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 My son took 600mg a day for 6 months didn't help him so he is on colchicine now. So I think you are on the normal track that we all go threw. good luck char. Quote Link to comment Share on other sites More sharing options...
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